Skip to main content

Data Sources and Data Tools

Part of the Health Informatics book series (HI)

Abstract

Data Sources and Data Tools offers an introduction to the basic concepts of strategically finding and evaluating publically available data for health analysis. Leading data providers and sources, at the local, state, and national levels, are introduced and reviewed as exemplars. In the evolving and dynamic universe of available health data, a variety of statistical tools and techniques as well as methods to organize complex work schemes are necessary for data acquisition, management, and interpretation.

Keywords

  • Data
  • Information
  • Big data
  • Qualitative data
  • Quantitative data
  • Open data
  • White hat testing
  • Application programming interfaces
  • Health information exchange
  • Data sources
  • Data science

This is a preview of subscription content, access via your institution.

Buying options

Chapter
USD   29.95
Price excludes VAT (USA)
  • DOI: 10.1007/978-1-4471-4237-9_7
  • Chapter length: 25 pages
  • Instant PDF download
  • Readable on all devices
  • Own it forever
  • Exclusive offer for individuals only
  • Tax calculation will be finalised during checkout
eBook
USD   44.99
Price excludes VAT (USA)
  • ISBN: 978-1-4471-4237-9
  • Instant PDF download
  • Readable on all devices
  • Own it forever
  • Exclusive offer for individuals only
  • Tax calculation will be finalised during checkout

References

  1. Branas CC, et al. A difference-in-differences analysis of health, safety, and greening vacant urban space. Am J Epidemiol. 2011;174:1296–306.

    PubMed  CrossRef  Google Scholar 

  2. Cagney KA, et al. Neighborhood-level cohesion and disorder: measurement and validation in two older adult urban populations. J Gerontol B Psychol Sci Soc Sci. 2009;64B:415–24.

    CrossRef  Google Scholar 

  3. Centers for Disease Control and Prevention & National Center for Health Statistics. Health Indicators Warehouse (HIW). Available from: www.healthindicators.gov.

  4. NIH VideoCasting. Data science: unlocking the power of big data. Cited 31 Mar 2013. Available from: http://videocast.nih.gov/summary.asp?Live=12232&bhcp=1.

  5. Open Knowledge Foundation. Open definition. Cited 31 Mar 2013. Available from: http://opendefinition.org/okd/

  6. O’Carroll PW. Public health informatics and information systems. New York: Springer; 2002.

    Google Scholar 

  7. Stair RM, Reynolds GW. Fundamentals of information systems. Technology: Thomson/Course; 2006.

    Google Scholar 

  8. Haigh T. ‘A veritable bucket of facts’ origins of the data base management system. SIGMOD Record. 2006;35:33–49.

    CrossRef  Google Scholar 

  9. Dorsey R, Graham G. New HHS data standards for race, ethnicity, sex, primary language, and disability status. JAMA. 2011;306:2378–9.

    PubMed  CrossRef  CAS  Google Scholar 

  10. Cannon CP, et al. 2013 ACCF/AHA key data elements and definitions for measuring the clinical management and outcomes of patients with acute coronary syndromes and coronary artery disease: A Report of the American College of Cardiology Foundation/American Heart Association Task Force on Clinical Data Standards (Writing Committee to Develop Acute Coronary Syndromes and Coronary Artery Disease Clinical Data Standards). Circulation. 2013;127:1052–89.

    PubMed  CrossRef  Google Scholar 

  11. Turnock BJ. Public health: what it is and how it works. Burlington: Jones & Bartlett Learning; 2012.

    Google Scholar 

  12. Hillemeier MM, Lynch J, Harper S, Casper M. Data set directory of social determinants of health at the local level. Atlanta: U.S. Department of Health and Human Services, Centers for Disease Control and Prevention; 2004.

    Google Scholar 

  13. Hillemeier MM, Lynch J, Harper S, Casper M. Measuring contextual characteristics for community health. Health Serv Res. 2003;38:1645–717.

    PubMed  CrossRef  Google Scholar 

  14. Scutchfield FD, et al. Public health systems and services research: dataset development, dissemination, and use. Public Health Rep. 2009;124:372–7.

    PubMed  Google Scholar 

  15. Coulton CJ. Catalog of administrative data sources for neighborhood indicators. 2008. Cited 31 Mar 2013. Available from: http://www.urban.org/publications/411605.html.

  16. Holdren JP. Increasing access to the results of federally funded scientific research. 2013. Cited 31 Mar 2013. Available from: http://www.whitehouse.gov/blog/2013/02/22/expanding-public-access-results-federally-funded-research.

  17. Marti-Costa S, Serrano-Garcia I. Needs assessment and community development: an ideological perspective. Prev Hum Serv. 1983;2:75–88.

    PubMed  CrossRef  CAS  Google Scholar 

  18. De Lusignan S, et al. Conducting requirements analyses for research using routinely collected health data: a model driven approach. Stud Health Technol Inform. 2012;180:1105–7.

    PubMed  Google Scholar 

  19. National Association of County & City Health Officials. MAPP Framework. MAPP Framework. Cited 31 Mar 2013.Available from: http://www.naccho.org/topics/infrastructure/mapp/framework/.

  20. Department of Health and Mental Hygiene. Maryland state health improvement process. State health improvement process. Cited 31 Mar 2013.Available from: http://dhmh.maryland.gov/ship/SitePages/Home.aspx.

  21. Census Bureau State Data Center Network. Cited 31 Mar 2013. Available from: http://www.census.gov/sdc/network.html.

  22. Louisiana State Epidemiological Outcomes Workgroup. Louisiana social indicators.Cited 31 Mar 2013. Available from: http://www.bach-harrison.com/lasocialindicators/DataSources.aspx.

  23. Centers for Disease Control. Community health status indicators. Cited 31 Mar 2013. Available from: http://wwwn.cdc.gov/CommunityHealth/homepage.aspx?j=1.

  24. Health Resources and Services Administration & US Department of Health and Human Services. Health resources county comparison tool: area resource file. Cited 31 Mar 2013. Available from: http://arf.hrsa.gov/arfwebtool/.

  25. US Census Bureau & US Department of Commerce. American FactFinder. Cited 31 Mar 2013. Available from: http://factfinder2.census.gov/faces/nav/jsf/pages/index.xhtml.

  26. University of Wisconsin Population Health Institute. County health rankings. 2012. Cited 31 Mar 2013. Available from: http://www.countyhealthrankings.org/.

  27. Agency for Toxic Substances & Disease Registry & Centers for Disease Control. Public health assessments & health consultations. Cited 31 Mar 2013. Available from: http://www.atsdr.cdc.gov/hac/pha/index.asp.

  28. Singleton R. Approaches to social research. Oxford University Press: New York; 2010.

    Google Scholar 

  29. Healthy Communities Institute. Community health needs assessments: community dashboards. Cited 31 Mar 2013. Available from: http://www.healthycommunitiesinstitute.com/.

  30. Institute of Medicine (U.S.). Monitoring HIV care in the United States: indicators and data systems. Washington, D.C: National Academies Press; 2012.

    Google Scholar 

  31. Allee N, Alpi K, Codgill KW, Selde C, Youngkin M. Public health information & data tutorial. In: Partners in information access for the Public Health Workforce. Cited 31 Mar 2013.Available from: http://phpartners.org/tutorial/index.html.

  32. Selden C. Public health information and data: a training manual. Bethesda: National Library of Medicine; 2004. Cited 31 Mar 2013. Available from: http://phpartners.org/phpmanual.html.

  33. National Library of Medicine. NLM HSRIC: data, tools and statistics. Cited 31 Mar 2013. Available from: http://www.nlm.nih.gov/hsrinfo/datasites.html.

  34. National Library of Medicine. Health services and sciences research resources. Cited 31 Mar 2013. Available from: http://wwwcf.nlm.nih.gov/hsrr_search/index.cfm.

  35. Shaw FE, McKie KL, Liveoak CA, Goodman RA. Legal tools for preparedness and response: variation in quarantine powers among the 10 most populous US states in 2004. Am J Public Health. 2007;97 Suppl 1:S38–43. PMID: 17413070.

    PubMed  CrossRef  Google Scholar 

  36. Misrahi JJ, Foster JA, Shaw FE, Cetron MS. HHS/CDC legal response to SARS outbreak. Emerg Infect Dis. 2004;10:353–5.

    PubMed  CrossRef  Google Scholar 

  37. Botoseneanu A, Wu H, Wasserman J, Jacobson PD. Achieving public health legal preparedness: how dissonant views on public health law threaten emergency preparedness and response. J Public Health (Oxf). 2011;33:361–8.

    CrossRef  Google Scholar 

  38. Gostin LO, et al. The model state emergency health powers Act: planning for and response to bioterrorism and naturally occurring infectious diseases. JAMA. 2002;288:622–8.

    PubMed  CrossRef  Google Scholar 

  39. Hodge Jr JG, Anderson ED, Kirsch TD, Kelen GD. Facilitating hospital emergency preparedness: introduction of a model memorandum of understanding. Disaster Med Public Health Prep. 2011;5:54–61.

    PubMed  CrossRef  Google Scholar 

  40. Ransom MM, Goodman RA, Moulton AD. Addressing gaps in health care sector legal preparedness for public health emergencies. Disaster Med Public Health Prep. 2008;2:50–6.

    PubMed  CrossRef  Google Scholar 

  41. Berliner R, Leventhal G, Floreen N. Montgomery county open data act. 2012. Cited 31 Mar 2013. Available from: http://www.montgomerycountymd.gov/index.aspx.

  42. Brewer GA. Local law of The New York City Council. (2012). Cited 31 Mar 2013 . Available from: http://legistar.council.nyc.gov/LegislationDetail.aspx?ID=649911&GUID=E650813B-B1E9-4E56-81BA-58261487DA4A.

  43. Health Insurance Portability and Accountability Act. 45 CFR. Cited 31 Mar 2013.Available from: http://www.hhs.gov/ocr/privacy/hipaa/administrative/privacyrule/index.html.

  44. Safran C, et al. Toward a national framework for the secondary use of health data: an American Medical Informatics Association White Paper. J Am Med Inform Assoc. 2006;14:1–9.

    PubMed  CrossRef  Google Scholar 

  45. PublicLaboratory.org. The public laboratory. Cited 31 Mar 2013. Available from: http://publiclaboratory.org/home.

  46. Swan M. Crowdsourced health research studies: an important emerging complement to clinical trials in the public health research ecosystem. J Med Internet Res. 2012;14:e46.

    PubMed  CrossRef  Google Scholar 

  47. Stephens-Davidowitz SI. The effects of racial animus on a black Presidential candidate: using google search data to find what surveys miss by Seth Stephens-Davidowitz. 2012. Cited 31 Mar 2013. Available from: http://ssrn.com/abstract=2050673.

  48. National Research Council (U.S.), National Academies Press (U.S.). Conducting biosocial surveys: collecting, storing, accessing, and protecting biospecimens and biodata. Washington, D.C: National Academies Press; 2010.

    Google Scholar 

  49. Decker SL, Doshi JA, Knaup AE, Polsky D. Health service use among the previously uninsured: is subsidized health insurance enough? Health Econ. 2012;21:1155–68.

    PubMed  CrossRef  Google Scholar 

  50. Sykes J, Hourihan K. MAX and NCHS Survey Linkage. 2012.

    Google Scholar 

  51. National Institutes of Health & US Department of Health and Human Services. NIH RePORTER. Cited 31 Mar 2013. Available from: http://projectreporter.nih.gov/reporter.cfm.

  52. Ferrie JE. The irresistible rise of the cohort profile. Int J Epidemiol. 2012;41:899–904.

    PubMed  CrossRef  Google Scholar 

  53. Office of Innovation & Development Alliances & USAID. Open data initiative: food security. Cited 31 Mar 2013. Available from: http://idea.usaid.gov/opendata/overview.

  54. World Data System – International Council for Science (ICSU). Cited 31 Mar 2013. Available from: http://www.icsu-wds.org/.

  55. Memorandum of January 21, 2009: Transparency and open government. 2009.

    Google Scholar 

  56. Orszag PR. Open Government Directive M10-06. 2009. Cited 31 Mar 2013. Available from: http://www.whitehouse.gov/open/documents/open-government-directive.

  57. Organization for Economic Co-operation and Development. OECD principles and guidelines for accses to research data from public funding. 2007. Cited 31 Mar 2013. Available from: http://www.oecd.org/.

  58. CDC. Web-based Injury Statistics Query and Reporting System (WISQARS). Cited 31 Mar 2013. Available from: http://www.cdc.gov/injury/wisqars/index.html.

  59. National Center for Health Statistics & Centers for Disease Control and Prevention. Surveys and data collection systems. Cited 31 Mar 2013. Available from: http://www.cdc.gov/nchs/surveys.htm.

  60. US Census Bureau. Census product catalog. Cited 31 Mar 2013. Available from: http://www.census.gov/mp/www/cat/.

  61. Health Resources and Services Administration. HRSA data warehouse. Cited 31 Mar 2013. Available from: http://datawarehouse.hrsa.gov/.

  62. Quality Indicators – Agency for Healthcare Research and Quality (AHRQ). Cited 31 Mar 2013. Available from: http://qualityindicators.ahrq.gov/.

  63. Office on Women’s Health. Quick Health Data Online. US Department of Health and Human Services, Office on Women’s Health, Quick Health Data Online. Cited 31 Mar 2013. Available from: http://www.healthstatus2020.com/.

  64. NIH & NCBI. Database of Genotypes and Phenotypes (dbGaP). Cited 31 Mar 2013. Available from: http://www.ncbi.nlm.nih.gov/gap.

  65. NHLBI. Biologic Specimen and Data Repository Information Coordinating Center (BioLINCC). Cited 31 Mar 2013. Available from: https://biolincc.nhlbi.nih.gov/home/.

  66. SEER & NCI. SEER datasets & software. Cited 31 Mar 2013. Available from: http://seer.cancer.gov/resources/.

  67. US Environmental Protection Agency. US EPA data finder. Cited 31 Mar 2013. Available from: http://www.epa.gov/data/.

  68. Bureau of Labor Statistics & US Census Bureau. Current population survey (CPS). Cited 31 Mar 2013. Available from: http://www.bls.gov/cps/.

  69. US Department of Housing and Urban Development. HUD data sets. Cited 31 Mar 2013. Available from: http://www.huduser.org/portal/pdrdatas_landing.html.

  70. Department of Justice. DOJ datasets. Cited 31 Mar 2013. Available from: http://www.justice.gov/open/data.html.

  71. Bureau of Justice Statistics. BJS data collections. Cited 31 Mar 2013. Available from: http://bjs.gov/index.cfm?ty=dca.

  72. United States Department of Agriculture. USDA data and statistical tools. Cited 31 Mar 2013. Available from: http://www.usda.gov/wps/portal/usda/usdahome?parentnav=AGRICULTURE&navid=DATA_STATISTICS&navtype=RT.

  73. National Center for Education Statistics. Data tools – locators. Cited 31 Mar 2013. Available from: http://nces.ed.gov/datatools/.

  74. UnitedHealth Group. New strategic partnerships with mobile health technology firms. Cited 31 Mar 2013. Available from: http://www.unitedhealthgroup.com/newsroom/news.aspx?id=4c3b5cdb-ce9c-4a13-b796-cee1ccf7f343.

  75. Kliff S. Aetna and Inova unveil joint venture for improved, cost-effective health care. In: The Washington Post. Cited 31 Mar 2013. Available from: http://www.washingtonpost.com/business/economy/aetna-and-inova-unveil-joint-venture-for-improved-cost-effective-health-care/2012/06/22/gJQAOyoGvV_story.html.

  76. Marton K, Karberg JC, National Research Council (U.S.). Committee on National Statistics & Workshop on the Future of Federal Household Surveys. The future of federal household surveys summary of a workshop. Washington, D.C.: National Academies Press: 2011. Cited 31 Mar 2013. Available from: http://site.ebrary.com/id/10495422.

  77. Trotter F. DocGraph: open social doctor data. In: Strata O’Reilly. 2012. Cited 31 Mar 2013. Available from: http://strata.oreilly.com/2012/11/docgraph-open-social-doctor-data.html.

  78. Kearney MS, Levine PB. Why is the teen birth rate in the united states so high and why does it matter? J Econ Perspect. 2012;26:141–66.

    PubMed  CrossRef  Google Scholar 

  79. DAIDS & NIAID. Epidemiological, long-term cohort studies. Cited 31 Mar 2013. Available from: http://www.niaid.nih.gov/about/organization/daids/Pages/daidsepi.aspx.

  80. US Department of Commerce. National technical information service product search page. Cited 31 Mar 2013. Available from: http://www.ntis.gov/search/index.aspx.

  81. The World Bank. Open data catalog. Cited 31 Mar 2013. Available from: http://data.worldbank.org/.

  82. UN Office for the Coordination of Humanitarian Affairs. Common and Fundamental Operational Datasets Registry: COD-FOD. Cited 31 Mar 2013. Available from: http://cod.humanitarianresponse.info/.

  83. The PLoS Medicine Editors. Digital humanitarianism: collective intelligence emerging. PLoS Med. 2012;9:e1001278.

    CrossRef  Google Scholar 

  84. UNDP. International human development indicators data explorer. Cited 31 Mar 2013. Available from: http://hdr.undp.org/en/data/explorer/.

  85. International Monetary Fund. Data, statistics, and documentation. Cited 31 Mar 2013. Available from: http://www.imf.org/external/data.htm.

  86. Organisation for Economic Co-operation and Development. OECD iLibrary health statistics. Cited 31 Mar 2013. Available from: http://www.oecd-ilibrary.org/social-issues-migration-health/data/oecd-health-statistics_health-data-en.

  87. World Health Organization. WHO global health observatory data repository. Cited 31 Mar 2013. Available from: http://apps.who.int/gho/data/view.main.

  88. World Health Organization. WHO global infobase. Cited 31 Mar 2013. Available from: https://apps.who.int/infobase/.

  89. Pan American Health Organization & World Health Organization. Regional core health data initiative. Cited 31 MAr 2013. Available from: http://www.paho.org/english/dd/ais/coredata.htm.

  90. Google. Google public data explorer. Cited 31 Mar 2013. Available from: http://www.google.com/publicdata/directory.

  91. Guttmacher Institute. Guttmacher Institute International Data Center. Cited 31 Mar 2013. Available from: http://www.guttmacher.org/idc/index.jsp.

  92. Gapminder. Gapminder. Cited 31 Mar 2013. Available from: http://www.gapminder.org/.

  93. Public Health Agency of Canada. Surveillance data. Cited 31 Mar 2013. Available from: http://www.phac-aspc.gc.ca/surveillance-eng.php.

  94. UK Government. Open data. Cited 31 Mar 2013. Available from: http://data.gov.uk/.

  95. Florida Department of Health. Florida health statistics and community health data: FloridaCHARTS. Cited 31 Mar 2013. Available from: http://www.floridacharts.com/charts/default.aspx.

  96. Weinick RM, Billings A. Tools for monitoring the health care safety net. Rockville: Agency for Healthcare Research and Quality; 2003.Cited 31 Mar 2013. Available from: http://archive.ahrq.gov/data/safetynet/phillips.htm.

  97. Aneja S, Gross CP, Soulos PR, Yu JB. Geographical information systems: applications and limitations in oncology research. Oncology (Williston Park). 2011;25:1221–5.

    Google Scholar 

  98. Melnick AL. Introduction to geographic information systems in public health. Gaithersburg: Aspen Publishers; 2002.

    Google Scholar 

  99. National Research Council (U.S.). Panel on confidentiality issues arising from the integration of remotely sensed and self-identifying data. In: Putting people on the map: protecting confidentiality with linked social-spatial data. Washington, DC: National Academies Press; 2007.

    Google Scholar 

  100. Bizer C. The emerging web of linked data. IEEE Intell Syst. 2009;24:87–92.

    CrossRef  Google Scholar 

  101. Online Analytical Statistical Information System/Georgia Department of Public Health. Cited 31 Mar 2013. Available from: http://oasis.state.ga.us/oasis/.

  102. Hawaii State. Open data for Hawaii. In: Data.Hawaii.gov. Cited 31 Mar 2013. Available from: https://data.hawaii.gov/.

  103. Colorado State. OpenColorado. Cited 31 Mar 2013. Available from: http://opencolorado.org/.

  104. Maryland State Data Center Home Page. Cited 31 Mar 2013. Available from: http://planning.maryland.gov/msdc/home.shtml.

  105. The Illinois Natural Resources Geospatial Data Clearinghouse, Illinois. Cited 31 Mar 2013. Available from: http://www.isgs.uiuc.edu/nsdihome/.

  106. Minnesota Department of Health.Minnesota Center for Health Statistics. Cited 31 Mar 2013. Available from: http://www.health.state.mn.us/divs/chs/.

  107. Carr JM, The community as a learning system: using local data to improve local health. Washington, DC: Department of Health and Human Services, National Committee on Vital and Health Statistics; 2011.

    Google Scholar 

  108. El Emam K, et al. De-identification methods for open health data: the case of the Heritage Health Prize claims dataset. J Med Internet Res. 2012;14(1):e33. doi: 10.2196/jmir.2001. PMID: 22370452; PMCID: PMC3374547

  109. Using EMR Data to Provide Health Insights/Research Division. Cited 31 Mar 2013. Available from: http://www.practicefusion.com/research/.

  110. Shea J, Byrnes P, Hirschfeld J. So you want to start a health center…? A practical guide for starting a Federally Qualified Health Center. 2011. Cited 31 Mar 2013. Available from: http://www.nachc.com/client/documents/Starting%20a%20FQHC%20Manual-September%202011.pdf.

  111. US Census Bureau, US Department of Commerce. Model-based small area income & poverty estimates (SAIPE) for school districts, counties, and states – U.S. Census Bureau. Cited 31 Mar 2013. Available from: http://www.census.gov/did/www/saipe/index.html.

  112. The UDS Mapper. HealthLandscape. Cited 31 Mar 2013. Available from: http://www.healthlandscape.org/UDS-Mapper.cfm.

  113. National Center for Health Statistics, Centers for Disease Control and Prevention. State and local area integrated telephone survey (SLAITS). Cited 31 Mar 2013. Available from: http://www.cdc.gov/nchs/slaits.htm.

  114. Sondik EJ. 2012 National Conference on Health Statistics. Cited 31 Mar 2013. Available from: http://www.cdc.gov/nchs/events/2012nchs/program_tuesday.htm.

  115. CDC. Behavioral risk factor surveillance system (BRFSS). Cited 31 Mar 2013. Available from: http://www.cdc.gov/brfss/.

  116. CDC. Diabetes data and trends. Cited 31 Mar 2013. Available from: http://apps.nccd.cdc.gov/DDTSTRS/default.aspx.

  117. CDC WONDER. Cited 31 Mar 2013. Available from: http://wonder.cdc.gov/.

  118. Agency for Healthcare Research and Quality. HCUPnet. Cited 31 Mar 2013. Available from: http://www.qualityindicators.ahrq.gov/.

  119. Dartmouth College. The Primary Care Service Area Project. 2007. Cited 31 Mar 2013. Available from: http://pcsa.dartmouth.edu/index.html

  120. Community Commons. Cited 31 Mar 2013. Available from: http://www.communitycommons.org/.

  121. City of Chicago. City of Chicago/Data Portal. Cited 31 Mar 2013. Available from: https://data.cityofchicago.org/.

  122. Metro Chicago Data/Open Data for Chicagoland. Cited 31 Mar 2013. Available from: https://www.metrochicagodata.org/.

  123. NYC Open Data. Cited 31 Mar 2013. Available from: https://data.cityofnewyork.us/.

  124. Open Data – City of Palo Alto. Cited 31 Mar 2013. Available from: http://data.cityofpaloalto.org/.

  125. San Jose CA – Data & demographics. Cited 31 Mar 2013. Available from: http://www.sanjoseca.gov/Index.aspx?NID=109.

  126. Open Data/San Francisco. Cited 31 Mar 2013. Available from: https://data.sfgov.org/.

  127. Data.Seattle.Gov/Seattle’s Data Site. Cited 31 Mar 2013. Available from: https://data.seattle.gov/.

  128. City of Somerville, MA Data Portal. Cited 31 Mar 2013. Available from: https://data.somervillema.gov/.

  129. Data.AustinTexas.gov/Open Austin. Cited 31 Mar 2013. Available from: https://data.austintexas.gov/.

  130. ABQ Data Index — City of Albuquerque. Cited 31 Mar 2013. Available from: http://www.cabq.gov/abq-data.

  131. OpenBaltimore/City of Baltimore’s Open Data Catalog. Cited 31 Mar 2013. Available from: https://data.baltimorecity.gov/.

  132. Data.NOLA.gov/Enabling New Orleans. Cited 31 Mar 2013. Available from: https://data.nola.gov/.

  133. Open Raleigh – The Official City of Raleigh Portal. Cited 31 Mar 2013. Available from: http://www.raleighnc.gov/open.

  134. Data/Cook County, Illinois. Cited 31 Mar 2013. Available from: https://datacatalog.cookcountyil.gov/.

  135. Open Data Portal Mecklenburg County GIS. Cited 31 Mar 2013. Available from: http://maps.co.mecklenburg.nc.us/dataportal/.

  136. GIS Data Portal – County of Sonoma. Cited 31 Mar 2013. Available from: https://gis.sonoma-county.org/.

  137. Gwinnett County, GA: GIS Data Browser. Cited 31 Mar 2013. Available from: http://www.gwinnettcounty.com/portal/gwinnett/Departments/InformationTechnologyServices/GeographicInformationSystems/GISDataBrowser.

  138. Samhsa I. Substance abuse and mental health data archive analyze online. Cited 31 Mar 2013. Available from: http://www.icpsr.umich.edu/icpsrweb/SAMHDA/sda.

  139. ICPSR Find & Analyze Data. Cited 31 Mar 2013. Available from: http://www.icpsr.umich.edu/icpsrweb/ICPSR/index.jsp.

  140. University of Michigan, N. Health and Retirement Study: Overview of Data Products. Cited 31 Mar 2013. Available from: http://hrsonline.isr.umich.edu/index.php?p=data.

  141. National Longitudinal Study of Adolescent Health (Add Health). Cited 31 Mar 2013. Available from: http://www.cpc.unc.edu/projects/addhealth/.

  142. NORC. General social survey. Cited 31 Mar 2013. Available from: http://www3.norc.org/gss+website/.

  143. University of Maryland. Research on aging populations data sets. Cited 31 Mar 2013. Available from: http://www.umaryland.edu/researchaging/dataset.html.

  144. National Comorbidity Survey. Cited 31 Mar 2013. Available from: http://www.hcp.med.harvard.edu/ncs/ncs_data.php.

  145. External Collaborators/Nurses’ Health Study. Cited 31 Mar 2013. Available from: http://www.channing.harvard.edu/nhs/?page_id=471.

  146. Pennsylvania State University. Simple online data archive for population studies SODAPOP. Cited 31 Mar. Available from: http://sodapop.pop.psu.edu/data-collections.

  147. The Urban Institute/ Data Tools. Cited 31 Mar 2013. Available from: http://www.urban.org/toolkit/databases/.

  148. The Jacob France Institute. Baltimore neighborhood indicators alliance. Cited 31 Mar 2013. Available from: http://www.bniajfi.org/.

  149. Jefferson Institute KF. Patchwork nation. Cited 31 Mar 2013. Available from: http://patchworknation.org/.

  150. Center for the Study of Brooklyn – Brooklyn Neighborhood Reports. Cited 31 Mar 2013. Available from: http://www.brooklyn.cuny.edu/pub/departments/csb/1659.htm.

  151. City of Madison. Madison neighborhood indicators project.Cited 31 Mar 2013. Available from: http://madison.apl.wisc.edu/.

  152. Kidsdata: Data and Resources about the Health of Children. Cited 2013 Mar 31. Available from: http://www.kidsdata.org/.

  153. Data Resource Center for Child and Adolescent Health. Cited 31 Mar 2013. Available from: http://www.childhealthdata.org/.

  154. Child Trends. Child trends databank. Cited 31 Mar 2013. Available from: http://www.childtrendsdatabank.org/.

  155. March of Dimes. Peristats. Cited 31 Mar 2013. Available from: http://www.marchofdimes.com/peristats/Peristats.aspx.

  156. Administration for Children & Families & Department of Health and Human Services. The National Incidence Study (NIS). Cited 31 Mar 2013. Available from: https://www.childwelfare.gov/systemwide/statistics/nis.cfm.

  157. Brown SH, et al. Use of electronic health records in disaster response: the experience of Department of Veterans Affairs after Hurricane Katrina. Am J Public Health. 2007;97 Suppl 1:S136–41.

    PubMed  CrossRef  Google Scholar 

  158. Maiorana A, Steward WT, Koester KA, Pearson C, Shade SB, Chakravarty D, Myers JJ. Trust, confidentiality, and the acceptability of sharing HIV-related patient data: lessons learned from a mixed methods study about Health Information Exchanges. Implement Sci. 2012;7:34. doi: 10.1186/1748-5908-7-34. PMID: 22515736; PMCID: PMC3428648.

  159. National Research Council. Collecting sexual orientation and gender identity data in electronic health records: workshop summary. Washington, DC: The National Academies Press, 2013.

    Google Scholar 

  160. Richards J. Introduction to public health informatics. 2006. Cited 31 Mar 2013. Available from: https://apha.confex.com/apha/134am/techprogram/paper_142856.htm.

  161. Cunningham DJ, Ascher MT, Viola D, Visintainer PF. Baseline assessment of public health informatics competencies in two Hudson Valley health departments. Public Health Rep. 2007;122:302–10.

    PubMed  Google Scholar 

  162. Public Health Foundation. Council on linkages between academia and public health practice. Cited 31 Mar 2013. Available from: http://www.phf.org/programs/council/Pages/default.aspx/corecompetencies.htm.

  163. CDC, ASPH & U of WA Center for Public Health Informatics. Public health informatics competencies. Cited 31 Mar 2013. Available from: http://www.cdc.gov/informaticscompetencies/.

  164. Jones S, Ball A, Ekmekcioglu C. The data audit framework: a first step in the data management challenge. Int J Digit Curation. 2008;3:112–20.

    Google Scholar 

  165. Coursera. Cited 31 Mar 2013. Available from: https://www.coursera.org/.

  166. Open Knowledge Foundation. School of data. Cited 31 Mar 2013. Available from: http://schoolofdata.org/.

  167. Massive Open Online Courses (MOOC) list. Cited 31 Mar 2013. Available from: http://www.mooc-list.com/.

  168. Rowland DT. Demographic methods and concepts. Oxford: Oxford University Press; 2003.

    Google Scholar 

  169. Pennsylvania State University. Software from GeoVISTA Center. Cited 31 Mar 2013. Available from: http://www.geovista.psu.edu/software/.

  170. Stack Exchange – Free, Community-Powered Q&A. Cited 31 Mar 2013. Available from: http://stackexchange.com/.

Download references

Author information

Authors and Affiliations

Authors

Corresponding author

Correspondence to Edward Mensah PhD .

Editor information

Editors and Affiliations

Rights and permissions

Reprints and Permissions

Copyright information

© 2014 Springer-Verlag London

About this chapter

Cite this chapter

Mensah, E., Goderre, J.L. (2014). Data Sources and Data Tools. In: Magnuson, J., Fu, Jr., P. (eds) Public Health Informatics and Information Systems. Health Informatics. Springer, London. https://doi.org/10.1007/978-1-4471-4237-9_7

Download citation

  • DOI: https://doi.org/10.1007/978-1-4471-4237-9_7

  • Published:

  • Publisher Name: Springer, London

  • Print ISBN: 978-1-4471-4236-2

  • Online ISBN: 978-1-4471-4237-9

  • eBook Packages: MedicineMedicine (R0)