Skip to main content

Engaging Hard-to-Reach, Hidden, and Seldom-Heard Populations in Research

  • Chapter
  • First Online:
Knowledge, Innovation, and Impact: A Guide for the Engaged Health Researcher

Abstract

It is imperative that researchers consult and include members of their true target group in research. This is especially important when the target group is challenging to engage. Researchers should ensure that findings are applicable to contexts outside of the study situation (for qualitative research) or their participants are representative (for quantitative research) of the target group so that the results may be generalizable to others outside of the research study. It is difficult to connect with some groups of people who (1) are hard to find, (2) who do not wish to be found, or (3) who are not typically recruited in research using traditionally planned recruitment methods. These groups can also be referred to as hard-to-reach (i.e., hard to find), hidden populations (i.e., those who do not wish to be found), and seldom-heard (i.e., those who are often not included in recruitment). This chapter describes similarities and differences between these groups and offers strategies to recognize, address, and overcome challenges and to support inclusion of these groups in research. The importance of developing meaningful and authentic relationships with these participants is addressed in a separate chapter.

This is a preview of subscription content, log in via an institution to check access.

Access this chapter

Chapter
USD 29.95
Price excludes VAT (USA)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever
eBook
USD 39.99
Price excludes VAT (USA)
  • Available as EPUB and PDF
  • Read on any device
  • Instant download
  • Own it forever
Softcover Book
USD 54.99
Price excludes VAT (USA)
  • Compact, lightweight edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info
Hardcover Book
USD 79.99
Price excludes VAT (USA)
  • Durable hardcover edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info

Tax calculation will be finalised at checkout

Purchases are for personal use only

Institutional subscriptions

References

  • Bonevski, B., Randell, M., Paul, C., Chapman, K., Twyman, L., Bryant, J., … Hughes, C. (2014). Reaching the hard-to-reach: A systematic review of strategies for improving health and medical research with socially disadvantaged groups. BMC Medical Research Methodology, 14(1), 42.

    Article  Google Scholar 

  • Canadian Institutes for Health Research. (2017). CIHR Strategy for patient-oriented research. http://www.cihr-irsc.gc.ca/e/41204.html.

  • Chambers, R. (1994). The origins and practice of participatory rural appraisal. World Development, 22(7), 953–969.

    Article  Google Scholar 

  • Corbett, J. (2009). Good practices in participatory mapping. Rome: International Fund for Agricultural Development.

    Google Scholar 

  • Fang, M. L., Woolrych, R., Sixsmith, J., Canham, S., Battersby, L., & Sixsmith, A. (2016). Place-making with older persons: Establishing sense-of-place through participatory community mapping workshops. Social Science & Medicine, 168, 223–229.

    Article  Google Scholar 

  • Seventh Generation Midwives and Well Living House. (2018). Our health counts Toronto. http://www.welllivinghouse.com/what-we-do/projects/our-health-counts-toronto/.

  • Wood, A. M., Froh, J. J., & Geraghty, A. W. (2010). Gratitude and well-being: A review and theoretical integration. Clinical Psychology Review, 30(7), 890–905.

    Article  Google Scholar 

  • Zweben, A., Fucito, L. M., & O’Malley, S. S. (2009). Effective strategies for maintaining research participation in clinical trials. Drug Information Journal, 43(4), 459–467.

    Article  Google Scholar 

Download references

Author information

Authors and Affiliations

Authors

Corresponding author

Correspondence to Shannon Freeman .

Editor information

Editors and Affiliations

Rights and permissions

Reprints and permissions

Copyright information

© 2021 Springer Nature Switzerland AG

About this chapter

Check for updates. Verify currency and authenticity via CrossMark

Cite this chapter

Freeman, S., Skinner, K., Middleton, L., Xiong, B., Fang, M.L. (2021). Engaging Hard-to-Reach, Hidden, and Seldom-Heard Populations in Research. In: Sixsmith, A., Sixsmith, J., Mihailidis, A., Fang, M.L. (eds) Knowledge, Innovation, and Impact: A Guide for the Engaged Health Researcher. International Perspectives on Social Policy, Administration, and Practice. Springer, Cham. https://doi.org/10.1007/978-3-030-34390-3_11

Download citation

  • DOI: https://doi.org/10.1007/978-3-030-34390-3_11

  • Published:

  • Publisher Name: Springer, Cham

  • Print ISBN: 978-3-030-34389-7

  • Online ISBN: 978-3-030-34390-3

  • eBook Packages: Social SciencesSocial Sciences (R0)

Publish with us

Policies and ethics