Self-help groups

  • Deborah Wearing


As recently as 1980 America had hardly any services for brain-injured people. Then one night that year Marilyn Price Spivack, the mother of a young head-injured girl for whom there was no appropriate treatment centre, had a meeting in her home with some leading clinicians and set up the National Head Injury Foundation. The NHIF started talking to Congress and setting up a network of self-help groups all over America. The joining together of academics, clinicians and families became a powerful force. They all wanted the same things — a better understanding of brain and behaviour, more effective therapy to restore function and continuing support services.


Brain Injury Head Injury Local Group Memory Problem Retrograde Amnesia 
These keywords were added by machine and not by the authors. This process is experimental and the keywords may be updated as the learning algorithm improves.


Unable to display preview. Download preview PDF.

Unable to display preview. Download preview PDF.


  1. Brooks, D.N., Campsie, L., Symington, C., et al. (1986) The five year outcome of severe blunt head injury: A relative’s view. Journal of Neurology, Neurosurgery and Psychiatry, 49, 764–70.PubMedCrossRefGoogle Scholar
  2. Condeluci, A. (1985) National Head Injury Survey. National Head Injury Foundation, Washington D.C.Google Scholar
  3. Department of Health Report (1989) Working for Patients. HMSO, London.Google Scholar
  4. Department of Health (1990) The National Health Service and Community Care Act. HMSO, London.Google Scholar
  5. Eames, P. and Wood, R. (1985) Rehabilitation after severe brain injury: A follow-up study of a behaviour modification approach. Journal of Neurology, Neurosurgery and Psychiatry, 48, 137–40.CrossRefGoogle Scholar
  6. Griffiths, R. (1988) Community Care: Agenda for Action. HMSO, London.Google Scholar
  7. Jacobs, H.E. (1988) The Los Angeles head injury survey: Procedures and initial findings. Archives Physical Medicine and Rehabilitation, 69, 425–31.Google Scholar
  8. Klonoff, P. and Prigatano, G.P. (1987) Reactions of family members and clinical intervention after traumatic brain injury. In M. Ylvisaker and E.M.R. Gobble (eds.) Community Re-Entry for Head Injured Adults. College-Hill, USA.Google Scholar
  9. Medical Disability Society (1988) The Management of Traumatic Brain Injury. Development Trust for the Young Disabled, London.Google Scholar
  10. National Head Injury Foundation (1988) National Directory of Head Injury Rehabilitation Services, Washington D.C.Google Scholar
  11. Thomsen I.V. (1984) Late outcome of very severe blunt head trauma: A 10-15 year second follow-up. Journal of Neurology, Neurosurgery and Psychiatry, 47, 260–8.PubMedCrossRefGoogle Scholar
  12. Wilson, J. (1986) Self-help groups. Longman, Harlow.Google Scholar
  13. Wilson, J. (1988) Caring together — guide-lines for carers’ self-help groups. Kings Fund Centre, London.Google Scholar

Copyright information

© Barbara Wilson and Nick Moffat 1992

Authors and Affiliations

  • Deborah Wearing

There are no affiliations available

Personalised recommendations