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Identity and Illness

Chapter
Part of the Handbooks of Sociology and Social Research book series (HSSR)

Abstract

Over the last several decades, sociological interest in and research on the relationship between illness and identity has flourished. Unlike disease, which refers primarily to physical pathology, illness generally refers to lived experience (Kleinman et al. 1978). The foci of this research have been two-fold: an examination of the public self (an individual’s identity as perceived by others) and the private self (an individual’s identity as perceived by oneself) and how the two interact with and affect each other (Kelly and Millward 2004). Yet, the commonality among the majority of studies focusing on illness and identity is that researchers have usually treated identity as a function of illness – that is, how one’s identity forms or changes as a result of contracting a particular disease or condition. This approach has been represented most successfully by those sociologists who view illness as an identity disruption (e.g., see Charmaz 1993; Karp 1996) and those interested in the relationship among identity, stigma, and illness (e.g., see Link 1987; Link et al. 1991). Recent studies have focused on how individuals strive to maintain their sense of self in spite of illness. Hinojosa et al. (2008), for example, find that veterans who had suffered a stroke were able to maintain a continuous sense of self by drawing upon their religious beliefs and cultural expectations of aging. Likewise, Sanders et al. (2002) find that while people with osteoarthritis do talk about the disruptive effects of the condition on their daily lives, they still manage to view these symptoms as part of their normal lives.

Keywords

Mental Illness Social Role Identity Theory Illness Experience Role Identity 
These keywords were added by machine and not by the authors. This process is experimental and the keywords may be updated as the learning algorithm improves.

Notes

The authors would like to thank Brian Powell, Sean Smith, and Michael Yacavone for their assistance and support throughout this project. This draft was supported, in part, by the Rockefeller Center for Public Policy at Dartmouth College and the Faculty Grants Committee at Millersville University.

References

  1. Alaszewski A, Alaszewski H, Potter J (2006) Risk, uncertainty, and life threatening trauma: analysing stroke survivor’s accounts of life after stroke. Qual Soc Res 7:1–16Google Scholar
  2. Barker K (2002) Self-help literature and the making of an identity illness: the case of Fibromyalgia Syndrome (FMS). Soc Probl 49:279–300CrossRefGoogle Scholar
  3. Bell SE (2000) Experiencing illness in/and narrative. In: Bird CE, Conrad P, Fremont AM (eds) Handbook of medical sociology, 5th edn. Prentice Hall, Upper Saddle River, NJ, pp 184–199Google Scholar
  4. Benkert O et al (1997) Public opinion on psychotropic drugs: an analysis of factors influencing acceptance or rejection. J Nerv Ment Dis 185:151–158CrossRefGoogle Scholar
  5. Blumer H (1969) Symbolic interaction: perspective and method. Prentice-Hall, Englewood Cliffs, NJGoogle Scholar
  6. Britt L, Heise DR (2000) From shame to pride in identity politics. In: Stryker S, Owens TJ, White RW (eds) Self, identity, and social movements. University of Minnesota Press, Minneapolis, MN, pp 22–268Google Scholar
  7. Brown TN, Wallace JM Jr (2001) Race-related correlates of young adults’ subjective well-being. Soc Indic Res 53:97–117CrossRefGoogle Scholar
  8. Bruner J (2002) Making stories: law, literature, and life. Farrar, Straus, and Giroux, New YorkGoogle Scholar
  9. Burke PJ (1991) Identity processes and social stress. Am Sociol Rev 56:836–849CrossRefGoogle Scholar
  10. Burke PJ (2005) Identities and addiction. Unpublished paper presented at the Kettil Bruun Society 31st Annual Symposium Didactic at the University of California, Riverside. Riverside, CAGoogle Scholar
  11. Burke PJ, Cast AD (1997) Stability and change in the gender identities of newly married couples. Soc Psychol Q 67:5–15CrossRefGoogle Scholar
  12. Bury M (1982) Chronic illness as biographical disruption. Sociol Health Illn 4:167–182CrossRefGoogle Scholar
  13. Callero P (1985) Role-identity salience. Soc Psychol Q 48:203–215CrossRefGoogle Scholar
  14. Callero P (1994) From role-playing to role using: understanding role as resource. Soc Psychol Q 57:228–243CrossRefGoogle Scholar
  15. Callero P (2003) The sociology of the self. Annu Rev Sociol 29:115–33CrossRefGoogle Scholar
  16. Charmaz K (1980) The social construction of self-pity in the chronically ill. Stud Symbolic Interact 3:123–145Google Scholar
  17. Charmaz K (1983) Loss of self: a fundamental form of suffering in the chronically ill. Sociol Health Illn 5:168–195CrossRefGoogle Scholar
  18. Charmaz K (1993) Good days, bad days: the self in chronic illness and time. Rutgers University Press, New Brunswick, NJGoogle Scholar
  19. Conrad P (1990) Qualitative research on chronic illness: a commentary on method and conceptual development. Soc Sci Med 30:1257–1263CrossRefGoogle Scholar
  20. Crossley M (1998) ‘Sick role’ or ‘empowerment’? The ambiguities of life with an HIV positive diagnosis. Sociol Health Illn 20:507–531CrossRefGoogle Scholar
  21. Davis K (1995) Reshaping the female body: the dilemma of cosmetic surgery. Routledge, New YorkGoogle Scholar
  22. Ebaugh HRF (1988) Becoming an ex: the process of role exit. University of Chicago Press, Chicago, ILGoogle Scholar
  23. Elson J (2003) Am i still a woman?: hysterectomy and gender identity. Temple University Press, Philadelphia, PAGoogle Scholar
  24. Fife BL, Wright ER (2000) The dimensionality of stigma: a comparison of its impact on the self of persons with HIV/AIDS and cancer. J Health Soc Behav 41:50–67CrossRefGoogle Scholar
  25. Francis L (1997) Ideology and interpersonal emotion management: redefining identity in two support groups. Soc Psychol Q 60:153–171CrossRefGoogle Scholar
  26. Gagne P, Tewksbury R (1999) Knowledge and power, body and self: an analysis of knowledge systems and the transgendered self. Sociol Q 40:59–83CrossRefGoogle Scholar
  27. Gee GC, Delva J, Takeuchi DT (2007) Relationships between self-reported unfair treatment and prescription medication use, illicit drug use, and alcohol dependence among Filipino Americans. Am J Public Health 5:933–940CrossRefGoogle Scholar
  28. Gergen KJ (1994) Realities and relationships: surroundings in social construction. Harvard University Press, Cambridge, MAGoogle Scholar
  29. Goffman E (1963) Stigma: notes on the management of a spoiled identity. Prentice Hall, Englewood Cliffs, NJGoogle Scholar
  30. Gordon DF (1995) Testicular cancer and masculinity. In: Sabo D, Gordon DF (eds) Men’s health and illness: gender, power, and the body. Sage, Thousand Oaks, CA, pp 246–265Google Scholar
  31. Granberg E (2006) ‘Is this all there is?’ Possible selves, self-change, and weight loss. Soc Psychol Q 69:109–126CrossRefGoogle Scholar
  32. Hallowell N, Arden-Jones A, Eeles R, Foster C, Lucassen A, Moynihan C, Watson M (2006) Guilt, blame and responsibility: men’s understanding of their role in the transmission of BRCA1/2 mutations within their family. Sociol Health Illn 28:969–988CrossRefGoogle Scholar
  33. Heise DR (1979) Understanding events: affect and the construction of social action. Cambridge University Press, New YorkGoogle Scholar
  34. Heise DR (2002) Understanding social interaction with affect control theory. In: Berger J, Zelrich M Jr (eds) New directions in sociological theory: growth of contemporary theories. Rowman and Littlefield, Lanham, MD, pp 17–40Google Scholar
  35. Heise DR (2006) Expressive order: confirming sentiments in social actions. Springer, New YorkGoogle Scholar
  36. Heiss J (1981) Social roles. In: Rosenberg M, Turner RH (eds) Social psychology: sociological perspectives. Basic Books, New York, pp 94–132Google Scholar
  37. Hinojosa R, Boylstein C, Rittman M, Hinojosa MS, Faircloth CA (2008) Constructions of continuity after stroke. Symbolic Interact 31:205–224CrossRefGoogle Scholar
  38. Hochschild AR (1979) Emotion work, feeling rules, and social structure. Am J Sociol 85:551–575CrossRefGoogle Scholar
  39. Hogg MA (2003) Social identity. In: Leary MR, Tangney JP (eds) Handbook of self and identity. Guilford Press, New York, pp 462–479Google Scholar
  40. Horwitz AV (2002) Outcomes in the sociology of mental health and illness: where have we been and where are we going? J Health Soc Behav 43:143–151CrossRefGoogle Scholar
  41. Hughes EC (1945) Dilemmas and contradictions of status. Am J Sociol 50:353–359CrossRefGoogle Scholar
  42. Husaini BA, Sherkat DE, Bragg R, Levine R, Emerson JS, Mentes CM, Cain VA (2001) Predictors of breast cancer screening in a panel study of African–American women. Women Health 34:35–51CrossRefGoogle Scholar
  43. Hyden L-C (1997) Illness and narrative. Sociol Health Illn 19:48–69Google Scholar
  44. Kaiser K (2008) The meaning of the survivor identity for women with breast cancer. Soc Sci Med 67:79–87CrossRefGoogle Scholar
  45. Karp D (1996) Speaking of sadness: depression, disconnection, and the meanings of illness. Oxford University Press, New YorkGoogle Scholar
  46. Kelly MP, Field D (1996) Medical sociology, chronic illness and the body. Sociol Health Illn 18:241–257CrossRefGoogle Scholar
  47. Kelly MP, Millward LM (2004) Identity and illness. In: Kelleher D, Leavey G (eds) Identity and illness. Routledge, London, pp 1–18Google Scholar
  48. Kilstrom JF, Cantor N (1984) Mental representations of the self. In: Berkowitz L (ed) Advances in experimental social psychology. Academic, New York, pp 2–48Google Scholar
  49. Kleinman A, Eisenberg L, Good B (1978) Culture, illness, and care: clinical lessons from anthropologic and cross-cultural research. Ann Intern Med 88:251–258Google Scholar
  50. Kroska A, Harkness SK (2006) Stigma sentiments and self-meanings: exploring the modified labeling theory of mental illness. Soc Psychol Q 69:325–348CrossRefGoogle Scholar
  51. Lawton J (2003) Lay experiences of health and illness: past research and future agendas. Sociol Health Illn 25:23–40CrossRefGoogle Scholar
  52. Lemert EM (1999) Primary and secondary deviance. In: Traub SH, Little CB (eds) Theories of deviance, 5th edn. State University of New York at Cortland Press, Cortland, NY, pp 385–389Google Scholar
  53. Lennon MC, Link BG, Marbach JJ, Dohrenwend BP (1989) The stigma of chronic facial pain and its impact on social relationships. Soc Probl 36:117–134CrossRefGoogle Scholar
  54. Levy-Storms L, Wallace SP (2003) Use of mammography screening among older Samoan women in Los Angeles county: a diffusion network approach. Soc Sci Med 57:987–1000CrossRefGoogle Scholar
  55. Link BG (1987) Understanding labeling effects in the area of mental disorders: an assessment of the effects of expectations of rejection. Am Sociol Rev 52:96–112CrossRefGoogle Scholar
  56. Link BG, Phelan J (2001) Conceptualizing stigma. Annu Rev Sociol 27:363–385CrossRefGoogle Scholar
  57. Link BG, Cullen FT, Struening E, Shrout PE, Dohrenwend BP (1989) A modified labeling theory approach to mental disorders: an empirical assessment. Am Sociol Rev 53:400–23CrossRefGoogle Scholar
  58. Link BG, Mirotznik J, Cullen FT (1991) The effectiveness of stigma coping orientations: can negative consequences of mental illness labeling be avoided? J Health Soc Behav 32:302–320CrossRefGoogle Scholar
  59. Linville P, Carlston DE (1994) Social cognition of the self. In: Devine PG, Hamilton DL, Ostrom TM (eds) Social cognition: impact on social psychology. Academic Press, New York, pp 144–193Google Scholar
  60. Lock M, Kaufert P (eds) (1998) Pragmatic women and body politics. Cambridge University Press, CambridgeGoogle Scholar
  61. Markus H (1977) Self-schemata and processing information about the self. J Pers Soc Psychol 52:63–78Google Scholar
  62. Markus H, Nurius P (1986) Possible selves. Am Psychol 41:954–961CrossRefGoogle Scholar
  63. Markus H, Ruvolo A (1989) Possible selves: personalized representations of goals. In: Pervin LA (ed) Goal concepts in personality and social psychology. Erlbaum, Hillsdale, NJ, pp 211–41Google Scholar
  64. McCall GR, Simmons JL (1978) Identities and interaction: an examination of human associations in everyday life. Free Press, New YorkGoogle Scholar
  65. McLeod JD, Lively KJ (2003) Social structure and personality. In: DeLamater J (ed) Handbook of social psychology. Kluwer, New York, pp 77–102Google Scholar
  66. McLeod JD, Lively KJ (2007) Social psychology and stress research. In: Avison W, McLeod J, Pescosolido BA (eds) Mental health: social mirror. Springer, New York, pp 275–303CrossRefGoogle Scholar
  67. Mead GH (1934) Mind, self, and society. University of Chicago Press, Chicago, ILGoogle Scholar
  68. Merton RK (1957) Social theory and social structure. Free Press of Glencoe, New York, revised and enlarged editionGoogle Scholar
  69. Morgan DL, Schwalbe ML (1990) Mind and self in society: linking social structure and social cognition. Soc Psychol Q 53:148–164CrossRefGoogle Scholar
  70. Murphy RF (1990) The body silent: the different world of the disabled. W.W. Norton, New YorkGoogle Scholar
  71. Nelson SM (2006) Redefining a bizarre situation: relative concept stability in affect control theory. Soc Psychol Q 69:215–234CrossRefGoogle Scholar
  72. Ohm R, Aaronson LS (2006) Symptom perception and adherence to asthma controller medications. J Nurs Scholarsh 38:292–297CrossRefGoogle Scholar
  73. Orbuch TL (1997) People’s accounts count: the sociology of accounts. Annu Rev Sociol 23:455–78CrossRefGoogle Scholar
  74. Osgood CE, May William H, Miron MS (1975) Cross cultural universals of affective meaning. University of Illinois Press, Urbana, ILGoogle Scholar
  75. Parsons T (1951) The social system. Free Press, Glencoe, ILGoogle Scholar
  76. Pescosolido B (1996) Bringing ‘community’ into utilization models: how social networks link individuals to changing systems of care. Res Sociol Health Care 13:171–197Google Scholar
  77. Pescosolido B (2006) Of pride and prejudice: the role of sociology and social networks in integrating the health sciences. J Health Soc Behav 47:189–208CrossRefGoogle Scholar
  78. Phelan MP, Hunt SA (1998) Prison gang members’ tattoos as identity work: the visual communication of moral careers. Symbolic Interact 21:277–98CrossRefGoogle Scholar
  79. Pierret J (2003) The illness experience: state of knowledge and perspectives for research. Sociol Health Illn 25:4–22CrossRefGoogle Scholar
  80. Preves SE (2001) Seeing the intersexed: an analysis of sociocultural responses to intersexuality. Signs 27:523–56CrossRefGoogle Scholar
  81. Radley A (1994) Making sense of illness: the social psychology of health and disease. Sage, LondonGoogle Scholar
  82. Reidpath DD, Chan KY, Gifford SM, Allotey P (2005) ‘He hath the French Pox’: stigma, social value, and social exclusion. Sociol Health Illn 27:468–489CrossRefGoogle Scholar
  83. Rich E (2006) Anorexic dis(connection): managing anorexia as an illness and an identity. Sociol Health Illn 28:284–305CrossRefGoogle Scholar
  84. Richardson JC, Ong BN, Sims J (2006) Is chronic widespread pain biographically disruptive? Soc Sci Med 63:1573–1585CrossRefGoogle Scholar
  85. Robinson JE (2007) Look me in the eye: my life with Asperger’s. Crown, New YorkGoogle Scholar
  86. Robinson DT, Smith-Lovin L, Tsoudis O (1994) Heinous crime or unfortunate accident? The effects of remorse on responses to mock criminal confessions. Soc Forces 73:175–190CrossRefGoogle Scholar
  87. Rose G (2006) A genealogy of the disabled identity in relation to work and sexuality. Disabil Soc 21:499–512CrossRefGoogle Scholar
  88. Rosenberg M (1981) The self-concept: social product and social force. In: Rosenberg M, Turner RH (eds) Social psychology: sociological perspectives. Basic Books, New York, pp 593–624Google Scholar
  89. Sanders C, Donovan J, Dieppe P (2002) The significance and consequences of having painful and disabled joints in older age: co-existing accounts of normal and disrupted biographies. Sociol Health Illn 24:227–253CrossRefGoogle Scholar
  90. Schneider JW, Conrad P (1983) Having epilepsy: the experience and control of illness. Temple University Press, Philadelphia, PAGoogle Scholar
  91. Smith HW, Francis LE (2005) Social vs. self-directed events among Japanese and Americans. Soc Forces 84:821–30CrossRefGoogle Scholar
  92. Smith HW, Matsuno T, Ike S (2001) The affective basis of attributional processes among Japanese and Americans. Soc Psychol Q 64:180–94CrossRefGoogle Scholar
  93. Smith-Lovin L (1987) Impressions from events. J Math Sociol 13:35–70CrossRefGoogle Scholar
  94. Smith-Lovin L (1990) Emotion as the confirmation and disconfirmation of identity: an affect control theory model. In: Kemper TD (ed) Research agendas in the sociology of emotion. State University of New York Press, Albany, NY, pp 238–270Google Scholar
  95. Smith-Lovin L, Douglass W (1992) An affect control analysis of two religious subcultures. In: Gecas V, Franks DD (eds) Social perspectives on emotions, vol 1. JAI Press, Greenwich CT, pp 217–248Google Scholar
  96. Smith-Lovin L, Heise DR (1988) Analyzing social interaction: advances in affect control theory. Gordon and Breach, New YorkGoogle Scholar
  97. Steinberg CR, Baxter RJ (1998) Accountable communities: how norms and values affect health system change. Health Aff 17:149–158CrossRefGoogle Scholar
  98. Stets J, Burke PJ (1996) Gender, control, and interaction. Soc Psychol Q 67:155–71CrossRefGoogle Scholar
  99. Stryker S (1980) Symbolic interaction: a social structural version. Benjamin Cummings, Menlo Park, CAGoogle Scholar
  100. Stryker S, Burke PJ (2000) The past, present, and future of identity theory. Soc Psychol Q 63:284–97CrossRefGoogle Scholar
  101. Stryker S, Statham A (1985) Symbolic interaction and role theory. In: Lindzey G, Aronson E (eds) Handbook of social psychology, vol 1. Random House, New York, pp 311–378Google Scholar
  102. Taylor V (1995) Self-labeling and women’s mental health: postpartum illness and the reconstruction of motherhood. Sociol Focus 28:23–47Google Scholar
  103. Taylor V, Van Willigen M (1996) Women’s self-help and the reconstruction of gender: the postpartum support and breast cancer movements. Mobilization 1:123–142Google Scholar
  104. Thoits PA (1983) Multiple identities and psychological well-being: a reformulation and test of the social isolation hypothesis. Am Sociol Rev 48:174–187CrossRefGoogle Scholar
  105. Thoits PA (1985) Self-labeling processes in mental illness: the role of emotional deviance. Am J Sociol 91:221–249CrossRefGoogle Scholar
  106. Thoits PA (1986) Multiple identities: examining gender and marital status differences in distress. Am Sociol Rev 51:259–272CrossRefGoogle Scholar
  107. Thoits PA, Hohmann AA, Harvey MR, Fletcher B (2000) Similar-other support for men undergoing coronary artery bypass surgery. Health Psychol 19:264–273CrossRefGoogle Scholar
  108. Tijerina MS (2006) Psychosocial factors affecting mexican-american women’s adherence with hemodialysis treatment. Soc Work Health Care 1:57–74CrossRefGoogle Scholar
  109. Turner BS (1995) Medical power and social knowledge, 2nd edn. Sage, LondonGoogle Scholar
  110. Weitz R (1991) Life with AIDS. Rutgers University Press, New Brunswick, NJGoogle Scholar
  111. Wester SR, Vogel DL, Wei M, McClain R (2006) African American men, gender role conflict, and psychological distress: the role of racial identity. J Couns Dev 84:419–429Google Scholar
  112. Westphal L (2004) Cancer support groups as subcultural phenomenon. Vanderbilt University, Nashville, TN. Unpublished DissertationGoogle Scholar
  113. Williams G (1984) The genesis of chronic illness: narrative re-construction. Sociol Health Illn 6:175–200CrossRefGoogle Scholar
  114. Wilson S (2007) When you have children, you’re obliged to live. Sociol Health Illn 29:610–629CrossRefGoogle Scholar

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Authors and Affiliations

  1. 1.Department of SociologyDartmouth CollegeHanoverUSA

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