Essentially Whose? Genetic Testing and the Ownership of Genetic Information
In March 2003, following extensive public consultation, the Australian Law Reform Commission (ALRC) and the Australian Health Ethics Committee (AHEC) produced their final report entitled: Essentially Yours: The Protection of Human Genetic Information in Australia (ALRC-AHEC, 2003). The Commission made many recommendations according to the main theme encapsulated in the title that clearly preserve the right of individuals to ownership of their own genetic information. In doing so, the Commission endorsed the universal application of the broad ethical values of ‘‘protecting the integrity of the person, human dignity, autonomy and the individual’s right to consent’’1 to all forms of genetic testing, including paternity testing.
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