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Patient and Family Tools to Aid in Education and Decision-Making About Oncofertility


Adolescent and young adult patients diagnosed with cancer often respond by focusing more on immediate treatment needs, and not the potential consequences of late or long-term effects. However, addressing fertility preservation prior to the initiation of cancer treatment can help reduce the number of cancer survivors who experience infertility-related distress. Research has consistently shown that cancer patients and survivors desire to have their risks to fertility and preservation options disclosed even if they choose not to pursue fertility preservation options. Decision making in fertility preservation among cancer patients is complex and intricate, and tools to assist the healthcare professional or researcher in assessing the patient’s values and understanding of fertility are limited. Decisions about fertility preservation may be considered to have three components: risk appraisal, information integration, and long-term consideration. This chapter covers the criteria and framework for creating a patient decision aid and provides examples of currently available oncofertility-related educational materials and decision aids.


  • Assisted Reproductive Technology
  • Fertility Preservation
  • Reproductive Endocrinologist
  • Preservation Option
  • Fertility Preservation Option

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Correspondence to Gwendolyn P. Quinn Ph.D. .

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Quinn, G.P., Vadaparampil, S.T., Sehovic, I., Clayman, M.L. (2014). Patient and Family Tools to Aid in Education and Decision-Making About Oncofertility. In: Woodruff, T., Clayman, M., Waimey, K. (eds) Oncofertility Communication. Springer, New York, NY.

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