Skip to main content
  • 101 Accesses

Abstract

Myelomeningocele (or spina bifida), as a medical anomaly, has a long past. Brocklehurst (1976) cites its description by Nicholas Tulp in his Observations Medicae of 1652. Effective medical treatment for myelomeningocele has a short history. It begins with the development in the 1950s of new shunting techniques for the hydrocephalus which often accompanies the disorder. Attention to the psychosocial problems of the growing number of persons with myelomeningocele is even more recent. These are problems which become apparent only when a high level of broadly accessible medical care is available, to give an appreciable survival rate beyond infancy.

This is a preview of subscription content, log in via an institution to check access.

Access this chapter

eBook
USD 16.99
Price excludes VAT (USA)
  • Available as EPUB and PDF
  • Read on any device
  • Instant download
  • Own it forever
Softcover Book
USD 16.99
Price excludes VAT (USA)
  • Compact, lightweight edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info

Tax calculation will be finalised at checkout

Purchases are for personal use only

Institutional subscriptions

Preview

Unable to display preview. Download preview PDF.

Unable to display preview. Download preview PDF.

References

  • Alter, M. Anencephalus, hydrocephalus and spina bifida. Epidemiology, with special reference to a survey in Charleston, S. C. Archives of Neurology, 1962, 7, 411–422.

    Article  Google Scholar 

  • Anderson, E. The psychological and social adjustment of adolescents with cerebral palsy or spina bifida and hydrocephalus. International Journal of Rehabilitation Research, 1979, 2(2), 245–247 (Research Abstract).

    Article  Google Scholar 

  • Barry, M. A. Myelomeningocele as a family problem: A developmental task model. In R. L. McLaurin (Ed.), Myelomeningocele. New York: Grune & Stratton, 1977.

    Google Scholar 

  • Bayley, N. Bayley scales of infant development. New York: The Psychological Corporation, 1969.

    Google Scholar 

  • Bender, L. Visual motor gestalt test. American Orthopsychiatric Association, 1946.

    Google Scholar 

  • Benton, A. L. The revised visual retention test. New York: Psychological Corporation, 1955.

    Google Scholar 

  • Boyd, R. D. Boyd developmental progress scale. San Bernardino: Inland Counties Regional Center, 1974.

    Google Scholar 

  • Briggs, P. F., & Marquette, C. H. Intellectual and emotional development. In W. H. Bunch, A. S. Cass, A. S. Bensman, & D. M. Long, Modern management of myelomeningocele. St. Louis: Warren H. Green, 1972.

    Google Scholar 

  • Brocklehurst, G. Spina bifida for the clinician. Clinics in developmental medicine No. 57. London: Spastics International Medical Publications, 1976.

    Google Scholar 

  • Bundh, W. H., Cass, A. S., Bensman, A. S., & Long, D. M. Modern management of myelomeningocele. St. Louis: Warren H. Green, 1972.

    Google Scholar 

  • Campbell, D. P. Manual for the Strong-Campbell interest inventory. Stanford, Calif: Stanford University Press, 1974.

    Google Scholar 

  • Cobb, J. A., and Ray, R. S. Manual for coding discrete behaviors in the school setting. In T. W. Clark, D. R. Evans, & L. A. Hamerlynck (Eds.), Implementing behavioral programs for schools and clinics. Champaign, Ill.: Research Press, 1972.

    Google Scholar 

  • Cutright, A. S. Foundations of parental adjustment-early intervention, crisis intervention. In R. L. McLaurin (Ed.), Myelomeningocele. New York: Grune & Stratton, 1977.

    Google Scholar 

  • Doll, E. A. Vineland social maturity scale. Circle Pines, Minnesota: American Guidance Service, 1965.

    Google Scholar 

  • Dorner, S. Psychological and social problems of families of adolescent spina bifida patients: A preliminary report. Developmental Medicine and Child Neurology (Supplement No. 29), 1973, 15(6), 24–26.

    Google Scholar 

  • Dorner, S. Sexual interest and activity in adolescents with spina bifida. Journal of Child Psychology and Psychiatry, 1977, 18, 229–237.

    Article  Google Scholar 

  • Edwards, A. L. Edwards personal preference schedule. New York: Psychological Corporation, 1959.

    Google Scholar 

  • Ellis, H. L. Parental involvement in the decision to treat spina bifida cystica. British Medical Journal, 1974, 1, 369–372.

    Article  Google Scholar 

  • Evans, K., Hickman, V., & Carter, C. D. Handicap and social status of adults with spina bifida cystica. British Journal of Preventive and Social Medicine, 1974, 28, 85–92.

    Google Scholar 

  • Frankenburg, W. K., Dodds, J. B., & Fandal, A. W. Denver developmental screening test, University of Colorado Medical Center, 1970.

    Google Scholar 

  • Forrest, D. Management of bowel and bladder in spina bifida. In G. Brocklehurst, Spina bifida for the clinician: Clinics in Developmental Medicine No. 57, 1976.

    Google Scholar 

  • Freeman, J. Practical management of meningomyelocele. Baltimore: University Park Press, 1974.

    Google Scholar 

  • Freeston, B. M. An enquiry into the effect of a spina bifida child upon family life. Developmental Medicine and Child Neurology, 1971, 13, 456–461.

    Article  Google Scholar 

  • Gardner, W. J. Etiology and pathogenesis of the development of myelomeningocele. In R. L. McLaurin (Ed.), Myelomeningocele. New York: Grune & Stratton, 1977.

    Google Scholar 

  • Harris, L. Hospitalization. In R. L. McLaurin (Ed.), Myelomeningocele. New York: Grune & Stratton, 1977.

    Google Scholar 

  • Hathaway, S. R., & McKinley, J. C. Minnesota multiphasic personality inventory. New York: Psychological Corporation, 1948.

    Google Scholar 

  • Hayden, P. W., Davenport, S. L. H., & Campbell, M. M. Adolescents with myelodysplasia: Impact of physical disability on emotional maturation. Pediatrics, 1979, 1(64), 53–59.

    Google Scholar 

  • Herskowitz, J., & Marks, A. N. The spina bifida patient as a person. Developmental Medicine and Child Neurology, 1977, 19, 413–417.

    Article  Google Scholar 

  • Hewitt, D. Geographic variations in the mortality attributed to spina bifida and other congenital malformations. British Journal of Preventive and Social Medicine, 1963, 17, 13.

    Google Scholar 

  • Hunt, G. M., & Holmes, A. E. Some factors relating to intelligence in treated children with spina bifida cystica. Developmental Medicine and Child Neurology (Supplement No. 35), 1975, 6, 65–70.

    Google Scholar 

  • James, J. A. Faulty management limits myelomeningocele. Pediatric News, 1975, 9(10)

    Google Scholar 

  • Kolin, I. S., Scherzer, A. L., New, B., & Garfield, M. Studies of the school-age child with meningomyelocele: Social and emotional adaptation. Journal of Pediatrics, 1971, 78, 1013–1019.

    Article  Google Scholar 

  • Kuder, G. F. Kuder Preference Record-Form C. Chicago: Science Research Associates, 1960.

    Google Scholar 

  • Land, L. C. A study of the sensory integration of children with myelomeningocele. In R. L. McLaurin (Ed.), Myelomeningocele. New York: Grune & Stratton, 1977.

    Google Scholar 

  • Laurence, K. M. The recurrence risk in spina bifida cystica and anencephaly. Developmental Medicine and Child Neurology (Supplement No. 20), 1969, 23–30.

    Google Scholar 

  • Laurence, K. M., & Beresford, A. Degree of physical handicap, education, and occupation of 51 adults with spina bifida. British Journal of Preventive and Social Medicine, 1979, 30(3), 197–202.

    Google Scholar 

  • Lorber, J. Results of treatment of myelomeningocele. Developmental Medicine and Child Neurology, 1971, 13, 279–303.

    Article  Google Scholar 

  • Lorber, J. Faulty management limits myelomeningocele. Pediatric News, 1976, 9(10)

    Google Scholar 

  • Martin, P. Marital breakdown in families of patients with spina bifida cystica. Developmental Medicine and Child Neurology, 1975, 17, 757–764.

    Article  Google Scholar 

  • Mash, E., Terdal, L., & Anderson, K. The response class matrix: A procedure for recording parent-child interactions. In E. J. Mash & L. G. Terdal (Eds.), Behavior therapy assessment. New York: Springer Publishing Company, 1976.

    Google Scholar 

  • McGill, M., Coordinator of Myelomeningocele Clinic, Crippled Children’s Division, University of Oregon Health Sciences Center, Personal communication, 1980.

    Google Scholar 

  • Murray, H. A. Manual for the thematic apperception test. Cambridge: Harvard University Press, 1943.

    Google Scholar 

  • Neel, J. V. A study of major congenital defects in Japanese infants. American Journal of Human Genetics, 1958, 10, 398–445

    Google Scholar 

  • Nigro, G. Some observations on personal relationships and sexual relationships among lifelong disabled Americans. Rehabilitation Literature, 1976, 37, 328–330, 334.

    Google Scholar 

  • Osgood, C. E., Suci, G. J., & Tannenbaum, P. H. The measurement of meaning. Urbana: University of Illinois Press, 1957.

    Google Scholar 

  • Reitan, R. A research program on the psychological effects of brain lesions in human beings. In M. R. Ellis (Ed.), International review in mental retardation. (Vol. 1). New York: Academic Press, 1966.

    Google Scholar 

  • Rorschach, H. Rorschach psychodiagnostics. New York: Grune & Stratton, 1948.

    Google Scholar 

  • Shaw, A. Dilemmas of “informed consent“ in children. New England Journal of Medicine, 1973, 289, 890.

    Article  Google Scholar 

  • Shurtleff, D. B. Myelodysplasia: Management and treatment. Current Problems in Pediatrics, 1980, 10(3)

    Google Scholar 

  • Shurtleff, D. B., Hayden, P. W., Chapman, W. H., Broy, A. B., & Hill, M. L. Myelodysplasia problems of long-term survival and social function. Western Journal of Medicine, 1975, 122, 199–205.

    Google Scholar 

  • Soare, P. L., & Raimondi, A.J. Intellectual and perceptual-motor characteristics of treated myelomeningocele children. American Journal of Diseases of Children, 1977, 131, 199–204.

    Google Scholar 

  • Spina Bifida Association of Houston. Spina bifida: The second most common major birth defect (pamphlet). Houston, Texas: Spina Bifida Association.

    Google Scholar 

  • Stark, D. G. (Ed.). Spina bifida: Problems and management. London: Blackwell Scientific Publications, 1977.

    Google Scholar 

  • Terman, L. M., & Merrill, M. A. Stanford-Binet Intelligence Scale-Form LM, Boston: Houghton Mifflin, 1960.

    Google Scholar 

  • Tew, B. Spina bifida children’s scores on the Wechsler intelligence scale for children. Perceptual and Motor Skills, 1977, 44, 381–382.

    Article  Google Scholar 

  • Tew, B., & Laurence, K. M. Mothers, brothers and sisters of patients with spina bifida. Developmental Medicine and Child Neurology (Supplement No. 29), 1973, 15(6), 69–76.

    Google Scholar 

  • Tew, B. J., & Laurence, K. M. The effects of admission to hospital and surgery on children with spina bifida. Developmental Medicine and Child Neurology (Supplement No. 37), 1976, 18(6), 119–125.

    Google Scholar 

  • Tew, B. J., Laurence, K. M., Payne, H., & Rawnsley, K. Marital stability following the birth of a child with spina bifida. British Journal of Psychiatry, 1977, 131, 79–82.

    Article  Google Scholar 

  • von Recklinghausen, F. Untersuchungen über die spina bifida. Archiv für Pathologische Anatomie und Physiologie, 1886, 105, 243–330.

    Article  Google Scholar 

  • Warkany, J. Morphogenesis of spina bifida. In R. L. McLaurin (Ed.), Myelomeningocele. New York: Grune & Stratton, 1977.

    Google Scholar 

  • Wechsler, D. Wechsler Adult Intelligence Scale. New York: The Psychological Corporation, 1955.

    Google Scholar 

  • Wechsler, D. Wechsler Intelligence Scale for Children-Revised. New York: The Psychological Corporation, 1974.

    Google Scholar 

  • Wright, B. Physical disability-A psychological approach. New York: Harper & Row, 1960.

    Book  Google Scholar 

Download references

Authors

Rights and permissions

Reprints and permissions

Copyright information

© 1981 Plenum Press, New York

About this chapter

Cite this chapter

Lindemann, J.E., Boyd, R.D. (1981). Myelomeningocele (Spina Bifida). In: Psychological and Behavioral Aspects of Physical Disability. Springer, Boston, MA. https://doi.org/10.1007/978-1-4684-4004-1_9

Download citation

  • DOI: https://doi.org/10.1007/978-1-4684-4004-1_9

  • Publisher Name: Springer, Boston, MA

  • Print ISBN: 978-1-4684-4006-5

  • Online ISBN: 978-1-4684-4004-1

  • eBook Packages: Springer Book Archive

Publish with us

Policies and ethics