Advance Directives, Do Not Resuscitate Orders, Hospice, Organ Transplantation and Physician Assisted Suicide

  • H. Russell SearightEmail author
Part of the SpringerBriefs in Ethics book series (BRIEFSETHIC)


Advance care planning can take a number of forms including discussions with family members that are not formally documented, similar discussions with one’s physician, and directives for level of care during hospitalization such as do not resuscitate (DNR) orders.


  1. Alexander, G. C., & Sehgal, A. R. (1998). Barriers to cadaveric renal transplantation among blacks, women, and the poor. JAMA, 280(13), 1148–1152.Google Scholar
  2. Al-Bar, M. A., & Chamsi-Pasha, H. (2015). Contemporary bioethics: Islamic Perspective. New York: Springer.Google Scholar
  3. Attaran, A. (2015). Unanimity on death with dignity—Legalizing physician-assisted dying in Canada. New England Journal of Medicine, 372(22), 2080–2082.CrossRefGoogle Scholar
  4. Baker, D. W., Einstadter, D., Husak, S., & Cebul, R. D. (2003). Changes in the use of do-not-resuscitate orders after implementation of the Patient Self-Determination Act. Journal of General Internal Medicine, 18(5), 343–349.Google Scholar
  5. BBC (2017) Terminally ill Noel Conway Loses Supreme Court Appeal.
  6. Beširević, V. (2010). End‐of‐life care in the 21st century: Advance directives in universal rights discourse. Bioethics, 24(3), 105–112.CrossRefGoogle Scholar
  7. Blackhall, L. J., Murphy, S. T., Frank, G., Michel, V., & Azen, S. (1995). Ethnicity and attitudes toward patient autonomy. JAMA, 274(10), 820–825.Google Scholar
  8. Blanke, C., LeBlanc, M., Hershman, D., Ellis, L., & Meyskens, F. (2017). Characterizing 18 years of the death with dignity act in Oregon. JAMA Oncology, 3(10), 1403–1406.Google Scholar
  9. Braithwaite, R. L., Taylor, S. E., & Treadwell, H. M. (2009). Health issues in the Black community. New York: John Wiley & Sons.Google Scholar
  10. Cai, Y. (2015). On family informed consent: On the legislation of organ donation in China. In R. Fan (Ed.), Family-oriented informed consent: East Asian and American perspectives (pp. 187–200). New York: Springer.Google Scholar
  11. Chan, H. M., Doris, M. T., Wong, K. H., Lai, J. C. L., & Chui, C. K. (2015). End-of-life decision making in Hong Kong: the appeal of the shared decision making model. In Family-Oriented Informed Consent (pp. 149–167). Cham: Springer.Google Scholar
  12. Cheng, S. Y., Suh, S. Y., Morita, T., Oyama, Y., Chiu, T. Y., Koh, S. J., … Tsuneto, S. (2015). A cross-cultural study on behaviors when death is approaching in East Asian countries: What are the physician-perceived common beliefs and practices? Medicine, 94(39), 1–5.CrossRefGoogle Scholar
  13. Cohen-Almagor, R. (2017). Euthanizing people who are ‘Tired of Life’ in Belgium. Euthanasia and Assisted Suicide: Lessons from Belgium (pp. 188–201). Cambridge: Cambridge University Press.Google Scholar
  14. Diem, S. J., Lantos, J. D., & Tulsky, J. A. (1996). Cardiopulmonary resuscitation on television—Miracles and misinformation. New England Journal of Medicine, 334(24), 1578–1582.Google Scholar
  15. Emanuel, L. L., Barry, M. J., Stoeckle, J. D., Ettelson, L. M., & Emanuel, E. J. (1991). Advance directives for medical care—A case for greater use. New England Journal of Medicine, 324(13), 889–895.Google Scholar
  16. Ernecoff, N. C., Curlin, F. A., Buddadhumaruk, P., & White, D. B. (2015). Health care professionals’ responses to religious or spiritual statements by surrogate decision makers during goals-of-care discussions. JAMA Internal Medicine, 175(10), 1662–1669.Google Scholar
  17. Epstein, A. M., Ayanian, J. Z., Keogh, J. H., Noonan, S. J., Armistead, N., Cleary, P. D., … Conti, R. M. (2000). Racial disparities in access to renal transplantation—clinically appropriate or due to underuse or overuse?. The New England Journal of Medicine, 343(21), 1537.CrossRefGoogle Scholar
  18. Frankford, D. M. (2015). The remarkable staying power of “death panels”. Journal of Health Politics, Policy and Law, 40(5), 1087–1101.CrossRefGoogle Scholar
  19. Ganzini, L. (2017). Legalized physician assisted death in Oregon—Eighteen years’ experience. In Assistierter Suizid: Der Stand der Wissenschaft (pp. 7–20). Berlin, Heidelberg: Springer.Google Scholar
  20. Garrido, M. M., Harrington, S. T., & Prigerson, H. G. (2014). End‐of‐life treatment preferences: A key to reducing ethnic/racial disparities in advance care planning?. Cancer, 120(24), 3981–3986.Google Scholar
  21. Gramling, R., Fiscella, K., Xing, G., Hoerger, M., Duberstein, P., Plumb, S., … Epstein, R. M. (2016). Determinants of patient-oncologist prognostic discordance in advanced cancer. JAMA Oncology, 2(11), 1421–1426.Google Scholar
  22. Huang, C. H., Hu, W. Y., Chiu, T. Y., & Chen, C. Y. (2008). The practicalities of terminally ill patients signing their own DNR orders—a study in Taiwan. Journal of Medical Ethics, 34(5), 336–340.Google Scholar
  23. Johnson, K. S., Kuchibhatla, M., & Tulsky, J. A. (2008). What explains racial differences in the use of advance directives and attitudes toward hospice care?. Journal of the American Geriatrics Society, 56(10), 1953–1958.Google Scholar
  24. Kreling, B., Selsky, C., Perret-Gentil, M., Huerta, E. E., Mandelblatt, J. S., & Latin American Cancer Research Coalition. (2010). ‘The worst thing about hospice is that they talk about death’: Contrasting hospice decisions and experience among immigrant Central and South American Latinos with US-born White, non-Latino cancer caregivers. Palliative Medicine, 24(4), 427–434.Google Scholar
  25. Larijani, B., Zahedi, F., & Taheri, E. (2004). Ethical and legal aspects of organ transplantation in Iran. In Transplantation proceedings (Vol. 36, No. 5, pp. 1241–1244). New York: Elsevier.Google Scholar
  26. Lee, I. (2015). Filial duty as the moral foundation of caring for the elderly: its possibility and limitations. In R. Fan (Ed.), Family-oriented informed consent: East Asian and American perspectives (pp. 137–147). New York: Springer.Google Scholar
  27. Lerner, B. H., & Caplan, A. L. (2015). Euthanasia in Belgium and the Netherlands: On a slippery slope? JAMA Internal Medicine, 175(10), 1640–1641.Google Scholar
  28. Li, M., Watt, S., Escaf, M., Gardam, M., Heesters, A., O’Leary, G., & Rodin, G. (2017). Medical assistance in dying—Implementing a hospital-based program in Canada. New England Journal of Medicine, 376(21), 2082–2088.Google Scholar
  29. Miller, F. G., & Appelbaum, P. S. (2018). Physician-assisted death for psychiatric patients—Misguided public policy. New England Journal of Medicine, 378(10), 883–885.Google Scholar
  30. Morrell, E. D., Brown, B. P., Qi, R., Drabiak, K., & Helft, P. R. (2008). The do-not-resuscitate order: associations with advance directives, physician specialty and documentation of discussion 15 years after the Patient Self-Determination Act. Journal of Medical Ethics, 34(9), 642–647.Google Scholar
  31. Ngo‐Metzger, Q., Phillips, R. S., & McCarthy, E. P. (2008). Ethnic disparities in hospice use among Asian‐American and Pacific Islander patients dying with cancer. Journal of the American Geriatrics Society, 56(1), 139–144.Google Scholar
  32. Nicholas, L. H., Langa, K. M., Iwashyna, T. J., & Weir, D. R. (2011). Regional variation in the association between advance directives and end-of-life Medicare expenditures. Jonal of the American Medical Association, 306(13), 1447–1453.Google Scholar
  33. Ofri, D. (2012). In Israel, a new approach to organ donation. The New York Times. February 16.Google Scholar
  34. Peinado-Gorlat, P., Castro-Martínez, F. J., Arriba-Marcos, B., Melguizo-Jiménez, M., & Barrio-Cantalejo, I. (2015). Roma women’s perspectives on end-of-life decisions. Journal of Bioethical Inquiry, 12(4), 687–698.Google Scholar
  35. Perkins, H. S. (2007). Controlling death: the false promise of advance directives. Annals of Internal Medicine, 147(1), 51–57.CrossRefGoogle Scholar
  36. Rady, M. Y., Verheijde, J. L., & Ali, M. S. (2009). Islam and end-of-life practices in organ donation for transplantation: New questions and serious sociocultural consequences. HEC Forum, 21(2), 175.Google Scholar
  37. Raus, K., Chambaere, K., & Sterckx, S. (2016). Controversies surrounding continuous deep sedation at the end of life: The parliamentary and societal debates in France. BMC Medical Ethics, 17(1), 36.Google Scholar
  38. Rhodes, R. L., Batchelor, K., Lee, S. C., & Halm, E. A. (2015). Barriers to end-of-life care for African Americans from the providers’ perspective: Opportunity for intervention development. American Journal of Hospice and Palliative Medicine, 32(2), 137–143.Google Scholar
  39. Rhodes, R. L., Mitchell, S. L., Miller, S. C., Connor, S. R., Teno, J. M. (2008). Bereaved family members’ evaluation of hospice care: What factors influence overall satisfaction with services? Journal of Pain and Symptom Management, 35(4), 365–371.CrossRefGoogle Scholar
  40. Ross W. (2015). Dying Dutch: Euthanasia spreads across Europe. Newsweek. February 12.Google Scholar
  41. Schneider, A. P., Nelson, D. J., & Brown, D. D. (1993). In-hospital cardiopulmonary resuscitation: A 30-year review. The Journal of the American Board of Family Practice, 6(2), 91–101.Google Scholar
  42. Searight, H. R. (2019). Conducting psychotherapy with an interpreter. Oxford Handbook of Psychotherapy Ethics, in press.Google Scholar
  43. Searight, H. R., & Gafford, J. (2005). “It’s like playing with your destiny”: Bosnian immigrants’ views of advance directives and end-of-life decision-making. Journal of Immigrant Health, 7(3), 195–203.Google Scholar
  44. Searight, H. R., & Meredith, T. (2019). Physician deception and telling the truth about medical “Bad News”: History, ethical perspectives, and cultural issues. In The Palgrave Handbook of Deceptive Communication (pp. 647–672). New York: Palgrave Macmillan.Google Scholar
  45. Silveira, M. J., Kim, S. Y., & Langa, K. M. (2010). Advance directives and outcomes of surrogate decision making before death. New England Journal of Medicine, 362(13), 1211–1218.Google Scholar
  46. Sokol, R. (2007, March 21). Essay: The right to die. New York Times.Google Scholar
  47. Sprung, C. L., Maia, P., Bulow, H. H., Ricou, B., Armaganidis, A., Baras, M., … & Nakos, G. (2007). The importance of religious affiliation and culture on end-of-life decisions in European intensive care units. Intensive Care Medicine, 33(10), 1732–1739.Google Scholar
  48. Starzl, T. E., Groth, C. G., Brettschneider, L., Penn, I., Fulginiti, V. A., Moon, J. B., … Porter, K. A. (1968). Orthotopic homotransplantation of the human liver. Annals of Surgery, 168(3), 392.Google Scholar
  49. Sturman, R. L. (2003). Six lives in Jerusalem: End-of-life decisions in Jerusalem: Cultural, medical, ethical and legal considerations. New York: Springer.Google Scholar
  50. The Guardian (2011, September, 28). Right to die case: How Britain’s most secretive court operates.Google Scholar
  51. Truog, R. D., & Robinson, W. M. (2003). Role of brain death and the dead-donor rule in the ethics of organ transplantation. Critical Care Medicine, 31(9), 2391–2396.Google Scholar
  52. Vandenberghe, J. (2018). Physician-assisted suicide and psychiatric illness. New England Journal of Medicine, 378(10), 885–887.CrossRefGoogle Scholar
  53. Verna, L., Porzio, G., Galli, B., Sacco, I., Brogi, L., Spinelli, G., & Giusti, R. (2016). Immigrants accessing end-of-life care in Italy: The tuscany tumor association experience. Journal of Pain and Symptom Management, 51(5), e7.Google Scholar
  54. Yadav, K. N., Gabler, N. B., Cooney, E., Kent, S., Kim, J., Herbst, N., … Courtright, K. R. (2017). Approximately one in three US adults completes any type of advance directive for end-of-life care. Health Affairs, 36(7), 1244–1251.CrossRefGoogle Scholar
  55. Yang, Y. (2015). A family oriented Confucian approach to advance directives in end-of-life decision-making for incompetent elderly patients. In R. Fan (Ed.), Family-oriented informed consent: East Asian and American perspectives (pp. 257–270). New York: Springer.Google Scholar

Copyright information

© The Author(s), under exclusive license to Springer Nature Switzerland AG 2019

Authors and Affiliations

  1. 1.Department of PsychologyLake Superior State UniversitySault Sainte MarieUSA

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