Abstract
Researchers in the field of bioethics have increasingly been confronted with empirical research on bioethical questions. This development has raised the question as to the extent to which empirical contributions both relate to normative approaches in bioethics and aspire to achieve normative statements about the topics under study. Therefore, in this article we aim to reflect on the contribution of empirical research to normative ethical reflection and decision-making. Firstly, we describe narrative. Narratives allow us to reflect on moral dilemmas in ways that are different to what a theoretical approach allows. Secondly, we describe the different contributions that empirical research could have for ethical reflection and decision-making, as is described in the literature. Thirdly, we describe the critical applied ethics model, which is a theoretical approach for viewing the interaction between empirical data and normative theories as a two-way relationship.
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References
Ackerman, T.F. 1980. What Bioethics Should Be. Journal of Medicine and Philosophy 5: 260–275.
Beauchamp, T.L., and J.F. Childress. 2001. Principles of Biomedical Ethics. New York: Oxford University Press.
Borry, P., P. Schotsmans, and K. Dierickx. 2004. What Is the Role of Empirical Research in Bioethical Reflection and Decision-Making? An Ethical Analysis. Medicine, Health Care and Philosophy 7: 41–53.
———. 2005. The Birth of the Empirical Turn in Bioethics. Bioethics 19: 49–71.
Borry, P., M. Shabani, and H.C. Howard. 2014. Is There a Right Time to Know? The Right Not to Know and Genetic Testing in Children. The Journal of Law, Medicine & Ethics 42(1): 19–27.
Braddock, C.H., 3rd. 1994. The Role of Empirical Research in Medical Ethics: Asking Questions or Answering Them? Journal of Clinical Ethics 5: 144–147.
Brody, B.A. 1993. Assessing Empirical Research in Bioethics. Theoretical Medicine and Bioethics 14: 211–219.
de Vries, R., and P. Conrad. 1998. Why Bioethics Needs Sociology. In Bioethics and Society. Constructing the Ethical Enterprise, ed. R. de Vries and J. Subedi. Upper Saddle River: Prentice Hall.
Duncan, R.E., and M.B. Delatycki. 2006. Predictive Genetic Testing in Young People for Adultonset Conditions: Where is the Empirical Evidence? Clinical Genetics 69(1): 8–16.
Fox, R.C., and R. de Vries. 1998. Afterword: The Sociology of Bioethics. In Bioethics and Society. Constructing the Ethical Enterprise, ed. R. de Vries and J. Subedi. Upper Saddle River: Prentice Hall.
Fulford, W.K.M. 1994. Not More Medical Ethics. In Medicine and Moral Reasoning, ed. W.K.M. Fulford, G.R. Gillet, and J.M. Soskice. Cambridge: Cambridge University Press.
Kon, A.A. 2009. The Role of Empirical Research in Bioethics. The American Journal of Bioethics 9: 59–65.
Leget, C., and P. Borry. 2010. Empirical Ethics: The Case of Dignity in End-of-Life Decisions. Ethical Perspectives 17: 231–250.
Leget, C., P. Borry, and R. de Vries. 2009. ‘Nobody Tosses a Dwarf!’ The Relation Between the Empirical and the Normative Reexamined. Bioethics 23: 226–235.
Miller, F.G. 2002. Ethical Significance of Ethics-Related Empirical Research. Journal of the National Cancer Institute 94: 1821–1822.
Molewijk, B., A.M. Stiggelbout, W. Otten, H.M. Dupuis, and J. Kievit. 2004. Scientific Contribution. Empirical Data and Moral Theory. A Plea for Integrated Empirical Ethics. Medicine, Health Care and Philosophy 7: 55–69.
Nelson, J.L. 2000. Moral Teachings from Unexpected Quarters: Lessons for Bioethics from the Social Sciences and Managed Care. Hastings Center Report 30: 12–17.
Nelson, H.L. 2014. Stories and their Limits: Narrative Approaches to Bioethics. New York: Routledge.
Nilstun, T., and P. Sjökvist. 2001. From Fact to Recommendation: Explicit Value Premises Make the Conclusion more Convincing. Journal of Internal Medicine 249: 121–126.
Nilstun, T., G. Melltorp, and G. Hermerén. 2000. Surveys on Attitudes to Active Euthanasia and the Difficulty of Drawing Normative Conclusions. Scandinavian Journal of Social Medicine 28: 111–116.
Nordgren, A. 2014. Neither as Harmful as Feared by Critics nor as Empowering as Promised by Providers: Risk Information Offered Direct to Consumer by Personal Genomics Companies. Journal of Community Genetics 5(1): 59–68.
Porz, R. 2008. Zwischen Entscheidung und Entfremdung: Patientenperspektiven in der Gendiagnostik und Albert Camus' Konzepte zum Absurden; eine empirisch-ethische Interviewstudie, Mentis.
Sugarman, J. 2004. The Future of Empirical Research in Bioethics. The Journal of Law, Medicine & Ethics 32: 226–231.
Sulmasy, D.P., and J. Sugarman. 2001. The Many Methods of Medical Ethics (Or, Thirteen Ways of Looking at a Blackbird). In Methods in Medical Ethics, ed. D.P. Sulmasy and J. Sugarman. Washington, DC: Georgetown University Press.
van der Scheer, L., G. Widdershoven, G. van Thiel, and J. van Delden. 2004. Theory and Methodology of Empirical-Ethical Research. In Engaging the World: The Use of Empirical Research in Bioethics and the Regulation of Biotechnology, ed. S. Holm and M. Jonas. Amsterdam: IOS Press.
van Willigenburg, T., A. van den Beld, F. Heeger, and M. Verweij. 1993. Ethiek in praktijk. Assen: Van Gorcum.
Weisz, G. 1990. Introduction. In Social Science Perspectives on Medical Ethics, ed. G. Weisz. Dordrecht: Kluwer.
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Ives, J., M. Dunn, and A. Cribb, eds. 2016. Empirical Bioethics: Theoretical and Practical Perspectives, (Cambridge Bioethics and Law). Cambridge: Cambridge University Press. https://doi.org/10.1017/9781139939829
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Combining discussions of meta-ethical challenges, examples of different methodologies for integrating empirical and normative research, and reflection on the challenges of conducting and publishing such work, this book is a nice introduction to the relationship between empirical and normative approaches in bioethics.
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Widdershoven G., T. Hope, L. van der Scheer, and J. Mcmillan, eds. 2008. Empirical Ethics in Psychiatry. Oxford: Oxford University Press. ISBN: 9780199297368.
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The book provides a nice collection on articles that discuss the possibility of empirical ethics from a theoretical standpoint and an overview of the history of empirical medical ethics in general. Moreover, the book provides examples of empirical research with ethical implications in the domain of psychiatry.
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Porz, R., Borry, P. (2020). Combining Empirical Data and Normativity: Possible or Not?. In: Gielen, J. (eds) Dealing with Bioethical Issues in a Globalized World . Advancing Global Bioethics, vol 14. Springer, Cham. https://doi.org/10.1007/978-3-030-30432-4_9
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