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Transitional Care in Endocrinology

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Transition from Pediatric to Adult Healthcare Services for Adolescents and Young Adults with Long-term Conditions

Abstract

Transition from pediatric to adult-oriented care is often characterized by a lack of coordination and discontinuity in care resulting in poor health outcomes as well as diminished psychosocial well-being and impaired quality of life. Most young adults seen in endocrine consultation have chronic, often rare diseases that require coordinated transitional care (TC). While endocrine TC is widely acknowledged as important, relatively few models have been formally evaluated. This review provides an overview of the relevance of TC in endocrinology, summarizes the needs of young adults and families for TC, and highlights the multidimensional considerations for TC. Particular attention is given to the role of nursing in endocrine TC. We report findings of a structured literature review identifying the current state of disease-specific TC in endocrinology for growth hormone deficiency, congenital hypothyroidism, congenital hypogonadotropic hypogonadism, Klinefelter syndrome, Turner syndrome, congenital adrenal hyperplasia, disorders/differences of sex development, and late effects. We show the results of a structured endocrine TC program with a dedicated transition nurse implemented at the University Hospital of Lausanne (Switzerland). Implications for practice, teaching, and research are discussed, and key advice and resources are highlighted.

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Authors and Affiliations

  1. William F. Connell School of Nursing, Boston College, Chestnut Hill, MA, USA

    Andrew A. Dwyer

  2. Yvonne L. Munn Center for Nursing Research, Massachusetts General Hospital, Boston, MA, USA

    Andrew A. Dwyer

  3. Center for Endocrinology and Metabolism in Young Adults (CEMjA), Lausanne University Hospital and University of Lausanne, Lausanne, Switzerland

    Andrew A. Dwyer & Michael Hauschild

  4. Pediatric Endocrinology and Diabetology Unit, Service of Pediatrics, Lausanne University Hospital and University of Lausanne, Lausanne, Switzerland

    Michael Hauschild

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  1. Keck School of Medicine, Department of Pediatrics, University of Southern California, Los Angeles, CA, USA

    Cecily L. Betz

  2. School of Nursing and Midwifery, Faculty of Health Sciences, Trinity College, Dublin, Ireland

    Imelda T. Coyne

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Dwyer, A.A., Hauschild, M. (2020). Transitional Care in Endocrinology. In: Betz, C., Coyne, I. (eds) Transition from Pediatric to Adult Healthcare Services for Adolescents and Young Adults with Long-term Conditions. Springer, Cham. https://doi.org/10.1007/978-3-030-23384-6_12

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