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Les proches aidants principaux: diffi cultés et souhaits d’aide

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Aider á vivre aprés un cancer

Part of the book series: Oncologie pratique ((ONCOLPRAT))

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Résumé

Le traitement des affections cancéreuses a progressé ces trente derniéres années, permettant un allongement de la durée de vie des patients (1). La guérison fait de plus en plus partie d’un avenir envisageable. Néanmoins, la maladie cancéreuse et ses traitements restent á l’origine d’une série de réactions cognitives, émotionnelles et comportementales qui concernent aussi bien le patient que les membres de sa famille et ses proches (26). Ces réactions s’articulent autour des différentes phases de la maladie cancéreuse: les premiers symptômes (7, 8), les traitements (9, 10), la rechute, la phase préterminale et terminale (1013), la rémission (1416) et la guérison (17, 18).

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Références

  1. Brenner H (2002) Long-term survival rates of cancer patients achieved by the end of the 20th century: a period analysis. Lancet 360(9340): 1131–5

    Article  PubMed  Google Scholar 

  2. Giammona AJ, Malek DM (2002) The psychological effect of childhood cancer on families. Pediatr Clin North Am 49(5): 1063–81

    Article  PubMed  Google Scholar 

  3. Kazak AE, Barakat LP, Meeske K, et al. (1997) Posttraumatic stress, family functioning, and social support in survivors of childhood leukemia and their mothers and fathers. J Consult Clin Psychol 65(1): 120–9

    Article  PubMed  CAS  Google Scholar 

  4. Lederberg MS (1998) The family of the cancer patient. In: Holland JC (ed). Psycho-Oncology. Oxford University Press, New-York. p 981–93

    Google Scholar 

  5. Northouse LL (1994) Breast cancer in younger women: effects on interpersonal and family relations. J Natl Cancer Inst Monogr (16): 183–90

    Google Scholar 

  6. Northouse LL, Mood D, Templin T, et al. (2000) Couples’ patterns of adjustment to colon cancer. Soc Sci Med 50(2): 271–84

    Article  PubMed  CAS  Google Scholar 

  7. Smith EM, Anderson B (1985) The effects of symptoms and delay in seeking diagnosis on stage of disease at diagnosis among women with cancers of the ovary. Cancer 56(11): 2727–32

    Article  PubMed  CAS  Google Scholar 

  8. Arndt V, Stürmer T, Stegmaier C, et al. (2002) Patient delay and stage of diagnosis among breast cancer patients in Germany — a population based study. Br J Cancer 86(7): 1034–40

    Article  PubMed Central  PubMed  CAS  Google Scholar 

  9. Pascoe, Edelman S, Kidman A (2000) Prevalence of psychological distress and use of support services by cancer patients at Sydney hospitals. Aust N Z J Psychiatry 34(5): 785–91

    Article  PubMed  CAS  Google Scholar 

  10. McCorkle R, Robinson L, Nuamah I, et al. (1998) The effects of home nursing care for patients during terminal illness on the bereaved’s psychological distress. Nurs Res 47(1): 2–10

    Article  PubMed  CAS  Google Scholar 

  11. Lin HR, Bauer-Wu SM (2003) Psycho-spiritual well-being in patients with advanced cancer: an integrative review of the literature. J Adv Nurs 44(1): 69–80

    Article  PubMed  Google Scholar 

  12. Pereira J, Hanson J, Bruera E (1997) The frequency and clinical course of cognitive impairment in patients with terminal cancer. Cancer 79(4): 835–42

    Article  PubMed  CAS  Google Scholar 

  13. Valente SM, Saunders JM, Cohen MZ (1994) Evaluating depression among patients with cancer. Cancer Pract 2(1): 65–71

    PubMed  CAS  Google Scholar 

  14. Joly F, Héron JF, Kalusinski L, et al. (2002) Quality of life in long-term survivors of testicular cancer: a population-based case-control study. J Clin Oncol 20(1): 73–80

    Article  PubMed  CAS  Google Scholar 

  15. Lesko LM (1989) Psychosocial issues in the diagnosis and management of cancer cachexia and anorexia. Nutrition 5(2): 114–6

    PubMed  CAS  Google Scholar 

  16. Ganz PA (2002) Breast cancer 2002: where do we stand? CA Cancer J Clin 52(5): 253–5

    Article  PubMed  Google Scholar 

  17. Loge JH, Abrahamsen AF, Ekeberg O, et al. (1997) Psychological distress after cancer cure: a survey of 459 Hodgkin’s disease survivors. Br J Cancer 76(6): 791–6

    Article  PubMed Central  PubMed  CAS  Google Scholar 

  18. Arai Y, Kawakita M, Hida S, et al. (1996) Psychosocial aspects in long-term survivors of testicular cancer. J Urol 155(2): 574–8

    PubMed  CAS  Google Scholar 

  19. Glajchen M (2004) The emerging role and needs of family caregivers in cancer care. J Support Oncol 2(2): 145–55

    PubMed  Google Scholar 

  20. Pistrang N, Barker C (1995) The partner relationship in psychological response to breast cancer. Soc Sci Med 40(6): 789–97

    Article  PubMed  CAS  Google Scholar 

  21. Neuling SJ, Winefield HR (1988) Social support and recovery after surgery for breast cancer: frequency and correlates of supportive behaviours by family, friends and surgeon. Soc Sci Med 27(4): 385–92

    Article  PubMed  CAS  Google Scholar 

  22. Vess JD, et al. (1989) Learning from patients and their spouses. J Psychosoc Oncol 6: 31–51

    Article  Google Scholar 

  23. Hannum JW, et al. (1991) Effects of individual and marital variables on coping with cancer. J Psychosoc Oncol 9(2): 1–20

    Article  Google Scholar 

  24. Glasdam S, et al. (1996) Anxiety and depression in cancer patients’ spouses. Psycho Oncol 5: 23–4

    Article  Google Scholar 

  25. Ybema JF, et al. (2001) Depression and perceptions of inequity among couples facing cancer. Personality Soc Psychol Bull 27(1): 3–13

    Article  Google Scholar 

  26. Coyne JC, Lehman DR (1988) The other side of social support: Emotional overinvolvement and miscarried help. In: Marshaling social support: Formats, processes, and effects. Sage, Newbury Park, CA. p 305–30

    Google Scholar 

  27. Walker BL (1997) Adjustment of husbands and wives to breast cancer. Cancer Practice 5: 92–8

    PubMed  CAS  Google Scholar 

  28. Pistrang N, Barker C (1992) Disclosure of concerns in breast cancer. Psycho Oncol 1: 183–92

    Article  Google Scholar 

  29. Cameron JI, Franche RL, Cheung AM, Stewart DE (2002) Lifestyle interference and emotional distress in family caregivers of advanced cancer patients. Cancer 94(2): 521–7

    Article  PubMed  Google Scholar 

  30. Blanchard CG, Albrecht TL, Ruckdeschel JC (1997) The crisis of cancer: psychological impact on family caregivers. Oncology (Huntingt) 11(2): 189–94; discussion 196: 201–2

    CAS  Google Scholar 

  31. Pitceathly C, Maguire P (2003) The psychological impact of cancer on patients’ partners and other key relatives: a review. Eur J Cancer 39(11): 1517–24

    Article  PubMed  CAS  Google Scholar 

  32. Northouse LL, Swain MA (1987) Adjustment of patients and husbands to the initial impact of breast cancer. Nurs Res 36(4): 221–5

    Article  PubMed  CAS  Google Scholar 

  33. Soothill K, Morris SM, Thomas C, et al. (2003) The universal, situational, and personal needs of cancer patients and their main carers. Eur J Oncol Nurs 7(1): 5–13; discussion 14–6

    Article  PubMed  CAS  Google Scholar 

  34. Schumacher KL, Stewart BJ, Archbold PG, et al. (2000) Family caregiving skill: development of the concept. Res Nurs Health 23(3): 191–203

    Article  PubMed  CAS  Google Scholar 

  35. Libert Y, et al. (2007) Une «toxicité» sous-estimée: les impacts psychosociaux des traitements sur les proches aidants principaux. Oncologie 9 (Suppl 3): 26–36

    Google Scholar 

  36. Lobchuk MM, Vorauer JD (2003) Family caregiver perspective-taking and accuracy in estimating cancer patient symptom experiences. Soc Sci Med 57(12): 2379–84

    Article  PubMed  Google Scholar 

  37. Regan, DT, Totten J (1975) Empathy and attribution: turning observers into actors. J Pers Soc Psychol 32(5): 850–6

    Article  PubMed  CAS  Google Scholar 

  38. Libert Y, Libert Y, Merckaert I, et al. (2006) Does psychological characteristic infl uence physicians’ communication styles? Impact of physicians’ locus of control on interviews with a cancer patient and a relative. Support Care Cancer 14(3): 230–42

    Article  PubMed  Google Scholar 

  39. Nekolaichuk CL, Bruera E, Spachynski K, et al. (1999) A comparison of patient and proxy symptom assessments in advanced cancer patients. Palliat Med 13(4): 311–23

    Article  PubMed  CAS  Google Scholar 

  40. Nekolaichuk CL, Maguire TO, Suarez-Almazor M, et al. (1999) Assessing the reliability of patient, nurse, and family caregiver symptom ratings in hospitalized advanced cancer patients. J Clin Oncol 17(11): 3621–30

    PubMed  CAS  Google Scholar 

  41. Sneeuw KC, Aaronson NK, Sprangers MA, et al. (1997) Value of caregiver ratings in evaluating the quality of life of patients with cancer. J Clin Oncol 15(3): 1206–17

    PubMed  CAS  Google Scholar 

  42. Deraedt S (2007) La dyade mére-adolescent en oncologie pédiatrique; quels sont les facteurs qui infl uencent la perception maternelle des diffi cultés de l’adolescent? Université Libre de Bruxelles, Bruxelles

    Google Scholar 

  43. Lin CC (2001) Congruity of cancer pain perceptions between Taiwanese patients and family caregivers: relationship to patients’ concerns about reporting pain and using analgesics. J Pain Symptom Manage 21(1): 18–26

    Article  PubMed  CAS  Google Scholar 

  44. Lobchuk MM, Kristjanson L, Degner L, et al. (1999) [Perception of symptom distress in lung cancer patients: I. Agreement between patients and their caregiving relatives]. Pfl ege 12(6): 352–61

    CAS  Google Scholar 

  45. Biggs AJ (1990) Family caregiver versus nursing assessments of elderly self-care abilities. J Gerontol Nurs 16(8): 11–6

    PubMed  CAS  Google Scholar 

  46. Kurtz ME, Kurtz JC, Given CC, Given B (1996) Concordance of cancer patient and caregiver symptom reports. Cancer Pract 4(4): 185–90

    PubMed  CAS  Google Scholar 

  47. Porter LS, Keefe FJ, McBride CM, et al. (2002) Perceptions of patients’ self-effi cacy for managing pain and lung cancer symptoms: correspondence between patients and family caregivers. Pain 98(1–2): 169–78

    Article  PubMed  Google Scholar 

  48. McMillan SC, Moody LE (2003) Hospice patient and caregiver congruence in reporting patients’ symptom intensity. Cancer Nurs 26(2): 113–8

    Article  PubMed  Google Scholar 

  49. Redinbaugh EM, Baum A, DeMoss C, et al. (2002) Factors associated with the accuracy of family caregiver estimates of patient pain. J Pain Symptom Manage 23(1): 31–8

    Article  PubMed  Google Scholar 

  50. Sands LP, Ferreira P, Stewart AL, et al. (2004) What explains differences between dementia patients’ and their caregivers’ ratings of patients’ quality of life? Am J Geriatr Psychiatry 12(3): 272–80

    Article  PubMed  Google Scholar 

  51. Cassileth BR (1985) Psychosocial problems and support of the advanced cancer patient. Rays 10(1): 131–4

    PubMed  CAS  Google Scholar 

  52. Cassileth BR, Lusk EJ, Strouse TB, et al. (1985) A psychological analysis of cancer patients and their next-of-kin. Cancer 55(1): 72–6

    Article  PubMed  CAS  Google Scholar 

  53. Cassileth BR, Steinfeld AD (1987) Psychological preparation of the patient and family. Cancer 60(3 Suppl): 547–52

    Article  PubMed  CAS  Google Scholar 

  54. Schag CA, Heinrich RL (1990) Development of a comprehensive quality of life measurement tool: CARES. Oncology (Huntingt) 4(5): 135–8; discussion 147

    CAS  Google Scholar 

  55. Schag CA, Heinrich RL, Aadland RL, Ganz PA (1990) Assessing problems of cancer patients: psychometric properties of the cancer inventory of problem situations. Health Psychol 9(1): 83–102

    Article  PubMed  CAS  Google Scholar 

  56. Schag CA, Ganz PA, Heinrich RL (1991) CAncer Rehabilitation Evaluation System— short form (CARES-SF). A cancer specifi c rehabilitation and quality of life instrument. Cancer 68(6): 1406–13

    Article  PubMed  CAS  Google Scholar 

  57. Schag CA, Ganz PA, Kahn B, Petersen L (1992) Assessing the needs and quality of life of patients with HIV infection: development of the HIV Overview of Problems-Evaluation System (HOPES). Qual Life Res 1(6): 397–413

    Article  PubMed  CAS  Google Scholar 

  58. Deprêtre M (2007) La dyade mére-adolescent en oncologie pédiatrique: Quels sont les facteurs qui sont associés au souhait d’aide psychologique des méres? Université Libre de Bruxelles, Bruxelles

    Google Scholar 

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Libert, Y., Merckaert, I., Deraedt, S., Deprêtre, M., Razavi, D. (2010). Les proches aidants principaux: diffi cultés et souhaits d’aide. In: Aider á vivre aprés un cancer. Oncologie pratique. Springer, Paris. https://doi.org/10.1007/978-2-287-79501-5_18

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  • DOI: https://doi.org/10.1007/978-2-287-79501-5_18

  • Publisher Name: Springer, Paris

  • Print ISBN: 978-2-287-79500-8

  • Online ISBN: 978-2-287-79501-5

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