Advertisement

The Final Phase of Cancer Survivorship: End-of-Life Care

  • Betty Ferrell
  • Carla Munévar
  • Virginia Sun
Chapter

Abstract

In the past decade, significant attention has been given to two seemingly unrelated areas of quality care in oncology – cancer survivorship and end-of-life care. It is of note that the Institute of Medicine (IOM) held consensus meetings and issued major reports in each of these areas [1, 2]. While at first glance the issues of cancer survivorship and end-of-life care may appear as unrelated concerns, these issues are in fact highly related.

Keywords

Cancer Survivorship Palliative Care Family Caregiver Interdisciplinary Team Advance Care Planning 
These keywords were added by machine and not by the authors. This process is experimental and the keywords may be updated as the learning algorithm improves.

References

  1. 1.
    Hewitt M, Greenfield S, Ellen S. From cancer patient to cancer survivors: lost in transition. Washington, DC: The National Academies Press; 2006.Google Scholar
  2. 2.
    Foley K, Gelband H. Improving palliative care for cancer. Washington, DC: National Academy Press; 2001.Google Scholar
  3. 3.
    Petrelli NJ, Winer EP, Brahmer J, Dubey S, Smith S, Thomas C, et al. Clinical cancer advances 2009: major research advances in cancer treatment, prevention, and screening – A report from the American Society of Clinical Oncology. J Clin Oncol. 2009;27(35):6052–69.PubMedCrossRefGoogle Scholar
  4. 4.
    Society AC. Cancer facts & figures 2009. Atlanta: American Cancer Society; 2009.Google Scholar
  5. 5.
    National Consensus Project for Quality Palliative Care. Clinical practice guidelines for quality palliative care. Second edition. 2009. http://www.nationalconsensusproject.org.117–128
  6. 6.
    Clark E, Stovall E, Leigh S, Siu A, Austin D, Rowland J. Imperatives for quality cancer care: access, advocacy, action, and accountability. Silver Springs: National Coalition for Cancer Survivorship (NCCS); 1996.Google Scholar
  7. 7.
    Jacobs LA, Palmer SC, Schwartz LA, DeMichele A, Mao JJ, Carver J, et al. Adult cancer survivorship: evolution, research, and planning care. CA Cancer J Clin. 2009;59(6):391–410.PubMedCrossRefGoogle Scholar
  8. 8.
    LIVESTRONG™. Poll finds nearly half of people living with cancer feel their non-medical needs are unmet by the healthcare system. 2004. http://www.livestrong.org/site/apps/nlnet/content2.aspx?c=khLXK1PxHmF&b=2661081&ct=3756677. Accessed 17 Feb 2010.
  9. 9.
    Jemal A, Siegel R, Ward E, Murray T, Xu J, Thun MJ. Cancer statistics, 2007. CA Cancer J Clin. 2007;57(1):43–66.PubMedCrossRefGoogle Scholar
  10. 10.
    Ng AK, Travis LB. Subsequent malignant neoplasms in cancer survivors. Cancer J. 2008;14(6):429–34.PubMedCrossRefGoogle Scholar
  11. 11.
    Andersen BL, Shapiro CL, Farrar WB, Crespin T, Wells-DiGregorio S. Psychological responses to cancer recurrence. Cancer. 2005;104(7):1540–7.PubMedCentralPubMedCrossRefGoogle Scholar
  12. 12.
    Mahon S. Exploring the psychosocial meaning of recurrent cancer: a descriptive study. Cancer Nurs. 1997;20(3):178–86.PubMedCrossRefGoogle Scholar
  13. 13.
    Lazarus RS, Folkman S. Stress, appraisal, and coping. New York: Springer; 1984.Google Scholar
  14. 14.
    Mahon S, Casperson D. Psychosocial concerns associated with recurrent cancer. Cancer Pract. 1995;3(6):372–80.PubMedGoogle Scholar
  15. 15.
    Kenne Sarenmalm E, Thoren-Jonsson A-L, Gaston-Johansson F, Ohlen J. Making sense of living under the shadow of death: adjusting to a recurrent breast cancer illness. Qual Health Res. 2009;19(8):1116–30.PubMedCrossRefGoogle Scholar
  16. 16.
    Ferrell B. The quality of lives: 1, 525 voices of cancer. Oncol Nurs Forum. 1996;23(6):909–16.PubMedGoogle Scholar
  17. 17.
    Padilla G, Mishel M, Grant M. Uncertainty and quality of life. Qual Life Res. 1992;1(3):155–65.PubMedCrossRefGoogle Scholar
  18. 18.
    Mishel M, Padilla G, Grant M, Sorenson D. Uncertainty in illness theory: a replication of the mediating effects of mastery and coping. Nurs Res. 1991;40(4):236–40.PubMedCrossRefGoogle Scholar
  19. 19.
    Wenzel LB, Donnelly JP, Fowler JM, Habbal R, Taylor TH, Aziz N, et al. Resilience, reflection, and residual stress in ovarian cancer survivorship: a gynecologic oncology group study. Psycho Oncol. 2002;11(2):142–53.CrossRefGoogle Scholar
  20. 20.
    Ekwall E, Ternestedt B, Sorbe B. Recurrence of ovarian cancer-living in limbo. Cancer Nurs. 2007;30(4):270–7.PubMedCrossRefGoogle Scholar
  21. 21.
    Katie B, Beaver K, Kitchener H, O’Neill J, Farrell C. Women’s experiences of information, psychological distress and worry after treatment for gynaecological cancer. Patient Educ Couns. 2005;56(2):225–32.CrossRefGoogle Scholar
  22. 22.
    Mahon S, Cella D, Donovan M. Psychosocial adjustment to recurrent cancer. Oncol Nurs Forum. 1990;17(3):47–52.PubMedGoogle Scholar
  23. 23.
    Munkres A, Oberst M, Hughes S. Appraisal of illness, symptom distress, self-care burden, and mood states in patients receiving chemotherapy for initial and recurrent cancer. Oncol Nurs Forum. 1992;19(8):1201–9.PubMedGoogle Scholar
  24. 24.
    Weisman AD, Worden JW. The emotional impact of recurrent cancer. J Psychosoc Oncol. 1986;3(4):5–16.CrossRefGoogle Scholar
  25. 25.
    Karen B, Lorraine R. Psychosocial impact of recurrent cancer. Eur J Oncol Nurs Off J Eur Oncol Nurs Soc. 2000;4(1):29–38.CrossRefGoogle Scholar
  26. 26.
    Brennan J. Adjustment to cancer – coping or personal transition? Psychooncology. 2001;10(1):1–18.PubMedCrossRefGoogle Scholar
  27. 27.
    Meleis A, Sawyer L, Im E, Messias DH, Schumacher K. Experiencing transitions: an emerging middle-range theory. Adv Nurs Sci. 2000;23(1):12–28.CrossRefGoogle Scholar
  28. 28.
    Bridges W. Managing transitions: making the most of change. 2nd ed. London: Nicholas Brealy; 2006.Google Scholar
  29. 29.
    Schumacher K. Transitions: a central concept in nursing. Image J Nurs Scholarsh. 1994;26(2):119–27.CrossRefGoogle Scholar
  30. 30.
    Goodman J, Schlossberg N, Anderson L. Counseling adults in transition: linking practice with theory. 3rd ed. New York: Springer; 2006.Google Scholar
  31. 31.
    Lunney JR, O’Mara A. The end of the survival journey. Semin Oncol Nurs. 2001;17(4):274–8.PubMedCrossRefGoogle Scholar
  32. 32.
    Rowland JH. What are cancer survivors telling us? Cancer J. 2008;14(6):361–8.PubMedCrossRefGoogle Scholar
  33. 33.
    Feuerstein M. Cancer survivorship: research, practice, and policy. In: Feuerstein M, editor. Handbook of cancer survivorship. New York: Springer; 2007. p. 483–94.CrossRefGoogle Scholar
  34. 34.
    Building a bridge of continued care for cancer survivors. J Oncol Pract. 2006;2(2):77–82.Google Scholar
  35. 35.
    Patlak M, Levit L. Ensuring quality cancer care through the oncology workforce: sustaining care in the 21st century. Workshop summary. Washington, DC: National Academies Press; 2009.Google Scholar
  36. 36.
    Given BA, Given CW, Kozachik S. Family support in advanced cancer. Cancer J Clin. 2001;51(4):213–31.CrossRefGoogle Scholar
  37. 37.
    Given B, Wyatt G, Given C, Sherwood P, Gift A, De Voss D, et al. Burden and depression among caregivers of patients with cancer at the end of life. Oncol Nurs Forum. 2004;31(6):1105–17.PubMedCentralPubMedCrossRefGoogle Scholar
  38. 38.
    Lewis F. The relational model of functioning with cancer: a family-focused framework for nursing practice. In: Miaskowski C, Buchesel P, editors. Cancer across health care sites. St Louis: Mosby; 1999. p. 319–31.Google Scholar
  39. 39.
    Marcus Lewis F. Family-focused oncology nursing research. Oncol Nurs Forum. 2004;31(2):288–92.CrossRefGoogle Scholar
  40. 40.
    Northouse L, Kershaw T, Mood D, Schafenacker A. Effects of a family intervention on the quality of life of women with recurrent breast cancer and their family caregivers. Psychooncology. 2005;14:478–91.PubMedCrossRefGoogle Scholar
  41. 41.
    Northouse LL, Walker J, Schafenacker A, Mood D, Mellon S, Galvin E, et al. A family-based program of care for women with recurrent breast cancer and their family members. Oncol Nurs Forum. 2002;29(10):1411–9.PubMedCrossRefGoogle Scholar
  42. 42.
    Zhang AY, Siminoff LA. The role of the family in treatment decision making by patients with cancer. Oncol Nurs Forum. 2003;30(6):1022–8.PubMedCrossRefGoogle Scholar
  43. 43.
    Eilers J. Family issues and perspectives. In: Whedon M, Wujik D, editors. Blood and marrow stem cell transplantation: principles, practice, and nursing insights. 2nd ed. Sudburg: Jones and Bartlett; 1997. p. 442–56.Google Scholar
  44. 44.
    Given BA, Given CW, Kozachik S. Family support in advanced cancer. CA Cancer J Clin. 2001;51(4):213–31.PubMedCrossRefGoogle Scholar
  45. 45.
    Puchalski C, Ferrell B. Making health care whole: integrating spirituality into patient care. West Conshohocken: Templeton Press; 2010.Google Scholar
  46. 46.
    Dudgeon D. When does palliative care begin? A needs assessment of cancer patients with recurrent disease. J Palliat Care. 1995;11(1):5–9.PubMedGoogle Scholar
  47. 47.
    Silberfarb P. Psychosocial aspects of neoplastic disease: I. Functional status of breast cancer patients during different treatment regimens. Am J Psychiatry. 1980;137(4):450–5.PubMedGoogle Scholar
  48. 48.
    Ferrell B, Coyle N. Oxford textbook of palliative nursing. 3rd ed. New York: Oxford University Press; 2010.CrossRefGoogle Scholar
  49. 49.
    NCP. Clinical practice guidelines for quality palliative care. 2004. http://www.­nationalconsensusproject.org.
  50. 50.
    Ferrell B (Principle Investigator). Palliative care for quality of life and symptom concerns in lung cancer. P01 Funded by National Cancer Institute #P01 CA136396.Google Scholar
  51. 51.
    Kristjanson L, Coyle N. Qualitative research. In: Doyle D, Hanks G, Cherny NI, Calman K, editors. Oxford textbook of palliative medicine. 3rd ed. Oxford: Oxford University Press; 2004. p. 138–44.Google Scholar
  52. 52.
    Kuebler KK, Lynn J, Von Rohen J. Perspectives in palliative care. Semin Oncol Nurs. 2005;21(1):2–10.PubMedCrossRefGoogle Scholar
  53. 53.
    David C, Betty F, Jane K, Levetown M, Merriman MP, Ramey M, et al. NHPCO Task Force Statement on the ethics of hospice participation in research. J Palliat Med. 2001;4(4):441–9.CrossRefGoogle Scholar
  54. 54.
    Scanlon C. Public policy and end-of-life care: the nurse’s role. In: Ferrell B, Coyle N, editors. Textbook of palliative nursing. 3rd ed. New York: Oxford University Press; 2010.Google Scholar
  55. 55.
    Schuster L, Kabcenell A. Improving care for the end of life: a source book for health care managers and clinicians. New York: Oxford University Press; 2000.Google Scholar
  56. 56.
    Field M, Casse C. Approaching death: improving care at the end of life. Washington, DC: National Academy Press; 1997.Google Scholar
  57. 57.
    Jennings B, Ryndes T, D’Onofrio C, Baily MA. Access to hospice care. Expanding boundaries, overcoming barriers. The Hastings Center report. 2003;Suppl:S3-7, S9-713, S715-71321 passim.Google Scholar
  58. 58.
    America’s Care of Serious Illness: A State-by-State Report Card on Access to Palliative Care in our Nation’s Hospital: Center to Advance Palliative Care and National Palliative Care Research Center; 2008.Google Scholar
  59. 59.
    Cecilia S, Amanda M, Tokuo Y, Andreas U. Palliative care: The World Health Organization’s global perspective. J Pain Symptom Manage. 2002;24(2):91–6.CrossRefGoogle Scholar
  60. 60.
    National Concensus Project. Clinical practice guidelines for quality palliative care. 2004. http://www.nationalconsensusproject.org.
  61. 61.
    Duncan W. Caring or curing: conflicts of choice. J R Soc Med. 1985;78(7):526–35.PubMedCentralPubMedGoogle Scholar

Copyright information

© Springer Science+Business Media, LLC 2011

Authors and Affiliations

  1. 1.Division of Nursing Research and Education, Department of Population SciencesCity of HopeDuarteUSA

Personalised recommendations