Disparities in Adolescent Patient–Provider Communication Regarding Fertility Preservation Care
Cancer affects large numbers of men and women of reproductive age. The effects of cancer and cancer therapies can render patients’ reproductive potential transiently or permanently impaired. With the release of the 2006 American Society of Clinical Oncology recommendations, a heightened sense of awareness of these clinical issues has developed. While progress has been made in delivering fertility preservation care to both males and females, it is clear that much work has yet to be done in providing patients with treatments that will mitigate the potentially sterilizing effects of oncologic therapies. Moreover, disparities have been noted throughout the literature along the lines of both gender and age, with females and adolescents having less access to fertility preservation options. Our aim in this chapter is to heighten awareness of the existing disparities and encourage providers to more effectively utilize communication strategies to optimize comprehensive oncologic care for these patients.
KeywordsAdolescent Patient Fertility Preservation Ovarian Tissue Cryopreservation Oncology Provider Pediatric Provider
This work was supported by the Oncofertility Consortium NIH 5UL1DE019587.
- 1.Ries LAG, Melbert D, Krapcho M, et al., editors. SEER cancer statistics review, 1975–2004. Bethesda, MD: National Cancer Institute; 2006. http://seer.cancer.gov/csr/1975_2004/. Accessed 22 Feb 2013.
- 2.Bleyer A, O’Leary M, Barr R, Ries LAG, editors. Cancer epidemiology in older adolescents and young adults 15 to 29 years of age, including SEER incidence and survival: 1975–2000. Bethesda, MD: National Cancer Institute; 2006.Google Scholar
- 14.Fertile Hope. Pediatrics—information for parents. 2012. http://www.fertilehope.org/learn-more/cancer-and-fertility-info/pediatrics.cfm. Accessed 22 Feb 2013.
- 19.Köhler TS, Kondapalli LA, Shah A, Chan S, Woodruff TK, Brannigan RE. Results from the Survey for Preservation of Adolescent REproduction (SPARE) study: gender disparity in delivery of fertility preservation message to adolescents with cancer. J Assist Reprod Genet. 2010;28:269–77.PubMedCrossRefGoogle Scholar
- 25.Meisel A. The “exceptions” to the informed consent doctrine: striking a balance between competing values in medical decisionmaking. Wis Law Rev. 1979;2:413–88.Google Scholar