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Assessment Tools in Pediatric Chronic Pain: Reliability and Validity

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Handbook of Pediatric Chronic Pain

Abstract

Pediatric chronic pain is a very individual and diverse human experience (Graumlich et al. 2001; Malaty et al. 2005; Schechter et al. 2003). Chronic pain has a substantial and broad adverse impact on the daily lives of children and adolescents, resulting in significantly worse physical functioning, psychological functioning, social functioning, as well as lower satisfaction with life and decreased self-perceived health status (Merlijn et al. 2006; Palermo 2000). These detrimental effects of pediatric chronic pain frequently also adversely impact parents and other family members (Eccleston et al. 2004; Jordan 2005; Palermo 2000).

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References

  • American Medical Association (2007). Assessing & treating persistent nonmalignant pain: An overview. Retrieved December 25, 2007, from http://www.ama-cmeonline.com/pain_mgmt/module07/index.htm

  • Anthony, K. K., & Schanberg, L. E. (2007). Assessment and management of pain syndromes and arthritis pain in children and adolescents. Rheumatic Diseases Clinics of North America, 33(3), 625–660.

    PubMed  Google Scholar 

  • Atherly, A. (2006). Condition-specific measures. In R. L. Kane (Ed.), Understanding health care outcomes research (2nd ed., pp. 165–183). Boston: Jones and Bartlett.

    Google Scholar 

  • Backonja, M. M., & Krause, S. J. (2003). Neuropathic pain questionnaire – short form. Clinical Journal of Pain, 19(5), 315–316.

    PubMed  Google Scholar 

  • Bandell-Hoekstra, I. E., Abu-Saad, H. H., Passchier, J., & Knipschild, P. (2000). Recurrent headache, coping, and quality of life in children: A review. Headache, 40(5), 357–370.

    PubMed  CAS  Google Scholar 

  • Bandell-Hoekstra, I. E., Abu-Saad, H. H., Passchier, J., Frederiks, C. M., Feron, F. J., & Knipschild, P. (2001). Prevalence and characteristics of headache in Dutch schoolchildren. European Journal of Pain, 5(2), 145–153.

    PubMed  CAS  Google Scholar 

  • Bayliss, M. S., & Batenhorst, A. S. (2002). The HIT-6: A user’s guide. Lincoln: QualityMetric.

    Google Scholar 

  • Bennett, M. I. (2001). The LANSS Pain Scale: The Leeds assessment of neuropathic symptoms and signs. Pain, 92(1–2), 147–157.

    PubMed  CAS  Google Scholar 

  • Bennett, S. M., Huntsman, E., & Lilley, C. M. (2000). Parent perceptions of the impact of chronic pain in children and adolescents. Children’s Health Care, 29(3), 174–159.

    Google Scholar 

  • Bennett, M. I., Smith, B. H., Torrance, N., & Potter, J. (2005). The S-LANSS score for identifying pain of predominantly neuropathic origin: Validation for use in clinical and postal research. Journal of Pain, 6(3), 149–158.

    PubMed  Google Scholar 

  • Benzon, H. T. (2005). The neuropathic pain scales. Regional Anesthesia and Pain Medicine, 30(5), 417–421.

    PubMed  Google Scholar 

  • Beyer, J. E., & Aradine, C. R. (1986). Content validity of an instrument to measure young children’s perceptions of the intensity of their pain. Journal of Pediatric Nursing, 1(6), 386–395.

    PubMed  CAS  Google Scholar 

  • Beyer, J. E., Denyes, M. J., & Villarruel, A. M. (1992). The creation, validation, and continuing development of the Oucher: A measure of pain intensity in children. Journal of Pediatric Nursing, 7(5), 335–346.

    PubMed  CAS  Google Scholar 

  • Bieri, D., Reeve, R. A., Champion, G. D., Addicoat, L., & Ziegler, J. B. (1990). The Faces Pain Scale for the self-assessment of the severity of pain experienced by children: Development, initial validation, and preliminary investigation for ratio scale properties. Pain, 41(2), 139–150.

    PubMed  CAS  Google Scholar 

  • Birklein, F., Sittl, R., Spitzer, A., Claus, D., Neundorfer, B., & Handwerker, H. O. (1997). Sudomotor function in sympathetic reflex dystrophy. Pain, 69(1–2), 49–54.

    PubMed  CAS  Google Scholar 

  • Birklein, F., Riedl, B., Claus, D., & Neundorfer, B. (1998). Pattern of autonomic dysfunction in time course of complex regional pain syndrome. Clinical Autonomic Research, 8(2), 79–85.

    PubMed  CAS  Google Scholar 

  • Birklein, F., Riedl, B., Sieweke, N., Weber, M., & Neundorfer, B. (2000). Neurological findings in complex regional pain syndromes–analysis of 145 cases. Acta Neurologica Scandinavica, 101(4), 262–269.

    PubMed  CAS  Google Scholar 

  • Bjorner, J. B., Kosinski, M., & Ware, J. E., Jr. (2003a). Calibration of an item pool for assessing the burden of headaches: An application of item response theory to the headache impact test (HIT). Quality of Life Research, 12(8), 913–933.

    PubMed  Google Scholar 

  • Bjorner, J. B., Kosinski, M., & Ware, J. E., Jr. (2003b). The feasibility of applying item response theory to measures of migraine impact: A re-analysis of three clinical studies. Quality of Life Research, 12(8), 887–902.

    PubMed  Google Scholar 

  • Bjorner, J. B., Kosinski, M., & Ware, J. E., Jr. (2003c). Using item response theory to calibrate the Headache Impact Test (HIT) to the metric of traditional headache scales. Quality of Life Research, 12(8), 981–1002.

    PubMed  Google Scholar 

  • Bouhassira, D., Attal, N., Fermanian, J., Alchaar, H., Gautron, M., Masquelier, E., Rostaing, S., Lanteri-Minet, M., Collin, E., Grisart, J., & Boureau, F. (2004). Development and validation of the Neuropathic Pain Symptom Inventory. Pain, 108(3), 248–257.

    PubMed  Google Scholar 

  • Bouhassira, D., Attal, N., Alchaar, H., Boureau, F., Brochet, B., Bruxelle, J., Cunin, G., Fermanian, J., Ginies, P., Grun-Overdyking, A., Jafari-Schluep, H., Lanteri-Minet, M., Laurent, B., Mick, G., Serrie, A., Valade, D., & Vicaut, E. (2005). Comparison of pain syndromes associated with nervous or somatic lesions and development of a new neuropathic pain diagnostic questionnaire (DN4). Pain, 114(1–2), 29–36.

    PubMed  Google Scholar 

  • Brace, M. J., Scott Smith, M., McCauley, E., & Sherry, D. D. (2000). Family reinforcement of illness behavior: A comparison of adolescents with chronic fatigue syndrome, juvenile arthritis, and healthy controls. Journal of Developmental and Behavioral Pediatrics, 21(5), 332–339.

    PubMed  CAS  Google Scholar 

  • Bursch, B., Walco, G. A., & Zeltzer, L. (1998). Clinical assessment and management of chronic pain and pain-associated disability syndrome. Journal of Developmental and Behavioral Pediatrics, 19(1), 45–53.

    PubMed  CAS  Google Scholar 

  • Bursch, B., Tsao, J. C., Meldrum, M., & Zeltzer, L. K. (2006). Preliminary validation of a self-efficacy scale for child functioning despite chronic pain (child and parent versions). Pain, 125(1–2), 35–42.

    PubMed  Google Scholar 

  • Carr, A. J., Gibson, B., & Robinson, P. G. (2001). Measuring quality of life: is quality of life determined by expectations or experience? British Medical Journal (Clinical Research Ed.), 322(7296), 1240–1243.

    CAS  Google Scholar 

  • Chambers, C. T. (2003). The role of family factors in pediatric pain. In P. J. McGrath & G. A. Finley (Eds.), Pediatric pain: Biological and social context (pp. 99–103). Seattle: IASP Press.

    Google Scholar 

  • Chambers, C. T., & Craig, K. D. (1998). An intrusive impact of anchors in children’s faces pain scales. Pain, 78(1), 27–37.

    PubMed  CAS  Google Scholar 

  • Chambers, C. T., Craig, K. D., & Bennett, S. M. (2002). The impact of maternal behavior on children’s pain experiences: An experimental analysis. Journal of Pediatric Psychology, 27(3), 293–301.

    PubMed  Google Scholar 

  • Chelimsky, T. C., Low, P. A., Naessens, J. M., Wilson, P. R., Amadio, P. C., & O’Brien, P. C. (1995). Value of autonomic testing in reflex sympathetic dystrophy. Mayo Clinic Proceedings, 70(11), 1029–1040.

    PubMed  CAS  Google Scholar 

  • Chemali, K. R., Gorodeski, R., & Chelimsky, T. C. (2001). Alpha-adrenergic supersensitivity of the sudomotor nerve in complex regional pain syndrome. Annals of Neurology, 49(4), 453–459.

    PubMed  CAS  Google Scholar 

  • Chong, P. S., & Cros, D. P. (2004). Technology literature review: Quantitative sensory testing. Muscle and Nerve, 29(5), 734–747.

    PubMed  Google Scholar 

  • Claar, R. L., & Walker, L. S. (2006). Functional assessment of pediatric pain patients: Psychometric properties of the functional disability inventory. Pain, 121(1–2), 77–84.

    PubMed  Google Scholar 

  • Claar, R. L., Walker, L. S., & Smith, C. A. (1999). Functional disability in adolescents and young adults with symptoms of irritable bowel syndrome: The role of academic, social, and athletic competence. Journal of Pediatric Psychology, 24(3), 271–280.

    PubMed  CAS  Google Scholar 

  • Clarke, S. A., & Eiser, C. (2004). The measurement of health-related quality of life (QOL) in paediatric clinical trials: A systematic review. Health and Quality of Life Outcomes, 2, 66.

    PubMed  Google Scholar 

  • Cohen, L. L., La Greca, A. M., Blount, R. L., Kazak, A. E., Holmbeck, G. N., & Lemanek, K. L. (2006). Introduction to special issue: Evidence-based assessment in pediatric psychology. Journal of Pediatric Psychology, 33(9), 911–915.

    PubMed  Google Scholar 

  • Cohen, L. L., Lemanek, K., Blount, R. L., Dahlquist, L. M., Lim, C. S., Palermo, T. M., McKenna, K. D., & Weiss, K. E. (2008). Evidence-based assessment of pediatric pain. Journal of Pediatric Psychology, 33, 939–955.

    PubMed  Google Scholar 

  • Cremeens, J., Eiser, C., & Blades, M. (2006). Characteristics of health-related self-report measures for children aged three to eight years: A review of the literature. Quality of Life Research, 15(4), 739–754.

    PubMed  Google Scholar 

  • Crushell, E., Rowland, M., Doherty, M., Gormally, S., Harty, S., Bourke, B., & Drumm, B. (2003). Importance of parental conceptual model of illness in severe ­recurrent abdominal pain. Pediatrics, 112(6 Pt 1), 1368–1372.

    PubMed  Google Scholar 

  • Davis, E., Waters, E., Mackinnon, A., Reddihough, D., Graham, H. K., Mehmet-Radji, O., & Boyd, R. (2006). Paediatric quality of life instruments: A review of the impact of the conceptual framework on outcomes. Developmental Medicine and Child Neurology, 48(4), 311–318.

    PubMed  Google Scholar 

  • De Civita, M., Regier, D., Alamgir, A. H., Anis, A. H., Fitzgerald, M. J., & Marra, C. A. (2005). Evaluating health-related quality-of-life studies in paediatric populations: Some conceptual, methodological and developmental considerations and recent applications. Pharmacoeconomics, 23(7), 659–685.

    PubMed  Google Scholar 

  • Drotar, D. (2004a). Measuring child health: Scientific questions, challenges, and recommendations. Ambulatory Pediatrics, 4(4 Suppl), 353–357.

    PubMed  Google Scholar 

  • Drotar, D. (2004b). Validating measures of pediatric health status, functional status, and health-related quality of life: Key methodological challenges and strategies. Ambulatory Pediatrics, 4(4 Suppl), 358–364.

    PubMed  Google Scholar 

  • Eccleston, C., Morley, S., Williams, A., Yorke, L., & Mastroyannopoulou, K. (2002). Systematic review of randomised controlled trials of psychological therapy for chronic pain in children and adolescents, with a subset meta-analysis of pain relief. Pain, 99(1–2), 157–165.

    PubMed  Google Scholar 

  • Eccleston, C., Crombez, G., Scotford, A., Clinch, J., & Connell, H. (2004). Adolescent chronic pain: Patterns and predictors of emotional distress in adolescents with chronic pain and their parents. Pain, 108(3), 221–229.

    PubMed  Google Scholar 

  • Eiser, C., & Morse, R. (2001a). Can parents rate their child’s health-related quality of life? Results of a systematic review. Quality of Life Research, 10(4), 347–357.

    PubMed  CAS  Google Scholar 

  • Eiser, C., & Morse, R. (2001b). The measurement of quality of life in children: Past and future perspectives. Journal of Developmental and Behavioral Pediatrics, 22(4), 248–256.

    PubMed  CAS  Google Scholar 

  • Eiser, C., & Morse, R. (2001c). Quality-of-life measures in chronic diseases of childhood. Health Technology Assessment, 5(4), 1–157.

    PubMed  CAS  Google Scholar 

  • Eiser, C., Mohay, H., & Morse, R. (2000). The measurement of quality of life in young children. Child: Care, Health and Development, 26(5), 401–414.

    CAS  Google Scholar 

  • Fayers, P. M., & Machin, D. (2000). Quality of life: Assessment, analysis, and interpretation. West Essex: Wiley.

    Google Scholar 

  • Fayers, P. M., & Machin, D. (2007). Quality of life: Assessment, analysis, and interpretation of patient-reported outcomes. Hoboken: Wiley.

    Google Scholar 

  • Fitzpatrick, R., Davey, C., Buxton, M. J., & Jones, D. R. (1998). Evaluating patient-based outcome measures for use in clinical trials. Health Technology Assessment, 2(14), 1–74. i–iv.

    PubMed  CAS  Google Scholar 

  • Forrest, C. B. (2004). Outcomes research on children, adolescents, and their families: Directions for future inquiry. Medical Care, 42(4 Suppl), 19–23. III.

    Google Scholar 

  • Forrest, C. B., Shipman, S. A., Dougherty, D., & Miller, M. R. (2003). Outcomes research in pediatric settings: Recent trends and future directions. Pediatrics, 111(1), 171–178.

    PubMed  Google Scholar 

  • Forrest, C. B., Riley, A. W., Vivier, P. M., Gordon, N. P., & Starfield, B. (2004). Predictors of children’s healthcare use: The value of child versus parental perspectives on healthcare needs. Medical Care, 42(3), 232–238.

    PubMed  Google Scholar 

  • Frare, M., Axia, G., & Battistella, P. A. (2002). Quality of life, coping strategies, and family routines in children with headache. Headache, 42(10), 953–962.

    PubMed  Google Scholar 

  • Freeman, R., Chase, K. P., & Risk, M. R. (2003). Quantitative sensory testing cannot differentiate simulated sensory loss from sensory neuropathy. Neurology, 60(3), 465–470.

    PubMed  Google Scholar 

  • Frytak, J. R., & Kane, R. L. (2006). Measurement. In R. L. Kane (Ed.), Understanding health care outcomes research (2nd ed., pp. 83–120). Boston: Jones and Bartlett.

    Google Scholar 

  • Gaffney, A., McGrath, P. A., & Dick, B. (2003). Measuring pain in children: Developmental and instrument issues. In N. L. Schechter, C. B. Berde, & M. Yaster (Eds.), Pain in infants, children, and adolescents (2nd ed., pp. 128–141). Philadelphia: Lippincott Williams & Wilkins.

    Google Scholar 

  • Galer, B. S., & Jensen, M. P. (1997). Development and preliminary validation of a pain measure specific to neuropathic pain: The Neuropathic Pain Scale. Neurology, 48(2), 332–338.

    PubMed  CAS  Google Scholar 

  • Gauntlett-Gilbert, J., & Eccleston, C. (2007). Disability in adolescents with chronic pain: Patterns and predictors across different domains of functioning. Pain, 131(1–2), 132–141.

    PubMed  Google Scholar 

  • Grabow, T. S., Christo, P. J., & Raja, S. N. (2004). Complex regional pain syndrome: Diagnostic controversies, psychological dysfunction, and emerging concepts. Advances in Psychosomatic Medicine, 25, 89–101.

    PubMed  Google Scholar 

  • Gragg, R. A., Rapoff, M. A., Danovsky, M. B., Lindsley, C. B., Varni, J. W., Waldron, S. A., & Bernstein, B. H. (1996). Assessing chronic musculoskeletal pain associated with rheumatic disease: Further validation of the pediatric pain questionnaire. Journal of Pediatric Psychology, 21(2), 237–250.

    PubMed  CAS  Google Scholar 

  • Graumlich, S. E., Powers, S. W., Byars, K. C., Schwarber, L. A., Mitchell, M. J., & Kalinyak, K. A. (2001). Multidimensional assessment of pain in pediatric sickle cell disease. Journal of Pediatric Psychology, 26(4), 203–214.

    PubMed  CAS  Google Scholar 

  • Guyatt, G. H., Deyo, R. A., Charlson, M., Levine, M. N., & Mitchell, A. (1989). Responsiveness and validity in health status measurement: A clarification. Journal of Clinical Epidemiology, 42(5), 403–408.

    PubMed  CAS  Google Scholar 

  • Guyatt, G. H., Feeny, D. H., & Patrick, D. L. (1993). Measuring health-related quality of life. Annals of Internal Medicine, 118(8), 622–629.

    PubMed  CAS  Google Scholar 

  • Hainsworth, K. R., Davies, W. H., Khan, K. A., & Weisman, S. J. (2007). Development and preliminary validation of the child activity limitations questionnaire: Flexible and efficient assessment of pain-related functional disability. Journal of Pain, 8(9), 746–752.

    PubMed  Google Scholar 

  • Hays, R. D. (2005). Generic versus disease-targeted instruments. In P. Fayers & R. Hays (Eds.), Assessing quality of life in clinical trials (2nd ed., pp. 3–8). New York: Oxford University Press.

    Google Scholar 

  • Hicks, C. L., von Baeyer, C. L., Spafford, P. A., van Korlaar, I., & Goodenough, B. (2001). The Faces Pain Scale-Revised: Toward a common metric in pediatric pain measurement. Pain, 93(2), 173–183.

    PubMed  CAS  Google Scholar 

  • Hilz, M. J., & Dutsch, M. (2006). Quantitative studies of autonomic function. Muscle and Nerve, 33(1), 6–20.

    PubMed  Google Scholar 

  • Horowitz, S. H. (2007). The diagnostic workup of patients with neuropathic pain. Medical Clinics of North America, 91(1), 21–30.

    PubMed  Google Scholar 

  • Hunfeld, J. A., Passchier, J., Perquin, C. W., Hazebroek-Kampschreur, A. A., van Suijlekom-Smit, L. W., & van der Wouden, J. C. (2001a). Quality of life in adolescents with chronic pain in the head or at other locations. Cephalalgia, 21(3), 201–206.

    PubMed  CAS  Google Scholar 

  • Hunfeld, J. A., Perquin, C. W., Duivenvoorden, H. J., Hazebroek-Kampschreur, A. A., Passchier, J., van Suijlekom-Smit, L. W., & van der Wouden, J. C. (2001b). Chronic pain and its impact on quality of life in adolescents and their families. Journal of Pediatric Psychology, 26(3), 145–153.

    PubMed  CAS  Google Scholar 

  • Hunfeld, J. A., Perquin, C. W., Bertina, W., Hazebroek-Kampschreur, A. J. M., van Suijlekom-Smit, L. W. A., Koes, B. W., van der Wouden, J. C., & Passchier, J. (2002). Stability of pain parameters and pain-related quality of life in adolescents with persistent pain: A three-year follow-up. The Clinical Journal of Pain, 18(2), 99–106.

    PubMed  Google Scholar 

  • Jellinek, M. S., Murphy, J. M., & Burns, B. J. (1986). Brief psychosocial screening in outpatient pediatric practice. Journal of Pediatrics, 109(2), 371–378.

    PubMed  CAS  Google Scholar 

  • Jensen, M. P., Dworkin, R. H., Gammaitoni, A. R., Olaleye, D. O., Oleka, N., & Galer, B. S. (2005). Assessment of pain quality in chronic neuropathic and nociceptive pain clinical trials with the Neuropathic Pain Scale. Journal of Pain, 6(2), 98–106.

    PubMed  Google Scholar 

  • Jensen, M. P., Friedman, M., Bonzo, D., & Richards, P. (2006). The validity of the neuropathic pain scale for assessing diabetic neuropathic pain in a clinical trial. Clinical Journal of Pain, 22(1), 97–103.

    PubMed  Google Scholar 

  • Johnson, B. H., Jeppson, E. S., & Redburn, L. (1992). Caring for children and families: Guidelines for hospitals. Bethesda: Association for the Care of Children’s Health.

    Google Scholar 

  • Jordan, A. (2005). The impact of pediatric chronic pain on the family. Pediatric pain letter: Commentaries on pain in infants, children, and adolescents. Retrieved December 17, 2006, from http://pediatric-pain.ca/ppl/issues/v7n1_2005/v7n1_jordan.pdf

  • Kashikar-Zuck, S., Goldschneider, K. R., Powers, S. W., Vaught, M. H., & Hershey, A. D. (2001). Depression and functional disability in chronic pediatric pain. Clinical Journal of Pain, 17(4), 341–349.

    PubMed  CAS  Google Scholar 

  • Kashikar-Zuck, S., Vaught, M. H., Goldschneider, K. R., Graham, T. B., & Miller, J. C. (2002). Depression, ­coping, and functional disability in juvenile primary fibromyalgia syndrome. Journal of Pain, 3(5), 412–419.

    PubMed  Google Scholar 

  • Kawata, A. K., Coeytaux, R. R., Devellis, R. F., Finkel, A. G., Mann, J. D., & Kahn, K. (2005). Psychometric properties of the HIT-6 among patients in a headache-specialty practice. Headache, 45(6), 638–643.

    PubMed  Google Scholar 

  • Kemler, M. A., Reulen, J. P., van Kleef, M., Barendse, G. A., van den Wildenberg, F. A., & Spaans, F. (2000). Thermal thresholds in complex regional pain syndrome type I: Sensitivity and repeatability of the methods of limits and levels. Clinical Neurophysiology, 111(9), 1561–1568.

    PubMed  CAS  Google Scholar 

  • Konen, A. (2000). Measurement of nerve dysfunction in neuropathic pain. Current Review of Pain, 4(5), 388–394.

    PubMed  CAS  Google Scholar 

  • Kosinski, M., Bayliss, M. S., Bjorner, J. B., Ware, J. E., Jr., Garber, W. H., Batenhorst, A., Cady, R., Dahlof, C. G., Dowson, A., & Tepper, S. (2003a). A six-item short-form survey for measuring headache impact: The HIT-6. Quality of Life Research, 12(8), 963–974.

    PubMed  CAS  Google Scholar 

  • Kosinski, M., Bjorner, J. B., Ware, J. E., Jr., Batenhorst, A., & Cady, R. K. (2003b). The responsiveness of headache impact scales scored using ‘classical’ and ‘modern’ psychometric methods: A re-analysis of three clinical trials. Quality of Life Research, 12(8), 903–912.

    PubMed  CAS  Google Scholar 

  • Krause, S. J., & Backonja, M. M. (2003). Development of a neuropathic pain questionnaire. Clinical Journal of Pain, 19(5), 306–314.

    PubMed  Google Scholar 

  • Landgraf, J. M., & Abetz, L. (1996). Measuring health outcomes in pediatric populations: Issues in psychometrics and application. In B. Spilker (Ed.), Quality of life and pharmacoeconomics in clinical trials (2nd ed., pp. 793–802). Philadelphia: Lippincott-Raven.

    Google Scholar 

  • Landgraf, J. M., & Abetz, L. (1997). Functional status and well-being of children representing three cultural groups: Initial self-reports using the CHQ-CF-87. Psychology and Health, 12, 839–854.

    Google Scholar 

  • Landgraf, J. M., Abetz, L., & Ware, J. E. (1999). The CHQ: A user’s manual. Boston: HealthAct.

    Google Scholar 

  • Lewandowski, A. S., Palermo, T. M., & Peterson, C. C. (2006). Age-dependent relationships among pain, depressive symptoms, and functional disability in youth with recurrent headaches. Headache, 46(4), 656–662.

    PubMed  Google Scholar 

  • Liang, M. H. (2000). Longitudinal construct validity: Establishment of clinical meaning in patient evaluative instruments. Medical Care, 38(9 Suppl), II84–90.

    PubMed  CAS  Google Scholar 

  • Low, P. A., & Mathias, C. J. (2005). Quantitation of autonomic impairment. In P. J. Dyck & P. K. Thomas (Eds.), Peripheral neuropathy (4th ed., pp. 1103–1133). Philadelphia: Elsevier Saunders.

    Google Scholar 

  • Low, P. A., Caskey, P. E., Tuck, R. R., Fealey, R. D., & Dyck, P. J. (1983). Quantitative sudomotor axon reflex test in normal and neuropathic subjects. Annals of Neurology, 14(5), 573–580.

    PubMed  CAS  Google Scholar 

  • Low, V. A., Sandroni, P., Fealey, R. D., & Low, P. A. (2006). Detection of small-fiber neuropathy by sudomotor testing. Muscle and Nerve, 34(1), 57–61.

    PubMed  Google Scholar 

  • Low, A. K., Ward, K., & Wines, A. P. (2007). Pediatric complex regional pain syndrome. Journal of Pediatric Orthopedics, 27(5), 567–572.

    PubMed  Google Scholar 

  • Lynch, A. M., Kashikar-Zuck, S., Goldschneider, K. R., & Jones, B. A. (2006). Psychosocial risks for disability in children with chronic back pain. Journal of Pain, 7(4), 244–251.

    PubMed  Google Scholar 

  • Maciejewski, M. (2004). Generic measures. In R. L. Kane (Ed.), Understanding health care outcomes research (1st ed., pp. 19–52). Sudbury: Jones and Bartlett.

    Google Scholar 

  • Maciejewski, M. (2006). Generic measures. In R. L. Kane (Ed.), Understanding health care outcomes research (2nd ed., pp. 123–164). Boston: Jones and Bartlett.

    Google Scholar 

  • Malaty, H. M., Abudayyeh, S., O’Malley, K. J., Wilsey, M. J., Fraley, K., Gilger, M. A., Hollier, D., Graham, D. Y., & Rabeneck, L. (2005). Development of a multidimensional measure for recurrent abdominal pain in children: Population-based studies in three settings. Pediatrics, 115(2), 210–215.

    Google Scholar 

  • Matza, L. S., Swensen, A. R., Flood, E. M., Secnik, K., & Leidy, N. K. (2004). Assessment of health-related quality of life in children: A review of conceptual, methodological, and regulatory issues. Value in Health, 7(1), 79–92.

    PubMed  Google Scholar 

  • McGrath, P. A., & Hillier, L. M. (2003). Modifying the psychological factors that intensify chidren’s pain and prolong disability. In N. L. Schechter, C. B. Berde, & M. Yaster (Eds.), Pain in infants, children, and adolescents (2nd ed., pp. 85–104). Philadelphia: Lippincott Williams & Wilkins.

    Google Scholar 

  • McGrath, P. A., Seifert, C. E., Speechley, K. N., Booth, J. C., Stitt, L., & Gibson, M. C. (1996). A new analogue scale for assessing children’s pain: An initial validation study. Pain, 64(3), 435–443.

    PubMed  CAS  Google Scholar 

  • McHorney, C. A. (1997). Generic health measurement: past accomplishments and a measurement paradigm for the 21st century. Annals of Internal Medicine, 127(8 Pt 2), 743–750.

    PubMed  CAS  Google Scholar 

  • Meier, P. M., Berde, C. B., DiCanzio, J., Zurakowski, D., & Sethna, N. F. (2001). Quantitative assessment of cutaneous thermal and vibration sensation and thermal pain detection thresholds in healthy children and adolescents. Muscle and Nerve, 24(10), 1339–1345.

    PubMed  CAS  Google Scholar 

  • Melzack, R. (1975). The McGill Pain Questionnaire: Major properties and scoring methods. Pain, 1(3), 277–299.

    PubMed  CAS  Google Scholar 

  • Merlijn, V. P. B. M., Hunfeld, J. A. M., van der Wouden, J. C., Hazebroek-Kampschreur, A. A. J. M., Passchier, J., & Koes, B. W. (2006). Factors related to the quality of life in adolescents with chronic pain. Clinical Journal of Pain, 22(3), 306–315.

    PubMed  Google Scholar 

  • Naughton, M. J., & Shumaker, S. A. (2003). The case for domains of function in quality of life assessment. Quality of Life Research, 12(Suppl 1), 73–80.

    PubMed  Google Scholar 

  • Nelson, E. C., & Berwick, D. M. (1989). The measurement of health status in clinical practice. Medical Care, 27(3 Suppl), S77–90.

    PubMed  CAS  Google Scholar 

  • Oaklander, A. L., Rissmiller, J. G., Gelman, L. B., Zheng, L., Chang, Y., & Gott, R. (2006). Evidence of focal small-fiber axonal degeneration in complex regional pain syndrome-I (reflex sympathetic ­dystrophy). Pain, 120(3), 235–243.

    PubMed  Google Scholar 

  • Owens, D. K. (1998). Spine update. Patient preferences and the development of practice guidelines. Spine, 23(9), 1073–1079.

    PubMed  CAS  Google Scholar 

  • Palermo, T. M. (2000). Impact of recurrent and chronic pain on child and family daily functioning: A critical review of the literature. Journal of Developmental and Behavioral Pediatrics, 21(1), 58–69.

    PubMed  CAS  Google Scholar 

  • Palermo, T. M., Witherspoon, D., Valenzuela, D., & Drotar, D. D. (2004). Development and validation of the Child Activity Limitations Interview: A measure of pain-related functional impairment in school-age children and adolescents. Pain, 109(3), 461–470.

    PubMed  Google Scholar 

  • Palermo, T. M., Platt-Houston, C., Kiska, R. E., & Berman, B. (2005). Headache symptoms in pediatric sickle cell patients. Journal of Pediatric Hematology and Oncology, 27(8), 420–424.

    Google Scholar 

  • Panepinto, J. A., O’Mahar, K. M., DeBaun, M. R., Rennie, K. M., & Scott, J. P. (2004). Validity of the child health questionnaire for use in children with sickle cell disease. Journal of Pediatric Hematology/Oncology, 26(9), 574–578.

    PubMed  Google Scholar 

  • Panepinto, J. A., O’Mahar, K. M., DeBaun, M. R., Loberiza, F. R., & Scott, J. P. (2005). Health-related quality of life in children with sickle cell disease: Child and parent perception. British Journal of Haematology, 130(3), 437–444.

    PubMed  Google Scholar 

  • Parsons, S. K., & Mayer, D. K. (2004). Health-related quality of life assessment in hematologic disease. Hematology and Oncology Clinics of North America, 18(6), 1235–1248.

    Google Scholar 

  • Patrick, D. L. (1998). Quality of life and health status: Concepts and types of measures. In P. Armitage (Ed.), Encyclopedia of biostatistics (Vol. 5, pp. 3609–3613). West Sussex: Wiley.

    Google Scholar 

  • Patrick, D. L., & Chiang, Y. P. (2000). Measurement of health outcomes in treatment effectiveness evaluations: Conceptual and methodological challenges. Medical Care, 38(Suppl), II14–25.

    PubMed  CAS  Google Scholar 

  • Patrick, D. L., & Deyo, R. A. (1989). Generic and disease-specific measures in assessing health status and quality of life. Medical Care, 27(3 Suppl), S217–232.

    PubMed  CAS  Google Scholar 

  • Patrick, D. L., & Erickson, P. (1993). Health status and health policy: Quality of life in health care evaluation and resource allocation. New York: Oxford Press.

    Google Scholar 

  • Perez, C., Galvez, R., Huelbes, S., Insausti, J., Bouhassira, D., Diaz, S., & Rejas, J. (2007). Validity and reliability of the Spanish version of the DN4 (Douleur Neuropathique 4 questions) questionnaire for differential diagnosis of pain syndromes associated to a neuropathic or somatic component. Health and Quality of Life Outcomes, 5(1), 66.

    PubMed  Google Scholar 

  • Perquin, C. W., Hazebroek-Kampschreur, A. A., Hunfeld, J. A., Bohnen, A. M., van Suijlekom-Smit, L. W., Passchier, J., & van der Wouden, J. C. (2000a). Pain in children and adolescents: A common experience. Pain, 87(1), 51–58.

    PubMed  CAS  Google Scholar 

  • Perquin, C. W., Hazebroek-Kampschreur, A. A., Hunfeld, J. A., van Suijlekom-Smit, L. W., Passchier, J., & van der Wouden, J. C. (2000b). Chronic pain among children and adolescents: Physician consultation and medication use. Clinical Journal of Pain, 16(3), 229–235.

    PubMed  CAS  Google Scholar 

  • Perquin, C. W., Hunfeld, J. A., Hazebroek-Kampschreur, A. A., van Suijlekom-Smit, L. W., Passchier, J., Koes, B. W., & van der Wouden, J. C. (2001). Insights in the use of health care services in chronic benign pain in childhood and adolescence. Pain, 94(2), 205–213.

    PubMed  CAS  Google Scholar 

  • Perquin, C. W., Hunfeld, J. A., Hazebroek-Kampschreur, A. A., van Suijlekom-Smit, L. A., Passchier, J., Koes, B. W., & van der Wouden, J. C. (2003). The natural course of chronic benign pain in childhood and adolescence: A two-year population-based follow-up study. European Journal of Pain, 7(6), 551–559.

    PubMed  Google Scholar 

  • Peterson, C. C., & Palermo, T. M. (2004). Parental reinforcement of recurrent pain: The moderating impact of child depression and anxiety on functional disability. Journal of Pediatric Psychology, 29(5), 331–341.

    PubMed  Google Scholar 

  • Portney, L. G., & Watkins, M. P. (2000). Statistical measures of reliability. In W. M. Portney LG (Ed.), Foundation of clinical research: Applications to practice (2nd ed., pp. 570–586). Upper Saddle River: Prentice-Hall.

    Google Scholar 

  • Powers, S. W., Patton, S. R., Hommel, K. A., & Hershey, A. D. (2004). Quality of life in paediatric migraine: Characterization of age-related effects using PedsQL 4.0. Cephalalgia, 24(2), 120–127.

    PubMed  CAS  Google Scholar 

  • Rajmil, L., Herdman, M., Fernandez de Sanmamed, M. J., Detmar, S., Bruil, J., Ravens-Sieberer, U., Bullinger, M., Simeoni, M. C., & Auquier, P. (2004). Generic health-related quality of life instruments in children and adolescents: A qualitative analysis of content. Journal of Adolescent Health, 34(1), 37–45.

    PubMed  Google Scholar 

  • Rapoff, M. A. (2003). Pediatric measures of pain: The pain behavior observation method, Pain Coping Questionnaire (PCQ), and Pediatric Pain Questionnaire. Arthritis and Rheumatism, 49(5S), S90–S95.

    Google Scholar 

  • Ravens-Sieberer, U., & Bullinger, M. (1998). Assessing health-related quality of life in chronically ill children with the German KINDL: First psychometric and content analytical results. Quality of Life Research, 7(5), 399–407.

    PubMed  CAS  Google Scholar 

  • Ravens-Sieberer, U., & Bullinger, M. (2000). KINDLQuestionnaire for measuring health-related quality of life in children and adolescents revised version (english manual). Berlin: Robert Koch Institute.

    Google Scholar 

  • Reid, G. J., McGrath, P. J., & Lang, B. A. (2005). Parent-child interactions among children with juvenile fibromyalgia, arthritis, and healthy controls. Pain, 113(1–2), 201–210.

    PubMed  Google Scholar 

  • Rho, R. H., Brewer, R. P., Lamer, T. J., & Wilson, P. R. (2002). Complex regional pain syndrome. Mayo Clinic Proceedings, 77(2), 174–180.

    PubMed  Google Scholar 

  • Riley, A. W. (2004). Evidence that school-age children can self-report on their health. Ambulatory Pediatrics, 4(Suppl(4)), 371–376.

    PubMed  Google Scholar 

  • Riley, A. W., Forrest, C. B., Starfield, B., Green, B., Kang, M., & Ensminger, M. (1998). Reliability and validity of the adolescent health profile-types. Medical Care, 36(8 (Print)), 1237–1248.

    PubMed  CAS  Google Scholar 

  • Riley, A. W., Forrest, C. B., Rebok, G. W., Starfield, B., Green, B. F., Robertson, J. A., & Friello, P. (2004a). The child report form of the CHIP-child edition: Reliability and validity. Medical Care, 42(3), 221–231.

    PubMed  Google Scholar 

  • Riley, A. W., Forrest, C. B., Starfield, B., Rebok, G. W., Robertson, J. A., & Green, B. F. (2004b). The parent report form of the CHIP-child edition: Reliability and validity. Medical Care, 42(3), 210–220.

    PubMed  Google Scholar 

  • Robins, P. M., Smith, S. M., & Proujansky, R. (2002). Children with recurrent abdominal pain: Comparison of community and tertiary care samples. Childrens Health Care, 31, 93–106.

    Google Scholar 

  • Rog, D. J., Nurmikko, T. J., Friede, T., & Young, C. A. (2007). Validation and reliability of the Neuropathic Pain Scale (NPS) in multiple sclerosis. Clinical Journal of Pain, 23(6), 473–481.

    PubMed  Google Scholar 

  • Rolke, R., Magerl, W., Campbell, K. A., Schalber, C., Caspari, S., Birklein, F., & Treede, R. D. (2006). Quantitative sensory testing: A comprehensive protocol for clinical trials. European Journal of Pain, 10(1), 77–88.

    PubMed  CAS  Google Scholar 

  • Roth-Isigkeit, A., Thyen, U., Raspe, H. H., Stoven, H., & Schmucker, P. (2004). Reports of pain among German children and adolescents: An epidemiological study. Acta Paediatrica, 93(2), 258–263.

    PubMed  CAS  Google Scholar 

  • Roth-Isigkeit, A., Thyen, U., Stoven, H., Schwarzenberger, J., & Schmucker, P. (2005). Pain among children and ­adolescents: Restrictions in daily living and triggering factors. Pediatrics, 115(2), e152–162.

    PubMed  Google Scholar 

  • Sandroni, P., Low, P. A., Ferrer, T., Opfer-Gehrking, T. L., Willner, C. L., & Wilson, P. R. (1998). Complex regional pain syndrome I (CRPS I): Prospective study and laboratory evaluation. Clinical Journal of Pain, 14(4), 282–289.

    PubMed  CAS  Google Scholar 

  • Sawyer, M. G., Whitham, J. N., Roberton, D. M., Taplin, J. E., Varni, J. W., & Baghurst, P. A. (2004). The relationship between health-related quality of life, pain and coping strategies in juvenile idiopathic arthritis. Rheumatology, 43(3), 325–330.

    PubMed  CAS  Google Scholar 

  • Sawyer, M. G., Carbone, J. A., Whitham, J. N., Roberton, D. M., Taplin, J. E., Varni, J. W., & Baghurst, P. A. (2005). The relationship between health-related quality of life, pain, and coping strategies in juvenile arthritis–a one year prospective study. Quality of Life Research, 14(6), 1585–1598.

    PubMed  Google Scholar 

  • Schanberg, L. E., & Sandstrom, M. J. (1999). Causes of pain in children with arthritis. Rheumatic Diseases Clinics of North America, 25(1), 31–53. vi.

    PubMed  CAS  Google Scholar 

  • Schechter, N. L., Berde, C. B., & Yaster, M. (2003). Pain in infants, children, and adolescents: An overview. In N. L. Schechter, C. B. Berde, & M. Yaster (Eds.), Pain in infants, children, and adolescents (2nd ed., pp. 3–18). Philadelphia: Lippincott Williams & Wilkins.

    Google Scholar 

  • Schmidt, L. J., Garratt, A. M., & Fitzpatrick, R. (2002). Child/parent-assessed population health outcome measures: A structured review. Child: Care, Health and Development, 28(3), 227–237.

    CAS  Google Scholar 

  • Scott, P. J., Ansell, B. M., & Huskisson, E. C. (1977). Measurement of pain in juvenile chronic polyarthritis. Annals of the Rheumatic Diseases, 36(2), 186–187.

    PubMed  CAS  Google Scholar 

  • Sethna, N. F., Meier, P. M., Zurakowski, D., & Berde, C. B. (2007). Cutaneous sensory abnormalities in children and adolescents with complex regional pain syndromes. Pain, 131(1–2), 153–161.

    PubMed  Google Scholar 

  • Sieweke, N., Birklein, F., Riedl, B., Neundorfer, B., & Handwerker, H. O. (1999). Patterns of hyperalgesia in complex regional pain syndrome. Pain, 80(1–2), 171–177.

    PubMed  CAS  Google Scholar 

  • Stanton-Hicks, M. (2000). Complex regional pain syndrome (type I, RSD; type II, causalgia): Controversies. Clinical Journal of Pain, 16(2 Suppl), S33–40.

    PubMed  CAS  Google Scholar 

  • Stanton-Hicks, M. (2003). Complex regional pain syndrome. Anesthesiology Clinics of North America, 21(4), 733–744.

    PubMed  Google Scholar 

  • Starfield, B., Riley, A. W., Green, B. F., Ensminger, M. E., Ryan, S. A., Kelleher, K., Kim-Harris, S., Johnston, D., & Vogel, K. (1995). The adolescent child health and illness profile. A population-based measure of health. Medical Care, 33(5), 553–566.

    PubMed  CAS  Google Scholar 

  • Stevens, B. (1994). Pain assessment in children: Birth through adolescence. Child and Adolescent Clinics of North America, 6, 725–743.

    Google Scholar 

  • Stevens, B., & Gibbins, S. (2002). Clinical utility and clinical significance in the assessment and management of pain in vulnerable infants. Clinics in Perinatology, 29(3), 459–468.

    PubMed  Google Scholar 

  • Stewart, J. D., Low, P. A., & Fealey, R. D. (1992). Distal small fiber neuropathy: Results of tests of sweating and autonomic cardiovascular reflexes. Muscle and Nerve, 15(6), 661–665.

    PubMed  CAS  Google Scholar 

  • Stinson, J. N., Kavanagh, T., Yamada, J., Gill, N., & Stevens, B. (2006). Systematic review of the psychometric properties, interpretability and feasibility of self-report pain intensity measures for use in clinical trials in children and adolescents. Pain, 125(1–2), 143–157.

    PubMed  Google Scholar 

  • Streiner, D. L., & Norman, G. R. (2005). Health measurement scales: A practical guide to their development and use (3rd ed.). Oxford: Oxford University Press.

    Google Scholar 

  • Theunissen, N. C., Vogels, T. G., Koopman, H. M., Verrips, G. H., Zwinderman, K. A., Verloove-Vanhorick, S. P., & Wit, J. M. (1998). The proxy problem: Child report versus parent report in health-related quality of life research. Quality of Life Research, 7(5), 387–397.

    PubMed  CAS  Google Scholar 

  • Tkachuk, G. A., Cottrell, C. K., Gibson, J. S., O’Donnell, F. J., & Holroyd, K. A. (2003). Factors associated with migraine-related quality of life and disability in adolescents: A preliminary investigation. Headache, 43(9), 950–955.

    PubMed  Google Scholar 

  • Tojek, T. M., Lumley, M. A., Corlis, M., Ondersma, S., & Tolia, V. (2002). Maternal correlates of health status in adolescents with inflammatory bowel disease. Journal of Psychosomatic Research, 52(3), 173–179.

    PubMed  Google Scholar 

  • Turk, D. C., & Flor, H. (1999). Chronic pain: A biobehavioral perspective. In R. J. Gatchel & D. C. Turk (Eds.), Psychosocial factors in pain: Critical perspectives (pp. 18–34). New York: The Guilford Press.

    Google Scholar 

  • Turk, D. C., & Monarch, E. S. (2002). Chronic biopsychosocial perspective on chronic pain. In D. C. Turk & R. J. Gatchel (Eds.), Psychological approaches to pain management: A practitioner’s handbook (2nd ed., pp. 3–29). New York: Guilford Press.

    Google Scholar 

  • Varni, J. W. (1995). Pediatric pain: A decade biobehavioral perspective. Behavioral Therapist, 18, 65–70.

    Google Scholar 

  • Varni, J. W., Thompson, K. L., & Hanson, V. (1987). The Varni/Thompson Pediatric Pain Questionnaire. I. Chronic musculoskeletal pain in juvenile rheumatoid arthritis. Pain, 28(1), 27–38.

    PubMed  CAS  Google Scholar 

  • Varni, J. W., Blount, R. L., Waldron, S. A., & Smith, A. J. (1995). Management of pain and distress. In M. C. Roberts (Ed.), Handbook of pediatric psychology (2nd ed., pp. 105–123). New York: Guilford Press.

    Google Scholar 

  • Varni, J. W., Rapoff, M. A., Waldron, S. A., Gragg, R. A., Bernstein, B. H., & Lindsley, C. B. (1996a). Chronic pain and emotional distress in children and adolescents. Journal of Developmental and Behavioral Pediatrics, 17(3), 154–161.

    PubMed  CAS  Google Scholar 

  • Varni, J. W., Rapoff, M. A., Waldron, S. A., Gragg, R. A., Bernstein, B. H., & Lindsley, C. B. (1996b). Effects of perceived stress on pediatric chronic pain. Journal of Behavioral Medicine, 19(6), 515–528.

    PubMed  CAS  Google Scholar 

  • Varni, J. W., Seid, M., & Kurtin, P. S. (2001). PedsQL 4.0: Reliability and validity of the Pediatric Quality of Life Inventory version 4.0 generic core scales in healthy and patient populations. Medical Care, 39(8), 800–812.

    PubMed  CAS  Google Scholar 

  • Varni, J. W., Seid, M., Knight, T. S., Uzark, K., & Szer, I. S. (2002). The PedsQL 4.0 Generic Core Scales: Sensitivity, responsiveness, and impact on clinical decision-making. Journal of Behavioral Medicine, 25(2), 175–193.

    PubMed  Google Scholar 

  • Varni, J. W., Burwinkle, T. M., Seid, M., & Skarr, D. (2003). The PedsQL 4.0 as a pediatric population health measure: Feasibility, reliability, and validity. Ambulatory Pediatrics, 3(6), 329–341.

    PubMed  Google Scholar 

  • Varni, J. W., Burwinkle, T. M., & Katz, E. R. (2004a). The PedsQL in pediatric cancer pain: A prospective longitudinal analysis of pain and emotional distress. Journal of Developmental and Behavioral Pediatrics, 25(4), 239–246.

    PubMed  Google Scholar 

  • Varni, J. W., Sherman, S. A., Burwinkle, T. M., Dickinson, P. E., & Dixon, P. (2004b). The PedsQL Family Impact Module: Preliminary reliability and validity. Health and Quality of Life Outcomes, 2, 55.

    PubMed  Google Scholar 

  • Varni, J. W., Burwinkle, T. M., & Lane, M. M. (2005). Health-related quality of life measurement in pediatric clinical practice: An appraisal and precept for future research and application. Health and Quality of Life Outcomes, 3, 34.

    PubMed  Google Scholar 

  • Varni, J. W., Burwinkle, T. M., & Seid, M. (2006). The PedsQL 4.0 as a school population health measure: Feasibility, reliability, and validity. Quality of Life Research, 15(2), 203–215.

    PubMed  Google Scholar 

  • Vetter, T. R. (2007). A primer on health-related quality of life in chronic pain medicine. Anesthesia and Analgesia, 104(3), 703–718.

    PubMed  CAS  Google Scholar 

  • Vetter, T. R. (2008). A clinical profile of a cohort of patients referred to an anesthesiology-based pediatric chronic pain medicine program. Anesthesia and Analgesia, 106(3), 786–794.

    PubMed  Google Scholar 

  • von Baeyer, C. L., & Spagrud, L. J. (2007). Systematic review of observational (behavioral) measures of pain for children and adolescents aged 3 to 18 years. Pain, 127(1–2), 140–150.

    Google Scholar 

  • Walco, G. A., & Dampier, C. D. (1990). Pain in children and adolescents with sickle cell disease: A descriptive study. Journal of Pediatric Psychology, 15(5), 643–658.

    PubMed  CAS  Google Scholar 

  • Walco, G. A., Sterling, C. M., Conte, P. M., & Engel, R. G. (1999). Empirically supported treatments in pediatric psychology: Disease-related pain. Journal of Pediatric Psychology, 24(2), 155–167. discussion 168–171.

    PubMed  CAS  Google Scholar 

  • Walco, G. A., Conte, P. M., Labay, L. E., Engel, R., & Zeltzer, L. K. (2005). Procedural distress in children with cancer: Self-report, behavioral observations, and physiological parameters. Clinical Journal of Pain, 21(6), 484–490.

    PubMed  Google Scholar 

  • Walker, L. S., & Greene, J. W. (1991). The functional disability inventory: Measuring a neglected dimension of child health status. Journal of Pediatric Psychology, 16(1), 39–58.

    PubMed  CAS  Google Scholar 

  • Walker, L. S., Garber, J., & Greene, J. W. (1991). Somatization symptoms in pediatric abdominal pain patients: Relation to chronicity of abdominal pain and parent somatization. Journal of Abnormal Child Psychology, 19(4), 379–394.

    PubMed  CAS  Google Scholar 

  • Walker, L. S., Guite, J. W., Duke, M., Barnard, J. A., & Greene, J. W. (1998). Recurrent abdominal pain: A potential precursor of irritable bowel syndrome in adolescents and young adults. Journal of Pediatrics, 132(6), 1010–1015.

    PubMed  CAS  Google Scholar 

  • Walker, L. S., Smith, C. A., Garber, J., & Claar, R. L. (2005). Testing a model of pain appraisal and coping in children with chronic abdominal pain. Health Psychology, 24(4), 364–374.

    PubMed  Google Scholar 

  • Walker, L. S., Smith, C. A., Garber, J., & Claar, R. L. (2007). Appraisal and coping with daily stressors by pediatric patients with chronic abdominal pain. Journal of Pediatric Psychology, 32(2), 206–216.

    PubMed  Google Scholar 

  • Wasner, G., Schattschneider, J., Binder, A., & Baron, R. (2003). Complex regional pain syndrome–diagnostic, mechanisms, CNS involvement and therapy. Spinal Cord, 41(2), 61–75.

    PubMed  CAS  Google Scholar 

  • Waters, E. B., Salmon, L. A., Wake, M., Wright, M., & Hesketh, K. D. (2001). The health and well-being of adolescents: A school-based population study of the self-report Child Health Questionnaire. Journal of Adolescent Health, 29(2), 140–149.

    PubMed  CAS  Google Scholar 

  • Weingarten, T. N., Watson, J. C., Hooten, W. M., Wollan, P. C., Melton, L. J., 3rd, Locketz, A. J., Wong, G. Y., & Yawn, B. P. (2007). Validation of the S-LANSS in the community setting. Pain, 132(1–2), 189–194.

    PubMed  Google Scholar 

  • Wenger, N. K., & Furberg, C. D. (1990). Cardiovascular disorders. In B. Spilker (Ed.), Quality of life assessment in clinical trials (pp. 335–345). New York: Raven.

    Google Scholar 

  • Wilder, R. T. (2006). Management of pediatric patients with complex regional pain syndrome. Clinical Journal of Pain, 22(5), 443–448.

    PubMed  Google Scholar 

  • Wong, D. L., & Baker, C. M. (1988). Pain in children: Comparison of assessment scales. Pediatric Nursing, 14(1), 9–17.

    PubMed  CAS  Google Scholar 

  • World Health Organization. (1948). Constitution of the World Health Organization. Basic documents. Geneva: World Health Organization.

    Google Scholar 

  • Zeltzer, L. K., Bush, J. P., Chen, E., & Riveral, A. (1997a). A psychobiologic approach to pediatric pain: Part I. History, physiology, and assessment strategies. Current Problems in Pediatrics, 27(6), 225–253.

    PubMed  CAS  Google Scholar 

  • Zeltzer, L. K., Bush, J. P., Chen, E., & Riveral, A. (1997b). A psychobiologic approach to pediatric pain: Part II. Prevention and treatment. Current Problems in Pediatrics, 27(7), 264–284.

    PubMed  CAS  Google Scholar 

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Vetter, T.R. (2011). Assessment Tools in Pediatric Chronic Pain: Reliability and Validity. In: McClain, B., Suresh, S. (eds) Handbook of Pediatric Chronic Pain. Springer, New York, NY. https://doi.org/10.1007/978-1-4419-0350-1_5

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