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Pediatric and Congenital Cardiac Care pp 193–210Cite as

Databases for Pediatric Cardiac Transplantation: The United Network for Organ Sharing/Scientific Registry of Transplant Recipients (UNOS/SRTR) and the Pediatric Heart Transplant Study (PHTS)

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Abstract

Collection, analysis, and dissemination of data have been part of the transplantation since its earliest days. The two largest databases containing information on pediatric cardiac transplant patients are the United Network for Organ Sharing/Scientific Registry of Transplant Recipients (UNOS/SRTR) database and the Pediatric Heart Transplant Study (PHTS). These data have enabled examination of patients undergoing transplantation, including modeling of outcomes, analysis of allocation decisions, and the examination of criteria for listing. Extensive literature exists utilizing this data, but must be read critically, recognizing the limitations presented by missing variables (whether uncollected or collected but left blank), reproducibility, and small sample sizes among pediatric patients. However, despite these limitations, these datasets provide an important resource in the ongoing examination of cardiac transplantation in children.

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Authors and Affiliations

  1. Nemours Cardiac Center, A.I. duPont Hospital for Children and Department of Surgery, Thomas Jefferson University, 1600 Rockland Road, Wilmington, DE, 19806, USA

    Ryan R. Davies MD

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  1. Ryan R. Davies MD
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Editors and Affiliations

  1. School of Medicine,, University of Oslo, Oslo, Norway

    Paul R. Barach

  2. Division of Cardiac Surgery, Department of Surgery, Johns Hopkins University, Division of Cardiac Surgery, Department of Surgery, Johns Hopkins All Children’s Heart Institute, All Children’s Hospital and Florida Hospital for Children, Johns Hopkins University, St. Petersburg, Tampa, Orlando, FL, USA,, Baltimore, Maryland, USA

    Jeffery P. Jacobs

  3. Wayne State University, Detroit, Michigan, USA

    Steven E. Lipshultz

  4. The Hospital for Sick Children, Toronto, Ontario, Canada

    Peter C. Laussen

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Davies, R.R. (2015). Databases for Pediatric Cardiac Transplantation: The United Network for Organ Sharing/Scientific Registry of Transplant Recipients (UNOS/SRTR) and the Pediatric Heart Transplant Study (PHTS). In: Barach, P., Jacobs, J., Lipshultz, S., Laussen, P. (eds) Pediatric and Congenital Cardiac Care. Springer, London. https://doi.org/10.1007/978-1-4471-6587-3_15

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