Psychological Aspects of the Care of Children with Cystic Fibrosis

  • Alan Tropauer
  • Martha Neal Franz
  • Victor W. Dilgard
Part of the Current Topics in Mental Health book series (CTMH)


Recent advances in detection and management of cystic fibrosis have significantly improved the affected individual’s chances of survival beyond childhood years. With early recognition of the disease the patient and his family often become involved in a program of intensive treatment that continues for the remainder of his life.1-3 The daily care at home necessitates large expenditures of time and effort for the patient and his parents. The financial burden can be considerable, resulting often in the depletion of savings and the forgoing of luxuries and vacations. Siblings frequently must defer their needs and desires as the patient becomes the focus of attention. In the more severe cases, recurrent hospitalization of the sick child for complications disrupts family routine and creates emotional crises. Finally, despite the most adequate care, the course of the disease may be inexorable, with death usually intervening in early adult life.4


Cystic Fibrosis Sick Child Early Adult Life Postural Drainage Recurrent Hospitalization 
These keywords were added by machine and not by the authors. This process is experimental and the keywords may be updated as the learning algorithm improves.


Unable to display preview. Download preview PDF.

Unable to display preview. Download preview PDF.


  1. 1.
    Doershuk, C. F., & Matthews, L. W. Cystic fibrosis and obstructive pulmonary disease, ambulatory pediatrics. Philadelphia: W. B. Saunders Co, 1968.Google Scholar
  2. 2.
    Living with cystic fibrosis: A guide for the young adult. New York, National Cystic Fibrosis Research Foundation, 1967.Google Scholar
  3. 3.
    Stoutt, G. E., Jr. Cystic fibrosis: A booklet for parents. Louisville, 1962.Google Scholar
  4. 4.
    Warwick, W. J. Cystic fibrosis: Nature and prognosis. Minnesota Medicine 50, 1049–1053, 1967.PubMedGoogle Scholar
  5. 5.
    Lawler, R. H., Nakielny, W., & Wright, N. A. Psychological implications of cystic fibrosis. Canadian Medical Association Journal 94, 1043–1046, 1966.PubMedGoogle Scholar
  6. 6.
    Turk, J. Impact of cystic fibrosis on family functioning. Pediatrics 34, 67–71, 1964.PubMedGoogle Scholar
  7. 7.
    Freud, A. The ego and the mechanisms of defence. New York: International Universities Press Inc, 1946.Google Scholar
  8. 8.
    Buck, J. N. The House-Tree-Person Technique, Revised Manual. Los Angeles: Western Psychological Services, 1966.Google Scholar
  9. 9.
    Koppitz, E. M. Psychological evaluation of children’s human figure drawings. New York: Grune & Stratton Inc, 1968.Google Scholar
  10. 10.
    Glaser, H. H., Harrison, G. S., & Lynn, D. B. Emotional implications of congenital heart disease in children. Pediatrics 33, 367–379, 1964.PubMedGoogle Scholar
  11. 11.
    Langford, W. S. The child in the pediatric hospital: Adaption to illness and hospitalization. American Journal of Orthopsychiatry 31, 667–684, 1961.PubMedCrossRefGoogle Scholar
  12. 12.
    Richmond, J. B., & Waisman, H. A. Psychological aspects of the management of children with malignant diseases. American Journal of Diseases of Children 89, 42–47,1955.PubMedGoogle Scholar
  13. 13.
    Glaser, H. H., Lynn, D. B., & Harrison, G. S. Comprehensive medical care for handicapped children: I. Patterns of anxiety in mothers of children with rheumatic fever. American Journal of Diseases of Children 102, 344–354, 1961.PubMedGoogle Scholar
  14. 14.
    Gardner, G. Psychiatric problems of adolescence. In S. Arieti (Ed.),American handbook of psychiatry. New York: Basic Books, 1959, vol. 1Google Scholar

Copyright information

© Plenum Publishing Corporation 1977

Authors and Affiliations

  • Alan Tropauer
    • 1
  • Martha Neal Franz
  • Victor W. Dilgard
  1. 1.Department of Child PsychiatryEmory UniversityAtlantaUSA

Personalised recommendations