A Registry for Inherited Colorectal Cancer

  • James Church
  • Graham Casey
Part of the Developments in Oncology book series (DION, volume 82)


Patients and families identified as having a dominantly inherited syndrome of colorectal cancer need education, support, and lifelong management of the clinical aspects of the syndrome. Although many such patients are strongly motivated to research their own condition and make full use of all resources available, they need expert care. Care of such families is a commitment that grows as family connections are unearthed and as new generations expand the numbers of potential patients. Who will be available to answer questions for the family, to help them arrange surveillance appointments, to issue reminders to forgetful relatives, to assist in dealing with insurance companies, to coordinate surgery? These are not functions of any single physician, but they fall under the umbrella of an organization formed specifically to carry them out; a Genetics department, Center or Registry.


Colorectal Cancer Genetic Counselor Familial Adenomatous Polyposis Family Tree Juvenile Polyposis 
These keywords were added by machine and not by the authors. This process is experimental and the keywords may be updated as the learning algorithm improves.


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References and Recommended Reading

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Copyright information

© Springer Science+Business Media New York 2004

Authors and Affiliations

  • James Church
    • 1
  • Graham Casey
    • 2
  1. 1.Department ofColorectal SurgeryThe Cleveland Clinic FoundationClevelandUSA
  2. 2.Lerner Research InstituteThe Cleveland Clinic FoundationCleveland

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