Skip to main content
SpringerLink
Log in
Book cover

Handbook of Pain and Palliative Care pp 383–398Cite as

Hope in the Context of Pain and Palliative Care

  • Chapter
  • First Online:

  • 3344 Accesses

Abstract

Hope is a good, even essential component of the resilience that translates into better coping and quality of life in the setting of a life-threatening illness, especially as death approaches and the hope for positive outcomes turns to hope for being comfortable, well informed, accompanied by those who love us, and making meaning in devastating situations. There is little empirical data on the components and impact of hope in cancer care but a wealth of information about the psychology of hope and factors associated with hope and hopelessness. Hope can positively impact an individual’s behavior and choices, and interventions decrease levels of depression and hopelessness. However, the biology and mechanism of benefit is complex, and the relative contribution of the nonspecific physical, neuroendocrine, and inflammatory pathways unknown. Hope can enhance quality of life in cancer patients, but any benefit in the length of survival is much more controversial, and new avenues of investigation show how social networks foster hope through support, information, and access to care. A common fear is that when the patient gives up, the disease takes over, and patients need structured informational and psychological support (An agreed (1) plan, (2) information and (3) support), with committed, optimistic, and personal attention. The ethics of hype and hope, and the need for honesty and realism apply as much to alternative as to conventional medicine. When “all hope is gone” working toward a “good death” requires addressing the transcendent hopes of the moment, and those embodied in spiritual beliefs and legacy. Hope can exist, even when the challenge is impossible, the odds long, and the time short. It is a huge privilege to nurture realistic hopefulness and to not abandon patients to fear and despair in their last days. The best care demands the science of medicine and the art of compassion. Then we can all speak the language of hope, of trust, and respect.

This is a preview of subscription content, log in via an institution.

Chapter
USD   29.95
Price excludes VAT (USA)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever
eBook
USD   349.00
Price excludes VAT (USA)
  • Available as EPUB and PDF
  • Read on any device
  • Instant download
  • Own it forever
Softcover Book
USD   449.99
Price excludes VAT (USA)
  • Compact, lightweight edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info
Hardcover Book
USD   599.99
Price excludes VAT (USA)
  • Durable hardcover edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info

Tax calculation will be finalised at checkout

Purchases are for personal use only

Learn about institutional subscriptions

References

  • Adler, S. R., & Fosket, J. R. (1999). Disclosing complementary and alternative medicine use in the medical encounter: A qualitative study in women with breast cancer. Journal of Family Practice, 48, 453–458.

    PubMed  CAS  Google Scholar 

  • Ahlberg, K., Ekman, T., & Gaston-Johansson, F. (2004). Levels of fatigue compared to levels of cytokines and hemoglobin during pelvic radiotherapy: A pilot study. Biological Research for Nursing, 5, 203–210.

    Article  PubMed  Google Scholar 

  • Altman, D. G., Schulz, K. F., Moher, D., et al. (2001). The revised CONSORT statement for reporting randomized trials: Explanation and elaboration. Annals of Internal Medicine, 134, 663–694.

    Article  PubMed  CAS  Google Scholar 

  • Andersen, B. L., Farrar, W. B., Golden-Kreutz, D. M., et al. (2004). Psychological, behavioral, and immune changes after a psychological intervention: A clinical trial. Journal of Clinical Oncology, 22, 3570–3580.

    Article  PubMed  Google Scholar 

  • Andersen, B. L., Farrar, W. B., Golden-Kreutz, D., et al. (2007). Distress reduction from a psychological intervention contributes to improved health for cancer patients. Brain, Behavior, and Immunity, 21, 953–961.

    Article  PubMed  Google Scholar 

  • Angell, M., & Kassirer, J. P. (1998). Alternative medicine–the risks of untested and unregulated remedies. The New England Journal of Medicine, 339, 839–841.

    Article  PubMed  CAS  Google Scholar 

  • Antoni, M. H., Wimberly, S. R., Lechner, S. C., et al. (2006). Reduction of cancer-specific thought intrusions and anxiety symptoms with a stress management intervention among women undergoing treatment for breast cancer. The American Journal of Psychiatry, 163, 1791–1797.

    Article  PubMed  Google Scholar 

  • Back, A. L., Arnold, R. M., & Quill, T. E. (2003). Hope for the best, and prepare for the worst. Annals of Internal Medicine, 138, 439–443.

    Article  PubMed  Google Scholar 

  • Ballard, A., Green, T., McCaa, A., et al. (1997). A comparison of the level of hope in patients with newly diagnosed and recurrent cancer. Oncology Nursing Forum, 24, 899–904.

    PubMed  CAS  Google Scholar 

  • Bardia, A., Barton, D. L., Prokop, L. J., et al. (2006). Efficacy of complementary and alternative medicine therapies in relieving cancer pain: A systematic review. Journal of Clinical Oncology, 24, 5457–5464.

    Article  PubMed  Google Scholar 

  • Barnum, D. D., Snyder, C. R., Rapoff, M. A., et al. (1998). Hope and social support in the psychological adjustment of children who have survived burns and their matched controls. Children’s Health Care, 27, 15–30.

    Article  Google Scholar 

  • Benzein, E., Norberg, A., & Saveman, B. I. (2001). The meaning of the lived experience of hope in patients with cancer in palliative home care. Palliative Medicine, 15, 117–126.

    Article  PubMed  CAS  Google Scholar 

  • Boesen, E. H., Boesen, S. H., Frederiksen, K., et al. (2007). Survival after a psychoeducational intervention for patients with cutaneous malignant melanoma: A replication study. Journal of Clinical Oncology, 25, 5698–5703.

    Article  PubMed  Google Scholar 

  • Bonaccorso, S., Marino, V., Puzella, A., et al. (2002). Increased depressive ratings in patients with hepatitis C receiving interferon-alpha-based immunotherapy are related to interferon-alpha-induced changes in the serotonergic system. Journal of Clinical Psychopharmacology, 22, 86–90.

    Article  PubMed  CAS  Google Scholar 

  • Bower, J. E., Ganz, P. A., Aziz, N., et al. (2002). Fatigue and proinflammatory cytokine activity in breast cancer survivors. Psychosomatic Medicine, 64, 604–611.

    PubMed  Google Scholar 

  • Bower, J. E., Ganz, P. A., Aziz, N., et al. (2003). T-cell homeostasis in breast cancer survivors with persistent fatigue. Journal of the National Cancer Institute, 95, 1165–1168.

    Article  PubMed  Google Scholar 

  • Bower, J. E., Ganz, P. A., Aziz, N., et al. (2007). Inflammatory responses to psychological stress in fatigued breast cancer survivors: Relationship to glucocorticoids. Brain, Behavior, and Immunity, 21, 251–258.

    Article  PubMed  CAS  Google Scholar 

  • Brandt, B. T. (1987). The relationship between hopelessness and selected variables in women receiving chemotherapy for breast cancer. Oncology Nursing Forum, 14, 35–39.

    PubMed  CAS  Google Scholar 

  • Breitbart, W., Rosenfeld, B., Pessin, H., et al. (2000). Depression, hopelessness, and desire for hastened death in terminally ill patients with cancer. JAMA, 284, 2907–2911.

    Article  PubMed  CAS  Google Scholar 

  • Brown, D. J., McMillan, D. C., & Milroy, R. (2005). The correlation between fatigue, physical function, the systemic inflammatory response, and psychological distress in patients with advanced lung cancer. Cancer, 103, 377–382.

    Article  PubMed  Google Scholar 

  • Busch, A. K., Schnepp, W., & Spirig, R. (2009). Psychosocial interventions for couples living with cancer. A literature review. Pflege, 22, 254–265.

    Article  PubMed  Google Scholar 

  • Butow, P. N., Dowsett, S., Hagerty, R., et al. (2002). Communicating prognosis to patients with metastatic disease: What do they really want to know? Supportive Care in Cancer, 10, 161–168.

    Article  PubMed  CAS  Google Scholar 

  • Byock, I. (1997). Dying well: The prospect for growth at the end of life. Riverhead Books: New York.

    Google Scholar 

  • Capuron, L., Neurauter, G., Musselman, D. L., et al. (2003). Interferon-alpha-induced changes in tryptophan metabolism. Relationship to depression and paroxetine treatment. Biological Psychiatry, 54, 906–914.

    Article  PubMed  CAS  Google Scholar 

  • Carlson, L. E., Speca, M., Patel, K. D., et al. (2003). Mindfulness-based stress reduction in relation to quality of life, mood, symptoms of stress, and immune parameters in breast and prostate cancer outpatients. Psychosomatic Medicine, 65, 571–581.

    Article  PubMed  Google Scholar 

  • Chang, E. C. (1998). Hope, problem-solving ability, and coping in a college student population: Some implications for theory and practice. Journal of Clinical Psychology, 54, 953–962.

    Article  PubMed  CAS  Google Scholar 

  • Chochinov, H. M., Wilson, K. G., Enns, M., et al. (1995). Desire for death in the terminally ill. The American Journal of Psychiatry, 152, 1185–1191.

    PubMed  CAS  Google Scholar 

  • Chow, E., Tsao, M. N., & Harth, T. (2004). Does psychosocial intervention improve survival in cancer? A meta-analysis. Palliative Medicine, 18, 25–31.

    Article  PubMed  Google Scholar 

  • Christakis, N. A., & Fowler, J. H. (2011). Connected: The surprising power of our social networks and how they shape our lives. 352 pages. Little, Brown and Company (September 28, 2009). Boston, MA.

    Google Scholar 

  • Christman, N. J. (1990). Uncertainty and adjustment during radiotherapy. Nursing Research, 39, 17–20. 47.

    Article  PubMed  CAS  Google Scholar 

  • Clayton, J. M., Butow, P. N., Arnold, R. M., et al. (2005a). Fostering coping and nurturing hope when discussing the future with terminally ill cancer patients and their caregivers. Cancer, 103, 1965–1975.

    Article  PubMed  Google Scholar 

  • Clayton, J. M., Butow, P. N., Arnold, R. M., et al. (2005b). Discussing life expectancy with terminally ill cancer patients and their carers: A qualitative study. Supportive Care in Cancer, 13, 733–742.

    Article  PubMed  Google Scholar 

  • Clayton, J. M., Hancock, K., Parker, S., et al. (2008). Sustaining hope when communicating with terminally ill patients and their families: A systematic review. Psycho-Oncology, 17, 641–659.

    Article  PubMed  Google Scholar 

  • Collado-Hidalgo, A., Bower, J. E., Ganz, P. A., et al. (2006). Inflammatory biomarkers for persistent fatigue in breast cancer survivors. Clinical Cancer Research, 12, 2759–2766.

    Article  PubMed  CAS  Google Scholar 

  • Costanzo, E. S., Lutgendorf, S. K., Sood, A. K., et al. (2005). Psychosocial factors and interleukin-6 among women with advanced ovarian cancer. Cancer, 104, 305–313.

    Article  PubMed  Google Scholar 

  • Cotton, S. P., Levine, E. G., Fitzpatrick, C. M., et al. (1999). Exploring the relationships among spiritual well-being, quality of life, and psychological adjustment in women with breast cancer. Psycho-Oncology, 8, 429–438.

    Article  PubMed  CAS  Google Scholar 

  • Coyne, J. C., Stefanek, M., & Palmer, S. C. (2007). Psychotherapy and survival in cancer: The conflict between hope and evidence. Psychological Bulletin, 133, 367–394.

    Article  PubMed  Google Scholar 

  • Coyne, J. C., & Thombs, B. D. (2008). Was it shown that “Close relationships and emotional processing predict decreased mortality in women with breast cancer?” a critique of Weihs et al. (2008). Psychosomatic Medicine. 70, 737–738; author reply 738–739.

    Google Scholar 

  • Cruess, D. G., Antoni, M. H., McGregor, B. A., et al. (2000). Cognitive-behavioral stress management reduces serum cortisol by enhancing benefit finding among women being treated for early stage breast cancer. Psychosomatic Medicine, 62, 304–308.

    PubMed  CAS  Google Scholar 

  • Curry, L. A., Snyder, C. R., Cook, D. L., et al. (1997). Role of hope in academic and sport achievement. Journal of Personality and Social Psychology, 73, 1257–1267.

    Article  PubMed  CAS  Google Scholar 

  • Cutcliffe, J. R. (1998). Hope, counselling and complicated bereavement reactions. Journal of Advanced Nursing, 28, 754–761.

    Article  PubMed  CAS  Google Scholar 

  • Davis, C. G., Nolen-Hoeksema, S., & Larson, J. (1998). Making sense of loss and benefiting from the experience: Two construals of meaning. Journal of Personality and Social Psychology, 75, 561–574.

    Article  PubMed  CAS  Google Scholar 

  • Delvecchio Good, M. J., Good, B. J., Schaffer, C., et al. (1990). American oncology and the discourse on hope. Culture, Medicine and Psychiatry, 14, 59–79.

    Article  PubMed  CAS  Google Scholar 

  • Diez Roux, A. V., Merkin, S. S., Arnett, D., et al. (2001). Neighborhood of residence and incidence of coronary heart disease. The New England Journal of Medicine, 345, 99–106.

    Article  PubMed  CAS  Google Scholar 

  • Dimeo, F., Schmittel, A., Fietz, T., et al. (2004). Physical performance, depression, immune status and fatigue in patients with hematological malignancies after treatment. Annals of Oncology, 15, 1237–1242.

    Article  PubMed  CAS  Google Scholar 

  • Dufault, K., & Martocchio, B. C. (1985). Symposium on compassionate care and the dying experience. Hope: Its spheres and dimensions. Nursing Clinics of North America, 20, 379–391.

    PubMed  CAS  Google Scholar 

  • Duggleby, W., & Wright, K. (2005). Transforming hope: How elderly palliative patients live with hope. Canadian Journal of Nursing Research, 37, 70–84.

    PubMed  Google Scholar 

  • Edwards, A. G., Hailey, S., & Maxwell, M. (2004). Psychological interventions for women with metastatic breast cancer. Cochrane Database of Systematic Reviews. (2), CD004253.

    Google Scholar 

  • Eisenberg, D. M., Davis, R. B., Ettner, S. L., et al. (1998). Trends in alternative medicine use in the United States, 1990–1997: Results of a follow-up national survey. JAMA, 280, 1569–1575.

    Article  PubMed  CAS  Google Scholar 

  • Elliott, T. R., Witty, T. E., Herrick, S., et al. (1991). Negotiating reality after physical loss: Hope, depression, and disability. Journal of Personality and Social Psychology, 61, 608–613.

    Article  PubMed  CAS  Google Scholar 

  • Epplein, M., Zheng, Y., Zheng, W., et al. (2010). Quality of life after breast cancer diagnosis and survival. Journal of Clinical Oncology, 29, 406–412.

    Article  PubMed  Google Scholar 

  • Ernst, E., & Cassileth, B. R. (1998). The prevalence of complementary/alternative medicine in cancer: A systematic review. Cancer, 83, 777–782.

    Article  PubMed  CAS  Google Scholar 

  • Evans, D. L., McCartney, C. F., Nemeroff, C. B., et al. (1986). Depression in women treated for gynecological cancer: Clinical and neuroendocrine assessment. The American Journal of Psychiatry, 143, 447–452.

    PubMed  CAS  Google Scholar 

  • Evans, W. G., Tulsky, J. A., Back, A. L., et al. (2006). Communication at times of transitions: How to help patients cope with loss and re-define hope. Cancer Journal, 12, 417–424.

    Article  Google Scholar 

  • Falagas, M. E., Zarkadoulia, E. A., Ioannidou, E. N., et al. (2007). The effect of psychosocial factors on breast cancer outcome: A systematic review. Breast Cancer Research, 9, R44.

    Article  PubMed  CAS  Google Scholar 

  • Fawzy, F. I., Fawzy, N. W., Hyun, C. S., et al. (1993). Malignant melanoma. Effects of an early structured psychiatric intervention, coping, and affective state on recurrence and survival 6 years later. Archives of General Psychiatry, 50, 681–689.

    Article  PubMed  CAS  Google Scholar 

  • Fawzy, F. I., Kemeny, M. E., Fawzy, N. W., et al. (1990). A structured psychiatric intervention for cancer patients. II. Changes over time in immunological measures. Archives of General Psychiatry, 47, 729–735.

    Article  PubMed  CAS  Google Scholar 

  • Fehring, R. J., Miller, J. F., & Shaw, C. (1997). Spiritual well-being, religiosity, hope, depression, and other mood states in elderly people coping with cancer. Oncology Nursing Forum, 24, 663–671.

    PubMed  CAS  Google Scholar 

  • Field, M. J., & Cassel, C. K. (1997). Institute of Medicine (U.S.) Committee on Care at the End of Life. Approaching death: Improving care at the end of life. Washington: National Academy Press.

    Google Scholar 

  • Fitzgerald, R. (1979). The sources of hope. Rushcutters Bay: Pergamon Press.

    Google Scholar 

  • Fox, B. H. (1995). Some problems and some solutions in research on psychotherapeutic intervention in cancer. Supportive Care in Cancer, 3, 257–263.

    PubMed  CAS  Google Scholar 

  • Fox, B. H. (1999). Clarification regarding comments about a hypothesis. Psycho-Oncology, 8, 366–367.

    Article  PubMed  CAS  Google Scholar 

  • Fox, B. H., et al. (1989). A hypothesis about Spiegel et al.’s,1989 paper on Psychosocial intervention and breast cancer survival. Psycho-Oncology, 7(361–70), 1998.

    Google Scholar 

  • Frankl, V. E. (1963). Man’s search for meaning; an introduction to logotherapy. Boston: Beacon Press.

    Google Scholar 

  • Friedrichsen, M. J., Strang, P. M., & Carlsson, M. E. (2000). Breaking bad news in the transition from curative to palliative cancer care–patient’s view of the doctor giving the information. Supportive Care in Cancer, 8, 472–478.

    PubMed  CAS  Google Scholar 

  • Geinitz, H., Zimmermann, F. B., Stoll, P., et al. (2001). Fatigue, serum cytokine levels, and blood cell counts during radiotherapy of patients with breast cancer. International Journal of Radiation Oncology, Biology, and Physics, 51, 691–698.

    Article  CAS  Google Scholar 

  • Goodwin, P. J., Leszcz, M., Ennis, M., et al. (2001). The effect of group psychosocial support on survival in metastatic breast cancer. The New England Journal of Medicine, 345, 1719–1726.

    Article  PubMed  CAS  Google Scholar 

  • Green, C. (2011). Disparities in pain management and palliative care. In R. J. Moore (Ed.), Handbook of pain and palliative care: Biobehavioral approaches for the life course. New York: Springer.

    Google Scholar 

  • Greenberg, D. B., Gray, J. L., Mannix, C. M., et al. (1993). Treatment-related fatigue and serum interleukin-1 levels in patients during external beam irradiation for prostate cancer. Journal of Pain and Symptom Management, 8, 196–200.

    Article  PubMed  CAS  Google Scholar 

  • Gum, A., & Snyder, C. R. (2002). Coping with terminal illness: The role of hopeful thinking. Journal of Palliative Medicine, 5, 883–894.

    Article  PubMed  Google Scholar 

  • Hagerty, R. G., Butow, P. N., Ellis, P. A., et al. (2004). Cancer patient preferences for communication of prognosis in the metastatic setting. Journal of Clinical Oncology, 22, 1721–1730.

    Article  PubMed  Google Scholar 

  • Hagerty, R. G., Butow, P. N., Ellis, P. M., et al. (2005a). Communicating prognosis in cancer care: A systematic review of the literature. Annals of Oncology, 16, 1005–1053.

    Article  PubMed  CAS  Google Scholar 

  • Hagerty, R. G., Butow, P. N., Ellis, P. M., et al. (2005b). Communicating with realism and hope: Incurable cancer patients’ views on the disclosure of prognosis. Journal of Clinical Oncology, 23, 1278–1288.

    Article  PubMed  Google Scholar 

  • Helft, P. R. (2006). An intimate collaboration: Prognostic communication with advanced cancer patients. The Journal of Clinical Ethics, 17, 110–121.

    PubMed  Google Scholar 

  • Hersch, J., Juraskova, I., Price, M., et al. (2009). Psychosocial interventions and quality of life in gynaecological cancer patients: A systematic review. Psycho-Oncology, 18, 795–810.

    Article  PubMed  Google Scholar 

  • Herth, K. A. (1989). The relationship between level of hope and level of coping response and other variables in patients with cancer. Oncology Nursing Forum, 16, 67–72.

    PubMed  CAS  Google Scholar 

  • Herth, K. (1990). Fostering hope in terminally-ill people. Journal of Advanced Nursing, 15, 1250–1259.

    Article  PubMed  CAS  Google Scholar 

  • Herth, K. (1992). Abbreviated instrument to measure hope: Development and psychometric evaluation. Journal of Advanced Nursing, 17, 1251–1259.

    Article  PubMed  CAS  Google Scholar 

  • Herth, K. (1995). Engendering hope in the chronically and terminally ill: Nursing interventions. The American Journal of Hospice & Palliative Care, 12, 31–39.

    Article  CAS  Google Scholar 

  • Herth, K. (2000). Enhancing hope in people with a first recurrence of cancer. Journal of Advanced Nursing, 32, 1431–1441.

    Article  PubMed  CAS  Google Scholar 

  • Herth, K. A. (2001). Development and implementation of a Hope Intervention Program. Oncology Nursing Forum, 28, 1009–1016.

    PubMed  CAS  Google Scholar 

  • Hilliard, R. E. (2005). Music therapy in hospice and palliative care: A review of the empirical data. Evidence Based Complementary and Alternative Medicine, 2, 173–178.

    Article  PubMed  Google Scholar 

  • Hinds, P. S., & Martin, J. (1988). Hopefulness and the self-sustaining process in adolescents with cancer. Nursing Research, 37, 336–340.

    Article  PubMed  CAS  Google Scholar 

  • Ho, T. H., Barbera, L., Saskin, R., et al. (2011). Trends in the aggressiveness of end-of-life cancer care in the Universal Health Care System of Ontario, Canada. Journal of Clinical Oncology, 29, 1587–1591.

    Article  PubMed  Google Scholar 

  • Hsu, T. H., Lu, M. S., Tsou, T. S., et al. (2003). The relationship of pain, uncertainty, and hope in Taiwanese lung cancer patients. Journal of Pain and Symptom Management, 26, 835–842.

    Article  PubMed  Google Scholar 

  • Hwang, R., Ku, N., Mao, H., et al. (1996). Hope and related factors of breast cancer women. Nursing Research, 4, 35–45.

    Google Scholar 

  • Initiative NBCCaNCC. (2003). Clinical practice guidelines for the psychosocial care of adults with cancer. Camperdown: National Breast Cancer Centre.

    Google Scholar 

  • Innes, S., & Payne, S. (2009). Advanced cancer patients’ prognostic information preferences: A review. Palliative Medicine, 23, 29–39.

    Article  PubMed  CAS  Google Scholar 

  • Irving, L. M., Snyder, C. R., & Crowson, J. J., Jr. (1998). Hope and coping with cancer by college women. Journal of Personality, 66, 195–214.

    Article  PubMed  CAS  Google Scholar 

  • Izzo, A. A., & Ernst, E. (2001). Interactions between herbal medicines and prescribed drugs: A systematic review. Drugs, 61, 2163–2175.

    Article  PubMed  CAS  Google Scholar 

  • Jackson, W. T., Taylor, R. E., Palmatier, A. D., et al. (1998). Negotiating the reality of visual impairment: Hope, coping and functional ability. Journal of Clinical Psychology in Medical Settings, 5, 173–185.

    Article  Google Scholar 

  • Jehn, C. F., Kuehnhardt, D., Bartholomae, A., et al. (2006). Biomarkers of depression in cancer patients. Cancer, 107, 2723–2729.

    Article  PubMed  CAS  Google Scholar 

  • Kaczorowski, J. M. (1989). Spiritual well-being and anxiety in adults diagnosed with cancer. The Hospice Journal, 5, 105–116.

    Article  PubMed  CAS  Google Scholar 

  • Kaye, A. D., Clarke, R. C., Sabar, R., et al. (2000). Herbal medicines: Current trends in anesthesiology practice–­a hospital survey. Journal of Clinical Anesthesia, 12, 468–471.

    Article  PubMed  CAS  Google Scholar 

  • Kehl, K. A. (2006). Moving toward peace: An analysis of the concept of a good death. The American Journal of Hospice & Palliative Care, 23, 277–286.

    Article  Google Scholar 

  • Kiecolt-Glaser, J. K., Glaser, R., Williger, D., et al. (1985). Psychosocial enhancement of immunocompetence in a geriatric population. Health Psychology, 4, 25–41.

    Article  PubMed  CAS  Google Scholar 

  • Kirk, P., Kirk, I., & Kristjanson, L. J. (2004). What do patients receiving palliative care for cancer and their families want to be told? A Canadian and Australian qualitative study. British Medical Journal, 328, 1343.

    Article  PubMed  Google Scholar 

  • Kissane, D. W. (2007). Letting go of the hope that psychotherapy prolongs cancer survival. Journal of Clinical Oncology, 25, 5689–5690.

    Article  PubMed  Google Scholar 

  • Kissane, D. W., Clarke, D. M., & Street, A. F. (2001). Demoralization syndrome–a relevant psychiatric diagnosis for palliative care. Journal of Palliative Care, 17, 12–21.

    PubMed  CAS  Google Scholar 

  • Kissane, D. W., Grabsch, B., Clarke, D. M., et al. (2007). Supportive-expressive group therapy for women with metastatic breast cancer: Survival and psychosocial outcome from a randomized controlled trial. Psycho-Oncology, 16, 277–286.

    Article  PubMed  Google Scholar 

  • Kissane, D., & Li, Y. (2008). Effects of supportive-expressive group therapy on survival of patients with metastatic breast cancer: A randomized prospective trial. Cancer. 112, 443–444; author reply 444.

    Google Scholar 

  • Kissane, D. W., Love, A., Hatton, A., et al. (2004). Effect of cognitive-existential group therapy on survival in early-stage breast cancer. Journal of Clinical Oncology, 22, 4255–4260.

    Article  PubMed  Google Scholar 

  • Klausner, E. J., Clarkin, J. F., Spielman, L., et al. (1998). Late-life depression and functional disability: The role of goal-focused group psychotherapy. International Journal of Geriatric Psychiatry, 13, 707–716.

    Article  PubMed  CAS  Google Scholar 

  • Knobel, H., Loge, J. H., Nordoy, T., et al. (2000). High level of fatigue in lymphoma patients treated with high dose therapy. Journal of Pain and Symptom Management, 19, 446–456.

    Article  PubMed  CAS  Google Scholar 

  • Ko, R. J. (1998). Adulterants in Asian patent medicines. The New England Journal of Medicine, 339, 847.

    Article  PubMed  CAS  Google Scholar 

  • Koopmeiners, L., Post-White, J., Gutknecht, S., et al. (1997). How healthcare professionals contribute to hope in patients with cancer. Oncology Nursing Forum, 24, 1507–1513.

    PubMed  CAS  Google Scholar 

  • Kornblith, A. B., Mirabeau-Beale, K., Lee, H., et al. (2010). Long-term adjustment of survivors of ovarian cancer treated for advanced-stage disease. Journal of Psychosocial Oncology, 28, 451–469.

    Article  PubMed  Google Scholar 

  • Korner, I. N. (1970). Hope as a method of coping. Journal of Consulting and Clinical Psychology, 34, 134–139.

    Article  PubMed  CAS  Google Scholar 

  • Kushner, H. S. (2003). The Lord is my shepherd: Healing wisdom of the twenty-third Psalm (1st ed.). New York: Alfred A. Knopf.

    Google Scholar 

  • Kutner, J. S., & Smith, M. C. (2011). CAM in chronic pain and palliative care. In R. J. Moore (Ed.), Handbook of pain and palliative care: Biobehavioral approaches for the life course. New York: Springer.

    Google Scholar 

  • Kutner, J. S., Steiner, J. F., Corbett, K. K., et al. (1999). Information needs in terminal illness. Social Science & Medicine, 48, 1341–1352.

    Article  CAS  Google Scholar 

  • Kwon, P. (2002). Hope, defense mechanisms, and adjustment: Implications for false hope and defensive hopelessness. Journal of Personality, 70, 207–231.

    Article  PubMed  Google Scholar 

  • Lamont, E. B., & Christakis, N. A. (2001). Prognostic disclosure to patients with cancer near the end of life. Annals of Internal Medicine, 134, 1096–1105.

    Article  PubMed  CAS  Google Scholar 

  • Lee, E. H. (2001). Fatigue and hope: Relationships to psychosocial adjustment in Korean women with breast cancer. Applied Nursing Research, 14, 87–93.

    Article  PubMed  CAS  Google Scholar 

  • Lee, H., Schmidt, K., & Ernst, E. (2005). Acupuncture for the relief of cancer-related pain–a systematic review. European Journal of Pain, 9, 437–444.

    Article  PubMed  Google Scholar 

  • Ligibel, J. A. (2011). Role of adjuvant and posttreatment exercise programs in breast health. Journal of the National Comprehensive Cancer Network, 9, 251–256.

    PubMed  Google Scholar 

  • Lo, B., Quill, T., & Tulsky, J. (1999). Discussing palliative care with patients. ACP-ASIM End-of-Life Care Consensus Panel. American College of Physicians-American Society of Internal Medicine. Annals of Internal Medicine, 130, 744–749.

    Article  PubMed  CAS  Google Scholar 

  • Lu, W., Matulonis, U. A., Doherty-Gilman, A., et al. (2009). Acupuncture for chemotherapy-induced neutropenia in patients with gynecologic malignancies: A pilot randomized, sham-controlled clinical trial. Journal of Alternative and Complementary Medicine, 15, 745–753.

    Article  Google Scholar 

  • McClain, C. S., Rosenfeld, B., & Breitbart, W. (2003). Effect of spiritual well-being on end-of-life despair in terminally-ill cancer patients. The Lancet, 361, 1603–1607.

    Article  Google Scholar 

  • McGee, R. F. (1984). Hope: A factor influencing crisis resolution. ANS. Advances in Nursing Science, 6, 34–44.

    PubMed  CAS  Google Scholar 

  • McGill, J. S., & Paul, P. B. (1993). Functional status and hope in elderly people with and without cancer. Oncology Nursing Forum, 20, 1207–1213.

    PubMed  CAS  Google Scholar 

  • McGregor, B. A., Antoni, M. H., Boyers, A., et al. (2004). Cognitive-behavioral stress management increases benefit finding and immune function among women with early-stage breast cancer. Journal of Psychosomatic Research, 56, 1–8.

    Article  PubMed  Google Scholar 

  • Meyers, C. A., Albitar, M., & Estey, E. (2005). Cognitive impairment, fatigue, and cytokine levels in patients with acute myelogenous leukemia or myelodysplastic syndrome. Cancer, 104, 788–793.

    Article  PubMed  CAS  Google Scholar 

  • Miller, A. H. (1998). Neuroendocrine and immune system interactions in stress and depression. The Psychiatric Clinics of North America, 21, 443–463.

    Article  PubMed  CAS  Google Scholar 

  • Miller, A. H., Ancoli-Israel, S., Bower, J. E., et al. (2008). Neuroendocrine-immune mechanisms of behavioral comorbidities in patients with cancer. Journal of Clinical Oncology, 26, 971–982.

    Article  PubMed  CAS  Google Scholar 

  • Miller, J. F., & Powers, M. J. (1988). Development of an instrument to measure hope. Nursing Research, 37, 6–10.

    PubMed  CAS  Google Scholar 

  • Mills, P. J., Parker, B., Dimsdale, J. E., et al. (2005). The relationship between fatigue and quality of life and inflammation during anthracycline-based chemotherapy in breast cancer. Biological Psychology, 69, 85–96.

    Article  PubMed  Google Scholar 

  • Miyashita, M., Morita, T., Sato, K., et al. (2008). Good death inventory: A measure for evaluating good death from the bereaved family member’s perspective. Journal of Pain and Symptom Management, 35, 486–498.

    Article  PubMed  Google Scholar 

  • Moadel, A., Morgan, C., Fatone, A., et al. (1999). Seeking meaning and hope: self-reported spiritual and existential needs among an ethnically-diverse cancer patient population. Psycho-Oncology, 8, 378–385.

    Article  PubMed  CAS  Google Scholar 

  • Morant, R., Stiefel, F., Berchtold, W., et al. (1993). Preliminary results of a study assessing asthenia and related psychological and biological phenomena in patients with advanced cancer. Supportive Care in Cancer, 1, 101–107.

    Article  PubMed  CAS  Google Scholar 

  • Moynihan, C., Horwich, A., & Bliss, J. (1999). Counselling is not appropriate for all patients with cancer. British Medical Journal, 318, 128.

    Article  PubMed  CAS  Google Scholar 

  • Musselman, D. L., Miller, A. H., Porter, M. R., et al. (2001). Higher than normal plasma interleukin-6 concentrations in cancer patients with depression: Preliminary findings. The American Journal of Psychiatry, 158, 1252–1257.

    Article  PubMed  CAS  Google Scholar 

  • Nahin, R. L., & Straus, S. E. (2001). Research into complementary and alternative medicine: Problems and potential. British Medical Journal, 322, 161–164.

    Article  PubMed  CAS  Google Scholar 

  • Navo, M. A., Phan, J., Vaughan, C., et al. (2004). An assessment of the utilization of complementary and alternative medication in women with gynecologic or breast malignancies. Journal of Clinical Oncology, 22, 671–677.

    Article  PubMed  Google Scholar 

  • Newell, S., & Sanson-Fisher, R. W. (2000). Australian oncologists’ self-reported knowledge and attitudes about non-traditional therapies used by cancer patients. The Medical Journal of Australia, 172, 110–113.

    PubMed  CAS  Google Scholar 

  • Nuland, S. B. (1994). How we die: Reflections on life’s final chapter (1st ed). New York: A.A. Knopf (Distributed by Random House, Inc.)

    Google Scholar 

  • Pan, C. X., Morrison, R. S., Ness, J., et al. (2000). Complementary and alternative medicine in the management of pain, dyspnea, and nausea and vomiting near the end of life. A systematic review. Journal of Pain and Symptom Management, 20, 374–387.

    Article  PubMed  CAS  Google Scholar 

  • Park, C., & Folkman, S. (1997). Meaning in the context of stress and coping. Review of General Psychology, 1, 115–144.

    Article  Google Scholar 

  • Parker, P. A., Baile, W. F., de Moor, C., et al. (2001). Breaking bad news about cancer: Patients’ preferences for communication. Journal of Clinical Oncology, 19, 2049–2056.

    PubMed  CAS  Google Scholar 

  • Parker, S. M., Clayton, J. M., Hancock, K., et al. (2007). A systematic review of prognostic/end-of-life communication with adults in the advanced stages of a life-limiting illness: Patient/caregiver preferences for the content, style, and timing of information. Journal of Pain and Symptom Management, 34, 81–93.

    Article  PubMed  Google Scholar 

  • Penson, R. T., Castro, C. M., Seiden, M. V., et al. (2001). Complementary, alternative, integrative, or unconventional medicine? The Oncologist, 6, 463–473.

    Article  PubMed  CAS  Google Scholar 

  • Penson, R. T., Gu, F., Harris, S., et al. (2007). Hope. The Oncologist, 12, 1105–1113.

    Article  PubMed  Google Scholar 

  • Pickett, J. P., et al. (eds.) (2000). The American Heritage dictionary of the English language (4th ed). Boston: Houghton Mifflin

    Google Scholar 

  • Pinn, G. (2001). Adverse effects associated with herbal medicine. Australian Family Physician, 30, 1070–1075.

    PubMed  CAS  Google Scholar 

  • Pinquart, M., & Duberstein, P. R. (2009). Associations of social networks with cancer mortality: A meta-analysis. Critical Reviews in Oncology/Hematology, 75, 122–137.

    Article  PubMed  Google Scholar 

  • Ptacek, J. T., & Eberhardt, T. L. (1996). Breaking bad news. A review of the literature. JAMA, 276, 496–502.

    Article  PubMed  CAS  Google Scholar 

  • Pusztai, L., Mendoza, T. R., Reuben, J. M., et al. (2004). Changes in plasma levels of inflammatory cytokines in response to paclitaxel chemotherapy. Cytokine, 25, 94–102.

    Article  PubMed  CAS  Google Scholar 

  • Rainbird, K., Perkins, J., Sanson-Fisher, R., et al. (2009). The needs of patients with advanced, incurable cancer. British Journal of Cancer, 101, 759–764.

    Article  PubMed  CAS  Google Scholar 

  • Rajasekaran, M., Edmonds, P. M., & Higginson, I. L. (2005). Systematic review of hypnotherapy for treating symptoms in terminally ill adult cancer patients. Palliative Medicine, 19, 418–426.

    Article  PubMed  CAS  Google Scholar 

  • Raleigh, E. D. (1992). Sources of hope in chronic illness. Oncology Nursing Forum, 19, 443–448.

    PubMed  CAS  Google Scholar 

  • Rehse, B., & Pukrop, R. (2003). Effects of psychosocial interventions on quality of life in adult cancer patients: Meta analysis of 37 published controlled outcome studies. Patient Education and Counseling, 50, 179–186.

    Article  PubMed  Google Scholar 

  • Relman, A. S., & Angell, M. (2002). Resolved: Psychosocial interventions can improve clinical outcomes in organic disease (con). Psychosomatic Medicine, 64, 558–563.

    Article  PubMed  Google Scholar 

  • Rich, T., Innominato, P. F., Boerner, J., et al. (2005). Elevated serum cytokines correlated with altered behavior, serum cortisol rhythm, and dampened 24-hour rest-activity patterns in patients with metastatic colorectal cancer. Clinical Cancer Research, 11, 1757–1764.

    Article  PubMed  CAS  Google Scholar 

  • Rustoen, T., & Wiklund, I. (2000). Hope in newly diagnosed patients with cancer. Cancer Nursing, 23, 214–219.

    Article  PubMed  CAS  Google Scholar 

  • Rustoen, T., Wiklund, I., Hanestad, B. R., et al. (1998). Nursing intervention to increase hope and quality of life in newly diagnosed cancer patients. Cancer Nursing, 21, 235–245.

    Article  PubMed  CAS  Google Scholar 

  • Sanatani, M., Schreier, G., & Stitt, L. (2008). Level and direction of hope in cancer patients: An exploratory longitudinal study. Supportive Care in Cancer, 16, 493–499.

    Article  PubMed  Google Scholar 

  • Saper, R. B., Kales, S. N., Paquin, J., et al. (2004). Heavy metal content of ayurvedic herbal medicine products. JAMA, 292, 2868–2873.

    Article  PubMed  CAS  Google Scholar 

  • Sapir, R., Catane, R., Kaufman, B., et al. (2000). Cancer patient expectations of and communication with oncologists and oncology nurses: The experience of an integrated oncology and palliative care service. Supportive Care in Cancer, 8, 458–463.

    Article  PubMed  CAS  Google Scholar 

  • Schapira, L., & Steensma, D. (2011). Truth telling and palliative care. In R. J. Moore (Ed.), Handbook of pain and palliative care: Biobehavioral approaches for the life course. New York: Springer.

    Google Scholar 

  • Shafqat, A., Einhorn, L. H., Hanna, N., et al. (2005). Screening studies for fatigue and laboratory correlates in cancer patients undergoing treatment. Annals of Oncology, 16, 1545–1550.

    Article  PubMed  CAS  Google Scholar 

  • Shang, A., Huwiler-Muntener, K., Nartey, L., et al. (2005). Are the clinical effects of homoeopathy placebo effects? Comparative study of placebo-controlled trials of homoeopathy and allopathy. The Lancet, 366, 726–732.

    Article  Google Scholar 

  • Shen, J., Andersen, R., Albert, P. S., et al. (2002). Use of complementary/alternative therapies by women with advanced-stage breast cancer. BMC Complementary and Alternative Medicine, 2, 8.

    Article  PubMed  Google Scholar 

  • Singer, P. A., Martin, D. K., & Kelner, M. (1999). Quality end-of-life care: Patients’ perspectives. JAMA, 281, 163–168.

    Article  PubMed  CAS  Google Scholar 

  • Smedslund, G., & Ringdal, G. I. (2004). Meta-analysis of the effects of psychosocial interventions on survival time in cancer patients. Journal of Psychosomatic Research. 57, 123–131; discussion 133–135.

    Google Scholar 

  • Snyder, C. R. (1994). The psychology of hope: You can get there from here. Free Press: New York.

    Google Scholar 

  • Snyder, C. R. (2000). Handbook of hope: Theory, measures & applications. San Diego: Academic.

    Google Scholar 

  • Snyder, C. R. (2002). Hope theory: Rainbows in the mind. Psychol Inquiry, 13, 249–275.

    Article  Google Scholar 

  • Snyder, C. R., Harris, C., Anderson, J. R., et al. (1991). The will and the ways: Development and validation of an individual-differences measure of hope. Journal of Personality and Social Psychology, 60, 570–585.

    Article  PubMed  CAS  Google Scholar 

  • Snyder, C. R., Hoza, B., Pelham, W. E., et al. (1997). The development and validation of the Children’s Hope Scale. Journal of Pediatric Psychology, 22, 399–421.

    Article  PubMed  CAS  Google Scholar 

  • Sood, A., Sood, R., Bauer, B. A., et al. (2005). Cochrane systematic reviews in acupuncture: Methodological diversity in database searching. Journal of Alternative and Complementary Medicine, 11, 719–722.

    Article  Google Scholar 

  • Spence, J. E., & Olson, M. A. (1997). Quantitative research on therapeutic touch. An integrative review of the literature 1985–1995. Scandinavian Journal of Caring Sciences, 11, 183–190.

    Article  PubMed  CAS  Google Scholar 

  • Spiegel, D., Bloom, J. R., Kraemer, H. C., et al. (1989). Effect of psychosocial treatment on survival of patients with metastatic breast cancer. The Lancet, 2, 888–891.

    Article  CAS  Google Scholar 

  • Spiegel, D., Butler, L. D., Giese-Davis, J., et al. (2007). Effects of supportive-expressive group therapy on survival of patients with metastatic breast cancer: A randomized prospective trial. Cancer, 110, 1130–1138.

    Article  PubMed  Google Scholar 

  • Steinhauser, K. E., Christakis, N. A., Clipp, E. C., et al. (2000). Factors considered important at the end of life by patients, family, physicians, and other care providers. JAMA, 284, 2476–2482.

    Article  PubMed  CAS  Google Scholar 

  • Temel, J. S., Greer, J. A., Muzikansky, A., et al. (2010). Early palliative care for patients with metastatic non-small-cell lung cancer. The New England Journal of Medicine, 363, 733–742.

    Article  PubMed  CAS  Google Scholar 

  • Tennen, H., & Affleck, G. (1999). Finding benefits in adversity. In C. R. Synder (Ed.), Coping: The psychology of what works. New York: Oxford University Press.

    Google Scholar 

  • Unruh, A. M., Versnel, J., & Kerr, N. (2002). Spirituality unplugged: A review of commonalities and contentions, and a resolution. Canadian Journal of Occupational Therapy, 69, 5–19.

    Article  Google Scholar 

  • Vachon, M., Fillion, L., & Achille, M. (2009). A conceptual analysis of spirituality at the end of life. Journal of Palliative Medicine, 12, 53–59.

    Article  PubMed  Google Scholar 

  • Verhoef, M. J., Balneaves, L. G., Boon, H. S., et al. (2005). Reasons for and characteristics associated with complementary and alternative medicine use among adult cancer patients: A systematic review. Integrative Cancer Therapies, 4, 274–286.

    Article  PubMed  Google Scholar 

  • Wachholtz, A., & Makowski, S. (2011). Spiritual dimensions of pain and suffering. In R. J. Moore (Ed.), Handbook of pain and palliative care: Biobehavioral approaches for the life course. New York: Springer.

    Google Scholar 

  • Weight, L. M., Alexander, D., & Jacobs, P. (1991). Strenuous exercise: Analogous to the acute-phase response? Clinical Science (London, England), 81, 677–683.

    CAS  Google Scholar 

  • Weihs, K. L., Enright, T. M., & Simmens, S. J. (2008). Close relationships and emotional processing predict decreased mortality in women with breast cancer: Preliminary evidence. Psychosomatic Medicine, 70, 117–124.

    Article  PubMed  Google Scholar 

  • Wenrich, M. D., Curtis, J. R., Shannon, S. E., et al. (2001). Communicating with dying patients within the spectrum of medical care from terminal diagnosis to death. Archives of Internal Medicine, 161, 868–874.

    Article  PubMed  CAS  Google Scholar 

  • World Health Organization. WHO draft interim guidelines handbook on relief of cancer pain. Report of a WHO Consultation, Milan, 14–16 October, 1982.

    Google Scholar 

  • World Health Organization. (1986). Cancer pain relief. Geneva: WHO.

    Google Scholar 

  • WHO. (2011). Retrieved from http://www.who.int/cancer/palliative/definition/en/ on 10/14/11.

  • Wratten, C., Kilmurray, J., Nash, S., et al. (2004). Fatigue during breast radiotherapy and its relationship to biological factors. International Journal of Radiation Oncology, Biology, and Physics, 59, 160–167.

    Article  Google Scholar 

  • Wright, E. B., Holcombe, C., & Salmon, P. (2004). Doctors’ communication of trust, care, and respect in breast ­cancer: Qualitative study. British Medical Journal, 328, 864.

    Article  PubMed  Google Scholar 

  • Yancey, D., Greger, H. A., & Coburn, P. (1994). Effects of an adult cancer camp on hope, perceived social support, coping, and mood states. Oncology Nursing Forum, 21, 727–733.

    PubMed  CAS  Google Scholar 

  • Zhu, C. B., Blakely, R. D., & Hewlett, W. A. (2006). The proinflammatory cytokines interleukin-1beta and tumor necrosis factor-alpha activate serotonin transporters. Neuropsychopharmacology, 31, 2121–2131.

    PubMed  CAS  Google Scholar 

  • Zhu, C. B., Carneiro, A. M., Dostmann, W. R., et al. (2005). p38 MAPK activation elevates serotonin transport activity via a trafficking-independent, protein phosphatase 2A-dependent process. Journal of Biological Chemistry, 280, 15649–15658.

    Article  PubMed  CAS  Google Scholar 

Download references

Author information

Authors and Affiliations

  1. Massachusetts General Hospital, Harvard Medical School, Boston, MA, USA

    Richard T. Penson MD, MRCP

  2. National Cancer Centre Singapore, Singapore, Singapore

    Lynette Su-Mien Ngo MBBS, MRCP

  3. National University of Singapore, Singapore, Singapore

    Gillianne Lai

Authors
  1. Richard T. Penson MD, MRCP
    View author publications

    You can also search for this author in PubMed Google Scholar

  2. Lynette Su-Mien Ngo MBBS, MRCP
    View author publications

    You can also search for this author in PubMed Google Scholar

  3. Gillianne Lai
    View author publications

    You can also search for this author in PubMed Google Scholar

Corresponding author

Correspondence to Richard T. Penson MD, MRCP .

Editor information

Editors and Affiliations

  1. Department of Health and Human Services, Rockville, MD, USA

    Rhonda J. Moore

Rights and permissions

Reprints and permissions

Copyright information

© 2013 Springer Science+Business Media, LLC

About this chapter

Cite this chapter

Penson, R.T., Ngo, L.SM., Lai, G. (2013). Hope in the Context of Pain and Palliative Care. In: Moore, R.J. (eds) Handbook of Pain and Palliative Care. Springer, New York, NY. https://doi.org/10.1007/978-1-4419-1651-8_23

Download citation

  • DOI: https://doi.org/10.1007/978-1-4419-1651-8_23

  • Published:

  • Publisher Name: Springer, New York, NY

  • Print ISBN: 978-1-4419-1650-1

  • Online ISBN: 978-1-4419-1651-8

  • eBook Packages: MedicineMedicine (R0)

Publish with us

Policies and ethics

Search

Navigation