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Promoting Resilience in Small-Scale, Homelike Residential Care Settings for Older People with Dementia: Experiences from the Netherlands and the United States

  • Hilde Verbeek
  • Rosalie A. Kane
  • Erik van Rossum
  • Jan P. H. Hamers
Chapter

Abstract

Supported by a cultural change movement, resilience in long-term dementia care has become increasingly relevant and important. The process of cultural change promotes resident-directed care and quality of life, with the care-based relationship between the resident and direct care workers emphasized (Foy Whithe-Chu et al.). Examples of this cultural change include care settings in a homelike environment focusing on residents’ autonomy, opportunity for choice, and sustaining a sense of self and control. This chapter illustrates characteristics and experiences with homelike dementia care setting in the Netherlands and United States.

Keywords

Nursing Home Nursing Staff Family Caregiver Green House Assisted Living 
These keywords were added by machine and not by the authors. This process is experimental and the keywords may be updated as the learning algorithm improves.

References

  1. Annerstedt, L. (1993) Development and consequences of group living in Sweden. A new mode of care for the demented elderly. Social Science & Medicine 37, 1529–1538CrossRefGoogle Scholar
  2. Calkins, M. P. (2001) Creating successful dementia care settings. Baltimore: Health Professions Press.Google Scholar
  3. Calkins, M. P. & Keane, W. (2008) Tomorrow’s assisted living and nursing homes: The converging worlds of residential long-term care. In S. M. Golant & J. Hyde (Eds.), The Assisted living residence: a vision for the future (pp. 86–118). Baltimore: Johns Hopkins Press.Google Scholar
  4. Colvez, A., Joel, M. E., Ponton-Sanchez, A., & Royer, A. C. (2002) Health status and work burden of Alzheimer patients’ informal caregivers: comparisons of five different care programs in the European Union. Health Policy, 60, 219–233.PubMedCrossRefGoogle Scholar
  5. Cutler, L. J., Kane, R. A., Degenholtz, H. B., Miller, M. J. & Grant L. (2007) Assessing and comparing physical environments for nursing home residents: using new tools for greater specificity. The Gerontologist, 45, 42–51.Google Scholar
  6. de Rooij, I., Luijkx, K., Emmerink, P., Declercq, A., & Schols, J. M. (2009) Verhoogt kleinschalig wonen de kwaliteit van leven voor ouderen met dementie? (Does small-scale living increases quality of life for older people with dementia?). In H. Stoop & I. de Rooij (Eds.), Grote kwaliteit op kleine schaal. Is kleinschalig wonen voor mensen met dementie een succesvolle parel in de ouderenzorg? (pp. 43–52) Tilburg: Programmaraad Zorgvernieuwing Psychogeriatrie en De Kievitshorst/De Wever.Google Scholar
  7. Declercq, A. (2009) Kleinschalig genormaliseerd wonen in Vlaanderen. (Small-scale normalized living in Flanders). In H. Stoop & I. de Rooij (Eds.), Grote kwaliteit op kleine schaal. Is kleinschalig wonen voor mensen met dementie een succesvolle parel in de ouderenzorg? (pp. 61–68) Tilburg: Programmaraad Zorgvernieuwing Psychogeriatrie en De Kievitshorst/De Wever.Google Scholar
  8. Dettbarn-Reggentin, J. (2005) Studie zum Einfluss von Wohngruppenmilieus auf demenziell Erkrankte in stationären Einrichtungen. (Study on the influence of environmental residential groups on demented old people in nursing home residents). Zeitschrift fur Gerontologie und Geriatrie, 38, 95–100.PubMedCrossRefGoogle Scholar
  9. Eckert, J. K., Carder, P. C., Morgan, L. A., Frankowski, A. C., & Roth, E. G. (2009) Inside assisted living: the Search for Home. Baltimore: Johns Hopkins Press.Google Scholar
  10. Foy-White-Chu, E., Graves, W. J., Godfrey, S. M., Bonner, A. & Sloane, P. (2009) Beyond the medical model: the culture change revolution in long-term care. Journal of the American Medical Directors Association, 10, 370–378.CrossRefGoogle Scholar
  11. Funaki, Y., Kaneko, F., & Okamura, H. (2005) Study on factors associated with changes in quality of life of demented elderly persons in group homes. Scandinavian Journal of Occupational Therapy, 12, 4–9.PubMedCrossRefGoogle Scholar
  12. Gubrium, J. F. (1975) Living and dying at Murray Manor. Charlottesville, VA: University of Virginia Press.Google Scholar
  13. Hernandez, M & Newcomer, R (2007) Assisted living and special populations: what do we know about differences in use and potential access barriers? The Gerontologist , 47 (Special Issue III), 110–117.Google Scholar
  14. Kane, R. A., Baker, M. O., Salmon, J. & Veazie, W. (1998) Consumer perspectives on private versus shared space in assisted living. Washington, DC: AARP.Google Scholar
  15. Kane, R. A., Chan, J., & Kane, R. L. (2007) Assisted living literature through May 2004: taking stock. The Gerontolgist, 47 (Special Issue III), 125–140.Google Scholar
  16. Kane, R. A. & Cutler, L. C., (2009) Promoting home-like characteristics and eliminating institutional characteristics in community-based residential care settings: insights from an 8-state study. Seniors Hoursing & Care Journal, 16, 91–113.Google Scholar
  17. Kane R. A., Kane R. L., Illston L. I., Nyman J., and Finch M. D. (1991) Adult foster care for the elderly in Oregon: a mainstream alternative to nursing homes? American Journal of Public Health, 8, 1113–1120.CrossRefGoogle Scholar
  18. Kane, R. A., Kling, K. C., Bershadsky, B., Kane, R. L., Giles, K., Degenholtz, H. B., Liu, J. & Cutler, L. J. (2003) Quality of life measures for nursing home residents. Journal of Gerontology: Medical Sciences, 58A, 240–248.CrossRefGoogle Scholar
  19. Kane, R. A., Lum, T., Cutler, L. J., Degenholtz, B., & Yu, A.-C. (2007) Resident outcomes in small-group-home nursing homes: a longitudinal evaluation of the initial Green House program. Journal of the American Geriatrics Society, 55, 832–839.PubMedCrossRefGoogle Scholar
  20. Kane, R. L. & Mach, Jr, J. R. (2007) Improving health care in assisted living. The Gerontologist, 47 (Special Issue III), 100–109.PubMedCrossRefGoogle Scholar
  21. Lawton, M. P. (2001) Quality of care and quality of life in dementia care units. In Noelker, L. S. & Harel, Z. (Eds). Linking quality of care to quality of life (pp. 136–161). New York: Springer.Google Scholar
  22. Lawton, M. P. & Nahemow, L. (1973) Ecology and the aging process. In Eidorfer,C & Lawton, MP (Eds). Psychology of adult development and aging (pp. 619–674). Washington DC: American Psychological Association.CrossRefGoogle Scholar
  23. Lum, T. Y., Kane, R. A., Cutler, L. J., & Yu, T.-C. (2008) Effects of Green House® nursing homes on residents’ families. Health Care Financing Review, 30, 37–51.Google Scholar
  24. Maslow, K. & Ory, M. (2001) Review of a decade of special care unit research: Lessons learned. Alzheimer’s Care Today, 2, 16–20.Google Scholar
  25. Mead, L. C., Eckert, J.K., Zimmerman, S., & Schumacher, J. G. (2005) Sociocultural aspects of transitions from assisted living. The Gerontologist, 45 (Special Issue 1), 115–123.PubMedCrossRefGoogle Scholar
  26. Moise, P., Schwarzinger, M., & Um, M. (2004) Dementia care in 9 OECD countries: a comparative analysis. Paris: OECD.CrossRefGoogle Scholar
  27. Rabig, J.(2009) The effects of empowered work teams in the Greenhouse project. In Yeatts, D. E., McCready, C. M., & Noelker, LS (Eds.). Empowered work teams in long-term care: strategies for improving outcomes for residents & staff. Baltimore, MD: Health Professions Press.Google Scholar
  28. Rabig, J., Thomas, W., Kane, R.A., Cutler, L.J., & McAlilly S. (2006) Radical redesign of nursing homes: applying the Green House concept in Tupleo, MS. The Gerontologist, 46, 533–39.PubMedCrossRefGoogle Scholar
  29. Schols, J. M. (2008) Trends in Dutch nursing home care for demented patients. Paper presented at the Dementia Fair Congress, Leipzig.Google Scholar
  30. Schols, J. M., Crebolder, H. F., & van Weel, C. (2004) Nursing home and nursing home physician: the Dutch experience. Journal of the American Medical Directors Association, 5, 207–212.PubMedCrossRefGoogle Scholar
  31. Shields, R. R. (1988) Uneasy endings: daily life in an American nursing home. Ithaca, NY: Cornell University Press.Google Scholar
  32. te Boekhorst, S., Depla, M. F., de Lange, J., Pot, A. M., & Eefsting, J. A. (2009) The effects of group living homes on older people with dementia: a comparison with traditional nursing home care. International Journal of Geriatric Psychiatry, 24, 970–978.CrossRefGoogle Scholar
  33. te Boekhorst, S., Depla, M. F. I. A., de Lange, J., Pot, A. M., & Eefsting, J. A. (2007) Kleinschalig wonen voor ouderen met dementie: een begripsverheldering (Small-scale group living for elderly with dementia: a clarification). Tijdschrift voor Gerontologie en Geriatrie, 38, 17–26.CrossRefGoogle Scholar
  34. te Boekhorst, S., Pot, A. M., Depla, M., Smit, D., de Lange, J., & Eefsting, J. (2008a) Group living homes for older people with dementia: the effects on psychological distress of informal caregivers. Aging & Mental Health, 12, 761–768CrossRefGoogle Scholar
  35. te Boekhorst, S., Willemse, B., Depla, M. F., Eefsting, J. A., & Pot, A. M. (2008b) Working in group living homes for older people with dementia: the effects on job satisfaction and burnout and the role of job characteristics. International Psychogeriatrics, 20, 927–940.Google Scholar
  36. Thomas, W. H. (1999) The Eden Alternative handbook: the art of building human habitats. Sherburne, NY: Summer Hill Co.Google Scholar
  37. Thomas, W. H. (1996) Life worth living: how someone you love can still enjoy life in a nursing home: the Eden Alternative in action. Acton, MA: VanderWyk Burnham.Google Scholar
  38. Thomas, W. H. (1994) The Eden alternative: nature, hope and nursing homes. Sherburne, NY: Summer Hill Co.Google Scholar
  39. Van Audenhove, C., Declercq, A., De Coster, I., Spruytte, N., Molenberghs, C., & Van den Heuvel, B. (2003) Kleinschalig genormaliseerd wonen voor personen met dementie (Small scale normalized living for persons with dementia). Antwerpen/Apeldoorn: Garant.Google Scholar
  40. Verbeek, H., van Rossum, E., Zwakhalen, S. M., Kempen, G. I., & Hamers, J. P. (2009a) Small, homelike care environments for older people with dementia: a literature review. International Psychogeriatrics, 21, 252–264PubMedCrossRefGoogle Scholar
  41. Verbeek, H., van Rossum, E., Zwakhalen, S. M. G., Ambergen, T., Kempen, G. I. J. M., & Hamers, J. P. H. (2009b) The effects of small-scale, homelike facilities for older people with dementia on residents, family caregivers and staff: design of a longitudinal, quasi-experimental study. BMC Geriatrics, 9(3). Google Scholar
  42. Verbeek, H., van Rossum, E., Zwakhalen, S. M. G., Kempen, G. I. J. M., & Hamers, J. P. H. (2008a) Kleinschalig wonen voor ouderen met dementie. Een beschrijvend onderzoek naar de situatie in de provincie Limburg. (Small scale living for older people with dementia. A descriptive study to the situation in the province of Limburg). Maastricht: University Press Maastricht.Google Scholar
  43. Verbeek, H., Zwakhalen, S. M. G., van Rossum, E., Ambergen, T., Kempen, G. I. J. M. & Hamers, J. P. H. (2010). Small-scale, homelike facilities versus regular psychogeriatric nursing home wards: a cross-sectional study into residents’ characteristics. BMC Health Services Research 10: 30CrossRefGoogle Scholar
  44. Weiner, A. S. & Ronch, J. L. (Eds) (2003) Culture change in long-term care. New York: Haworth Press.Google Scholar
  45. Wilson, K. B. (2007) Historical evolution of assisted living in the United States, 1979 to the present. The Gerontologist, 47 (Special Issue III): 8–22.PubMedCrossRefGoogle Scholar
  46. Yeatts, D. E., Ceady, C., Ray, B., DeWitt, A., & Queen, C. (2004) Self-managed work teams in nursing homes: implementing and empowering nurse aide teams. The Gerontologist, 44, 256–261.PubMedCrossRefGoogle Scholar
  47. Zeisel, J., Silverstein, N. M., Hyde, J., Levkoff, S., Lawton, M. P., & Homes, W. (2003) Environmental correlates to behavioral health outcomes in Alzheimer’s Special Care Units. The Gerontologist, 43, 697–711.PubMedCrossRefGoogle Scholar
  48. Zimmerman, S. I., Sloane, P. D., & Ekert, J. K. (Eds) (2001) Assisted living: needs, practices, and policies in residential care for the elderly. Baltimore: Johns Hopkins Press.Google Scholar
  49. Zimmerman, S., Sloan, P. D., Williams, C. S., Reed, P. S., Preisser, J. D., Eckert, J. L., Boustani, M., & Dobbs, D. (2005) Dementia care and quality of life in assisted living and nursing homes and assisted living. The Gerontologist, 45 (Special Issue 1), 133–146.PubMedCrossRefGoogle Scholar

Copyright information

© Springer New York 2011

Authors and Affiliations

  • Hilde Verbeek
    • 1
  • Rosalie A. Kane
  • Erik van Rossum
  • Jan P. H. Hamers
  1. 1.CAPHRI School for Public Health and Primary CareMaastricht UniversityMaastrichtThe Netherlands

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