Transition in the Context of Disability

  • Richard A. Young
  • Sheila K. Marshall
  • Ladislav Valach
  • José F. Domene
  • Matthew D. Graham
  • Anat Zaidman-Zait


Danni has special needs so I have been thinking about transitioning to adulthood since he was six years old, you know…, I always needed to provide him with a lot of guidance and special interventions. As far as transitioning to adulthood, it started with transitioning to independence and making a lot of difficult choices … setting him up to make choices is really important and teaching him life skills is really important. We have done a lot of things that other kids, I think haven’t done and um … like … what am I thinking of? … Going to see a dietician and an occupational therapist. Danni is really academic and he really gobbles up information but he doesn’t necessarily put it into practice…, also practicing and learning social skills … also Danni follows the straight and narrow and I try to expand his way of thinking. Like, offer some possibilities.


Chronic Illness Joint Action Parental Involvement Action Theory Developmental Disability 
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  1. Conti-Ramsden, G., Botting, N., & Durkin, K. (2008). Parental perspectives during the transition to adulthood in adolescents with a history of specific language impairment (SLI). Journal of Speech, Language and Hearing Research, 51, 84–96.CrossRefGoogle Scholar
  2. Betz, C. (2007). Facilitating the transition of adolescents with developmental disabilities: Nursing practice issues and care. Journal of Pediatric Nursing, 22, 103–115.CrossRefGoogle Scholar
  3. Glidden, L. M., & Jobe, B. M. (2007). Measuring daily parental rewards and worries in the transition to adulthood. American Journal on Mental Retardation, 112, 275–288.CrossRefGoogle Scholar
  4. Levitas, A. S., & French-Gilson, S. (2001). Predictable crises in the lives of people with mental retardation. Mental Health Aspects of Developmental Disabilities, 4, 89–100.Google Scholar
  5. Thompson, J. R., McGrew, K. S., Johnson, D. R., & Bruininks, R. H. (2000). Refining a multidimensional model of community adjustment through an analysis of post-school follow-up data. Exceptionality, 8, 73–99.CrossRefGoogle Scholar
  6. Tuchman, L. K., Slap, G. B., & Britto, M. T. (2008). Transition to adult care: Experiences and expectations of adolescents with a chronic illness. Child: Care, Health & Development, 34, 557–563.CrossRefGoogle Scholar
  7. Lehmann, J. P., Bassett, D. S., & Sands, D. J. (1999). Students’ participation in transition related activities: A qualitative study. Remedial and Special Education, 20, 160–169.CrossRefGoogle Scholar
  8. White, P. H., & Gallay, L. (2005). Youth with special health care needs and disabilities in transition to adulthood. In D. W. Osgood, E. M. Foster, C. Flanagan, & G. R. Ruth (Eds.), On your own without a net: The transition to adulthood for vulnerable populations (pp. 349–374). Chicago: University of Chicago Press.Google Scholar
  9. Green, S. (2002). Mothering Amanda: Musings on the experience of raising a child with cerebral palsy. Journal of Loss and Trauma, 7, 21–34.CrossRefGoogle Scholar
  10. Weissberg-Benchell, J., Wolpert, H., & Anderson, B. J. (2007). Transitioning from pediatric to adult care: A new approach to the post-adolescent young person with type 1 diabetes. Diabetes Care, 30, 2441–2446.CrossRefGoogle Scholar
  11. Young, R. A., Valach, L., & Collin, A. (2002). A contextual explanation of career. In D. Brown & Associates (Eds.), Career choice and development (4th ed., pp. 206–250). San Francisco, CA: Jossey-Bass.Google Scholar
  12. Rapanaro, C., Bartu, A., & Lee, A. (2008). Perceived benefits and negative impact of challenges encountered in caring for young adults with intellectual disabilities in the transition to adulthood. Journal of Applied Research in Intellectual Disabilities, 21, 34–47.Google Scholar
  13. Young, R. A., & Valach, L. (2004). The construction of career through goal-directed action. Journal of Vocational Behavior, 64, 499–514.CrossRefGoogle Scholar
  14. Green, S. (2004). The impact of stigma on maternal attitudes toward placement of children with disabilities in residential care facilities. Social Science & Medicine, 59, 799–812.CrossRefGoogle Scholar
  15. Blacher, J. (2001). Transition to adulthood: Mental retardation, families, and culture. American Journal on Mental Retardation, 106, 173–188.CrossRefGoogle Scholar
  16. Lehmann, J. P. (1998). Mother’s roles: A comparison between mothers of adolescents with severe disabilities and mothers of vocational students. Career Development for Exceptional Individuals, 21, 129–143.CrossRefGoogle Scholar
  17. Chambers, C. R., Hughes, C., & Carter, E. W. (2004). Parent and sibling perspectives on the transition to adulthood. Education and Training in Developmental Disabilities, 39, 79–94.Google Scholar
  18. Defur, S. H., Todd-Allen, M., & Getzel, E. E. (2001). Parent participation in the transition planning process. Career Development for Exceptional Individuals, 24, 19–36.CrossRefGoogle Scholar
  19. Garriott, P. P., Wandry, D., & Snyder, L. (2000). Teachers as parents, parents as children: What’s wrong with this picture? Preventing School Failure, 45(1), 37–43.CrossRefGoogle Scholar
  20. Arnett, J. J. (2000). Emerging adulthood – A theory of development from the late teens through the twenties. American Psychologist, 55, 469–480.CrossRefGoogle Scholar
  21. Galambos, N. L., Magill-Evans, J., & Darrah, J. (2008). Psychosocial maturity in the transition to adulthood for people with and without motor disabilities. Rehabilitation Psychology, 53, 498–504.CrossRefGoogle Scholar
  22. Bernheimer, L. P., & Weisner, T. S. (2007). “Let me just tell you what I do all day…”: The family story at the center of intervention research and practice. Infants and Young Children, 20, 192–201.CrossRefGoogle Scholar
  23. Graham, M. D., Young, R. A., Valach, L., & Wood, R. A. (2008). Addiction as a complex social process: An action theoretical perspective. Addiction Theory and Research, 16, 121–133.CrossRefGoogle Scholar
  24. Jordan, B., & Dunlap, G. (2001). Construction of adulthood and disability. Mental Retardation, 39(4), 286–296.CrossRefGoogle Scholar
  25. Young, R. A., Logan, C., Lovato, C. Y., Moffat, B., & Shoveller, J. A. (2005). Sun protection as a family health project in families with adolescents. Journal of Health Psychology, 10, 333–344.CrossRefGoogle Scholar
  26. Pascall, G., & Hendey, N. (2004). Disability and transition to adulthood: The politics of parenting. Critical Social Policy, 24, 165–186.CrossRefGoogle Scholar
  27. Seligman, M., & Darling, R. B. (1997). Ordinary families, special children: A systems approach to childhood disability (2nd ed.). New York: The Guilford Press.Google Scholar
  28. Arnett, J. J. (2004). Emerging adulthood: The winding road from the late teens through the twenties. New York: Oxford University Press.Google Scholar
  29. Turnbull, A. P., & Turnbull, H. R. (2001). Families, professionals, and exceptionality: Collaborating for empowerment (4th ed.). Upper Saddle River, NJ: Merrill/Prentice Hall.Google Scholar
  30. Stoner, J. B., Angell, M. E., House, J. J., & Bock, S. J. (2007). Transitions: A parental perspective from parents of young children with Autism Spectrum Disorder (ASD). Journal of Developmental and Physical Disabilities, 19, 23–39.CrossRefGoogle Scholar
  31. Bryan, T., Stiles, N., Bursetein, K., Ergul, C., & Chao, P. (2007). “Am I supposed to understand this stuff?” Youth with special health care needs readiness for transition. Education and Training in Developmental Disabilities, 42, 330–338.Google Scholar
  32. Timmons, J. C., Whitney-Thomas, J., McIntyre, J., Butterworth, J., & Allen, D. (2004). Managing service delivery systems and the role of parents during their children’s transitions. The Journal of Rehabilitation, 70, 19–26.Google Scholar
  33. Morningstar, M. (1997). Critical issues in career development and employment preparation for adolescents with disabilities. Remedial and Special Education, 18, 307–320.CrossRefGoogle Scholar
  34. Getzel, E., & deFur, S. (1997). Transition planning for students with significant disabilities: Implications for student-centered planning. Focus on Autism and Other Developmental Disabilities, 12, 39–48.CrossRefGoogle Scholar
  35. Osgood, D. W., Foster, M. E., Flanagan, C., & Ruth, G. R. (2005b). Introduction: Why focus on the transition to adulthood for vulnerable populations? In D. W. Osgood, M. E. Foster, C. Flanagan, & G. R. Ruth (Eds.), On your own without a net: The transition to adulthood for vulnerable populations (pp. 1–26). Chicago: The University of Chicago Press.Google Scholar
  36. Moons, P., Pinxten, S., Davy, D., Kristien, V. D., Gewillig, M., Hilderson, D., et al. (2009). Expectations and experiences of adolescents with congenital heart disease on being transferred from pediatric cardiology to an adult congenital heart disease program. Journal of Adolescent Health, 44, 316–322.CrossRefGoogle Scholar
  37. Seiffge-Krenke, I., Shulman, S., & Klessinger, N. (2001). Adolescent precursors of romantic relationships in young adulthood. Journal of Personality and Social Psychology, 18, 327–346.Google Scholar
  38. Levine, P., & Wagner, M. (2005). Transition for young adults who received special education services as adolescents: A time of challenge and change. In D. W. Osgood, E. M. Foster, C. Flanagan, & G. R. Ruth (Eds.), On your own without a net: The transition to adulthood for vulnerable populations (pp. 202–239). Chicago: University of Chicago Press.Google Scholar
  39. Furstenberg, F. F., Jr., Rumbaut, R. G., & Settersten, R. A. (2005). On the frontier of adulthood. In R. A. Settersten, Jr., F. F. Furstenberg, Jr., & R. G. Rumbaut (Eds.), On the frontier of adulthood: Theory, research, and public policy (pp. 3–25). Chicago: University of Chicago Press.Google Scholar
  40. Young, R. A., Marshall, S. K., Domene, J. F., Graham, M. D., Logan, C., Zaidman-Zait, A., et al. (2008). Transition to adulthood as a family project: Governance transfer, career promotion, and relational processes. Journal of Counseling Psychology, 55, 297–307.CrossRefGoogle Scholar
  41. Newman, L. (2005). Family involvement in the educational development of youth with disabilities. Menlo Park, CA: SRI International. Google Scholar
  42. Geerts, E., van de Wiel, H., & Tamminga, R. (2008). A pilot study on the effects of the transition of pediatric to adult health care in patients with haemophilia and in their parents: Patient and parent worries, parental illness-related distress and health-related quality of life. Haemophilia, 14, 1007–1013.CrossRefGoogle Scholar
  43. Blum, R. (2005). Adolescents with disabilities in transition to adulthood. In W. D. Osgood, M. E. Foster, C. Flanagan, & G. R. Ruth (Eds.), On your own without a net: The transition to adulthood for vulnerable populations (pp. 323–348). Chicago: The University of Chicago Press.Google Scholar
  44. Wagner, M., Newman, L., Cameto, R., Levine, P., & Garza, N. (2006). An overview of findings from Wave 2 of the National Longitudinal Transition Study-2 (NLTS2): A report from the National Longitudinal Transition Study-2 (NLTS2). Menlo Park, CA: SRI International.Google Scholar
  45. Boyle, M. P., Farukhi, Z., & Nosky, M. L. (2001). Strategies for improving transition to adult cystic fibrosis care, based on patient and parent views. Pediatric Pulmonology, 32, 428–436.CrossRefGoogle Scholar
  46. Baxter, C., Cummins, R. A., & Polak, S. (1995). A longitudinal study of parental stress and social support: From diagnosis of disability to leaving school. International Journal of Disability, Development and Education, 42, 125–136.CrossRefGoogle Scholar
  47. Luyckx, K., Seiffge-Krenke, I., Schwartz, S., Goossens, L., Weets, I., Hendrieckx, C., et al. (2008). Identity development, coping, and adjustment in emerging adults with a chronic illness: The sample case of Type 1 diabetes. Journal of Adolescent Health, 43, 451–458.CrossRefGoogle Scholar
  48. Thorin, E., Yovanoff, P., & Irvin, L. (1996). Dilemmas faced by families during their young adult’s transitions to adulthood A brief report. Mental Retardation, 34, 117–120.Google Scholar
  49. Lollis, S., & Kuczynski, L. (1997). Beyond one hand clapping: Seeing bidirectionality in parent-child relations. Journal of Social and Personal Relationships, 14, 441–461.CrossRefGoogle Scholar
  50. Giarelli, E., Bernhardt, B. A., Mack, R., & Pyeritz, R. E. (2008). Adolescents’ transition to self-management of a chronic genetic disorder. Qualitative Health Research, 18, 441–457.CrossRefGoogle Scholar
  51. Fiese, B. H. (2005). Introduction to special issue: Time for family-based interventions in pediatric psychology? Journal of Pediatric Psychology, 30, 629–630.CrossRefGoogle Scholar
  52. Nuehring, M. L., & Sitlington, P. L. (2003). Transition as a vehicle: Moving from high school to an adult vocational service provider. Journal of Disability Policy Studies, 14, 23–35.CrossRefGoogle Scholar
  53. Winn, S., & Hay, I. (2009). Transition from school for youths with a disability: Issues and challenges. Disability & Society, 24, 103–115.CrossRefGoogle Scholar
  54. Cooney, B. F. (2002). Exploring perspectives on transition of youth with disabilities: Voices of young adults, parents, and professionals. Mental Retardation, 40, 425–435.CrossRefGoogle Scholar
  55. Kraemer, B. R., McIntyre, L. L., & Blacher, J. (2003). Quality of life in young adults with mental retardation during transition. Mental Retardation, 41, 250–262.Google Scholar
  56. Young, R. A., Paseluikho, M. A., & Valach, L. (1997). The role of emotion in construction of career in parent-adolescent conversations. Journal of Counseling and Development, 76, 36–44.CrossRefGoogle Scholar
  57. Schneider, J., Wedgwood, N., Llewellyn, G., & McConnell, D. (2006). Families changed by and accommodating to the adolescent years. Journal of Intellectual Disability Research, 50, 926–936.CrossRefGoogle Scholar
  58. Kraemer, B. R., McIntyre, L. L., & Blacher, J. (2003). Quality of life in young adults with mental retardation during transition. Mental Retardation, 41, 250–262.Google Scholar

Copyright information

© Springer Science+Business Media,LLC 2010

Authors and Affiliations

  • Richard A. Young
    • 1
  • Sheila K. Marshall
    • 2
  • Ladislav Valach
    • 3
  • José F. Domene
    • 4
  • Matthew D. Graham
    • 5
  • Anat Zaidman-Zait
    • 6
  1. 1.Department of Educational, Counselling Psychology and Special EducationUniversity of British ColumbiaVancouverCanada
  2. 2.School of Social Work, University of British ColumbiaVancouverCanada
  3. 3.BremgartenSwitzerland
  4. 4.University of New BrunswickFrederictonCanada
  5. 5.Orion HealthSurreyCanada
  6. 6.University of British ColumbiaVancouverCanada

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