Parental Experiences and Needs After Life-Limiting Fetal Diagnosis



After receiving a life-limiting prenatal diagnosis, parents typically experience a swirl of emotions and need to make significant decisions about the remainder of the pregnancy and about their baby’s care after birth. Many parents find purpose in parenting their baby before as well as after birth, imbuing their baby’s life with meaning and creating memories to sustain them later. Parents generally need significant support from health professionals and others with understanding the diagnosis and prognosis, to learn what treatment options there are and the implications of these choices, and to provide direct patient and family-centered care. Resources are gradually becoming more widely available for supporting parents continuing their pregnancies with a life-limiting prenatal diagnosis.


Perinatal palliative care Perinatal hospice Decision-making 


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Copyright information

© Springer Nature Switzerland AG 2020

Authors and Affiliations

  1. 1.Editor, perinatalhospice.orgSt. PaulUSA
  2. 2.University of Rochester Medical Center/Strong Memorial Hospital, Department of Medicine, Division of Palliative CareRochesterUSA

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