Family Caregiving: Implications for Rural Practice, Policy, Education, and Research
Societal norms for family solidarity, and reciprocity and the shared belief that kin can, should, and will depend on each other provide strong social imperatives for families to care for kin in times of sickness and disability (George, 1986). Of the 44 million Americans who provide unpaid, informal care for someone with a chronic illness or disability, more than 80% are family kin: spouses, adult children, grandchildren, or others related by blood or marriage to the person for whom they provide care (National Alliance for Caregiving and AARP, 2005; Pinquart & Sorensen, 2006). However, family caregiving has been associated with burden, caregiver role strain, and distress (c.f. Berg-Weger et al., 2000; Schulz & Beach, 1999) and family care can be particularly stressful in rural communities where kin often do not live together.
KeywordsRural Community Informal Care Primary Caregiver Family Caregiver Family Conflict
This chapter was developed under the auspices of a research grant to the first author from the National Institute of Nursing Research (RO1 NR 0008285).
- Administration on Aging. (2004). The Older Americans Act: National family caregiver support program (Title III-E & Title VI-C): Compassion in action: 2004. Washington, DC: U.S. Department of Health and Human Services. Retrieved January 15, 2007, from http://www.aoa.gov/prof/aoaprog/caregiver/careprof/progguidance/resources/FINAL%20NFCSP%20Report%20July22,%202004.pdf.Google Scholar
- Archbold, P., Stewart, B., Greenlick, M., & Harvath, T. (1992). Clinical assessment of mutuality and preparedness in family caregivers to frail older people. In S. G. Funk (Ed.), Key aspects of elder care: Managing falls, incontinence, and cognitive impairment (pp. 328–339). New York: Springer.Google Scholar
- Berg-Weger, M., McGartland-Rubio, D., & Tabb, S. (2000). Depression as a mediator: Viewing caregiver well-being and strain in a different light. Families in Society, 81(2), 162–173.Google Scholar
- Davis, L., Burgio, L., Buckwalter, K., & Weaver, M. (2004). A comparison of in-home and telephone-based skill training interventions with caregivers of persons with dementia. Journal of Mental Health and Aging, 10(1), 31–44.Google Scholar
- George, L. K. (1986). Caregiving burden: Conflicts between norms of reciprocity and solidarity. In K. A. Pillemer & R. S. Wolf (Eds.), Elder abuse: Conflict in the family. Dover, MA: Auburn House Publishing Company.Google Scholar
- Horowitz, A. (1985). Family caregiving to the frail elderly. In C. Eisdorfer (Ed.), Annual review of gerontology and geriatrics (Vol. 5, pp. 194–246). New York: Springer.Google Scholar
- Jordan-Marsh, M., & Harden, J. T. (2005). Fictive kin: Friends as family supporting older adults as they age. Journal of Gerontological Nursing, 31(2), 25–31.Google Scholar
- Levin, C., & Murray, T. (2005). The cultures of caregiving: Conflict and common ground among families, health professionals, and policy makers. Baltimore: Johns Hopkins Press.Google Scholar
- Mittelman, M., Roth, D., Haley, W., & Zarit, S. (2004). Effects of a caregiver intervention on negative caregiver appraisals of behavior problems in patient with Alzheimer’s disease: Results of a randomized trial. Journal of Gerontology: Psychological Sciences & Social Sciences, 59B(1), P27–P34.CrossRefGoogle Scholar
- National Alliance for Caregiving & AARP. (2005). Caregiving in the U.S. Bethesda, MD: Authors.Google Scholar
- Pinquart, M., & Sorensen, S. (2006). Gender differences in caregiver stressors, social resources and health: An updated meta-analysis. Journal of Gerontology: Psychological and Social Sciences, 61B(1), 33–45.Google Scholar
- U.S. Census Bureau. (2002). U.S. census data: 2002. Retrieved March 19, 2007, from www.census.gov/econ/census02.
- U.S. Department of Health and Human Services. (2003). Ensuring the health and wellness of our nation’s family caregivers. Washington, DC: U.S. Department of Health and Human Services. Retrieved April 14, 2007, from http://aspe.hhs.gov/daltcp/CaregiverEvent/overview.htm.Google Scholar