Progressive Muscle Disorders

  • James E. Lindemann
  • Mary Ellen Stanger


Toward the closing months of his life, 19-year-old Michael philosophically discussed the impact that Duchenne muscular dystrophy had had on his life. He said, “I think I would like a total body transplant. I’d like to keep my brain and my memories and all that is ‘me’, but I wish I could trade in the rest for something that works.”


Amyotrophic Lateral Sclerosis Muscular Dystrophy Duchenne Dystrophy Spinal Muscular Atrophy Amyotrophic Lateral Sclerosis Patient 
These keywords were added by machine and not by the authors. This process is experimental and the keywords may be updated as the learning algorithm improves.


Unable to display preview. Download preview PDF.

Unable to display preview. Download preview PDF.


  1. Ambrosini, P., & Nurnberg, H. Psychopathology: A primary feature of myotonic dystrophy. Psychosomatics, 1979, 20(6), 393–395, 398–399.Google Scholar
  2. Blount, M., Bratton, C., & Luttrell, N. Management of the patient with amyotropic lateral sclerosis. The Nursing Clinics of North America, 1979, 14(1), 157–171.Google Scholar
  3. Bobowick, A., & Brody, J. Epidemiology of motor-neuron diseases. New England Journal of Medicine, 1973, 288, 1051.CrossRefGoogle Scholar
  4. Brolley, M., & Hollender, M. Psychological problems of patients with myasthenia gravis. Journal of Nervous and Mental Diseases, 1955, 122, 178–184.CrossRefGoogle Scholar
  5. Brown, W., & Mueller, P. Psychological function in individuals with amyotrophic lateral sclerosis. Psychosomatic Medicine, 1970, 32, 141–152.Google Scholar
  6. Brumback, R., Bertorini, T., & Liberman, J. Inside-of-the-body test drawings performed by patients with neuromuscular diseases: A preliminary report. Perceptual and Motor Skills, 1978, 47, 155–160.CrossRefGoogle Scholar
  7. Buchanan, D., LaBarbera, C., Roelofs, R., & Olson, W. Reactions of families with children with Duchenne muscular dystrophy. General Hospital Psychiatry, 1979, 1(3), 262–269.CrossRefGoogle Scholar
  8. Burgemeister, B., Blum, L., & Lorge, I. Columbia mental maturity scale. New York: Harcourt Brace Jovanovich, 1972.Google Scholar
  9. Burns, R., & Kaufman, H. Actions, styles and symbols in Kinetic Family Drawings (K-F-D): An interpretive manual. New York: Bruner/Mazel, 1972.Google Scholar
  10. DeLisa, J., Mikulic, M., Miller, R., & Melnick, R. Amyotrophic lateral sclerosis: Comprehensive management. American Family Physician, March, 1979, 137–142.Google Scholar
  11. Dubowitz, V. Muscle disorders in childhood. Philadelphia: W. B. Saunders, 1978.Google Scholar
  12. Dunn, L.M. Peabody picture vocabulary test. Circle Pines, Minn.: American Guidance Service, 1959.Google Scholar
  13. Flynn, I., Schwetz, K., & Williams, D. Muscular dystrophy: Comprehensive nursing care. The Nursing Clinics of North America, 1979, 14(1), 123–132.Google Scholar
  14. Geist, R. Onset of chronic illness in children and adolescents: Psychotherapeutic and consultative intervention. American Journal of Orthopsychiatry, 1979, 49(1), 4–23.CrossRefGoogle Scholar
  15. Harper, P. Congenital myotonic dystrophy in Britain. I. Clinical aspects. Archives of Disease in Childhood, 1975, 50, 505–513.CrossRefGoogle Scholar
  16. Harper, P. Myotonic Dystrophy. Philadelphia: W. B. Saunders, 1979.Google Scholar
  17. Hathaway, S., & McKinley, J. Minnesota Multiphasic Personality Inventory. New York: The Psychological Corporation, 1948.Google Scholar
  18. Holroyd, J. The Questionnaire on Resources and Stress: An instrument to measure family response to a handicapped family member. Journal of Community Psychology, 1974, 2, 92–94.CrossRefGoogle Scholar
  19. Holroyd, J., & Guthrie, D. Stress in families of children with neuromuscular disease. Journal of Clinical Psychology, 1979, 35(4), 734–739.CrossRefGoogle Scholar
  20. Karagan, J., & Zellweger, H. Early verbal disability in children with Duchenne muscular dystrophy. Developmental Medicine and Child Neurology, 1978, 20, 435–441.CrossRefGoogle Scholar
  21. Kornfeld, M., & Siegel, I. Parental group therapy in the management of a fatal childhood disease. Health and Social Work, 1979, 4, 99–118.Google Scholar
  22. Kübier-Ross, E. On death and dying. New York: Macmillan, 1969.Google Scholar
  23. Kurland, L., Choi, N., & Sayre, G. Implications of incidence and geographic patterns on the classification of amyotrophic lateral sclerosis. In F. H. Norris, Jr., & L. Kurland (Eds.), Motor neuron disease. New York: Grune & Stratton, 1969.Google Scholar
  24. Lynch, M., Roberts, J., & Ounsted, C. Myotonic dystrophy and bonding failure: letter. Archives of Disease in Childhood, 1979, 54, 807–808.CrossRefGoogle Scholar
  25. Marsh, G. G., & Munsat, T. Evidence of early impairment of verbal intelligence in Duchenne muscular dystrophy. Archives of Disease in Childhood, 1974, 49, 118–122.CrossRefGoogle Scholar
  26. Martin, R., & Flegenheimer, W. Psychiatric aspects of the management of the myasthenic patient. The Mount Sinai Journal of Medicine, 1971, 38(6), 594–601.Google Scholar
  27. Mearig, J. Some dynamics of personality development in boys suffering from muscular dystrophy. Rehabilitation Literature, 1973, 34(8), 226–230, 243.Google Scholar
  28. Mearig, J. The assessment of intelligence in boys with muscular dystrophy. Rehabilitation Literature, 1979, 40(9), 262–274.Google Scholar
  29. Mulder, D., & Espinosa, R. Amyotrophic lateral sclerosis: Comparison of the clinical syndrome in Guam and the United States. In F. Norris, Jr., & L. Kurland (Eds.), Motor neuron diseases. New York: Grune & Stratton, 1969.Google Scholar
  30. Osserman, K., & Genkins, G. Studies in myasthenia gravis: A review of a 20-year experience in over 1,200 patients. Mt. Sinai Journal of Medicine, 1971, 497–537.Google Scholar
  31. Peters, P., Swenson, W., & Mulder, D. Is there a characteristic personality in amyotrophic lateral sclerosis? Archives of Neurology, 1978, 35, 321–322.CrossRefGoogle Scholar
  32. Schwartz, M., & Cahill, R. Psychopathology associated with myasthenia gravis and its treatment by psychotherapeutically oriented group counseling. Journal of Chronic Diseases, 1971, 24, 543–552.CrossRefGoogle Scholar
  33. Siegel, L., & Kornfeld, M. Kinetic family drawing test for evaluating families having children with muscular dystrophy. Physical Therapy, 1980, 60(3), 293–298.Google Scholar
  34. Sneddon, J. Myasthenia gravis: A study of social, medical and emotional problems in 26 patients. The Lancet, 1980, Mar 8, 1(8167), 526–528.CrossRefGoogle Scholar
  35. Wechsler, D. Wechsler adult intelligence scale. New York: The Psychological Corporation, 1955.Google Scholar
  36. Wechsler, D. Wechsler intelligence scale for children — Revised. New York: The Psychological Corporation, 1974.Google Scholar

Copyright information

© Plenum Press, New York 1981

Authors and Affiliations

  • James E. Lindemann
  • Mary Ellen Stanger

There are no affiliations available

Personalised recommendations