Abstract
In the past decade, the number of immigrants and refugees has increased dramatically in various nations throughout the world. Ethnic conflict in Africa, Eastern Europe, and elsewhere has resulted in large numbers of individuals living in diaspora. Those in search of better economic conditions or political asylum emigrate to countries where opportunities for safety and security are thought to exist. Thus, in the context of health care delivery, particularly in urban centers, cultural pluralism is the norm rather than the exception. In pluralistic societies, where the influx of immigrant and refugee populations has grown, interactions between patients and health professionals from different ethnic backgrounds are becoming routine.
Keywords
- Ethical Issue
- Health Provider
- Ethical Dilemma
- Advance Care Planning
- Ethic Consultation
These keywords were added by machine and not by the authors. This process is experimental and the keywords may be updated as the learning algorithm improves.
This is a preview of subscription content, access via your institution.
Buying options
Tax calculation will be finalised at checkout
Purchases are for personal use only
Learn about institutional subscriptionsPreview
Unable to display preview. Download preview PDF.
References
Agich, G. (1988). Human experimentation and clinical consent. In J. Monagle & D. C. Thomasma (Eds.), A guide for health professionals (pp. 127–139). Rockville, MD: Aspen.
Angell, M. (1988). Ethical imperialism? Ethics in international collaborative clinical research. New England Journal of Medicine, 319, 1081–1083.
Barry, M. (1988). Ethical considerations of human investigation in developing countries: The AIDS dilemma. New England Journal of Medicine, 319, 1083–1086.
Baylis, F., & Downie, J. (1997). Child abuse and neglect: Cross-cultural considerations. In H. Nelson (Ed.), Feminism and families (pp. 173–187). New York: Routledge.
Beauchamp, T. L., & Childress, J. (1993). Principles of biomedical ethics (4th ed.). New York: Oxford University Press.
Beecher, H. K. (1966). Ethics and clinical research. New England Journal of Medicine, 274, 1354–1360.
Bell, S. E., & Whiteford, M. B. (1987). Tai Dam health care practices: Asian refugee women in Jowa. Social Science and Medicine, 24, 317–325.
Benner, P. (1991). The role of experience, narrative, and community in skilled ethical comportment. Advances in Nursing Science, 14, 1–21.
Berk, M. L., Albers, L. A., & Schur, C. L. (1996). The growth in the US uninsured population: Trends in Hispanic subgroups, 1977 to 1992. American Journal of Public Health, 86, 572–576.
Beyene, Y. (1992). Medical disclosure and refugees—Telling bad news to Ethiopian patients. In Cross-cultural medicine—A decade later [Special issue]. Western Journal of Medicine, 157, 328–332.
Blackhall, L. J., Murphy, S. T., Frank, G., Michel, V, & Azen, S. (1995). Ethnicity and attitudes toward patient autonomy. Journal of the American Medical Association, 274, 820–825.
Brody, B. A. (1998). The ethics of biomedical research: An international perspective. New York: Oxford University Press.
Caralis, P. V., Davis, B., Wright, K., & Marcial, E. (1993). The influence of ethnicity and race on attitudes toward advance directives, life-prolonging directives, life-prolonging treatments and euthanasia. Journal of Clinical Ethics, 4, 155–165.
Carrese, J. A., & Rhodes, L. A. (1995). Western bioethics on the Navajo reservation. Journal of the American Medical Association, 274, 826–829.
Cassell, J. (1978). Risk and benefit to subjects of field-work. American Sociologist, 13, 134–143.
Christakis, N. A. (1988). The ethical design of an AIDS vaccine trial in Africa. Hastings Center Report, 18, 31–37.
Christakis, N.A. (1992). Ethics are local: Engaging cross-cultural variation in the ethics for clinical research. Social Science and Medicine, 35, 1079–1091.
Christakis, N. A., & Panner, M. J. (1991). Existing international ethical guidelines for human subjects research: Some open questions. Law, Medicine and HealthCare, 79, 214–221.
Connor, S. S., & Fuenzalida-Puelma H. (Eds.). (1990). Bioethics: Issues and perspectives. Washington, DC: Pan American Health Organization.
D’Avanzo, C. (1992). Barriers to health care for Vietnamese refugees. Journal of Professional Nursing, 8, 245–253.
DeCraemer, W. A. (1983) Cross-cultural perspective on personhood. Milbank Memorial Fund Quarterly, 6, 19–34.
de la Torre, A., Friis, R., Hunter, H. R., & Garcia, L. (1996). The health insurance status of US Latino women: A profile from the 1982–1984 HHANES. American Journal of Public Health, 86, 533–537.
Dula, A. (1994). African American suspicion of the healthcare system is justified: What do we do about it? Cambridge Quarterly of Healthcare Ethics, 3, 347–358.
Dula, A., & Goering, S. (1994). “It Just ain’ t fair”: The ethics of health care for African Americans. West-port, CT: Praeger.
Ekunwe, E. O., & Kessel, R. (1984). Informed consent in the developing world. Hastings Center Report, 14, 22–24.
Engelhardt, T. H., Jr. (1986). The foundations of medical ethics. New York: Oxford University Press.
Engelhardt, T. H., Jr. (1991). Bioethics and secular humanism: The search for a common morality. Philadelphia: Trinity.
Faden, R. R., & Beauchamp, T. L. (1986). A history and theory of informed consent. New York: Oxford University Press.
Fox, R. C. (1990). The evolution of American bioethics: A sociological perspective. In G. Weisz (Ed.), Social science perspectives on medical ethics (pp. 201–220). Philadelphia: University of Pennsylvania Press.
Fox, R. C., & Swazey, J. P. (1984). Medical morality is not bioethics: Medical ethics in China and the United States. Perspectives in Biology and Medicine, 27, 336–360.
Frankel, M. S., & Teich, A. H. (Eds.). (1994). The genetic frontier: Ethics, law, and policy. Washington, DC: American Association for the Advancement of Science.
Frankena, W. (1973). Ethics (2nd ed.). Englewood Cliffs, NJ: Prentice-Hall.
Freedman, B. (1993). Offering truth: One ethical approach to the uninformed cancer patient. Archives of Internal Medicine, 153, 572–576.
Garcia, J. L. A. (1992). African-American perspectives, cultural relativism and normative issues: Some conceptual problems. In H. Flack & E. D. Pellegrino (Eds.), African-American perspectives on biomedical ethics (pp. 11–65). Washington, DC: Georgetown University Press.
Gilman, S. C., Justice, J., Saepharn, K., Charles, G. (1992). Use of traditional and modern health services by Laotian refugees. Western Journal of Medicine, 757, 310–315.
Good, B. J. (1994). Medicine, rationality, and experience: An anthropological perspective. Boston: Cambridge University Press.
Good, M. D., Good, B. J., Schaffer, C., & Lind, S. E. (1990). American oncology and the discourse on hope. Culture Medicine and Psychiatry, 14, 59–79.
Goodgame, R. W. (1990). AIDS in Uganda: Clinical and social features. New England Journal of Medicine, 323, 383–389.
Gray, B. H. (1979). The regulatory context of social research: The work of the national commission for the protection of human subjects. In C. B. Klockars & F. W. O’Connor (Eds.), Deviance and decency: The ethics of research with human subjects (pp. 197–224). Beverly Hills, CA: Sage.
Hern, H. E., Jr., Koenig, B. A., Moore, L. J., & Marshall, P. A. (1998). The difference that culture can make in end-of-life decision making. Cambridge Quarterly of Healthcare Ethics, 7.
Hoffmaster, B. (1990). Morality and the social sciences. In G. Weisz (Ed.), Social science perspectives on medical ethics (pp. 241–260). Philadelphia: University of Pennsylvania Press.
Hunter, K. M. (1991). Doctors’stories: The narrative structure of medical knowledge. Princeton, NJ: Princeton University Press.
Ijsselmuiden, C. B., & Faden, R. R. (1992). Research and informed consent in Africa—Another look. New England Journal of Medicine, 326, 830–833.
Jecker, N. S., Carrese, J. A., & Pearlman, R. (1995). Caring for patients in cross-cultural settings. Hastings center report, 25, 6–14.
Jenkins, C. N. H., Le, T., Mcphee, S. J., Stewart, S., & Ha, N. T. (1996). Health care access and preventive care among Vietnamese immigrants: Do traditional beliefs and practices pose barriers? Social Science and Medicine, 43, 1049–1056.
Jones, J. H. (1981). Bad blood. New York: Free Press.
Jonsen, A., & Toulmin, S. (1988). The abuse of casuistry. Berkeley: University of California Press.
Katz, J. (1972). Experimentation with human beings. New York: Russell Sage Foundation.
Kaufert, J. M., & O’Neil, J. D. (1990). Biomedical rituals and informed consent: Native Canadians and the negotiation of clinical trust. In G. Weisz (Ed.), Social science perspectives on medical ethics (pp. 41–64). Philadelphia: University of Pennsylvania Press.
Kleinman, A. M. (1980). Patients and healers in the context of culture. Berkeley: University of California Press.
Kleinman, A. (1995). Anthropology of bioethics. In W. Reich (Ed.), Encyclopedia of Bioethics (pp. 1667–1674). New York: Macmillan.
Klessig, J. (1992). The effect of values and culture on life-support decisions. In Cross-cultural medicine—A decade later [Special issue]. Western Journal of Medicine, 157, 316–322.
Koenig, B. A. (1993). Diversity in decision-making about care at the end-of-life. In Dying, decisionmaking, and appropriate care. Washington, DC: Institute of Medicine/National Academy of Sciences.
Koenig, B. A., & Gates-Williams, J. (1995). Understanding cultural difference in caring for dying patients. Western Journal of Medcine, 163, 244–249.
Lane, S. D. (1993). Research bioethics in Egypt. In R. Gillon (Ed.), Principles of health care ethics (pp. 885–894). New York: Wiley.
La Rossa, R., Bennet, L. A., & Grelles, R. (1981). Ethical dilemmas in qualitative family research. Journal of Marriage and Family, 43, 303–313.
Lauritzen, P. (1993). Pursing parenthood: Ethical issues in assisted reproduction. Indianapolis: Indiana University Press.
Leonard, T. L. (1990). Male clients of female street prostitutes: Unseen partners in sexual disease transmission. Medical Anthropology Quarterly, 4, 41–55.
Levine, R. J. (1986). Ethics and regulation of clinical research (2nd ed.). Baltimore: Urban and Schwarzenberg.
Levine, R. J. (1991). Informed consent: Some challenges to the universal validity of the western model. Law, Medicine, and Health Care, 19, 3–4.
Lock, M. (1993). Education and self reflection: Teaching about culture, health and illness. In R. Masi, L. L. Mensah, & K. McLeod (Eds.), Health and cultures: Exploring the relationships (pp. 137–156). Oakville, Ontario, Canada: Mosaic.
Loewy, E. (1991). Suffering and the beneficent community: Beyond libertarianism. Albany: State University of New York Press.
Loue, S., Okello, D., & Kawuma, M. (1996). Research bioethics in the Ugandan context: A program summary. Journal of Law, Medicine & Ethics, 24, 47–53.
Maclntyre, A. (1984). After virtue. Notre Dame, IN: Notre Dame University Press.
Marshall, P. A. (1989). Children in medical settings. In J. Garbarino, F. M. Stott, & the Faculty of the Erikson Institute (Eds.), What children can tell us (pp. 266–290). San Francisco: Jossey-Bass.
Marshall, P. A. (1991). Research ethics in applied anthropology. In C. E. Hill (Ed.), Training manual in medical anthropology (pp. 213–235). Washington, DC: American Anthropological Association and Society for Applied Anthropology.
Marshall, P. A. (1992a). Anthropology and bioethics. Medical Anthropology Quarterly, 6, 47–71.
Marshall, P. A. (1992b). Research ethics in applied anthropology. IRB: A Review of Human Subjects Research, 14, 1–5.
Marshall, P. A., & Koenig, B. A. (1996). Anthropology and bioethics: Perspectives on culture, medicine and morality. In C. Sargent & T. Johnson (Eds.), Medical anthropology: Contemporary theory and method (2nd ed., pp. 349–373). Westport, CT: Praeger.
Marshall, P. A., Thomasma, D. C., & Bergsma, J. (1994). Intercultural reasoning: The challenge for international bioethics. Cambridge Quarterly of Healthcare Ethics, 3, 321–328.
Marshall, P. A., Koenig, B. A., Barnes, D. M., & Davis, A. J. (1998). Multiculturalism, bioethics and end-of-life care: Case narratives of Latino cancer patients. In D. C. Thomasma & J. Monagle (Eds.), Health care ethics: Issues for the 21st century (pp. 421–431). Rockville, MD: Aspen.
Muller, J. H., & Desmond, B. (1992). Ethical dilemmas in a cross-cultural context—A Chinese example. In Cross-cultural medicine—A decade later [Special issue]. Western Journal of Medicine, 157, 323–327.
National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research. (1978). The Belmont report: Ethical principles and guidelines for the protection of human subjects of research. Washington, DC: U.S. Government Printing Office.
Newton, L. H. (1990). Ethical imperialism and informed consent. IRB: A Review of Human Subjects Research, 12, 10–11.
Orona, C. J., Koenig, B. A., & Davis, A. J. (1994). Cultural aspects of nondisclosure. Cambridge Quarterly Healthcare Ethics, 3, 338–346.
Orr, R. D., Marshall, P. A., & Osborn, J. (1995). Cross-cultural considerations in clinical ethics consultations. Archives of Family Medicine, 4, 159–164.
Pellegrino, E. D. (1992a). Intersections of Western biomedical ethics and world culture: Problematic and possibility. Cambridge Quarterly of Healthcare Ethics, 1, 191–196 (quotation, p. 191).
Pellegrino, E. D. (1992b). Is truth telling to the patient a cultural artifact? [Editorial]. Journal of the American Medical Association, 268, 1734–1735.
Pellegrino, E. D., & Flack, H. E. (1992). African-American perspectives on biomedical ethics. Washington, DC: Georgetown University Press.
Pellegrino, E. D., & Thomasma, D. C. (1989). For the patient’s good: The restoration of beneficence in health care. New York: Oxford University Press.
Pellegrino, E. D., & Thomasma, D. C. (1993). The virtues in medical practice. New York: Oxford University Press.
Pellegrino, E. D., Corsi, P., & Mazzarella, P. (Eds.). (1992). Transcultural dimensions in medical ethics. Frederick, MD: University Publishing.
Putsch, R. W., III. (1985). Cross-cultural communication: The special case of interpreters in health care. Journal of the American Medical Association, 254, 3344–3348.
Rothman, D. (1991). Strangers at the bedside: A history of how law and bioethics transformed medical decision-making. New York: Basic Books.
Schneiderman, L. J., & Jecker, N. S. (1995). Wrong medicine: Doctors, patients, and futile treatment. Baltimore, MD: Johns Hopkins University Press.
Schoepf, B. G. (1991). Ethical, methodological and political issues of AIDS research in central Africa. Social Science Medicine, 33, 749–763.
Seiler, L. H., & Muirtha, J. M. (1980). Federal regulation of social research using “human subjects”: A critical assessment. American Sociologist, 15, 146–157.
Shweder, R. (1990). Ethical relativism: Is there a defensible version? Ethos, 18, 219–223.
Siddharthan, K., & Alalasundaram, S. (1993). Undocumented aliens and uncompensated care: whose responsibility? American Journal of Public Health, 83, 410–412.
Stepick, A., & Stepick, C. D. (1990). People in the shadows: Survey research among Haitians in Miami. Human Organization, 49, 64–11.
Surbone, A. (1992). Truth telling to the patient [Letter]. Journal of the American Medical Association, 268, 1661–1662.
Teno, J., Hill, T. P., & O’Connor, M. A. (1994). Advance care planning: Priorities for ethical and empirical research. Hastings Center Report, 24 (Suppl.), 1.
Thamer, M., Richard, C., Casebeer, A. W., & Ray, N. F. (1997). Health insurance coverage among foreignborn US residents: The impact of race, ethnicity, and length of residence. American Journal of Public Health, 87, 96–102.
Tong, R. (1996). Feminist approaches to bioethics. Boulder, CO: Westview.
Uba, L. (1992) Cultural barriers to health care for southeast Asian refugees. Public Health Reports, 107, 544–548.
U.S. Department of Health and Human Services (USDHHS). (1981). Final Regulations Amending Basic HHS Policy for the Protection of Human Research Subjects: Final Rule: 5 CFR 46. Federal Register: Rules and Regulations 46 (16, January 26), 8366–8392.
US. National Commission for the Protection of Human Subjects of Biomedical and Behavior Research. (1978). Report and recommendations: Research involving those institutionalized as mentally infirm. Bethesda, MD: US. Department of Health, Education and Welfare.
Veatch, R. M. (1981). A theory of medical ethics. New York: Basic Books.
Veatch, R. M. (1987). The patient as partner: A theory of human-experimentation ethics. Bloomington: Indiana University Press.
Veatch, R. M. (1989). Cross cultural perspectives in medical ethics: Readings. Boston: Jones and Bartlett.
Veatch, R. M. (1991). The physician-patient relationship: The patient as partner: Part 2. Bloomington: Indiana University Press.
Ware, N. C., & Kleinman, A. R. (1992). Culture and somatic experience. Psychosomatic Medicine, 54, 546–560.
Wasongarz, D., Carter, J., Barnes, D. M., & Koenig, B. A. (1995). Bioethics and the intermediary role of interpreters: Negotiating language and emotion. Unpublished manuscript, Stanford University Center for Biomedical Ethics. First presented as a paper at the 1994 annual meeting of the American Anthropological Association, Atlanta, GA.
Wax, M. L., & Cassell, J. (Eds.). (1979). Fieldwork, ethics and politics: The wider context. In M. L. Wax & J. Cassell (Eds.) Federal regulations: Ethical issues and social research (pp. 85–101). Boulder, CO: Westview.
Weisz, G. (Ed.). (1990). Social science perspectives on medical ethics. Philadelphia: University of Pennsylvania Press.
Wolf, S. (1996). Feminism and bioethics: Beyond reproduction. New York: Oxford University Press.
World Health Organization and Council for International Organizations of Medical Sciences (WHO-CIOMS). (1993). International ethical guidelines for biomedical research involving human subjects. Geneva, Switzerland: Author.
Author information
Authors and Affiliations
Editor information
Editors and Affiliations
Rights and permissions
Copyright information
© 1998 Springer Science+Business Media New York
About this chapter
Cite this chapter
Marshall, P.A., Koenig, B.A., Grifhorst, P., van Ewijk, M. (1998). Ethical Issues in Immigrant Health Care and Clinical Research. In: Loue, S. (eds) Handbook of Immigrant Health. Springer, Boston, MA. https://doi.org/10.1007/978-1-4899-1936-6_11
Download citation
DOI: https://doi.org/10.1007/978-1-4899-1936-6_11
Publisher Name: Springer, Boston, MA
Print ISBN: 978-1-4899-1938-0
Online ISBN: 978-1-4899-1936-6
eBook Packages: Springer Book Archive