Quality pp 199-246 | Cite as

Symptoms and HRQOL Assessment

  • Ivan Barofsky


Should symptoms be included in an HRQOL assessment? This chapter addresses this issue using the research literature based on the assessment of fatigue and pain. It will become apparent that it is possible to assess the qualitative consequences of a symptom without having to relate it to HRQOL. Thus, a symptom, if qualified, can be a quality indicator. To achieve this first requires a shift in the semantics of symptoms with the incorporation of emotive determinants of symptoms (e.g., a shift from pain intensity to pain burden), and if this is followed by a valuation, then the components of a qualitative hybrid construct would be in place. I also discuss the role of modularity and how it can help in predicting different outcomes between symptoms, using fatigue, depression, and HRQOL as the model. Also discussed is the issue of how to assess pain in the compromised person.


Chronic Fatigue Syndrome Item Response Theory Item Bank Symptom Domain Physical Fatigue 
These keywords were added by machine and not by the authors. This process is experimental and the keywords may be updated as the learning algorithm improves.



Breast Cancer Questionnaire (Levine et al. 1988)


Beck Depression Inventory (Beck et al. 1961)


Brief Pain Inventory (Mendoza et al. 1999)


Cancer rehabilitation evaluation system (Ganz et al. 1992)


Classification and regression tree (Breiman et al. 1984)


Center for Epidemiological Studies-Depression (Radloff 1977)


Cognitive processing model (Tourangeau 1984)


Complex regional pain syndrome


Diagnostic and statistical manual of mental disorders


European Organization for Research and Treatment of Cancer-Quality-of-Life Questionnaire-Cancer specific-30 items (Aaronson et al. 1991)


Edmonton Symptom Assessment Scale (Bruera et al. 1991)


Functional assessment of cancer therapy (B breast cancer; BMT bone marrow transplantation; F fatigue; G general; O ovarian)


Functional Living Index-Cancer (Schipper et al. 1984)


Hospital Anxiety and Depression Scale (Zigmond and Snaith 1983)


Health-related quality-of-life


Health Utility Index (Torrance 1976)


International Association for the Study of Pain


Irritable bowel syndrome


Mental adjustment to cancer (Watson et al. 1988)


Multidimensional affect and pain survey (Clark 1984)


MD Anderson Symptom Inventory-bone marrow transplantation (Cleeland et al. 2000)


Multidimensional Fatigue Inventory (Smets et al. 1995)


Medical outcome study-short form-36 (Ware et al. 1993)


West Haven-Yale Multidimensional Pain Inventory (Kerns et al. 1985)


Piper Fatigue Scale (Piper et al. 1989)


Profile of mood states (Mc Nair et al. 1992)


Patient Reported Inventory


Patient reported outcome measurement system


Qualitative item review (DeWalt et al. 2007)


Quality of Well-being Scale (Kaplan and Bush 1982)


Rotterdam symptom check list (De Haes et al. 1990)


Symptom Distress Scale-Fatigue (Mc Corkle and Young 1978)


Social Support Questionnaire (Sommer and Fydrich 1999)


Visual Analog Scale


Visual Analog Scale-Fatigue


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Authors and Affiliations

  1. 1.Quality of Life InstituteEast SandwichUSA

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