Abstract
How do the new reproductive technologies affect people with disabilities? Answering this question, taking into account current and future generations of disabled women, men, and children requires putting a biological fact, impairment or disability, in a social context. In a different society than ours, the meaning of the new technologies for people with disabilities could resemble that for people without disabilities. In other words, any special implications for people with disabilities stem primarily, though not exclusively, from their position as the subjects of deep-rooted ambivalence on the part of the nondisabled population. Below, I will sketch out the social context for disability in our society and then discuss from the perspective of disability rights the six areas of reproductive concerns featured in other segments of this book: prenatal screening, time limits on abortion, fetus as patient, reproductive hazards in the workplace, alternative modes of reproduction, and interference with reproductive choice.
Keywords
- Down Syndrome
- Prenatal Diagnosis
- Spina Bifida
- Disable People
- Disable Child
These keywords were added by machine and not by the authors. This process is experimental and the keywords may be updated as the learning algorithm improves.
This essay reflects the views of the author and not those of the New Jersey Commission on Legal and Ethical Problems in the Delivery of Health Care. A number of people helped to refine this essay. Among the participants in the Project on Reproductive Laws for the 1990s, I owe special debts to Sherrill Cohen, Irene Crowe, Mary Sue Henifin, Judy Norsigian, Rosalind Petchesky, and Nadine Taub. For their close reading and important suggestions, I would also like to thank: Ellen Baker, Douglas Biklen, Michelle Fine, Anne Finger, Alan Gartner, Judy Heumann, Mary Johnson, Bob Kraft, Betty Levin, Vivian Lindermayer, Abby Lippman, Marsha Saxton, Richard Scotch, William Weil, and Irving Kenneth Zola. I must say a special thank you to Ellen Baker and Alan Gartner, who took time to think through the topics as I struggled with them, and whose intellectual integrity and steadfast friendship have sustained me in this endeavor and much else besides.
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References
Andrews, L. B. (1985). New Conceptions: A Consumer’s Guide to the Newest Infertility Treatments Including In Vitro Fertilization, Artificial Insemination, and Surrogate Motherhood.
Annas, G. J. and Elias, S. (1983). In Vitro Fertilization and Embryo Transfer: Medico-Legal Aspects of New Techniques to Create a Family. Family Law Quarterly, 17 (2) Summer, 199–223.
Applebaum, E. and Firestein, S. K. (1983). A Genetic Counseling Casebook.
Arditti, R., Klein, R. D., and Minden, S. (Eds.), (1984). Test-Tube Women: What Future for Motherhood?
Asch, A. (1986). Will Populism Empower Disabled People? in H. C. Boyte and F. Reissman, (Eds.), The New Populism: The Politics of Empowerment.
Asch, A. and Fine, M. (1988). Introduction: Beyond Pedestals, in M. Fine and A. Asch, (Eds.), Women with Disabilities: Essays in Psychology, Culture, and Politics, 1–37.
Asch, A. and Sacks, L. (1983). Lives Without, Lives Within: The Autobiographies of Blind Women and Men. Journal of Visual Impairment and Blindness, 77 (6), 242–247.
Bayles, M. D. (1984). Reproductive Ethics.
Bernard, J. (1974). The Future of Motherhood.
Blakeslee, S. (1986, October 7). Fetus Returned to Womb Following Surgery. New York Times, pp. C1 and C3.
Bonwich, E. (1985). Sex Role Attitudes and Role Reorganization in Spinal Cord Injured Women, in M. J. Deegan and N. A. Brooks, (Eds.), Women and Disability: The Double Handicap, 56–67.
Boston Women’s Health Book Collective. (1984). The New Our Bodies, Ourselves.
Bowe, F. (1980). Rehabilitating America.
Bowe, F. (1984). Disabled Women in America. Washington, D.C.: President’s Committee on Employment of the Handicapped.
Braille Monitor. (1986, August-September). Legalized Kidnapping: State Takes Child Away from Blind Mother, 432–435.
Brightman, A. J. (1984). Ordinary Moments: The Disabled Experience.
Browne, S., Connors, D., and Stern, N. (Eds.), (1985). With the Power of Each Breath.
Burt, R. A. (1979). Taking Care of Strangers.
Cohen, L. G. (1986). Selective Abortion and the Diagnosis of Fetal Damage: Issues and Concerns. Journal of the Association of Persons with Severe Handicaps, 1 (3), 188–195.
Collins, G. (1983, October 12). The Success Story of a Disabled Mother. New York Times, pp. C1 and C2.
Collins, G. (1986, December 15). Children of Deaf Share Their Lives. New York Times.
Dally, A. (1983). Inventing Motherhood: The Consequences of an Ideal.
Darling, R. B. (1979). Families Against Society.
DeJong, G. and Lifchez, R. (1983). Physical Disability and Public Policy. Scientific American, 48, 240–249.
DeLoach, C. and Greer, B. G. (1981). Adjustment to Severe Physical Disability: A Metamorphosis.
Dowrick, S. and Grundberg, S. (Eds.), (1980). Why Children.
Dworkin, A. and Dworkin, R. (Eds.), (1976). The Minority Report.
Elias, S. and Annas, G. J. (Eds.), (1987). Reproductive Genetics and the Law.
Evans, D. (1983). The Lives of Mentally Retarded People.
Fine, M. and Asch, A. (1985). Disabled Women: Sexism Without the Pedestal, in M. J. Deegan and N. A. Brooks, (Eds.), Women and Disability: The Double Handicap, 3–21.
Fine, M. and Asch, A. (1988). Disability Beyond Stigma: Social Interaction, Discrimination, and Activism. Journal of Social Issues, 44 (1), 1–22.
Fletcher, J. (1984). Healing before Birth: An Ethical Dilemma. Technology Review, 87 (1), 27–36.
Friedland, R. and Kort, C. (Eds.), (1981). The Mothers’ Book.
Funk, R. (1987). Disability Rights: From Caste to Class in the Context of Civil Rights, in A. Gartner and T. Joe, (Eds.), Images of the Disabled, Disabling Images, 7–30.
Gliedman, J. and Roth, W. (1980). The Unexpected Minority: Handicapped Children in America.
Goffman, E. (1963). Stigma: Notes on the Management of Spoiled Identity.
Gold, S. (1985, November). A Year of Accomplishment: Sharon Gold Reports to the Blind of California. Braille Monitor, 629–640.
Groce, N. E. (1985). Everyone Here Spoke Sign Language: Hereditary Deafness on Martha’s Vineyard.
Haber, L. and McNeil, J. (1983). Methodological Questions in the Estimation of Disability Prevalence. (Available from Population Division, U.S. Census Bureau.)
Hahn, H. (1983a, March-April). Paternalism and Public Policy. Society, 36–46.
Hahn, H. (1983b, December). “The Good Parts”: Interpersonal Relationships in the Autobiographies of Physically Disabled Persons. Wenner-Gren Foundation Working Papers in Anthropology, 1–38.
Hahn, H. (1987). Civil Rights for Disabled Americans: The Foundation of a Political Agenda, in A. Gartner and T. Joe, (Eds.), Images of the Disabled, Disabling Images, 181–204. Harper’s Magazine. (1987, September).
Harris, Louis and Associates. (1986). The ICD Survey of Disabled Americans: Bringing Disabled Americans into the Mainstream. New York: International Center for the Disabled.
Hoffman, L. W. and Hoffman, M. L. (1973). The Value of Children to Parents, in J. T. Fawcett, (Ed.), Psychological Perspectives on Population.
Hyler, D. (1985). To Choose a Child, in S. Browne, D. Connors, and N. Stern, (Eds.), With the Power of Each Breath, 280–283. Insight. (1986, November 24). Deaf Pride.
Lamanna, M. A. (1984). Social Science and Ethical Issues: The Policy Implications of Poll Data on Abortion, in S. Callahan and D. Callahan, (Eds.), Abortion: Understanding Differences, 1–24.
LeMaistre, J. (1985). Parenting, in S. Browne, D. Connors, and N. Stern, With the Power of Each Breath, 284–291.
Macklin, R. and Gaylin, W. (Eds.), (1981). Mental Retardation and Sterilization.
March of Dimes. (1985, November). Birth Defects: Tragedy and Hope.
Matthews, G. F. (1983). Voices from the Shadows: Women with Disabilities Speak Out.
National Association for Sickle Cell Disease. (No date). Position Paper on Prenatal Diagnosis of Sickle Cell Anemia.
National Council on the Handicapped. (1986). Toward Independence: An Assessment of Federal Laws and Programs Affecting Persons with Disabilities—with Legislative Recommendations. Washington, D.C.: U.S. Government Printing Office stock number 052-003-01022-2.
National Public Radio. (1987, December 29). Morning Edition.
National Public Radio. (1988, January 16). Weekend Edition.
Ontario Law Reform Commission. (1985). Report on Human Artificial Reproduction and Related Matters.
Orlansky, M. D. and Heward, W. L. (1981). Voices: Interviews with Handicapped People.
Pollitt, K. (1987, May 23). The Strange Case of Baby M. The Nation, 681–688.
Rapp, R. (1988). Moral Pioneers: Women, Men, and Fetuses on the Frontier of Reproductive Technology, in E. H. Baruch, A. D’Adamo, Jr., and J. Seager, (Eds.), Embryos, Ethics, and Women’s Rights.
Rehabilitation Act of 1973, Pub. L. No. 93–112, 87 Stat. 355 (1973).
Roth, W. (1981). The Handicapped Speak.
Rothman, B. K. (1986). The Tentative Pregnancy: Prenatal Diagnosis and the Future of Motherhood.
Rothman, D. and Rothman, S. (1984). The Willowbrook Wars: A Decade of Struggle for Social Justice.
Safilios-Rothschild, C. (1970). The Sociology and Social Psychology of Disability and Rehabilitation.
Sawisch, L. P. (1978). Expressed Willingness to Parent Handicapped Children (unpublished doctoral dissertation submitted to Department of Psychology, Michigan State University).
Schulz, R. and Decker, S. (1985). Long-term Adjustment to Physical Disability: The Role of Social Support, Perceived Control, and Self-Blame. Journal of Personality and Social Psychology, 48 (5), 1162–1172.
Scotch, R. K. (1984). From Good Will to Civil Rights: Transforming Federal Disability Policy, 159–172.
Scotch, R. K. (1988). Disability as the Basis for a Social Movement. Journal of Social Issues, 44 (1).
Shaul, S., Dowling, P., and Laden, B. F. (1985). Like Other Women: Perspectives of Mothers with Physical Disabilities, in M. J. Deegan and N. A. Brooks, (Eds.), Women and Disability: The Double Handicap, 133–142.
Siller, J., Ferguson, L., Vann, D. H., and Holland, B. (1976). Structure of Attitudes toward the Physically Disabled. New York: New York University School of Education.
Stanworth, M. (1988). Reproductive Technologies and the Deconstruction of Motherhood, in M. Stanworth, (Ed.), Reproductive Technologies: Gender, Motherhood, and Medicine, 10–35.
Steinbock, B. (1986). The Logical Case for “Wrongful Life”. Hastings Center Report, 16 (2), 15–20.
Stroman, D. F. (1982). The Awakening Minorities: The Physically Handicapped.
Thorne, B. with Yalom, M. (1982). Rethinking the Family: Some Feminist Questions.
Thurman, S. K. (Ed.), (1985). Children of Handicapped Parents.
Turnbull, H. R. and Turnbull, A. (Eds.), (1985). Parents Speak Out: Then and Now.
U.S. Census Bureau. (1983). Labor Force Status and Other Characteristics of Persons with a Work Disability: 1982. Current Population Reports, Series P-23, No. 127.
U.S. Commission on Civil Rights. (1983). Accommodating the Spectrum of Individual Abilities.
Walker, L. A. (1985, June 20). Children of the Disabled Face Special Pressures. New York Times, pp. C1 and C6.
Washington Post. (1988, January 18). Second Child to Be Taken from Disabled Mom. p. 2.
Wright, B. (1983). Physical Disability: A Psycho-Social Approach.
Zelizer, V. A. (1985). Pricing the Priceless Child: The Changing Social Value of Children.
Zetlin, A. G., Weisner, T. S., and Gallimore, R. (1985). Diversity, Shared Functioning, and the Role of Benefactors: A Study of Parenting by Retarded Persons, in S. K. Thurman, (Ed.), Children of Handicapped Parents.
Zola, I. K. (1983). Individual Choice and Health Policy: A Sociopolitical Scenario for the 1980’s, in I. K. Zola, (Ed.), Socio-Medical Inquiries, 285–298.
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Asch, A. (1989). Reproductive Technology and Disability. In: Cohen, S., Taub, N. (eds) Reproductive Laws for the 1990s. Contemporary Issues in Biomedicine, Ethics, and Society. Humana Press. https://doi.org/10.1007/978-1-4612-3710-5_4
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DOI: https://doi.org/10.1007/978-1-4612-3710-5_4
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