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Analysis of Self-Management and Transition Readiness Instruments for Clinical Practice

  • Kathleen J. SawinEmail author
  • Rachel Margolis
  • Jaclyn R. MacFarlane Bookman
  • Melissa H. Bellin
  • Lynne Romeiser Logan
  • Jason Woodward
  • Timothy J. Brei
Chapter

Abstract

Nurses are integral members of interdisciplinary healthcare teams providing transition services to adolescents and young adults with long-term conditions and disabilities. Using valid and reliable measures of self-management and transition readiness behaviors can be an important component of effective practice. To identify potential instruments for use in practice, a search was conducted using multiple databases for instruments developed in the last 10 years that addressed these behaviors and had some psychometric evidence. This process yielded both generic (n = 11) and condition-specific (n = 27) instruments. The authors provide analyses of the instruments identified including psychometric properties, strengths, weaknesses, and implications for practice. The most frequent critique of select instruments is the lack of stability evidence (test–retest analysis) which limits healthcare providers’ ability to assess these behaviors over time. The instruments included in this analysis offer nurses and other healthcare providers a variety of choices as they tailor interventions to optimize self-management and transition readiness behaviors for adolescents and young adults with long-term conditions and disabilities.

Keywords

Transition Self-management Instruments Adolescents Young adults 

Notes

Acknowledgements

Select instrument table content in this chapter were originally created for the Self-management and Independence section of the Guidelines for the Care of People with Spina Bifida published by the Spina bifida Association. The Spina Bifida Association has given permission for use of the content in the instrument tables for this chapter.

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Copyright information

© Springer Nature Switzerland AG 2020

Authors and Affiliations

  • Kathleen J. Sawin
    • 1
    • 2
    Email author
  • Rachel Margolis
    • 3
  • Jaclyn R. MacFarlane Bookman
    • 3
  • Melissa H. Bellin
    • 3
  • Lynne Romeiser Logan
    • 4
  • Jason Woodward
    • 5
    • 6
  • Timothy J. Brei
    • 7
  1. 1.Children’s Hospital of WisconsinMilwaukeeUSA
  2. 2.Self-Management Science Center at UWMCollege of Nursing, University of Wisconsin-MilwaukeeMilwaukeeUSA
  3. 3.School of Social Work, University of Maryland, BaltimoreBaltimoreUSA
  4. 4.Tone Management and Mobility ProgramUpstate Medical UniversitySyracuseUSA
  5. 5.Division of Adolescent and Transition MedicineCincinnati Children’s Hospital Medical CenterCincinnatiUSA
  6. 6.University of Cincinnati College of MedicineCincinnatiUSA
  7. 7.Department of Pediatrics, Division of Developmental MedicineSeattle Children’s Hospital, University of Washington School of MedicineSeattleUSA

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