Abstract
Toward the closing months of his life, 19-year-old Michael philosophically discussed the impact that Duchenne muscular dystrophy had had on his life. He said, “I think I would like a total body transplant. I’d like to keep my brain and my memories and all that is ‘me’, but I wish I could trade in the rest for something that works.”
Access this chapter
Tax calculation will be finalised at checkout
Purchases are for personal use only
Preview
Unable to display preview. Download preview PDF.
References
Ambrosini, P., & Nurnberg, H. Psychopathology: A primary feature of myotonic dystrophy. Psychosomatics, 1979, 20(6), 393–395, 398–399.
Blount, M., Bratton, C., & Luttrell, N. Management of the patient with amyotropic lateral sclerosis. The Nursing Clinics of North America, 1979, 14(1), 157–171.
Bobowick, A., & Brody, J. Epidemiology of motor-neuron diseases. New England Journal of Medicine, 1973, 288, 1051.
Brolley, M., & Hollender, M. Psychological problems of patients with myasthenia gravis. Journal of Nervous and Mental Diseases, 1955, 122, 178–184.
Brown, W., & Mueller, P. Psychological function in individuals with amyotrophic lateral sclerosis. Psychosomatic Medicine, 1970, 32, 141–152.
Brumback, R., Bertorini, T., & Liberman, J. Inside-of-the-body test drawings performed by patients with neuromuscular diseases: A preliminary report. Perceptual and Motor Skills, 1978, 47, 155–160.
Buchanan, D., LaBarbera, C., Roelofs, R., & Olson, W. Reactions of families with children with Duchenne muscular dystrophy. General Hospital Psychiatry, 1979, 1(3), 262–269.
Burgemeister, B., Blum, L., & Lorge, I. Columbia mental maturity scale. New York: Harcourt Brace Jovanovich, 1972.
Burns, R., & Kaufman, H. Actions, styles and symbols in Kinetic Family Drawings (K-F-D): An interpretive manual. New York: Bruner/Mazel, 1972.
DeLisa, J., Mikulic, M., Miller, R., & Melnick, R. Amyotrophic lateral sclerosis: Comprehensive management. American Family Physician, March, 1979, 137–142.
Dubowitz, V. Muscle disorders in childhood. Philadelphia: W. B. Saunders, 1978.
Dunn, L.M. Peabody picture vocabulary test. Circle Pines, Minn.: American Guidance Service, 1959.
Flynn, I., Schwetz, K., & Williams, D. Muscular dystrophy: Comprehensive nursing care. The Nursing Clinics of North America, 1979, 14(1), 123–132.
Geist, R. Onset of chronic illness in children and adolescents: Psychotherapeutic and consultative intervention. American Journal of Orthopsychiatry, 1979, 49(1), 4–23.
Harper, P. Congenital myotonic dystrophy in Britain. I. Clinical aspects. Archives of Disease in Childhood, 1975, 50, 505–513.
Harper, P. Myotonic Dystrophy. Philadelphia: W. B. Saunders, 1979.
Hathaway, S., & McKinley, J. Minnesota Multiphasic Personality Inventory. New York: The Psychological Corporation, 1948.
Holroyd, J. The Questionnaire on Resources and Stress: An instrument to measure family response to a handicapped family member. Journal of Community Psychology, 1974, 2, 92–94.
Holroyd, J., & Guthrie, D. Stress in families of children with neuromuscular disease. Journal of Clinical Psychology, 1979, 35(4), 734–739.
Karagan, J., & Zellweger, H. Early verbal disability in children with Duchenne muscular dystrophy. Developmental Medicine and Child Neurology, 1978, 20, 435–441.
Kornfeld, M., & Siegel, I. Parental group therapy in the management of a fatal childhood disease. Health and Social Work, 1979, 4, 99–118.
Kübier-Ross, E. On death and dying. New York: Macmillan, 1969.
Kurland, L., Choi, N., & Sayre, G. Implications of incidence and geographic patterns on the classification of amyotrophic lateral sclerosis. In F. H. Norris, Jr., & L. Kurland (Eds.), Motor neuron disease. New York: Grune & Stratton, 1969.
Lynch, M., Roberts, J., & Ounsted, C. Myotonic dystrophy and bonding failure: letter. Archives of Disease in Childhood, 1979, 54, 807–808.
Marsh, G. G., & Munsat, T. Evidence of early impairment of verbal intelligence in Duchenne muscular dystrophy. Archives of Disease in Childhood, 1974, 49, 118–122.
Martin, R., & Flegenheimer, W. Psychiatric aspects of the management of the myasthenic patient. The Mount Sinai Journal of Medicine, 1971, 38(6), 594–601.
Mearig, J. Some dynamics of personality development in boys suffering from muscular dystrophy. Rehabilitation Literature, 1973, 34(8), 226–230, 243.
Mearig, J. The assessment of intelligence in boys with muscular dystrophy. Rehabilitation Literature, 1979, 40(9), 262–274.
Mulder, D., & Espinosa, R. Amyotrophic lateral sclerosis: Comparison of the clinical syndrome in Guam and the United States. In F. Norris, Jr., & L. Kurland (Eds.), Motor neuron diseases. New York: Grune & Stratton, 1969.
Osserman, K., & Genkins, G. Studies in myasthenia gravis: A review of a 20-year experience in over 1,200 patients. Mt. Sinai Journal of Medicine, 1971, 497–537.
Peters, P., Swenson, W., & Mulder, D. Is there a characteristic personality in amyotrophic lateral sclerosis? Archives of Neurology, 1978, 35, 321–322.
Schwartz, M., & Cahill, R. Psychopathology associated with myasthenia gravis and its treatment by psychotherapeutically oriented group counseling. Journal of Chronic Diseases, 1971, 24, 543–552.
Siegel, L., & Kornfeld, M. Kinetic family drawing test for evaluating families having children with muscular dystrophy. Physical Therapy, 1980, 60(3), 293–298.
Sneddon, J. Myasthenia gravis: A study of social, medical and emotional problems in 26 patients. The Lancet, 1980, Mar 8, 1(8167), 526–528.
Wechsler, D. Wechsler adult intelligence scale. New York: The Psychological Corporation, 1955.
Wechsler, D. Wechsler intelligence scale for children — Revised. New York: The Psychological Corporation, 1974.
Rights and permissions
Copyright information
© 1981 Plenum Press, New York
About this chapter
Cite this chapter
Lindemann, J.E., Stanger, M.E. (1981). Progressive Muscle Disorders. In: Psychological and Behavioral Aspects of Physical Disability. Springer, Boston, MA. https://doi.org/10.1007/978-1-4684-4004-1_10
Download citation
DOI: https://doi.org/10.1007/978-1-4684-4004-1_10
Publisher Name: Springer, Boston, MA
Print ISBN: 978-1-4684-4006-5
Online ISBN: 978-1-4684-4004-1
eBook Packages: Springer Book Archive