Advertisement

Impact of Illness on the Family: Disease, Illness, and the Family Illness Trajectory

  • Byron J. Good
  • Mary-Jo DelVecchio Good
  • Bill D. Burr

Abstract

Major illness may have a devastating effect on whole families. If the physician is to successfully treat the disease of the identified patient, the psychosocial problems of both the patient and the family must be recognized, diagnosed, and addressed. This chapter outlines an approach to this issue. First, it reviews the literature on the impact of illness on the family. Second, utilizing the concepts “disease and illness” and “the family illness trajectory,” the chapter discusses normal and pathologic responses of families when a member is ill. Finally, clinical suggestions are made for treating patients and their families.

Keywords

Cystic Fibrosis Anorexia Nervosa Pathologic Response Explanatory Model Childhood Leukemia 
These keywords were added by machine and not by the authors. This process is experimental and the keywords may be updated as the learning algorithm improves.

Preview

Unable to display preview. Download preview PDF.

Unable to display preview. Download preview PDF.

References

  1. 1.
    Binger CM, Ablin AR, Feurstein RC, Kushner JH, Mikkelsen C: Childhood leukemia. Emotional impact on patient and family. N Engl J Med 280: 414–418, 1969.PubMedCrossRefGoogle Scholar
  2. 2.
    Richmond JB, Waisman HA: Psychologic aspects of management of children with malignant diseases. Am J Dis Child 89: 42–47, 1955.Google Scholar
  3. 3.
    Fife BL: Childhood cancer is a family crisis: a review. J Psychiat Nurs 18: 29–34, 1980.Google Scholar
  4. 4.
    Venters M: Familial coping with chronic and severe childhood illness: the case of cystic fibrosis. Soc Sci Med 15A: 289–297, 1981.Google Scholar
  5. 5.
    Burnette BA: Family adjustment to cystic fibrosis. Am J Nurs 75: 1986–1989, 1975.PubMedGoogle Scholar
  6. 6.
    Crain AJ et al.: Effects of a diabetic child on marital integration and related measures of family functioning. J Health Hum Behav 7: 122–127, 1966.PubMedCrossRefGoogle Scholar
  7. 7.
    Leaverton DR: The child with diabetes mellitus. In: Noshpitz J (ed.) Basic Handbook of Child Psychiatry. New York, Basic Books, 1977.Google Scholar
  8. 8.
    Davis F: Passage Through Crisis. Polio Victims and Their Families. New York, Bobbs Merrill, 1963.Google Scholar
  9. 9.
    Berlin IN: Crisis Intervention and Short-Term Therapy. An Approach in a Child Psychiatric Clinic. J Child Psychiat 9: 595–606, 1970.CrossRefGoogle Scholar
  10. 10.
    Minuchin S, Baker L, Rosman BL, Lichman R, Milman L, Todd TC: A conceptual model of psychosomatic illness in children. Arch Gen Psychiat 32: 1031–1038, 1975.PubMedCrossRefGoogle Scholar
  11. 11.
    Garson A, Jr., Benson RS, Ivler L, Patton C: Parental reactions to children with congenital heart disease. Child Psychiat Hum Dev 9: 86–94, 1978.CrossRefGoogle Scholar
  12. 12.
    Glaser HH, Harrison GS, Lyn DB: Emotional implications of congenital heart disease in children. Pediatrics 33: 367–379, 1964.PubMedGoogle Scholar
  13. 13.
    Carr J: Effect on the family of a child with Down’s syndrome. Physiotherapy 62: 20–24, 1976.PubMedGoogle Scholar
  14. 14.
    Freeman RD, Malkin SF, Hastings JO: Psychological problems of deaf children and their families. A comparative study. Am Ann Deaf 120: 391–405, 1975.PubMedGoogle Scholar
  15. 15.
    Travis G: Chronic Illness in Children: Its Impact on Child and Family. Stanford, Stanford University Press, 1976.Google Scholar
  16. 16.
    Hans MB, Koeppen AH: Huntington’s chorea. Its impact on the spouse. J Ner Men Dis 168: 209–214, 1980.CrossRefGoogle Scholar
  17. 17.
    Abram HS, Buchanan DC: The gift of life. A review of the psychological aspects of kidney transplantation. Int J Psychiat Med 7: 153–164, 1977.CrossRefGoogle Scholar
  18. 18.
    Mykyta LJ, Bowling JH, Nelson DA, Lloyd EJ: Caring for relatives of stroke patients. Age Ageing 5: 87–90, 1976.PubMedCrossRefGoogle Scholar
  19. 19.
    Kreisman, DE, et al.: Family response to the mental illness of a relative. A review of the literature. Schizophr Bull 10: 34–57, 1974.PubMedCrossRefGoogle Scholar
  20. 20.
    Honeyman MS, Eisenberg H, Clueck BC, et al.: Psychological impact of heart disease in the family of the patient. Psychosom Med 9: 34–37, 1968.Google Scholar
  21. 21.
    Baudry F, Wiener A: The family of the surgical patient. Surgery 63: 416–422, 1968.PubMedGoogle Scholar
  22. 22.
    Lawler RH, et al.: Psychological implications of cystic fibrosis. Can Med Assoc J 94: 1043–1046, 1966.PubMedGoogle Scholar
  23. 23.
    Tropauer A, et al.: Psychological aspects of the care of children with cystic fibrosis. Am J Dis Child 119: 424432, 1970.Google Scholar
  24. 24.
    McCollum AT, Gibson LE: Family adaptation to the child with cystic fibrosis. J Pediatr 77: 571–578, 1970.PubMedCrossRefGoogle Scholar
  25. 25.
    Haggerty RJ, Alpert JJ: The child, his family, and illness. Postgrad Med 9: 228–233, 1963.Google Scholar
  26. 26.
    Rutter M: Children of Sick Parents. An Environmental and Psychiatric Study. London, Oxford Univ. Press, 1966.Google Scholar
  27. 27.
    Findlay J, Smith P, Graves PJ, Linton ML: Chronic diseases in childhood. A study of family reactions. Br J Med Educ 66–69, 1969.Google Scholar
  28. 28.
    Kleinman AM, Eisenberg L, Good B: Culture, illness, and care. Clinical lessons from anthropological and cross-cultural research. Ann Intern Med 88: 251–258, 1978.PubMedCrossRefGoogle Scholar
  29. 29.
    Eisenberg L: The search for care. Daedelus 106: 235246, 1977.Google Scholar
  30. 30.
    Eisenberg L, Kleinman A (eds.): The Relevance of Social Science for Medicine. Dordrecht, Reidel, 1981.Google Scholar
  31. 31.
    Frank JD: Persuasion and Healing. New York, Schocken, 1974.Google Scholar
  32. 32.
    Kleinman AM: Explanatory models in health care relationships. In: Health of the Family. Washington, DC, NCIH, 1975, pp. 159–172.Google Scholar
  33. 33.
    Good B: The heart of what’s the matter. Semantics and illness in Iran. Cult Med Psychiatry 1: 25–58, 1977.PubMedCrossRefGoogle Scholar
  34. 34.
    Good BJ, Good MJD: The meaning of symptoms. In: Eisenberg L, Kleinman A (eds.) The Relevance of Social Sciences for Medicine. Dordrecht, Reidel, 1981, pp. 165–196.CrossRefGoogle Scholar
  35. 35.
    Mackenzie M: Obesity as failure in American culture. Obesity Bariatric Med 5: 132–133, 1976.Google Scholar
  36. 36.
    Lipowski ZJ: Psychosocial aspects of disease. Arch Intern Med 71: 1197–1206, 1969.CrossRefGoogle Scholar
  37. 37.
    Kubler-Ross E: On Death and Dying. New York, Macmillan, 1969.Google Scholar
  38. 38.
    Parkes CM: The emotional impact of cancer on patients and their families. J Laryngol Otol 89: 1271–1279, 1975.PubMedCrossRefGoogle Scholar
  39. 39.
    Ellenberger H, Saucier J, Witthower ED: Phases types de l’adaptation familiale a la maladie physique prolongee d’un enfant. Can Psychiatr Assoc J 9: 322–330, 1964.Google Scholar
  40. 40.
    Chrisman NJ: The health seeking process: An approach to the natural history of illness. Cult Med Psychiat 1: 351–377, 1977.CrossRefGoogle Scholar
  41. 41.
    Stephens J, Lascari AD: Psychological follow-up of families with childhood leukemia. J Clin Psychol 30: 394397, 1974.Google Scholar
  42. 42.
    Friedman SB, et al.: Behavioral observations on parents anticipating the death of a child. Pediatrics 32: 610–625, 1963.PubMedGoogle Scholar
  43. 43.
    Green M, Solnit AJ: Reactions to the threatened loss of a child. A vulnerable child syndrome. Pediatrics 34: 58–66, 1964.PubMedGoogle Scholar
  44. 44.
    Kleinman AM: The cognitive structure of traditional medical systems. Ethnomed 3: 27–49, 1974.Google Scholar
  45. 45.
    Waxler N: Culture and mental illness. A social labeling perspective. J Nery Ment Dis 159: 379–395, 1974.CrossRefGoogle Scholar
  46. 46.
    Deutsch CP, Goldston JA: Family factors in home adjustment of the severely disabled. Marr Fam Liv 11: 31 2316, 1960.Google Scholar
  47. 47.
    Smiley GW, Morrison J: Family crisis: An opportunity for growth. Aust Fam Physician 9: 777–779, 1980.PubMedGoogle Scholar

Copyright information

© Springer Science+Business Media New York 1983

Authors and Affiliations

  • Byron J. Good
  • Mary-Jo DelVecchio Good
  • Bill D. Burr

There are no affiliations available

Personalised recommendations