Psychological and ethical implications of HIV screening

  • Patricia Wilkie


Two groups of people may become identified as HIV sero-positive through testing in relation to blood or blood products. First there are those who come forward as blood donors and who are found to be sero-positive. Secondly there are those haemophiliacs who have been found to be sero-positive presumably after having received an infusion of infected blood products. These two groups have some similarities in that they are HIV sero-positive without necessarily showing symptoms of AIDS, but in other respects they are different. The source of the infection is different. The psychological and emotional responses may vary and therefore the type of long-term counselling and support they need may be different. While one must not underestimate the difficulties facing a non-haemophiliac sero-positive patient, the problems facing an HIV sero-positive haemophiliac are very great indeed because he also has haemophilia.


Life Insurance Ethical Implication Life Insurance Company Blood Transfusion Service Medical Confidentiality 
These keywords were added by machine and not by the authors. This process is experimental and the keywords may be updated as the learning algorithm improves.


Unable to display preview. Download preview PDF.

Unable to display preview. Download preview PDF.


  1. Acquired Immune Deficiency Syndrome. AIDS Booklet 2. (1985) Information for doctors concerning the introduction of the HTLV-III antibody test. Scottish Home and Health Department.Google Scholar
  2. AIDS Center News. April 1986 Vol 3 No 1. World Haemophilia Centre, Los Angeles.Google Scholar
  3. Bove, J. R. (1985) How should we handle the ethical questions regarding information to donors etc. Vox Sang. 49, 234–35.PubMedCrossRefGoogle Scholar
  4. British Medical Association (1980) Handbook of Medical Ethics. British Medical Association, London.Google Scholar
  5. Curran, W. J. (1985) AIDS research and the ‘window of opportunity’. N. Engl. J. Med., 312, No. 14, 903–04.PubMedCrossRefGoogle Scholar
  6. Daniels, V. G. (1985) AIDS and the Acquired Immune Deficiency Syndrome, STP Press, Lancaster. England.Google Scholar
  7. The Financial Times. 7 May 1986.Google Scholar
  8. Haemophilia Social Workers Special Interest Group (1985) Discussion paper: Haemophilia and AIDS.Google Scholar
  9. Hunt, C. H. (1976) Psychological and social aspects. In Comprehensive Management of Haemophilia (ed. D. C. Boone) F. A. Davis Company, Philadelphia.Google Scholar
  10. Jones, P. (1985) AIDS and the Blood. Haemophilia Society, London.Google Scholar
  11. Katz, J. (1984) The Silent World of Doctor and Patient, Free Press, New York.Google Scholar
  12. Lineberger, H. P. (1981) Social Characteristics of a Haemophilia Clinic Population. General Hospital Psychiatry, 3, 157–63.PubMedCrossRefGoogle Scholar
  13. Mcintosh, J. (1974) Processes of Communication, Information Seeking and Control Associated with Cancer. Social Science and Medicine, 8, 167–87.PubMedCrossRefGoogle Scholar
  14. McKeown, T. (1968) Validation of Screening Procedures Screening in Medical Care, OUP, London.Google Scholar
  15. Madhok, R., Campbell, D. and Gracie, A. et al. (1986)Changes in factor concentrate use subsequent to the publicity of AIDS in haemophiliacs. International Conference on AIDS, Paris 173.Google Scholar
  16. Markova, I., Lockyer, R. and Forbes, C. D. (1977) Haemophilia: Survey on Social Issues. Health Bulletin, 35, 177–82.PubMedGoogle Scholar
  17. Markova, I., Lockyer, R. and Forbes, C. (1980) Self Perception of Employed and Unemployed Haemophiliacs. Psychological Medicine, 10, 559–65.PubMedCrossRefGoogle Scholar
  18. Sackett, D. L. and Holland, W. W. (1973) Controversy in the Detection of Disease. Lancet, ii, 356–9.Google Scholar
  19. Sorenson, J. R. (1973) Sociological and Psychological Factors in Applied Human Genetics. In Ethical Issues in Human Genetics (eds B. Hilton, D. Callahan, M. Harris, P. Condliffe and B. Berkley) Plenum Press, New York.Google Scholar
  20. Stuart, J., Forbes, C., Jones, P., Lane, G., Ritza, C. and Wilkes, S. (1980) Improving Prospects for Employment of Haemophiliacs. Bri. Med. J., 280, 1169–72.CrossRefGoogle Scholar
  21. Suki, W. N. (1982) Polycystic Kidney Disease. Kidney International, 22, 571–80.PubMedCrossRefGoogle Scholar
  22. Thomas, S. (1983) Ethics of a Predictive Test For Huntington’s Chorea. Bri. Med. J., 284, 1383–4.CrossRefGoogle Scholar
  23. Twiss, S. B. (1974) Ethical Issues in Genetic Screening. In Ethical, Social and Legal Dimensions of Screening for Human Genetic Disease (ed. D. Bergsma) National Foundation March of Dimes. Vol. X. No. 6.Google Scholar
  24. Wakefield, J. (1970) The Social Context of Cancer. In What we Know About Cancer (ed. R. C. J. Harris) Allen and Unwin, London.Google Scholar
  25. Wexler, N. S. (1979) Genetic ‘Russian Roulette’. The Experience of Being at Risk for Hungtington’s Chorea. In Genetic Counselling Psychological Dimensions (ed. S. Kessler) Academic Press, New York.Google Scholar
  26. Wilson, J. M. G. and Junger, G. (1968) Principles and Practice of Screening for Disease, World Health Organisation, Geneva.Google Scholar

Copyright information

© Springer Science+Business Media Dordrecht 1987

Authors and Affiliations

  • Patricia Wilkie

There are no affiliations available

Personalised recommendations