After the Tango in the Doorway: An Autoethnography of Living with Persistent Pain
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People seeking help for their pain are influenced by family habits and attitudes towards healthcare and accepting clinical opinion.
Although persistent pain is common, “othering” or the tendency to see those with persistent pain as different from clinicians (in a negative way) is frequently encountered. This may be inadvertent but results in stigma.
Information about pain mechanisms is insufficient for supporting a new way of living life for people with persistent pain.
People with persistent pain may reject the narratives of people who have learned to live well with their pain, and this can be isolating and difficult to deal with.
There is little research investigating how clinicians advise people of their persistent pain diagnosis, leaving a gap in our understanding of the best way to convey this information.
Researchers who themselves live with persistent pain provide a unique insight into what it is like and may offer new ways for clinicians to carry out their work.
KeywordsOthering Health professional attitudes Persistent pain Autoethnography
- 1.Chang H. Autoethnography: raising cultural consciousness of self and others. In: Methodological developments in ethnography. Bingley: Emerald Group; 2007. p. 207–21.Google Scholar
- 2.Ellis C, Adams TE, Bochner AP. Autoethnography: an overview. Hist Soc Res. 2011:273–90.Google Scholar
- 4.Adams TE, Ellis C, Jones SH. Autoethnography. In: Matthes J, editor. The international encyclopedia of communication research methods. Hoboken, NJ: Wiley-Blackwell; 2017.Google Scholar
- 9.Spencer-Oatey H. What is culture? A compilation of quotations. GlobalPAD Core Concepts. Available at GlobalPAD Open House. Retrieved; 2015.Google Scholar
- 13.Loeser JD. In Memoriam: John J. Bonica [Internet]. Seattle: International Association for the Study of Pain; 1994 [cited 2019 1/8/2019]. Available from: https://www.iasp-pain.org/JohnBonica.
- 14.McKenzie Institute New Zealand. About Robin McKenzie [Internet]; undated [cited 02/02/2019]. Available from: http://www.mckenzieinstitute.org/nz/en/about-us/undefined/.
- 15.Melzack R, Wall PD. The challenge of pain. 2nd ed. London: Penguin; 1996. 447 p.Google Scholar
- 18.Tan SSL, Goonawardene N. Internet health information seeking and the patient-physician relationship: a systematic review. J Med Int Res. 2017;19(1):e9.Google Scholar
- 23.Zwar N, Harris M, Griffiths R, Roland M, Dennis S, Powell Davies G, et al. A systematic review of chronic disease management. New South Wales: Research Centre for Primary Health Care and Equity, Medicine SoPHaC; 2006.Google Scholar
- 24.Hibbard JH, Greene J, Sacks RM, Overton V, Parrotta C. Improving population health management strategies: identifying patients who are more likely to be users of avoidable costly care and those more likely to develop a new chronic disease. Health Serv Res. 2017;52(4):1297–309.PubMedCrossRefGoogle Scholar
- 28.Seedman J. The truth about pain science, exercise, and movement [Internet]. 2019 [cited 15/1/2019]. Available from: https://www.advancedhumanperformance.com/blog/pain-science-exercise.
- 29.Loeser JD. Multidisciplinary pain management. In: Merskey H, Loeser JD, Dubner R, editors. The paths of pain. Seattle: IASP Press; 2005. p. 503–11.Google Scholar
- 30.Flor H, Turk DC. Chronic pain: an integrated biobehavioral approach. Seattle: Lippincott Williams & Wilkins; 2015. 547 p.Google Scholar
- 31.Main CJ, Sullivan MJL, Watson PJ. Pain management: practical applications of the biopsychosocial perspective. 2nd ed. Edinburgh: Churchill Livingstone; 2008. 432 p.Google Scholar
- 38.Lennox Thompson B, Gage J, Kirk R. Living well with chronic pain: a classical grounded theory. Disabil Rehabil. 2019:1–12.Google Scholar
- 43.International Association for the Study of Pain (IASP). IASP council adopts task force recommendation for third mechanistic descriptor of pain [Internet]. Washington, DC: International association for the study of pain. 2017 [cited 10/01/2019]. Available from: https://www.iasp-pain.org/PublicationsNews/NewsDetail.aspx?ItemNumber=6862.
- 49.Lehti A, Fjellman-Wiklund A, Stalnacke BM, Hammarstrom A, Wiklund M. Walking down ‘Via Dolorosa’ from primary health care to the specialty pain clinic-patient and professional perceptions of inequity in rehabilitation of chronic pain. Scand J Caring Sci. 2017;31(1):45–53.PubMedCrossRefGoogle Scholar
- 53.Morris DB. Animal pain: the limits of meaning. In: van Rysewyk S, editor. Meanings of pain. Cham: Springer; 2017. p. 389–99.Google Scholar
- 54.Brons L. Othering: an analysis. Transcience: J Global Stud. 2015;6(1):69–90.Google Scholar
- 55.Calvo FC, Karras BT, Phillips RL, Kimball AM, Wolf F, editors. Diagnoses, syndromes, and diseases: a knowledge representation problem. Washington: AMIA; 2003:802.Google Scholar
- 56.Leach B, Norris JL. Factors in the Development of Alcoholics Anonymous (A.A.). In: Kissin B, Begleiter H, editors. The biology of alcoholism: volume 5: treatment and rehabilitation of the chronic alcoholic. Boston: Springer; 1977. p. 441–543.Google Scholar
- 57.New Zealand Ministry of Health. Annual data explorer 2016/17: New Zealand health survey [Internet]. 2017 [cited 04/02/2019]. Available from: https://minhealthnz.shinyapps.io/nz-health-survey-2016-17-annual-update/.
- 58.Price DD, Aydede M. The experimental use of introspection in the scientific study of pain and its integration with third-person methodologies: the experiential-phenomenological approach. In: Aydede M, editor. Pain: new essays on its nature and the methodology of its study. Cambridge: The MIT Press; 2005. p. 243–74.Google Scholar
- 59.Charlton JI. Nothing about us without us: disability oppression and empowerment. Berkeley: University of California Press; 2000. 220 p.Google Scholar