Advertisement

Fostering Resilience in Dementia Through Narratives: Contributions of Multimedia Technologies

  • Barbara Purves
  • Marie Y. Savundranayagam
  • Elizabeth Kelson
  • Arlene Astell
  • Alison Phinney
Chapter

Abstract

This chapter brings together recent innovative uses of multimedia tools to explore narratives of people with a diagnosis of dementia. The foundations for this work are located in an understanding of the concepts of resilience and well-being and the role of narrative-based reminiscence in fostering resilience, especially as applied to people with dementia. The work collected here focuses on supporting people with a diagnosis, their families, and their communities. We begin with a discussion of the conceptual foundations underpinning this research.

Keywords

Family Caregiver Memory Loss Care Staff Life Story Film Clip 
These keywords were added by machine and not by the authors. This process is experimental and the keywords may be updated as the learning algorithm improves.

References

  1. Alm, N., Astell, A., Ellis, M., Dye, R., Gowans, G., & Campbell, J. (2004) A cognitive prosthesis and communication support for people with dementia. Neuropsychological Rehabilitation, 14(1–2), 117–134.CrossRefGoogle Scholar
  2. Astell, A. J., Alm, N., Gowans, G., Ellis, M., Dye, R., & Vaughan, P. (2009) Involving older people with dementia and their carers in designing computer-based support systems: Some methodological considerations. Universal Access in the Information Society, 8(1), 49–59.CrossRefGoogle Scholar
  3. Baldwin, C. (2009) Narrative and decision-making. In D. O’Connor & B. Purves (Eds.), Decision-making, personhood, and dementia: exploring the interface (pp. 25–36). London: Jessica Kingsley.Google Scholar
  4. Baldwin, C. & Capstick, A. (Eds.). (2007) Tom Kitwood on dementia: a reader and critical commentary. Maidenhead, UK, New York: Open University Press.Google Scholar
  5. Brooker, D. (2004) What is person-centred care in dementia? Reviews in Clinical Gerontology, 13, 215–222.CrossRefGoogle Scholar
  6. Caldwell, R.L. (2005) At the confluence of memory and meaning - life review with older adults and families: Using narrative therapy and the expressive arts to re-member and re-author stories of resilience. The Family Journal, 13(2), 172–175.CrossRefGoogle Scholar
  7. Cohen, G., & Taylor, S. (1998) Reminiscence and aging. Ageing and Society, 18, 601–610.CrossRefGoogle Scholar
  8. de Medeiros, K. (2005) The complementary self: Multiple perspectives on the aging person. Journal of Aging Studies, 19, 1–13.CrossRefGoogle Scholar
  9. Gaugler, J.E., Kane, R.L., & Newcomer, R. (2007) Resilience and transitions from dementia caregiving. Journal of Gerontology: Psychological Sciences, 62B(1), 38–44.CrossRefGoogle Scholar
  10. Hagens, C., Beaman, A., & Ryan, E.B. (2003) Reminiscing, poetry writing, and remembering boxes: Personhood-centered communication with cognitively impaired older adults. Activities, Adaptation, & Aging, 27(3/4), 97–112.CrossRefGoogle Scholar
  11. Harris, P.B. (2008) Another wrinkle in the debate about successful aging: The undervalued concept of resilience and the lived experience of dementia. International Journal of Aging and Human Development, 67(1), 43–61.PubMedCrossRefGoogle Scholar
  12. Hellström, I., Nolan, M., & Lundh, U. (2005) ‘We do things together:’ A case study of ‘couplehood’ in dementia. Dementia, 4(1), 7–22.CrossRefGoogle Scholar
  13. Henderson, C.S., & Andrews, N. (1998) Partial view. Dallas, TX: South Methodist University Press.Google Scholar
  14. Hydén, L.-C., & Örluv, L. (2009) Narrative and identity in Alzheimer’s disease: A case study. Journal of Aging Studies, 23, 205–214.CrossRefGoogle Scholar
  15. Kelson, E. (2006) Supporting personhood within dementia care: The therapeutic potential of personal photographs. Unpublished master’s thesis, Simon Fraser University, Vancouver, British Columbia, Canada.Google Scholar
  16. Kensinger, E.A., Anderson, A., Growdon, J.H., & Corkin, S. (2004) Effects of Alzheimer disease on memory for verbal information. Neuropsychologia, 42, 792–800.CrossRefGoogle Scholar
  17. Kitwood, T. (1997) Dementia reconsidered. Buckingham, UK: Open University Press.Google Scholar
  18. Neimeyer, R. A., & Levitt, H. (2001) Coping and coherence: A narrative perspective on resilience. In C. R. Snyder (Ed.), Coping with stress: Effective people and processes (pp. 47–67) Oxford: Oxford University Press.Google Scholar
  19. O’Connor, D., Phinney, A., Smith, A., Small, J., Purves, B., Perry, J., Drance, E., Donnelly, M., Chaudhury, H., & Beattie, B. L. (2007) Personhood in dementia care: Developing a research agenda for broadening the vision. Dementia, 6, 121–142.CrossRefGoogle Scholar
  20. Ortiz, A., Simmons, J., & Hinton, W.L. (1999) Locations of remorse and homelands of resilience: Notes on grief and sense of loss of place of Latino and Irish-American caregivers of demented elders. Culture, Medicine, and Psychiatry, 23, 477–500.CrossRefGoogle Scholar
  21. Ryff, C.D., & Singer, B. (1998) The contours of positive human health. Psychological Inquiry, 9(1), 1–28.CrossRefGoogle Scholar
  22. Ryff, C.D., & Singer, B. (2008) Know thyself and become what you are: A eudaimonic approach to psychological well-being. Journal of Happiness Studies, 9, 13–39.CrossRefGoogle Scholar
  23. Sabat, S. (2001) The experience of Alzheimer’s disease: Life through a tangled veil. Oxford, UK, Malden, MA: Blackwell.Google Scholar
  24. Savundranayagam, M.Y., Dilley, L.J., & Basting, A. (in press) StoryCorps Memory Loss Initiative: Enhancing personhood for storytellers with memory loss. Dementia: The International Journal of Social Research and Practice.Google Scholar
  25. Small, J.A., & Perry, J. (2005) Do you remember? How caregivers question their spouses who have Alzheimer’s disease and the impact on communication. Journal of Speech, Language, and Hearing Research, 48(1), 125–136.PubMedCrossRefGoogle Scholar
  26. Woods, B. (1994) Management of memory impairment in older people with dementia. International Review of Psychiatry, 6(2/3), 153–161.CrossRefGoogle Scholar
  27. Woods, R. T., & McKiernan, F. (1995) Evaluating the impact of reminiscence on older people with dementia. In B.K. Haight & J. Webster (Eds.), Art and science of reminiscing: Theory, research, methods, and applications (pp. 233–242). Washington DC: Taylor and Francis.Google Scholar

Copyright information

© Springer New York 2011

Authors and Affiliations

  • Barbara Purves
    • 1
  • Marie Y. Savundranayagam
  • Elizabeth Kelson
  • Arlene Astell
  • Alison Phinney
  1. 1.University of British ColumbiaVancouverCanada

Personalised recommendations