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Data Collection and Research

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The Equal Curriculum

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Abstract

Collecting sexual orientation and gender identity (SOGI) information is important for delivering patient-centered care to individuals and for ensuring that programs and processes meet the needs of sexual and gender minority (SGM) populations. Within any hospital, clinic, or health care system, the electronic health record (EHR) may or may not include fields for recording SOGI demographic information. There are limited population-based data and large-scale research initiatives that include variables to identify lesbian, gay, bisexual, transgender, and queer (LGBTQ) individuals. Consequently, the full scope of health disparities, individual health needs, and other issues faced by LGBTQ people have not been not adequately characterized on the population level. This chapter discusses the implications of inadequate data in health records and research and opportunities for improvement. Examples of satisfactory clinical data collection practices can be found in Chap. 3.

The first listed author is the chapter’s associate editor from The Equal Curriculum Project. The chapter authors are otherwise ordered according to their preference.

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Author information

Authors and Affiliations

  1. David Geffen School of Medicine, Los Angeles, CA, USA

    Michael Haymer

  2. NYU Langone Medical Center, New York, NY, USA

    Nadejda Bespalova

  3. University of Pennsylvania Health System, Philadelphia, PA, USA

    Laura Jennings

  4. Johns Hopkins School of Medicine, Baltimore, MD, USA

    Brandyn D. Lau

Authors
  1. Michael Haymer
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  2. Nadejda Bespalova
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  3. Laura Jennings
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  4. Brandyn D. Lau
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Corresponding author

Correspondence to Michael Haymer .

Editor information

Editors and Affiliations

  1. Department of Psychiatry, University of Wisconsin–Madison, Madison, WI, USA

    James R. Lehman

  2. Medical Directorate, Defense Health Agency-National Capital, Bethesda, MD, USA

    Kristine Diaz

  3. MetroHealth Medical Center, The MetroHealth System, Cleveland, OH, USA

    Henry Ng

  4. UW School of Medicine and Public Health, University of Wisconsin–Madison, Madison, WI, USA

    Elizabeth M. Petty

  5. University of Louisville, Louisville, KY, USA

    Meena Thatikunta

  6. Department of Psychiatry, University of Pittsburgh, Pittsburgh, PA, USA

    Kristen Eckstrand

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Haymer, M., Bespalova, N., Jennings, L., Lau, B.D. (2020). Data Collection and Research. In: Lehman, J., Diaz, K., Ng, H., Petty, E., Thatikunta, M., Eckstrand, K. (eds) The Equal Curriculum. Springer, Cham. https://doi.org/10.1007/978-3-030-24025-7_13

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  • DOI: https://doi.org/10.1007/978-3-030-24025-7_13

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  • Publisher Name: Springer, Cham

  • Print ISBN: 978-3-030-24024-0

  • Online ISBN: 978-3-030-24025-7

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