Quality pp 199-246 | Cite as

Symptoms and HRQOL Assessment

Chapter

Abstract

Should symptoms be included in an HRQOL assessment? This chapter addresses this issue using the research literature based on the assessment of fatigue and pain. It will become apparent that it is possible to assess the qualitative consequences of a symptom without having to relate it to HRQOL. Thus, a symptom, if qualified, can be a quality indicator. To achieve this first requires a shift in the semantics of symptoms with the incorporation of emotive determinants of symptoms (e.g., a shift from pain intensity to pain burden), and if this is followed by a valuation, then the components of a qualitative hybrid construct would be in place. I also discuss the role of modularity and how it can help in predicting different outcomes between symptoms, using fatigue, depression, and HRQOL as the model. Also discussed is the issue of how to assess pain in the compromised person.

Abbreviations

BCQ

Breast Cancer Questionnaire (Levine et al. 1988)

BDI

Beck Depression Inventory (Beck et al. 1961)

BPI

Brief Pain Inventory (Mendoza et al. 1999)

CARES

Cancer rehabilitation evaluation system (Ganz et al. 1992)

CART

Classification and regression tree (Breiman et al. 1984)

CES-D

Center for Epidemiological Studies-Depression (Radloff 1977)

CPM

Cognitive processing model (Tourangeau 1984)

CRPS

Complex regional pain syndrome

DSM-IV

Diagnostic and statistical manual of mental disorders

EORTC-QLQ-C30

European Organization for Research and Treatment of Cancer-Quality-of-Life Questionnaire-Cancer specific-30 items (Aaronson et al. 1991)

ESAS

Edmonton Symptom Assessment Scale (Bruera et al. 1991)

FACT

Functional assessment of cancer therapy (B breast cancer; BMT bone marrow transplantation; F fatigue; G general; O ovarian)

FLIC

Functional Living Index-Cancer (Schipper et al. 1984)

HADS

Hospital Anxiety and Depression Scale (Zigmond and Snaith 1983)

HRQOL

Health-related quality-of-life

HUI

Health Utility Index (Torrance 1976)

IASP

International Association for the Study of Pain

IBS

Irritable bowel syndrome

MAC

Mental adjustment to cancer (Watson et al. 1988)

MAPS

Multidimensional affect and pain survey (Clark 1984)

MDASI-BMT

MD Anderson Symptom Inventory-bone marrow transplantation (Cleeland et al. 2000)

MFI-20 PF

Multidimensional Fatigue Inventory (Smets et al. 1995)

MOS-SF-36

Medical outcome study-short form-36 (Ware et al. 1993)

MPI

West Haven-Yale Multidimensional Pain Inventory (Kerns et al. 1985)

PFS

Piper Fatigue Scale (Piper et al. 1989)

POMS

Profile of mood states (Mc Nair et al. 1992)

PRI

Patient Reported Inventory

PROMIS

Patient reported outcome measurement system

QIR

Qualitative item review (DeWalt et al. 2007)

QWB

Quality of Well-being Scale (Kaplan and Bush 1982)

RSCL

Rotterdam symptom check list (De Haes et al. 1990)

SDS-F

Symptom Distress Scale-Fatigue (Mc Corkle and Young 1978)

SSQ

Social Support Questionnaire (Sommer and Fydrich 1999)

VAS

Visual Analog Scale

VAS-F

Visual Analog Scale-Fatigue

References

  1. Aaronson NK, Ahmedzai S, Bullinger M, Crabeels D, et al. (1991). The EORTC core quality-of-life questionnaire: Interim results of an international field study. In, (Ed.) D Osoba, The Effect of Cancer on Quality of Life. Boca Raton, FL: CRC Press. (p. 185–203).Google Scholar
  2. Ahmed RI, DeAnn Lazovich A, Schmitz KH, Folsom AR. (2008). Lymphedema and quality of life in breast cancer survivors: The Iowa Women’s Health Study. J Clin Oncol. 26, 5689–5696.PubMedCrossRefGoogle Scholar
  3. Anderson KO, Giralt SA, Mendoza TR, Brown JO, et al. (2007). Symptom burden in patients undergoing autologous stem cell transplantation. Bone Marrow Transplant. 39, 759–766.PubMedCrossRefGoogle Scholar
  4. APA. Diagnostic and Statistical Manual of Mental Disorders: Fourth Edition, 1994. Washington: APAGoogle Scholar
  5. Arendt-Nielsen L, Svensson P. (2001). Referred muscle pain: Basic clinical findings. Clin J Pain. 17, 11–19.PubMedCrossRefGoogle Scholar
  6. Barofsky I and Sugarbaker PH. (1990). The cancer patient. In, (Ed.) B Spilker Quality of Life Assessment in Clinical Studies. New York, NY: Raven. (p. 419–439).Google Scholar
  7. Barsalou LW. (1983). Ad hoc categories. Mem Cogn. 11, 211–227.CrossRefGoogle Scholar
  8. Beck AT, Ward C, Mendelson M. (1961). Beck Depression Inventory (BDI). Arch Gen Psychiatr. 4, 561–571.PubMedCrossRefGoogle Scholar
  9. Becker S, Kleinböhl D, Klossika I, Hölzl R. (2008). Operant conditioning of enhanced pain sensitivity by heat-pain titration. Pain. 140, 104–114.PubMedCrossRefGoogle Scholar
  10. Bell IR, Baldwin CM, Russek LG, Schwartz GE, et al. (1998). Early life stress, negative paternal relationships and chemical intolerance in middle-aged women: support for a neural sensitization model. J Women’s Health. 7, 1135–1147.CrossRefGoogle Scholar
  11. Bell C. (1811). An Idea of a New Anatomy of the Brain; submitted for the observations of this friends. London: privately printed pamphlet.Google Scholar
  12. Belza BL, Henke CJ, Yelin EH, Epstein WV, et al. (1993). Correlates of fatigue in older adults with rheumatoid arthritis. Nurs Res. 42, 93–99.PubMedCrossRefGoogle Scholar
  13. Benedetti F, Vighetti S, Ricco C, Lagna E, et al. (1999). Pain threshold and tolerance in Alzheimer’s disease. Pain. 80, 377–383.PubMedCrossRefGoogle Scholar
  14. Bjoro K, Herr K. (2008). Assessment of pain in the nonverbal or cognitively impaired older adult. Clin Geriat Med. 24, 237–262.CrossRefGoogle Scholar
  15. Blazeby JM, Avery K, Sprangers M, Pikhart H, et al. (2006). Health-related quality of life measurement in randomized clinical trials in surgical oncology. J Clin Oncol. 24, 31768–3186.CrossRefGoogle Scholar
  16. Brady MJ, Cella DF, Mo F, Bonomi AE, et al. (1997). Reliability and validity of the Functional Assessment of Cancer Therapy- Breast quality of life instrument. J Clin Oncol. 15, 974–986.PubMedGoogle Scholar
  17. Breiman L, Friedman JH, Olshen RA, Stone CJ. (1984). Classification and Regression Trees. New York, NY: Chapman & Hall (Wadsworth).Google Scholar
  18. Bruera E, Kuehn N, Miller MJ, Selmser P, et al. (1991). The Edmonton Symptom Assessment Scale. Cancer 88, 2164–2171.Google Scholar
  19. Bruera E, Macmillian K, Hanson J, MacDonald RN. (1989). The Edmonton staging system for cancer pain: Preliminary report. Pain. 37, 203–209.PubMedCrossRefGoogle Scholar
  20. Brunier G, Graydon J. (1996). A comparison of two methods of measuring fatigue in patients on chronic haemodialysis: Visual analogue vs Likert scale. Int J Nurs Stud. 33, 338–348.PubMedCrossRefGoogle Scholar
  21. Cain MJ. (2002). Fodor: Language, Mind and Philosophy. Cambridge, UK: Polity.Google Scholar
  22. Campbell, A. (1972). Aspiration, satisfaction and fulfillment. In, (Eds.) A Campbell, P Converse. The Human Meaning of Social Change. New York, NY: Russell Sage. (p. 441–446).Google Scholar
  23. Cantril H. (1965). The Pattern of Human Concerns. New Brunswick NJ: Rutgers University Press.Google Scholar
  24. Cella D. (1997). The Functional Assessment of Cancer Therapy- Anemia (FACT-An) Scale: A new tool for the assessment of outcomes in cancer anemia and fatigue. Semin Hematol. 34:13–19PubMedGoogle Scholar
  25. Cella D, Chang C-H, Lai J-S, Webster K. (2002). Advances in quality of life measurement in oncology patients. Semin Oncol. 29, 60–68.PubMedGoogle Scholar
  26. Cella D, Peterman A, Passik S, Jacobsen P, et al. (1998). Progress towards guidelines for the management of fatigue. Oncology. 12, 369–377.PubMedGoogle Scholar
  27. Chalder T, Berelowitz G, Pawlikowska T, Watts L, et al. (1993). Development of a fatigue scale. J Psychosom Res. 37, 147–153.PubMedCrossRefGoogle Scholar
  28. Chang VT, Hwang SS, Feuerman M, Kasimis BS, et al. (2000). The Memorial Symptom Assessment scale-short form (MSAS-SF). Cancer. 89, 1162–1171.PubMedCrossRefGoogle Scholar
  29. Chapman CR. (2008). Progress in pain assessment: The cognitively compromised patient. Curr Opin Anaesthesiol. 21, 610–615.PubMedCrossRefGoogle Scholar
  30. Chochinov HM, Wilson KG, Enns M, Lander S. (1997). “Are you depressed?” Screening for depression in the terminally ill. Am J Psychiatr. 154, 674–676.PubMedGoogle Scholar
  31. Chow E, Fan G, Hadi S, Filipczak L. (2007). Symptom clusters in cancer patients with bone metastasises. Support Care Cancer. 15, 1035–1043.PubMedCrossRefGoogle Scholar
  32. Christodoulou C. (2005). The assessment and measurement of fatigue. In, (Ed.) J DeLuce, Fatigue as a Window on the Brain. Cambridge MA: MIT Press.Google Scholar
  33. Clark A. (2005). Painfulness is not quale. In, (Ed.) M Aydede, Pain: New Essays on its Nature and the Methodology of its Study. Cambridge MA: The MIT Press.Google Scholar
  34. Clark WC. (1984). Applications of multidimensional scaling to ­problems in experimental and clinical pain: An introduction. In, (Ed.) B Bromm, New Approaches to Pain Measurement in Man. Amsterdam The Netherlands: Elsevier. (p. 349–369).Google Scholar
  35. Clark WC, Ferrer-Brechner T, Janal MN, Carroll JD, et al. (1989a). The dimensions of pain: A multidimensional scaling comparison of cancer patients and healthy volunteers. Pain. 37, 23–32.PubMedCrossRefGoogle Scholar
  36. Clark WC, Fletcher JD, Janal MN, Carroll JD. (1995). Hierarchical clustering of 270 pain/emotion descriptors: Towards a revision of the McGill Pain Questionnaire. In, (Eds.) B Bromm, J Desmedt. Pain and the Brain: From Nociception to Sensation. New York NY: Raven Press. (p. 319–330).Google Scholar
  37. Clark WC, Janal MN, Carroll JD. (1989b). Multidimensional pain requires multidimensional scaling. In, (Eds.) JD Loeser, CR Chapman. Issues in Pain Measurement. New York NY: Raven Press. (p. 285–325).Google Scholar
  38. Clark WC, Kuhl JP, Keohan ML, Knotkova H, et al. (2003). Factor analysis validates the cluster structure of the dendrogram underlying the Multidimensional Affect and Pain Survey (MAPS) and ­challenges the a prior classification of the descriptors in the McGill Pain Questionnaire (MPQ). Pain. 106, 357–363.PubMedCrossRefGoogle Scholar
  39. Clark WC, Yang JC, Tsui S-L, Kwok-Fu N, et al. (2002). Unidimensional pain rating scales: A multidimensional and pain survey (MAPS) analysis of what they really measure. Pain. 98, 241–247.PubMedCrossRefGoogle Scholar
  40. Cleeland CS. (2007). Symptom burden: multiple symptoms and their impact as patient-reported outcomes: Review. J Natl Cancer Inst Monogr. 37, 16–21.PubMedCrossRefGoogle Scholar
  41. Cleeland CS, Mendoza TR, Wang XS, Chou C, et al. (2000). Assessing symptom distress in cancer patients: The M.D. Anderson Symptom Inventory. Cancer. 89, 1634–1646.PubMedCrossRefGoogle Scholar
  42. Coates A, Gebski V, Bishop JF, Jeal PN et al. (1987). Improving the quality of life during chemotherapy for advanced breast cancer. A comparison of intermittent and continuous treatment strategies. NEJM. 317, 1490–1495.PubMedCrossRefGoogle Scholar
  43. Cole LJ, Farrell MJ, Duff EP, Barber JB, et al. (2006). Pain sensitivity and fMDI pain-related brain activity in Alzheimer’s disease. Brain. 129, 2957–2965.PubMedCrossRefGoogle Scholar
  44. Cronje RJ, Williamson OD. (2006). Is pain every normal ? Clin J Pain. 22, 692–699.PubMedCrossRefGoogle Scholar
  45. Dallenback KM. (1939). Somesthesis. In, (Eds.) EG Boring, HS Langfeld, HP Weld. Induction to Psychology New York NY: Wiley. (p. 608–625).Google Scholar
  46. Davis PJ, Reeves JL, Graff-Radford SB, Hastle BA, et al. (2003). Multidimensional subgroups in migraine: Differential treatment outcome to a pain medicine program. Pain Med. 4, 215–222.PubMedCrossRefGoogle Scholar
  47. Daut RL, Cleeland CS, Flanery RC. (1983). Development of the Wisconsin Brief Pain Questionnaire to assess pain in cancer and other diseases. Pain. 17, 197–210.PubMedCrossRefGoogle Scholar
  48. Descartes R. (1664). Traite de l”home. Paris France: C Angot.Google Scholar
  49. De Haes JCJM, Olschwski M, Kaufmann M, Schumacher M, et al. (2003). Quality of life in goserelin-treated versus cyclophosphamide + methotrexate + fluorouracil -treated premenopausal and perimenopausal patients with node-positive, early breast cancer: The Zoladex Early Breast Cancer Resarch Association Trialists Group. J Clin Oncol. 24, 4510–4516.CrossRefGoogle Scholar
  50. De Haes JCJN, Pruyn JF, van Knippenberg FC. (1983). Klachten lijst voor kankerpatienteen, eerste ervaringen. Ned Tijdschr Psychologica. 38, 403–422.Google Scholar
  51. De Haes JCJM, van Knippenberg FCE, Neijt JP. (1990). Measuring psychological and physical distress in cancer patients: Structure and application of the Rotterdam Symptom Checklist. Br J Cancer. 62, 1034–1038.PubMedCrossRefGoogle Scholar
  52. DeLuca J, Johnson SK, Beldowics D, Natelson BH. (1995). Neuro­psychological impairments in chronic fatigue syndrome, ­multiple sclerosis and depression. J Neurol Neurosurg Psychiatr. 58, 38–42.PubMedCrossRefGoogle Scholar
  53. DeVries J, Michielsen HJ, Van Heck GL. (2003). Assessment of fatigue among working people: a comparison of six questionnaires. Occup Environ Med. 60 Suppl 1, 10–15.CrossRefGoogle Scholar
  54. DeWalt DA, Rothrock N, Yount S, Stone AA. (2007). Evaluation of item candidates: The PROMIS Qualitative Item Review. Med Care. 45 Suppl 1, S12–S21.PubMedCrossRefGoogle Scholar
  55. Dittner AJ, Wessely SC, Brown RG. (2004). The assessment of fatigue: A practical guide for clinicians and researchers. J Psychosom Res. 56, 157–170.PubMedCrossRefGoogle Scholar
  56. Dorn SD, Palsson OS, Thiwan SIM, Kanazawa M, et al. (2007). Increased colonic pain sensitivity in irritable bowel syndrome is the result of an increased tendency to report pain rather than increased neurosecretory sensitivity. Gut. 56, 1202–1209.PubMedCrossRefGoogle Scholar
  57. Drossman DA. (2006). Rome III Process for Functional Gastrointestinal Disorders. McLean VA: Degnon Associates.Google Scholar
  58. Drossman DA, Toner BB, Whitehead WE, Diamant NE, et al. (2003). Cognitive-behavioral therapy versus education and desipramine versus placebo for moderate to severe functional bowel disorders Gastroenterol. 125, 19–31.CrossRefGoogle Scholar
  59. Efficace F, Bottomley A, Osoba D, Gotay C, et al. (2003). Beyond the development of quality of life (HRQOL) measures: A checklist for evaluating HRQOL outcomes in cancer clinical trials- Does HRQOL evaluation in prostate cancer research inform clinical decision making? J Clin Oncol. 21, 3502–3511.PubMedCrossRefGoogle Scholar
  60. Efficace F, Novik A, Vignetti M, Mandelli F, et al (2007a). Health-related quality of life and symptom assessment in clinical research of patients with hematologic malignancies: where are we now and where do we go from here? Haematology. 92, 1598–1598.Google Scholar
  61. Efficace F, Osoba D, Gotay C, Sprangers M, et al. (2007b). Has the quality of health-related quality of life reporting in cancer clinical trials improved over time? Towards bridging the gap with clinical decision making. Ann Oncol. 18, 775–781.PubMedCrossRefGoogle Scholar
  62. Eisenberger NI, Lieberman MD. (2004). Why rejection hurts: A common neural alarm system for physically and social pain. Trends Cogn Sci. 8, 294–300.PubMedCrossRefGoogle Scholar
  63. Eisenberger NI, Lieberman MD, Williams KD. (2003). Does rejection hurt? Am fMRI study of social exclusion. Science. 302, 290–292.PubMedCrossRefGoogle Scholar
  64. Embretson SE, Reise SP. (2000). Item Response Theory for Psychologists. Mahwah NJ: Lawrence Erlbaum.Google Scholar
  65. Fabrega H, Tyma S. (1976). Culture, language and the shaping of illness: An illustration based on pain. J Psychosom Res. 20, 323–337.PubMedCrossRefGoogle Scholar
  66. Fairbank JCT, Couper J, Davies JB, O’Bryan JP. (1980). The Oswestry Low Back Pain Disability Questionnaire. Physiotherapy. 66, 271–272.PubMedGoogle Scholar
  67. Fan G, Hadi S, Chow E. (2007). Symptom clusters in patients with advanced stage cancer referred for palliative radiation therapy in an outpatient setting. Support Cancer Care. 4, 157–162.CrossRefGoogle Scholar
  68. Faresjö A, Grodzinsky E, Johansson S, Wallander M-A, et al. (2007). Psychosocial factors at work and in every day life are associated with irritable bowel syndrome. Eur J Epidemiol. 22, 4734–80.CrossRefGoogle Scholar
  69. Feinstein AR. (1987a). Clinimetric perspective. J Chronic Dis. 40, 635–640.PubMedCrossRefGoogle Scholar
  70. Feinstein AR. (1987b). Clinimetrics. New Haven CN: Yale.Google Scholar
  71. Ferrans CE. (2007). Differences in what Quality-of-Life instruments measure. J Natl Cancer Inst Monogr. 37, 1–9.Google Scholar
  72. Ferreira KASL, Kimura M, Teixeira MJ, Mendoza TR, et al. (2008). Impact of cancer-related symptoms synergisms on health-related quality-of-life and performance status. J Pain Symptom Manag. 35, 604–616.CrossRefGoogle Scholar
  73. Ferrell BR, Grant MM. (1998).Quality-of-life and symptoms. In, (Eds.) CR King, PS Hinds. Quality-of-life: From Nursing and Patient Perspectives. Theory, Research, Practice. Sudbury MA: Jones and Barlett. (p. 140–156).Google Scholar
  74. Fodor J. (1983). Modularity of the Mind. Cambridge MA, MIT Press.Google Scholar
  75. Fordyce WE. (1982). A behavioral perspective on chronic pain. Br J Clin Psychol. 21,313–320.PubMedCrossRefGoogle Scholar
  76. Flechtner H, Bottomley A. (2003). Fatigue and quality-of-life: Lesions from the real world. Oncologist. 8, 5–9.PubMedCrossRefGoogle Scholar
  77. Frank AW. (2001). Can we research suffering? Qual Health Res. 11, 353–362.PubMedCrossRefGoogle Scholar
  78. Galter BS, Henderson J, Perander J, Jensen M. (2000). Course of symptoms and quality-of-life measurement in complex regional pain syndrome: A pilot survey. J Pain Symptom Manag. 20, 286–292.CrossRefGoogle Scholar
  79. Galer BS, Jensen MP. (1997). Development and preliminary validation of a pain measure specific to neuropathic pain: The Neuropathic Pain Scale. Neurology. 48, 332–228.PubMedCrossRefGoogle Scholar
  80. Ganz PA, Schag CA, Lee JJ, Sim MS. (1992). The CARES: a generic measure of health-related quality-of-life for patients with cancer. Qual Life Res. 1, 19–29.PubMedCrossRefGoogle Scholar
  81. Gärdenfors P. (2007). Representing actions and functional properties in conceptual spaces. In, (Eds.) T Ziemke, J Zlatev, RM Frank. Body, Language and Mind: Volume 1 Embodiment. Berlin Germany: Mouton de Gruyter. (p. 167–195).Google Scholar
  82. Gaston-Johansson F, Fall-Dickson JM, Bakos AB, Kennedy MJ. (1999). Fatigue, pain, and depression in pre-auto transplant breast cancer patients. Cancer Practice. 7, 240–247.PubMedCrossRefGoogle Scholar
  83. Geinitz H, Zimmerman FB, Thamm R, Keller M, et al. (2004). Fatigue in patients with adjuvant radiation therapy for breast cancer : long-term follow-up. J Cancer Res Clin Oncol. 130, 327–333.PubMedCrossRefGoogle Scholar
  84. Gibbs GF, Drummond PD, Finch PM, Phillips JK. (2008). Unraveling the pathophysiology of complex regional pain syndrome: Focus on sympathetically maintained pain. Clin Exp Pharm Physiol. 35,717–724.CrossRefGoogle Scholar
  85. Gibson SJ, Vonkelatos X, Ames D, Flicker L, et al. (2001). Am examination of pain perception and cerebral event-related potentials following carbon dioxide laser stimulation in patients with Alzheimer’s disease and age-matched control volunteers. Pain Res Manag. 6, 126–132.PubMedGoogle Scholar
  86. Glaus A. (1998). Fatigue in patients with cancer: Analysis and assessment. Recent Results Cancer Res. 145, 1–172.CrossRefGoogle Scholar
  87. Glaus A, Crow R, Hammond S. (1996). A qualitative study to explore the concept of fatigue/tiredness in cancer patients and in healthy individuals. Eur J Cancer Care. 5 Suppl 2, 8–23.CrossRefGoogle Scholar
  88. Glushko RJ, Maglio PP, Matlock T, Barsalou LW. (2008). Categorization in the wild. Trends Cogn Sci. 12, 129–135.PubMedCrossRefGoogle Scholar
  89. Goodwin PJ. (2003). Reversible ovarian ablation or chemotherapy: Are we ready for quality of life to guide adjuvant treatment decisions in breast cancer? J Clin Oncol. 21, 4474–4475.Google Scholar
  90. Goodwin PJ, Black JT, Bordeleau LJ, Ganz PA. (2003). Health-related quality-of-life measurement in randomized clinical trials in breast cancer-Taking stock. J Natl Cancer Inst. 95, 263–291.PubMedCrossRefGoogle Scholar
  91. Gracely RH. (1983). Pain language and ideal pain assessment. In, (Ed.) R Melzack. Pain Measurement and Assessment. New York NY: Raven Press. (p. 71–77).Google Scholar
  92. Griswold G, Clark WC. (2005). Item analysis of cancer patient responses to the Multidimensional Affect and Pain Survey (MAPS) determines the content of a short form (SMAPS-CP). J Pain. 6, 67–74.PubMedCrossRefGoogle Scholar
  93. Guilford JP. (1954). Psychometric Methods. 2nd Edition, New York NY: McGraw-Hill. (p.251–256).Google Scholar
  94. Guttman L. (1944). A basis for scaling qualitative data. Am Sociol Rev. 9: 139–150.CrossRefGoogle Scholar
  95. Gwyn R. (1999). “Captain of my ship”: Metaphor and the discourse of chronic illness. In, (Eds.) L Cameron, LG Low. Researching and Applying Metaphor Cambridge UK: Cambridge Press. (p. 203–220).Google Scholar
  96. Hadi S, Fan G, Hird AE, Kirou-Mauro A, et al. (2008). Symptom clusters in patients with coancer with metastatic bone pain. J Palliative Care. 11, 591–600.Google Scholar
  97. Halliday MAK. (1994). An Introduction to Functional Grammar. 2nd edn. London UK: Edward Arnold.Google Scholar
  98. Halliday MAK. (1998). On the grammar of pain. Funct Lang. 5, 1–32.Google Scholar
  99. Hann DM, Jacobsen PB, Azzarello LM, Martin SC, et al. (1998). Measurement of fatigue in cancer patients: development and validation of the Fatigue Symptom Inventory. Qual Life Res. 7, 301–310.PubMedCrossRefGoogle Scholar
  100. Harden RN, Bruehl S, Straton-Hicks M, Wilson PR. (2007). Proposed new diagnostic criteria for Complex Regional Pain Syndrome. Pain Med. 8, 326–331.PubMedCrossRefGoogle Scholar
  101. Heft MC, Gracely RH, Dubner R, McGrath PA. (1980). A validation model for verbal descriptor scaling for human clinical pain. Pain. 9, 363–373.PubMedCrossRefGoogle Scholar
  102. Herman BH, Panksepp J. (1978). Effects of morphine and naloxone on separation distress and approach attachment: evidence for opiate mediation of social affect. Pharmacol Biochem Behav. 9, 213–220.PubMedCrossRefGoogle Scholar
  103. Hilgard ER. (1969). Pain as a puzzle for psychology and physiology. Am Psychol. 24, 103–113.PubMedCrossRefGoogle Scholar
  104. Hinton DE, Howes D, Kirmayer LJ. (2008).Toward a medical anthropology of sensations: Definitions and research agenda. Transcult Psychiatr. 45, 142–162.CrossRefGoogle Scholar
  105. Hollenberg NK, Williams GH, Anderson R. (2000). Medical therapy, symptoms, and the distress they cause. Arch Inter Med. 160, 1477–1483.CrossRefGoogle Scholar
  106. Holroyd KA, Holm JE, Keefe FJ, Turner JA, et al. (1992). A multi-center evaluation of the McGill Pain Questionnaire: Results from more than 1700 chronic pain patients. Pain. 48, 301–311.PubMedCrossRefGoogle Scholar
  107. Holroyd KA, Talbot F, Holm JE, Pingel JD, et al. (1996). Assessing the dimensions of pain: a multitrait-multimethod evaluation of seven measures. Pain. 67, 259–265.PubMedCrossRefGoogle Scholar
  108. Holzner B, Kemmler G, Meraner V, Maislinger A, et al. (2003). Fatigue in ovarian carcinoma patients. A neglected issue? Cancer. 97, 1564–1572.PubMedCrossRefGoogle Scholar
  109. Horemans HL, Nollet F, Beelen A, Lankhorst GJ. (2004). A comparison of 4 questionnaires to measure fatigue in postpoliomylitis syndrome. Arch Phys Med Rehabil. 85, 392–398.PubMedCrossRefGoogle Scholar
  110. Huber A, Suman AL, Rendo CA, Biasi G, et al. (2007). Dimensions of “unidimensional” ratings of pain and emotions in patients with chronic musculoskeletal pain. Pain 130, 216–224.PubMedCrossRefGoogle Scholar
  111. Hulsman NM, Geertzen JHB, Dijkstra PU, van den Dungen JJAM, et al. (2009). Myopathy in CRPS-I: Disuse or neurogenic? Eur J Pain. 13, 731–736.PubMedCrossRefGoogle Scholar
  112. Hwang SS, Chang VT, Kasimis B. (2003a). A comparison of three fatigue measures in a veterans cancer population. Cancer Investig. 21, 355–365.CrossRefGoogle Scholar
  113. Hwang SS, Chang VT, Rue M, Kasimis B. (2003b). Multidimensional independent predictors of cancer-related fatigue. J Pain Symptom Manag. 26, 604–614.CrossRefGoogle Scholar
  114. Iconomou MD, Haralabos P, Kalofonos MD. (2004). Prospective assessment of emotional distress, cognitive function, and quality-of-life in patients with cancer treated with chemotherapy. Cancer. 101, 404–411.PubMedCrossRefGoogle Scholar
  115. International Classification of Diseases: 10th Revisions- Clinical Modification. (1992). Geneva Switzerland: WHO.Google Scholar
  116. Jänig W, Baron R. (2002). Complex Regional Pain Syndrome is a disease of the central nervous system. Clin Auton Res. 12, 150–164.PubMedCrossRefGoogle Scholar
  117. Jensen M, Gammaitoni AR, Olaleye DO, Olrka N, et al. (2006). The Pain Quality Assessment Scale: Assessment of pain quality in Carpal Tunnel Syndrome. J Pain. 7, 823–832.PubMedCrossRefGoogle Scholar
  118. Kaplan RM, Bush JW. (1982). Health-related quality-of-life for evaluation research and policy analysis. Health Psychol. 1, 61–80.CrossRefGoogle Scholar
  119. Kerns RD, Turk DC, Rudy TE. (1985). The West Haven-Yale Multidimensional Pain Inventory (WHYMPI). Pain. 23. 345–356.PubMedCrossRefGoogle Scholar
  120. Kim SH, Son BH, Hwang SY, Han W, et al. (2008). Fatigue and depression in disease-free breast cancer survivors: Prevalence, correlates, and association with quality-of-life. J Pain Symptom Manag. 35, 644–655.CrossRefGoogle Scholar
  121. Kirmayer LJ. (2008). Culture and metaphoric mediation of pain. Transcult Psychiatr. 45, 318–338.CrossRefGoogle Scholar
  122. Kleinman L, Zodet MW, Hakim Z, Aledort J, et al. (2000). Psychometric evaluation of the fatigue severity scale for use in chronic Hepatitis C. Qual Life Res. 9, 499–508.PubMedCrossRefGoogle Scholar
  123. Kobgashi-Shoot JAM, Hanewald GJFP, van Dam FSAM, Bruning PF. (1985). Assessment of malaise in cancer patients treated with radiotherapy. Cancer Nurs. 8, 306–313.Google Scholar
  124. Kövecses Z. (2000). Metaphors and Emotion: Language, Culture and Body in Human Feeling. Paris France: Cambridge University Press.Google Scholar
  125. Krupp LB, LaRocca NG, Muir-Nash J, Steinberg AD. (1989). The fatigue severity scale. Applications to patients with multiple scherosis and systemic lupus erthematosis. Arch Neurol. 46, 1121–1123.PubMedCrossRefGoogle Scholar
  126. Kunz M, Mylius V, Scharmann S, Schepelmann K, et al. (2009). Influence of dementia on multiple components of pain. Eur J Pain. 13, 317–325. PubMedCrossRefGoogle Scholar
  127. Kunz M, Scharmann S, Hemmeter U, Schepelmann K, et al. (2007). The facial expression of pain in patients with dementia. Pain. 133, 221–228.PubMedCrossRefGoogle Scholar
  128. Lackey GF. (2008). “Feeling blue” in Spanish: A qualitative inquiry of depression among Mexican immigrants. Soc Sci Med. 67, 228–237.PubMedCrossRefGoogle Scholar
  129. Lai J-S, Cella D, Chang C-H, Bode RK, et al. (2003). Item bank to improve, shorten and computerize self-reported fatigue: An illustration of steps to create a core item bank from the FACIT-Fatigue Scale. Qual Life Res. 12, 485–501.PubMedCrossRefGoogle Scholar
  130. Lascaratou, C. (2007). The Language of Pain. Amsterdam The Netherlands: John Benjamins.Google Scholar
  131. Lee KA, Hicks G, Nino-Murcia G. (1991). Validity and reliability of a scale to assess fatigue. Psychiatr Res. 36, 291–298.CrossRefGoogle Scholar
  132. Lee DTC, Kleinman J, Kleinman A. (2007). Rethinking depression: An ethnographic study of the experiences of depression among Chinese. Harvard Rev Psychiatr. 15, 1–8.CrossRefGoogle Scholar
  133. Lenert LA, Gifford A, Bozette S, Lee D. (2005). Race and risk/trade-off aversion in HIV infections: An explanation for disparities in utilization and access. Qual Life Res. 14, 2012.Google Scholar
  134. Lesage P, Portenoy RK. (2002). Management of fatigue in cancer patients. Oncol. 16, 373–389.Google Scholar
  135. Levine MN, Guyatt GH, Gent M, De Pauw S, et al. (1988). Quality-of-life in Stage II breast cancer: An instrument for clinical trials. J Clin Oncol. 6, 1798–1810.PubMedGoogle Scholar
  136. Levitt F, Garron DC, Whisler WW et al. (1978). Affective and sensory dimensions of back pain. Pain. 4, 273–276.CrossRefGoogle Scholar
  137. Loeser JD, Treede R-D. (2008). The Kyoto protocol of IASP basic pain terminology. Pain. 137, 473–477.PubMedCrossRefGoogle Scholar
  138. Luzzi S, Piccirilli M, Provinciali L. (2007). Perceptions of emotions on Happy/Sad chimeric faces in Alzheimer Disease: Relationship with cognitive functions. Alzheimer Associated Dis Disord. 21, 130–135.CrossRefGoogle Scholar
  139. Magendie FJ. (1822). Expériences sur les fonctions des racines des nerfs rachidiens. J Physiol Exp Patholog. 276–279.Google Scholar
  140. Mallinson T, Cella D, Cashy J, Holzner B. (2006). Giving meaning to measure: Linking self-reported fatigue and function to performance of everyday activities. J Pain Symptom Manag. 31, 229–241.CrossRefGoogle Scholar
  141. Mann T. (1927/1936). The Magic Mountain. London UK: Secker and Warburg.Google Scholar
  142. Mc Corkle R, Young K. (1978). Development of a symptom distress scale. Cancer Nurs. 1, 373–378.Google Scholar
  143. Mc Dowell I, Newell C. (1996). Measuring Health: A Guide to Rating Scales and Questionnaires, Second Edition. New York NY: Oxford University Press.Google Scholar
  144. Mc Nair DM, Lorr M, Droppelman LF. (1992). EdITS manual for Profile of Mood States. San Diego CA: Educational and Industrial Testing Service. (p.1–40).Google Scholar
  145. Mc Quellon RP, Russell GB, Cella DF, Raven BL, et al. (1997). Quality-of-life measurement in bone marrow transplantation: Development of the Functional Assessment of Cancer Therapy-Bone Marrow Transplantation (FACT-BMT) scale. Bone Marrow Transplant. 29, 357–368.CrossRefGoogle Scholar
  146. Melzack R. (1971). Phantom limb pain: Implications for treatment of pathological pain. Anesthesiol. 35, 409–419.Google Scholar
  147. Melzack R. (1975). The McGill Pain Questionnaire: Major properties and scoring method. Pain. 1, 277–299.PubMedCrossRefGoogle Scholar
  148. Melzack R. (1989). Phantom limbs, the self and the brain. Can Psychol. 30, 1–16.Google Scholar
  149. Melzack R. (1999). From the gate to the neuromatrix. Pain. (Suppl) 6, S121–S126.CrossRefGoogle Scholar
  150. Melzack R. (2005a). Evolution of the Neuromatrix Theory of Pain: The Prithvi Raj Lecture: Presented at the Third World Congress of World Institute of Pain, Barcelona 2004. Pain Pract. 5, 85–94.PubMedCrossRefGoogle Scholar
  151. Melzack R. (2005). The Melzack pain questionnaire: From description to measurement. Anesthesiology. 103, 199–202.PubMedCrossRefGoogle Scholar
  152. Melzack R, Torgerson WS. (1971). On the language of pain. Am Psychol. 34, 50–59.Google Scholar
  153. Melzack R, Wall PD. (1965). Pain mechanisms: A new theory. Science. 150, 971–979.PubMedCrossRefGoogle Scholar
  154. Mendoza T, Wang XS, Cleeland CS, Morrissey M, et al. (1999). The Rapid Assessment of Fatigue Severity in Cancer Patients: Use of the Brief Fatigue Inventory. Cancer. 85, 1186–1196.PubMedCrossRefGoogle Scholar
  155. Merskey H, Bogduk N. (2004). Classification of Chronic Pain 2nd Edition. Seattle WA, International Association of the Study of Pain Press.Google Scholar
  156. Miaknowski C, Aouizerat B, Dodd M, Cooper B. (2007). Conceptual issues in symptom cluster research and their implications for ­quality-of-life assessment in patients with cancer. J Natl Cancer Inst Monogr. 37, 39–46.CrossRefGoogle Scholar
  157. Miakowski C, Dodd M, Lee K. (2004). Symptom clusters: The new frontier in symptom management research. J Natl Cancer Inst Monogr. 32, 17–21.CrossRefGoogle Scholar
  158. Morris DB. (1991). The Culture of Pain. Berkeley CA: University of California Press.Google Scholar
  159. Mota DD, Pimenta CA. (2006). Self-report instruments of fatigue assessment: A systematic review. Res Theor Nurs Pr. 20, 49–78.CrossRefGoogle Scholar
  160. Müller W, Schneider EM, Stratz T. (2007). The classification of fibromyalgia syndrome. Rheum Int Clin Exp Investig. 27, 1005–1010.Google Scholar
  161. Nicholl BI, Halder SL, Macfarlane GJ, Thompson DG, et al. (2008). Psychosocial risk markers for new onset irritable bowel syndrome- Results of a large prospective population-based study. Pain. 137, 147–155.PubMedCrossRefGoogle Scholar
  162. Norman SA, Miller LT, Erikson HB, Norman MF, et al. (2001). Development and validation of a telephone questionnaire to characterize lymphedema in women treated with breast cancer. Phys Ther. 81, 1192–1205.PubMedGoogle Scholar
  163. Oaklander AL. (2008). RSD/CRPS: The end of the beginning. Pain. 139, 239–240.PubMedCrossRefGoogle Scholar
  164. Oaklander AL, Rissmiller JG, Gelman LB, Zheng L, et al. (2006). Evidence of focal small-fiber axonal degeneration in complex regional pain syndrome-I (reflex sympathetic dystrophy). Pain. 120, 235–243.PubMedCrossRefGoogle Scholar
  165. O’Connor M-F, Wellisch DK, Stanton AL, Eisenberger NI, et al. (2008). Craving Love? Enduring grief activates brain’s reward center. Neuroimage. 42, 969–972.PubMedCrossRefGoogle Scholar
  166. Okuyama T, Akechi T, Kugaya A, Okamura H, et al. (2000). Development and validiation of the Cancer Fatigue Scale: A brief, three-dimensional self-rating scale for assessment of fatigue in cancer patients. J Pain Symptom Manag. 19, 5–14.CrossRefGoogle Scholar
  167. Oken MM, Creech RH, Tormey DC, Horton J, et al. (1982). Toxicity and response criteria of the Eastern Cooperative Oncology Group. Am J Clin Oncol. 5, 649–655.PubMedCrossRefGoogle Scholar
  168. Olesen J. (2004). International Classification of Headache Disorders 2nd Edition. Cephalalgia. 24 Suppl 1, 9–160.Google Scholar
  169. Olesen J. Goadsby P, Steiner T. (2003). The International Classification of Headache Disorders. 2nd Edition. Lancet Neurol. 2,720.CrossRefGoogle Scholar
  170. Olson K, Hayduk L, Cree M, Cui Y, et al. (2008). The changing causal foundation of cancer-related symptom clustering during the final month of palliative care: A longitudinal study. BMC Med Res Methods. 8, 1–11.CrossRefGoogle Scholar
  171. Omoigui S. (2007a). The biochemical origin of pain: The origin of all pain is inflammation and the inflammatory response. Part 2 of 3 - Inflammatory profile of pain syndrome. Med Hypotheses. 69, 70–82.PubMedCrossRefGoogle Scholar
  172. Omoigui S. (2007b). The biochemical origin of pain- Proposing a new law of pain: The origin of all pain in inflammation and the inflammatory response. Part 1 of 3- A unifying law of pain. Med Hypotheses. 69, 1169–1178.PubMedCrossRefGoogle Scholar
  173. Osoba D. (2007). Translating the science of patient-reported outcomes assessment into clinical practice. J Natl Cancer Inst Monogr. 37, 5–11.PubMedCrossRefGoogle Scholar
  174. Oxford English Dictionary (1970). Vol VII, London UK: Oxford University Press. (p.377–378)Google Scholar
  175. Oxford English Dictionary. (1996). Oxford UK: Oxford University Press.Google Scholar
  176. Panksepp J. (1998). Affective neuroscience: The foundations of human and animal emotions. New York, NY: Oxford University Press. (pp. 466).Google Scholar
  177. Panksepp J, Herman B, Conner R, Bishop P. et al. (1978). The biology of social attachments: Opiates alleviate separation distress. Biol Psychiat. 13, 607–618.Google Scholar
  178. Paterson B, Canam C, Joachim G, Thome S. (2003). Embedded assumptions in qualitative studies of fatigue. West J Nurs Res. 25, 119–133.PubMedCrossRefGoogle Scholar
  179. Pearce JMS. (2007). Synaesthesia. Exp Neurol. 57, 120–124.Google Scholar
  180. Pearson RG. (1957). Scale analysis of a fatigue checklist. J Appl Psychol. 41, 186–191.CrossRefGoogle Scholar
  181. Perrot S. (2008). Fibromyalgia syndrome: A relevant recent construction of an ancient condition? Curr Opin Support Palliative Care. 2, 122–127.CrossRefGoogle Scholar
  182. Pilowsky I, Spence ND. (1983). Manual for the Illness Behavior Questionnaire (IBQ). 2nd Ed. Adelaide, Australia: University of Adelaide.Google Scholar
  183. Piper BF, Dibble SL, Dodd MJ, Weiss MC, et al. (1998). The Revised Piper Fatigue Scale: psychometric evaluation in women with breast cancer. Oncol Nurs Forum. 25, 677–684.PubMedGoogle Scholar
  184. Piper BF, Lindsey AM. Doff MJ, Ferketich S, et al. (1989). The development of an instrument to measure the subjective dimension of fatigue. In, (Eds.) SG Funk, EM Tornquist, MT Champagne, L Archer Copp, et al. Key Aspects of Comfort Management of Pain and Nausea. Philadelphia PA: Springer. (p. 199–208).Google Scholar
  185. Portenoy RK, Thaler HT, Kornblith AB, McCarthy LJ, et al. (1994). The Memorial Symptom Assessment Scale: an instrument for the evaluation of the symptom prevalence, characteristics and distress. Eur J Cancer. 30A, 1326–1336.PubMedCrossRefGoogle Scholar
  186. Radloff LS. (1977). The CES-D Scale: a self-report depression scale for research in the general population. Appl Psychol Meas 3, 385–401.CrossRefGoogle Scholar
  187. Rainero I, Vighetti S, Bergamasco B, Pinessi L, et al. (2000). Autonomic responses and pain perception in Alzheimer’s disease. Eur J Pain. 4, 267–274.PubMedCrossRefGoogle Scholar
  188. Rapley M. (2003). Quality of life Research. Thousand Oaks CA: Sage.Google Scholar
  189. Rasquin A, Di Lorenzo C, Forbes D, Guiraides E, et al. (2006). Childhood functional gastrointestinal disorders: Child/Adolescent. Gastroenterology. 130, 1527–1537.PubMedCrossRefGoogle Scholar
  190. Reading AE, Newton JR. (1978). A card sort method of pain assessment. J Psychosom Res. 22, 503–512.PubMedCrossRefGoogle Scholar
  191. Redeker NS, Lev RL, Ruggiero J. (2000). Insomnia, fatigue, anxiety, depression and quality-of-life of cancer patients undergoing chemotherapy. Sch Inq Nurs Pract. 14, 275–290.PubMedGoogle Scholar
  192. Rhoten D. (1982). Fatigue in cancer patients. A descriptive study. In, (Ed.) C Norris. Concept Clarification in Nursing. Rockville MD: Aspen Systems. (p. 277–300).Google Scholar
  193. Richardson A, Ream E. (1996). The experience of fatigue and other symptoms in patients receiving chemotherapy. Eur J Cancer Care. 5 Suppl, 24–30.CrossRefGoogle Scholar
  194. Ross BH, Murphy GL. (1999). Food for thought: Cross-classification and category organization in a complex real-world domain. Cogn Psychol. 38, 495–553.PubMedCrossRefGoogle Scholar
  195. Rossen PB, Pedersen AF, Zacharaie R, von der Maase H. (2009). Health-related quality-of-life in long-term survivors of testicular cancer. J Clin Oncol. 27, 5993–5999.PubMedCrossRefGoogle Scholar
  196. Rupp I, Boshuizen HC, Jacobi CE, Dinant HJ, et al. (2004).Impact of fatigue on health related quality-of-life in rheumatoid arthritis. Arthritis Rheum. 15, 578–585.CrossRefGoogle Scholar
  197. Sadler IJ, Jacobsen PB, Booth-Jones M, Belanger H, et al. (2002). Preliminary evaluation of a clinical syndrome approach to assessing cancer-related fatigue. J Pain Symptom Manag. 23, 406–416.CrossRefGoogle Scholar
  198. Scarry E. (1985). The Body in Pain: The Making and Unmasking of the Word. New York NY: Oxford University Press.Google Scholar
  199. Scherer KR. (2000). Emotions as episodes of subsystem synchronization driven by nonlinear appraisal processes. In, (Eds.) MD Lewis, I Granic. Emotions, Development, and Self-organization: Dynamic Systems Approaches to Emotional Development. Cambridge UK: Cambridge University Press. (p. 70–99).Google Scholar
  200. Schipper H, Clinch J, McMurray A, Levitt M. (1984). Measuring the quality-of-life of cancer patients: the Functional Living Index-Cancer: development and validation. J Clin Oncol. 2, 472–483.PubMedGoogle Scholar
  201. Schurmann M, Gradl G, Wizgal I, et al. (2001). Clinical and physiologic evaluation of stellate ganglion blockade for complex regional pain syndrome type I. Eur J Pain. 17, 105–122.Google Scholar
  202. Schwartz AL. (1998). The Schwartz Cancer Fatigue Scale: testing ­reliability and validity. Oncol Nurs Forum. 25, 711–717.PubMedGoogle Scholar
  203. Seminowicz DA, Davis KD. (2007). A re-examination of pain-cognition interactions: Implications for neuroimaging. Pain. 130, 8–13.PubMedCrossRefGoogle Scholar
  204. Servaes P, Verhagen C, Bieijenberg G. (2002). Fatigue in cancer patients during and after treatment. Eur J Cancer. 38, 27–43.PubMedCrossRefGoogle Scholar
  205. Sheffer CE, Deisinger JA, Cassisi JE, Lofland K. (2007). A revised ­taxonomy of patients with chronic pain. Pain Med. 8, 312–325.PubMedCrossRefGoogle Scholar
  206. Sherbourne CD. (1992). Pain measures. In, (Eds.) ALK Stewart, JE Ware Jr, Measuring Functioning and Well-being: The Medical Outcome Study Approach. Durham NC: Duke University Press. (p. 220–234).Google Scholar
  207. Sherrinton CS. (1906). The Integrative Action of the Nervous System. New Haven CT: Yale University Press.Google Scholar
  208. Smets EMA., Garssen B, Bonke B, de Haes JCJM. (1995). The multidimensional fatigue inventory (MFI). Psychometric qualities of an instrument to assess fatigue. J Psychosom Res. 39, 315–325.PubMedCrossRefGoogle Scholar
  209. Smets EMA, Garssen B, van Weers W, de Haes JCJM. (1997). Patients’ view on fatigue during and after cancer treatment, a qualitative report. In, (Ed.) EMA Smets, Fatigue in Cancer Patients Undergoing Radiotherapy. Amsterdam The Netherlands: Printpartners Ipskamp.Google Scholar
  210. Sommer G, Fydrich T. (1999). Social support questionnaire (F-SozU): norms of a representative sample. Diagnosis. 4, 212–216.Google Scholar
  211. Sontag S. (1991). Illness as Metaphor and AIDS and its Metaphors. New York, NY: Picador USA.Google Scholar
  212. Sperber D. (2002). In defense of massive modularity. In, (Ed.) E Dupoux. Language, Brain and Cognitive Development: Essays in honor of Jacques Mehler. Cambridge MA: MIT Press. (p. 47–57).Google Scholar
  213. Spitzer W, and Members of the Quebec Task Force on Spinal Disorders. (1987). Scientific approaches to the assessment and management of activity related to spinal disorders. Spine. 12 Suppl, S1–S59.Google Scholar
  214. Staub R, Smitherman ML. (2002). Peripheral and central sensitization in fibromyalgia: pathogenetic role. Curr Pain Headache Rep. 6, 259–266.CrossRefGoogle Scholar
  215. Stein KD, Martin SC, Hann DM, Jacobsen PB. (1998). A multidimensional measure of fatigue for use with cancer patients. Cancer Pract. 6, 143–152.PubMedCrossRefGoogle Scholar
  216. Sternbach RA. (1968). Pain: A Psychophysiological Analysis. New York NY: Academic Press.Google Scholar
  217. Sternbach RA. (1989). Linguistic problems in pain measurement. In, (Eds.) CR Chapman, JD Loeser. Issues in Pain Measurement. New York NY: Raven Press. (p. 63–68).Google Scholar
  218. Stewart AL, Ware JE Jr. (1992). Measuring Functioning and Well-being: The Medical Outcomes Study Approach. Durham NC: Duke University Press.Google Scholar
  219. Tolstoy L. (1886/2006). The Death of Ivan Ilyich. New York NY: Penguin.Google Scholar
  220. Torgerson WS, BenDebba M. (1983). The structure of pain descriptors. In: (Ed.) R Melzack. Pain Measurement and Assessment. New York NY: Raven. (p. 49–54).Google Scholar
  221. Torrance GW. (1976). Health status index models: A unified mathematical view. Manag Sci. 22, 990–1001.CrossRefGoogle Scholar
  222. Tourangeau R. (1984). Cognitive sciences and survey methods. In, (Eds.) T Jabine, M Straf, J Tamur, R Tourangeau. Cognitive Aspects of Survey Methodology: Building a Bridge Between Disciplines. Washington DC: National Academy Press. (pp. 73–100).Google Scholar
  223. Turk DC, Rudy TE. (1988). Towards an empirically derived taxonomy of chronic pain patients: Integration of psychological assessment data. J Consult Clin Psychol. 56, 233–238.PubMedCrossRefGoogle Scholar
  224. Turk DC, Rudy TE. (1990). The robustness of an empirically derived taxonomy of chronic pain patients. Pain. 43l, 27–35.Google Scholar
  225. Veldman PH, Reynen HM, Arntz IE, Goris RJ. (1993).Signs and symptoms of reflex sympathetic dystrophy: prospective study of 829 patients. Lancet. 342(8878), 1012–1016.PubMedCrossRefGoogle Scholar
  226. Victor T, Jensen M, Gammaitoni AR, Gould EM, et al. (2008). The dimensions of pain quality: Factor analysis of the Pain Quality Assessment Scale. Clin J Pain. 24, 550–555.PubMedCrossRefGoogle Scholar
  227. Visser MR, Smets EM. (1998). Fatigue, depression, and quality-of-life in cancer patients: how are they related? Support Care Cancer. 6, 101–108.PubMedCrossRefGoogle Scholar
  228. von Frey M. (1896). Untersuchungen über die Sinnesfunctionen der Menschlichen Haut. Erste Abhandlungen: Druckenpfindung und Schmerz. Berlin sachs Gess Wissenshaften der mathematisch und physischen Klasse der Königichen. (KL) 23, 175.Google Scholar
  229. von Korff M, Miglioretti DL. (2005). A prognostic approach to defining chronic pain. Pain. 227, 304–313CrossRefGoogle Scholar
  230. Walsh D, Rybicki L. (2006). Symptom clustering in advanced cancer. Support Care Cancer. 14, 832–836.CrossRefGoogle Scholar
  231. Ware JE, Snow KK, Kosinski MA, Gandek B. (1993). SF-36 Health Survey: Manual and Interpretation Guide. Boston MA: The Health Institute, New England Medical Center.Google Scholar
  232. Watson D. (1988). Intra-individual and inter-individual analysis of positive and negative affect; Their relation to health complaints, perceived stress and daily activities. J Personal Soc Psychol. 54, 1020–1030.Google Scholar
  233. Watson M, Greer S, Yound J, Inayat Q, et al. (1988). Development of a questionnaire measure of adjustment to cancer: the MAC scale. Psychol Med. 18, 203–209.PubMedCrossRefGoogle Scholar
  234. Wells FL. (1907). A statistical study of literary merit. Arch Psychol. 1, No.7, 5–30.Google Scholar
  235. Wessely S. (1993). Chronic fatigue. In, (Eds.) R Greenwood, MP Barnes, Neurological Rehabilitation. Edinburgh United Kingdom: Churchill Livingstone.Google Scholar
  236. Wiener SL. (1993). Differential Diagnosis of Acute Pain: By Body Region. New York NY: McGrall-Hill.Google Scholar
  237. Willis G, Reeve B, Barofsky I. (2005).The Use of Cognitive Interviewing Techniques in Quality of life and Patient-Reported Outcome Assessment. In, (Eds.) J Lipscomb, CC Gotay, C Synder. Outcomes Assessment in Cancer: Findings and Recommendations of the Cancer Outcomes Measurement Working Group. Cambridge UK: Cambridge University Press.Google Scholar
  238. Wilson IB, Cleary PD. (1995). Linking clinical variables with health-related quality of life: A conceptual model of patient outcomes. JAMA. 273, 59–65.PubMedCrossRefGoogle Scholar
  239. Wittgenstein L. (1961). Tractatus Logico-Philosophicus. New York NY: Routledge and Kegan Paul.Google Scholar
  240. Wolfe F. (2004). Fatigue assessments in rheumatoid arthritis: Comparative performance of visual analog scales and longer fatigue questionnaires in 7760 patients. J Rheum. 31, 1896–1902.PubMedGoogle Scholar
  241. Wood JD. (2008). Enteric nervous system: Reflexes, pattern generators and motility. Curr Opin Gastroenterol. 24, 149–158.PubMedCrossRefGoogle Scholar
  242. Yang JC, Clark WC, Tsui SL, Clark SB. (2000). Preoperative Multidimensional Affect and Pain survey (MAPS) scores predict postcolectomy analgesia requirement. Clin J Pain. 16, 314–320.PubMedCrossRefGoogle Scholar
  243. Yellen SB, Cella DF, Webster K, Blendowski C, et al. (1997). Measuring fatigue and other anemia-related symptoms with the Functional Assessment of Cancer Therapy (FACT) measurement system. J Pain Symptom Manag. 13, 16–74.CrossRefGoogle Scholar
  244. Zigmond AS, Snaith RP. (1983). The hospital and anxiety and depression scale. Acta Psychiatr Scand. 67, 361–370.PubMedCrossRefGoogle Scholar
  245. Zimmerman M, McGlinchey JB, Young D, Cheiminski I. (2006a). Diagnosing major depressive disorder. Introduction: An examination of the DSM-IV diagnostic criteria. J Nerv Mental Dis. 194, 151–154.CrossRefGoogle Scholar
  246. Zimmerman M, McGlinchey JB, Young D, Cheiminski I. (2006b). Diagnosing major depressive disorder III: Can some symptoms be eliminated from the diagnostic criteria? J Nerv Mental Dis. 194, 313–317.CrossRefGoogle Scholar
  247. Zung WWK. (1983). A self-rating Pain and Distress Scale. Psychosomatics. 24, 887–894.PubMedCrossRefGoogle Scholar

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Authors and Affiliations

  1. 1.Quality of Life InstituteEast SandwichUSA

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