Communicating Across Diverse and Differently Literate Audiences
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Oncologists and fertility specialists are often challenged when communicating to patients the complex information about cancer, risks of cancer treatment to reproduction, and the processes of fertility preservation (FP), including the probabilities for successful later conception. This has added to the already unfair burden of cancer upon certain populations of women who may have limited backgrounds or levels of literacy. A small but growing number of professionals and organizations are steadily improving access to fertility preservation information for such women. The following discussion outlines the communication barriers and presents strategies for clinicians to improve the dissemination of fertility preservation information to patients.
KeywordsFertility Preservation Limited English Proficiency Nonnative Language Ovarian Tissue Cryopreservation Oncology Provider
This work was supported by the Oncofertility Consortium NIH 5UL1DE019587.
- 2.Shin HB, Kominski RA. Language use in the united states: 2007: U.S. Department of Commerce, U.S. Census Bureau; April 2010.Google Scholar
- 3.United States Census Bureau. U.S. Census Bureau: state and County QuickFacts. 2012. http://quickfacts.census.gov/qfd/states/00000.html
- 7.Nielsen-Bohlman LPA, Kindig D. Health literacy: a prescription to end confusion. Washington, DC: National Academy of Science; 2004.Google Scholar
- 8.OECD and Statistics Canada. Literacy in the information age: final report of the International Adult Literacy Survey. Paris and Ottowa; 2000.Google Scholar
- 9.Kutner M, Greenberg E, Baer J, National Assessment of Adult LIteracy (NAAL). A first look at the literacy of America’s adults in the 21st century. Washington, DC: US Department of Education, Institute of Education Sciences; 2005.Google Scholar
- 19.Institute of Medicine. The unequal burden of cancer: an assessment of NIH research and programs for the ethnic minorities and the medically underserved. Washington, DC: National Academies Press; 1999.Google Scholar
- 20.Rutten LF, Beckjord EB, Hess BW, Croyle RT. Cancer communication: Health Information National Trends Survey. Washington, DC: National Cancer Institute. NIH Pub. No. 07-6214.Google Scholar
- 37.Peate M, Meiser B, Friedlander M, et al. It’s now or never: fertility-related knowledge, decision-making preferences, and treatment intentions in young women with breast cancer—an Australian fertility decision aid collaborative group study. J Clin Oncol. 2011;29(13):1670–7.PubMedCrossRefGoogle Scholar
- 44.https://www.census.gov/hhes/socdemo/language/data/acs/index.html. Accessed Dec 2012.
- 48.Stone D, Patton B, Heen S. Difficult conversations. New York, NY: Penguin; 1999.Google Scholar
- 57.Ko L, Reuland D, Jolles M, Clay R, Pignone M. Cultural and linguistic adaptation of a multimedia colorectal cancer screening decision aid for Spanish speaking latinos. J Health Commun. (in press).Google Scholar
- 63.http://usability.gov/about/index.html. Accessed March 2013.