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Children’s Palliative Care Across a Range of Conditions, Settings and Resources

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Children’s Palliative Care: An International Case-Based Manual

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References

  • American Academy of Pediatrics. Committee on Bioethics and Committee on Hospital Care. Palliative Care for Children. Pediatrics. 2000;106(2):351–7.

    Article  Google Scholar 

  • Amery J, editor. Children’s palliative care in Africa. Oxford: Oxford University Press; 2009.

    Google Scholar 

  • Bona K, Bates J, Wolfe J. Massachusetts’ Pediatric Palliative Care Network: successful implementation of a novel state-funded pediatric palliative care program. J Palliat Med. 2011;14(11):1217–23.

    Article  Google Scholar 

  • Connor S, Sepulveda C, editors. Global Atlas of palliative care at the end of life. Geneva/London: World Health Organization/Worldwide Hospice Palliative Care Alliance; 2014.

    Google Scholar 

  • Coyne I, Amory A, Kiernan G, Gibson F. Children’s participation in shared decision-making: children, adolescents, parents and healthcare professionals’ perspectives and experiences. Eur J Oncol Nurs. 2014;18(3):273–80.

    Article  Google Scholar 

  • Davies B, Sehring SA, Partridge JC, Cooper BA, Hughes A, Philp JC, Amidi-Nouri A, Kramer RF. Barriers to palliative care for children: perceptions of pediatric health care providers. Pediatrics. 2008;121(2):282–8.

    Article  Google Scholar 

  • Drenth C, Sithole Z, Pudule E, Wüst S, GunnClark N, Gwyther L. Palliative care in South Africa. J Pain Symptom Manage. 2018;55(2):S170–7.

    Article  Google Scholar 

  • Feudtner C, Hays RM, Haynes G, Geyer JR, Neff JM, Koepsell TD. Deaths attributed to pediatric complex chronic conditions: national trends and implications for supportive care services. Pediatrics. 2001;107(6):e99.

    Article  CAS  Google Scholar 

  • Feudtner C, Feinstein JA, Satchell M, Zhao H, Kang TI. Shifting place of death among children with complex chronic conditions in the United States, 1989–2003. JAMA. 2007;297(24):2725–32.

    Article  CAS  Google Scholar 

  • Harding R, Selman L, Powell RA, Namisango E, Downing J, Merriman A, Ali Z, Gikaara N, Gwyther L, Higginson I. Research into palliative care in sub-Saharan Africa. Lancet Oncol. 2013;14(4):e183–8.

    Article  Google Scholar 

  • Hays RM, Valentine J, Haynes G, Geyer JR, Villareale N, Mckinstry B, Vami JW, Churchill SS. The Seattle Pediatric Palliative Care Project: effects on family satisfaction and health-related quality of life. J Palliat Med. 2006;9(3):716–28.

    Article  Google Scholar 

  • Institute of Medicine (US) Committee on Palliative and End-of-Life Care for Children and Their Families. Chapter 2. Patterns of Childhood death in America. In: Field MJ, Behrman RE, editors. When children die: improving palliative and end-of-life care for children and their families. US: National Academies Press; 2003.

    Google Scholar 

  • Kumar SK. Kerala, India: a regional community-based palliative care model. J Pain Symptom Manage. 2007;33(5):623–7.

    Article  Google Scholar 

  • McCulloch R, Comac M, Craig F. Paediatric palliative care: coming of age in oncology? Eur J Cancer. 2008;44(8):1139–45.

    Article  Google Scholar 

  • Together for Short Lives, editor. A guide to Children’s Palliative Care: supporting babies, children and young people with life-limiting and life-threatening conditions and their families. 4th ed. Bristol: Together for Short Lives; 2018.

    Google Scholar 

  • Weaver MS, Heinze KE, Bell CJ, Wiener L, Garee AM, Kelly KP, Casey RL, Watson A, Hinds PS, Pediatric Palliative Care Special Interest Group at Children’s National Health System. Establishing psychosocial palliative care standards for children and adolescents with cancer and their families: an integrative review. Palliat Med. 2016;30(3):212–23.

    Article  Google Scholar 

  • WHO. WHA67.19. Strengthening of palliative care as a component of comprehensive care throughout the life course. Geneva: WHO; 2014.

    Google Scholar 

  • WHO. Integrating palliative care and symptom relief into paediatrics: a WHO guide for health-care planners, implementers and managers. Geneva: WHO; 2018.

    Google Scholar 

  • WHO. Children: reducing mortality. 2019. https://www.who.int/news-room/fact-sheets/detail/children-reducing-mortality. Accessed 20 Sept 2019.

  • Widger K, Davies D, Drouin DJ, Beaune L, Daoust L, Farran RP, Humbert N, Nalewajek F, Rattray M, Rugg M, Bishop M. Pediatric patients receiving palliative care in Canada: results of a multicenter review. Arch Pediatr Adolesc Med. 2007;161(6):597–602.

    Article  Google Scholar 

  • Wolfe J, Hinds PS, Sourkes BM. Textbook of interdisciplinary pediatric palliative care. Philadelphia: Elsevier Health Sciences; 2011.

    Google Scholar 

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Correspondence to Lizzie Chambers .

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Doherty, M., Okhuysen-Cawley, R., Chambers, L. (2020). Children’s Palliative Care Across a Range of Conditions, Settings and Resources. In: Downing, J. (eds) Children’s Palliative Care: An International Case-Based Manual. Springer, Cham. https://doi.org/10.1007/978-3-030-27375-0_3

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  • DOI: https://doi.org/10.1007/978-3-030-27375-0_3

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