Abstract
Multicenter datasets are increasingly utilized in pediatric cardiovascular research. In this chapter, we discuss the rational for linking information across data sources, and describe different linkage mechanisms which enable analyses not possible with individual datasets alone.
Keywords
This is a preview of subscription content, log in via an institution.
Buying options
Tax calculation will be finalised at checkout
Purchases are for personal use only
Learn about institutional subscriptionsReferences
Pasquali SK, Hall M, Li JS, Peterson ED, Jaggers J, Lodge AJ, Marino BS, Goodman DM, Shah SS. Corticosteroids and outcome in children undergoing congenital heart surgery: analysis of the Pediatric Health Information Systems Database. Circulation. 2010;122:2123–30.
Fudge JC, Li S, Jaggers J, O’Brien SM, Peterson ED, Jacobs JP, Welke KF, Jacobs ML, Li JS, Pasquali SK. Outcomes in patients with Down syndrome undergoing congenital heart surgery: analysis of a national clinical database. Pediatrics. 2010;126:315–22.
Karamlou T, Hirsch J, Welke K, Ohye RG, Bove EL, Devaney EJ, Gajarski RJ. A United Network for Organ Sharing analysis of heart transplantation in adults with congenital heart disease: outcomes and factors associated with mortality and retransplantation. J Thorac Cardiovasc Surg. 2010;140:161–8.
Pasquali SK, Jacobs JP, He X, Hornik CP, Jaquiss RDB, Jacobs ML, O’Brien SM, Peterson ED, Li JS. The complex relationship between center volume and outcome in patients undergoing the Norwood operation. Ann Thorac Surg. 2012;93:1556–62.
Welke KF, Diggs BS, Karamlou T, Ungerleider RM. The relationship between hospital surgical case volumes and mortality rates in pediatric cardiac surgery: an national sample, 1988–2005. Ann Thorac Surg. 2008;86:889–96.
Jacobs JP, Jacobs ML, Mavroudis C, Lacour-Gayet FG, Tchervenkov CI, Pasquali SK. Executive summary: the Society of Thoracic Surgeons Congenital Heart Surgery Database – 18th Harvest – (January 1, 2009 – December 31, 2013). The Society of Thoracic Surgeons (STS) and Duke Clinical Research Institute (DCRI), Duke University Medical Center; Durham; 2013 Harvest.
Kugler JD, Beekman RH, Rosenthal GL, Jenkins KJ, Klitzner TS, Martin GR, Neish RS, Lannon C. Development of a pediatric cardiology quality improvement collaborative: from inception to implementation. From the Joint Council on Congenital Heart Disease Quality Improvement Task Force. Congenit Heart Dis. 2009;4:318–28.
Pediatric Congenital Cardiac Surgery in New York State 2006–2009. Available at: http://www.health.ny.gov/statistics/diseases/cardiovascular/heart_disease/docs/2006-2009_pediatric_congenital_cardiac_surgery.pdf. Accessed 7/10/2013.
U.S. News & World Report’s Annual Ranking of Best Hospitals. Available at: http://www.rti.org/besthospitals. Accessed 28 May 2013.
OptumHealth Congenital Heart Disease Center of Excellence. Available at: https://www.myoptumhealthcomplexmedical.com/gateway/public/chd/providers.jsp. Accessed 28 May 2013.
Martin GR, Beekman RH, Ing FF, Jenkins KJ, McKay CR, Moore JW, Ringel RE, Rome JJ, Ruiz CE, Vincent RN. The IMPACT registry: improving pediatric and adult congenital treatments. Semin Thorac Cardiovasc Surg Pediatr Card Surg Annu. 2010;13:20–5.
Pasquali SK, Peterson ED, Jacobs JP, He X, Li JS, Jacobs ML, Gaynor JW, Hirsch JC, Shah SS, Mayer JE. Differential case ascertainment in clinical registry vs. administrative data and impact on outcomes assessment in pediatric heart surgery. Ann Thorac Surg. 2013;95:197–203.
Pasquali SK, Jacobs JP, Shook GJ, O’Brien SM, Hall M, Jacobs ML, Welke KF, Gaynor JW, Peterson ED, Shah SS, Li JS. Linking clinical registry data with administrative data using indirect identifiers: implementation and validation in the congenital heart surgery population. Am Heart J. 2010;160:1099–104.
Jacobs JP, Edwards FH, Shahian DM, et al. Successful linking of the Society of Thoracic Surgeons adult cardiac surgery database to Centers for Medicare and Medicaid Services Medicare data. Ann Thorac Surg. 2010;90:1150–7.
Jacobs JP, Edwards FH, Shahian DM, et al. Successful linking of the STS database to social security data to examine survival after cardiac surgery. Ann Thorac Surg. 2011;92:32–7.
Saleeb SF, Li WYV, Warren SZ, Lock JE. Effectiveness of screening for life-threatening chest pain in children. Pediatrics. 2011;128:e1062–8.
Dokholyan RS, Muhlbaier LH, Falletta J, et al. Regulatory and ethical considerations for linking clinical and administrative databases. Am Heart J. 2009;157(6):971–82.
Hammill BG, Hernandez AF, Peterson ED, Fonarow GC, Schulman KA, Curtis LH. Linking inpatient clinical registry data to Medicare claims data using indirect identifiers. Am Heart J. 2009;157:995–1000.
Pasquali SK, Li JS, He X, Jacobs ML, O’Brien SM, Hall M, Jaquiss RDB, Welke KF, Peterson ED, Shah SS, Gaynor JW, Jacobs JP. Perioperative methylprednisolone and outcome in neonates undergoing heart surgery. Pediatrics. 2012;129:e385–91.
Pasquali SK, Li JS, He X, Jacobs ML, O’Brien SM, Hall M, Jaquiss RDB, Welke KF, Peterson ED, Shah SS, Jacobs JP. Comparative analysis of antifibrinolytic medications in pediatric heart surgery. J Thorac Cardiovasc Surg. 2012;143:550–7.
Pasquali SK, He X, Jacobs ML, Hall M, Gaynor JW, Shah SS, Peterson ED, Hill KD, Li JS, Jacobs JP. Hospital variation in post-operative infection and outcome following congenital heart surgery. Ann Thorac Surg. 2013;96(2):657–63.
Burstein DS, Jacobs JP, Sheng S, et al. Care models in congenital heart surgery and associated outcomes. Pediatrics. 2011;127:6.e1482–9.
Gaies M, Jeffries H, Niebler R, Pasquali SK, Donohue J, Yu S, Thiagarajan R. Vasoactive inotropic score (VIS) is associated with outcome after infant cardiac surgery: a report of the Pediatric Cardiac Critical Care Consortium (PC4). J Am Coll Cardiol. 2013;61:E424.
Jacobs JP, Jacobs ML, Austin EH, Mavroudis C, Pasquali SK, Lacour–Gayet FG, Tchervenkov CI, Bacha EA, del Nido PJ, Fraser CD, Gaynor JW, Hirsch JC, Morales DLS, Pourmoghadam KK, Tweddell JT, Prager RL, Mayer JE. Quality measures for congenital and pediatric cardiac surgery. World J Pediatr Congenit Heart Surg. 2012;3:32–47.
Vener DF, Jacobs JP, Schindler E, Maruszewski B, Andropoulos D. Databases for assessing the outcomes of the treatment of patients with congenital and paediatric cardiac disease – the perspective of anaesthesia. Cardiol Young. 2008;18 Suppl 2:124–9.
Pearson GD, Kaltman JR, Lauer MS. Evidence-based medicine comes of age in pediatric cardiology. J Am Coll Cardiol. 2013;61:2565–7.
Johnson SB, Whitney G, McAuliffe M. Using global unique identifiers to link autism collections. J Am Med Inform Assoc. 2010;17:689–95.
Author information
Authors and Affiliations
Corresponding author
Editor information
Editors and Affiliations
Rights and permissions
Copyright information
© 2015 Springer-Verlag London
About this chapter
Cite this chapter
Pasquali, S.K., Jacobs, M.L., Jacobs, J.P. (2015). Linking Databases. In: Barach, P., Jacobs, J., Lipshultz, S., Laussen, P. (eds) Pediatric and Congenital Cardiac Care. Springer, London. https://doi.org/10.1007/978-1-4471-6587-3_30
Download citation
DOI: https://doi.org/10.1007/978-1-4471-6587-3_30
Published:
Publisher Name: Springer, London
Print ISBN: 978-1-4471-6586-6
Online ISBN: 978-1-4471-6587-3
eBook Packages: MedicineMedicine (R0)