Pediatric Electrophysiology Databases

  • Stephen P. SeslarEmail author
  • John D. Kugler


The purpose of this chapter is to provide an overview of catheter ablation databases for outcomes analysis and quality improvement in the field of pediatric and congenital electrophysiology. We begin by discussing unique aspects of electrophysiology that impact data collection and analysis. This will be followed by a review of historic electrophysiology databases and lessons learned. The purpose of this chapter is to review past and present Pediatric and Congenital Electrophysiology Society (PACES) led registry initiatives for assessing the outcomes of catheter ablation procedures for the treatment of arrhythmias in patients with congenital and pediatric cardiac disease. Finally, we set the stage for current and future quality improvement efforts by highlighting the recently created Multicenter Pediatric and Adult Congenital Electrophysiology Quality (MAP-IT) registry and its collaboration with an existing national registry.


Electrophysiology Catheter ablation Database Pediatric Congenital heart disease Quality improvement 


  1. 1.
    Kugler JD, Danford DA, Deal BJ, Gillette PC, Perry JC, Silka MJ, Van Hare GF, Walsh EP. Radiofrequency catheter ablation for tachyarrhythmias in children and adolescents. N Engl J Med. 1994;330:1481–7.PubMedCrossRefGoogle Scholar
  2. 2.
    Schaffer MS, Silka MJ, Ross BA, Kugler JD. Inadvertent atrioventricular block during radiofrequency catheter ablation. Results of the pediatric radiofrequency ablation registry Pediatric electrophysiology society. Circulation. 1996;94:3214–20.PubMedCrossRefGoogle Scholar
  3. 3.
    Kugler JD, Danford DA, Houston K, Felix G. Radiofrequency catheter ablation for paroxysmal supraventricular tachycardia in children and adolescents without structural heart disease. Pediatric ep society, radiofrequency catheter ablation registry. Am J Cardiol. 1997;80:1438–43.PubMedCrossRefGoogle Scholar
  4. 4.
    DeMaso DR, Spratt EG, Vaughan BL, D’Angelo EJ, Van der Feen JR, Walsh E. Psychological functioning in children and adolescents undergoing radiofrequency catheter ablation. Psychosomatics. 2000;41:134–9.PubMedCrossRefGoogle Scholar
  5. 5.
    Strieper M, Leong T, Bajaj T, Huckaby J, Frias P, Campbell R. Does ablation of supraventricular tachycardia in children with a structurally normal heart improve quality of life? Congenit Heart Dis. 2010;5:587–93.PubMedCrossRefGoogle Scholar
  6. 6.
    Case CL, Gillette PC, Crawford FA, Knick BJ. Comparison of medical care costs between successful radiofrequency catheter ablation and surgical ablation of accessory pathways in the pediatric age group. Am J Cardiol. 1994;73:600–1.PubMedCrossRefGoogle Scholar
  7. 7.
    Gamboa DG, Meguid CR, Kanter RJ. Disproportionate costs and charges for pediatric catheter ablation: supply and demand…or just supply? J Cardiovasc Electrophysiol. 2013;24:170–2.PubMedCrossRefGoogle Scholar
  8. 8.
    Eiser C, Morse R. A review of measures of quality of life for children with chronic illness. Arch Dis Child. 2001;84:205–11.PubMedCentralPubMedCrossRefGoogle Scholar
  9. 9.
    Danford DA, Kugler JD, Deal B, Case C, Friedman RA, Saul JP, Silka MJ, Van Hare GF, Participating Members of the Pediatric Electrophysiology S. The learning curve for radiofrequency ablation of tachyarrhythmias in pediatric patients. Am J Cardiol. 1995;75:587–90.PubMedCrossRefGoogle Scholar
  10. 10.
    Van Hare GF, Carmelli D, Smith WM, Kugler J, Silka M, Friedman R, Atkins D, Saul P, Schaffer M, Byrum C, Dunnigan A, Colan S, Serwer G. Prospective assessment after pediatric cardiac ablation: design and implementation of the multicenter study. Pacing Clin Electrophysiol. 2002;25:332–41.PubMedCentralPubMedCrossRefGoogle Scholar
  11. 11.
    Van Hare GF, Javitz H, Carmelli D, Saul JP, Tanel RE, Fischbach PS, Kanter RJ, Schaffer M, Dunnigan ANN, Colan S, Serwer G, Participating Members of the Pediatric Electrophysiology S. Prospective assessment after pediatric cardiac ablation. J Cardiovasc Electrophysiol. 2004;15:759–70.PubMedCrossRefGoogle Scholar
  12. 12.
    Van Hare GF, Javitz H, Carmelli D, Saul JP, Tanel RE, Fischbach PS, Kanter RJ, Schaffer M, Dunnigan A, Colan S, Serwer G. Prospective assessment after pediatric cardiac ablation: recurrence at 1 year after initially successful ablation of supraventricular tachycardia. Heart Rhythm. 2004;1:188–96.PubMedCentralPubMedCrossRefGoogle Scholar
  13. 13.
    Van Hare GF, Colan SD, Javitz H, Carmelli D, Knilans T, Schaffer M, Kugler J, Byrum CJ, Saul JP. Prospective assessment after pediatric cardiac ablation: fate of intracardiac structure and function, as assessed by serial echocardiography. Am Heart J. 2007;153:815–20, 820.e811–6.PubMedCentralPubMedCrossRefGoogle Scholar
  14. 14.
    Buxton AE, Calkins H, Callans DJ, DiMarco JP, Fisher JD, Greene HL, Haines DE, Hayes DL, Heidenreich PA, Miller JM, Poppas A, Prystowsky EN, Schoenfeld MH, Zimetbaum PJ, Goff DC, Grover FL, Malenka DJ, Peterson ED, Radford MJ, Redberg RF. ACC/AHA/HRS 2006 key data elements and definitions for electrophysiological studies and procedures: a report of the American College of Cardiology/American Heart Association Task Force on Clinical Data Standards (ACC/AHA/HRS Writing Committee to Develop Data Standards on Electrophysiology). J Am Coll Cardiol. 2006;48:2360–96.PubMedCrossRefGoogle Scholar
  15. 15.
    Jenkins KJ, Gauvreau K, Newburger JW, Spray TL, Moller JH, Iezzoni LI. Consensus-based method for risk adjustment for surgery for congenital heart disease. J Thorac Cardiovasc Surg. 2002;123:110–8.PubMedCrossRefGoogle Scholar
  16. 16.
    Triedman JK, Pfeiffer P, Berman A, Blaufox AD, Cannon BC, Fish FA, Perry J, Pflaumer A, Seslar SP. Compass: a novel risk-adjustment model for catheter ablation in pediatric and congenital heart disease patients. Congenit Heart Dis. 2013;8:393–405.PubMedGoogle Scholar
  17. 17.
    Harris PA, Taylor R, Thielke R, Payne J, Gonzalez N, Conde JG. Research electronic data capture (redcap) – a metadata-driven methodology and workflow process for providing translational research informatics support. J Biomed Inform. 2009;42:377–81.PubMedCentralPubMedCrossRefGoogle Scholar

Copyright information

© Springer-Verlag London 2015

Authors and Affiliations

  1. 1.Department of CardiologySeattle Children’s Hospital, University of WashingtonSeattleUSA
  2. 2.Division of Cardiology, Department of PediatricsChildren’s Hospital and Medical Center, NU College of Medicine, Creighton University School of Medicine, University Nebraska College of MedicineOmahaUSA

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