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Contextual, Cultural, and Sociopolitical Issues in Caring for Latinxs with Dementia: When the Mind Forgets and the Heart Remembers

Abstract

Latinxs in the USA continue to be disproportionately impacted by dementia. Despite its prevalence within the Latinx community, there is a dearth of literature that explicitly addresses the unique cultural ways in which patients and families of Latinx descent experience, describe, understand, and manage brain-related diseases such as dementia. This chapter provides a nuanced and complex understanding of the contextual and sociopolitical factors (e.g., racial biases, xenophobia, institutional barriers) that impact the care of Latinx patients and their families. The central elements that characterize the Latinx culture are described, followed by a section about within-group Latinx differences, which underscores the heterogeneity (e.g., nationality, immigration, race) that exists within this population. Systemic challenges and their impact on diagnosis and symptom management of dementia are provided. The chapter concludes with a brief discussion on how Latinx culture and context impacts the caregiving of Latinxs with dementia.

Keywords

  • Caregiving
  • Dementia
  • Immigration
  • Latino
  • Race
  • Symptom management
  • Systemic challenges
  • Systemic oppression
  • Traditional cultural values
  • Within-group differences
  • Racism

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Notes

  1. 1.

    To include and center the broad range of gender identities present among individuals of Latin American descent, the term Latinx is used throughout the chapter.

References

  • Acosta-Belen, E., & Santiago, C. E. (2006). Puerto Ricans in the United States: A contemporary portrait. Boulder, CO: Lynne Rienner Publications.

    Google Scholar 

  • Adames, H. Y., & Chavez-Dueñas, N. Y. (2017). Cultural foundations and interventions in Latino/a mental health: History, theory, and within group differences. New York, NY: Routledge.

    Google Scholar 

  • Adames, H. Y., Chavez-Dueñas, N. Y., Fuentes, M. A., Salas, S. P., & Perez-Chavez, J. G. (2014). Integration of Latino/a cultural values into palliative health care: A culture centered model. Palliative & Supportive Care, 12(2), 149–157. https://doi.org/10.1017/S147895151300028X

    CrossRef  Google Scholar 

  • Adames, H. Y., Chavez-Dueñas, N. Y., & Organista, K. C. (2016). Skin color matters in Latino/a communities: Identifying, understanding, and addressing Mestizaje racial ideologies in clinical practice. Professional Psychology: Research and Practice, 47(1), 46–55. http://dx.doi.org/10.1037/pro0000062

  • Administration on Aging. (2015). A statistical profile of Hispanic older Americans aged 65+. Retrieved from http://www.aoa.acl.gov/Aging_Statistics/minority_aging/Facts-on-Hispanic-Elderly.aspx

  • Aggarwal, N. T. (2013). Diverse populations, health disparities and dementia. In 2013 NIH/ACL Alzheimer’s Webinar Series. Retrieved from http://www.aoa.acl.gov/AoA_Programs/HPW/Alz_Grants/docs/2013_07_24-DiversityHealthDisparitiesDementia-slides.pdf

  • Alzheimer’s Association. (2010). Alzheimer’s disease facts and figures: Includes a special report on race, ethnicity, and Alzheimer’s disease. Retrieved from http://www.alz.org/documents_custom/report_alzfactsfigures2010.pdf

  • Alzheimer’s Association. (2016a). Alzheimer’s disease facts and figures. Retrieved from www.alz.org/documents_custom/2016-facts-and-figures.pdf

  • Alzheimer’s Association. (2016b). Latinos and Alzheimer’s. Retrieved from http://www.alz.org/espanol/about/latinos_and_alzheimers.asp

  • Añez, L. M., Silva, M. A., Paris, M., & Bedregal, L. E. (2008). Engaging Latinos through the integration of cultural values and motivational interviewing principles. Journal of Professional Psychology: Research and Practice, 39, 155–159.

    Google Scholar 

  • Angel, J. L., Angel, R. J., McClellan, J. L., & Markides, K. S. (1996). Nativity, declining health, and preferences in living arrangements among elderly Mexican Americans: Implications for long term care. The Gerontologist, 36, 464–473.

    CrossRef  CAS  PubMed  Google Scholar 

  • Angel, J. L., Rote, S. M., Brown, D. C., Angel, R. J., & Markides, K. S. (2014). Nativity status and sources of care assistance among elderly Mexican-origin adults. Journal of Cross-Cultural Gerontology, 29, 243–258. https://doi.org/10.1007/s10823-014-9234-9

    CrossRef  PubMed  PubMed Central  Google Scholar 

  • Angel, R. J., & Angel, J. L. (2009). Hispanic families at risk: The new economy, work, and the welfare state. New York: Springer Sciences.

    CrossRef  Google Scholar 

  • Apesoa-Varano, E. C., Barker, J. C., & Hinton, L. (2012). Mexican-American families and dementia: An exploration of “work” in response to dementia-related aggressive behavior. In Aging, health, and longevity in the Mexican-origin population (pp. 277–291). New York, NY: Springer.

    CrossRef  Google Scholar 

  • Arce, C. H., Murgia, E., & Frisbie, W. P. (1987). Phenotype and life chances among Chicanos. Hispanic Journal of Behavioral Sciences, 9, 19–22.

    CrossRef  Google Scholar 

  • Arévalo-Flechas, L. C., Acton, G., Escamilla, M. I., Bonner, P. N., & Lewis, S. L. (2014). Latino Alzheimer’s caregivers: What is important to them? Journal of Managerial Psychology, 29(6), 661–684.

    CrossRef  Google Scholar 

  • Atkinson, D. R., Morten, G., & Sue, D. W. (1989). Counseling American minorities: A cross-cultural perspective. Dubuque, IA: Brown.

    Google Scholar 

  • Ayalon, L., & Areán, P. A. (2004). Knowledge of Alzheimer’s disease in four ethnic groups of older adults. International Journal of Geriatric Psychiatry, 19(1), 51–57.

    CrossRef  PubMed  Google Scholar 

  • Bernal, G., Jiménez-Chafey, M. I., & Domenech Rodríguez, M. M. (2009). Cultural adaptation of treatments: A resource for considering culture in evidence-based practice. Professional Psychology: Research and Practice, 40(4), 361–368. https://doi.org/10.1037/a0016401

    CrossRef  Google Scholar 

  • Berry, J. W. (1990). Psychology of acculturation. In R. W. Brislin (Ed.), Applied cross-cultural psychology (pp. 232–253). Newbury Park, CA: Sage.

    CrossRef  Google Scholar 

  • Bosma, H., Apland, L., & Kazanjian, A. (2010). Cultural conceptualizations of hospice palliative care: More similarities than differences. Journal of Palliative Medicine, 24, 510–522.

    CrossRef  Google Scholar 

  • Brown, A., & Patten, E. (2013). Hispanics of Puerto Rican origin in the United States, 2011. Retrieved from www.pewhispanic.org/2013/06/19/hispanics-of-puerto-rican-origin-in-the-united-states-2011/

  • Capielo Rosario, C., Adames, H. Y., Chavez-Dueñas, N. Y., & Rentería, R. (2019). Acculturation Profiles of Central Florida Puerto Ricans: Examining the influence of perceived ethnic-racial discrimination and neighborhood ethnic-racial composition. Journal of Cross-Cultural Psychology, 50(4), 556–576. https://doi.org/10.1177/0022022119835979

    CrossRef  Google Scholar 

  • Carter, R. T. (1991). Cultural values: A review of empirical research and implications for counseling. Journal of Counseling & Development, 70(1), 164–173. https://doi.org/10.1002/j.1556-6676.1991.tb01579x

    CrossRef  Google Scholar 

  • Center for Social Justice at Seton Hall Law School and the Health Justice Program at New York Lawyers for the Public Interest. (CSJ; NYLPI; 2012). Discharge, deportation, and dangerous journeys: A study on the practice of medical repatriation. Retrieved from https://law.shu.edu/ProgramsCenters/PublicIntGovServ/CSJ/upload/final-med-repat-report-2012.pdf

  • Centers for Disease Control and Prevention. (2015). Hispanics’ health in the United States. Retrieved from http://www.cdc.gov/media/releases/2015/p0505-hispanic-health.html

  • Chandler, C. R. (1979). Traditionalism in a modern setting: A comparison of Anglo- and Mexican-American value orientations. Human Organization, 38(7), 153–159.

    CrossRef  Google Scholar 

  • Chavez-Dueñas, N. Y., Adames, H. Y., & Organista, K. C. (2014). Skin-color prejudice and within-group racial discrimination: Historical and current impact on Latino/a populations. Hispanic Journal of Behavioral Sciences, 36(1), 3–26. https://doi.org/10.1177/0739986313511306

    CrossRef  Google Scholar 

  • Chavez-Dueñas, N. Y., Adames, H. Y., Perez-Chavez, J. G., & Salas, S. P. (2019). Healing ethno-racial trauma in Latinx immigrant communities: Cultivating hope, resistance, and action. American Psychologist, 74(1), 49–62. http://dx.doi.org/10.1037/amp0000289

  • Connell, C. M., Roberts, J. S., McLaughlin, S. J., & Carpenter, B. D. (2009). Black and white adult family members’ attitudes toward a dementia diagnosis. Journal of the American Geriatrics Society, 57(9), 1562–1568.

    CrossRef  PubMed  PubMed Central  Google Scholar 

  • Coon, D. W., Rubert, M., Solano, N., Mausbach, B., Kraemer, H., Arguelles, T., … Gallagher-Thompson, D. (2004). Well-being, appraisal, and coping in Latina and Caucasian female dementia caregivers: Findings from the REACH study. Aging & Mental Health, 8(4), 330–345.

    CrossRef  CAS  Google Scholar 

  • Cooper, L. A., & Roter, D. L. (2003). Patient-provider communication: The effect of race and ethnicity on process and outcomes of healthcare. In B. D. Smedley, A. Stith, & A. R. Nelson (Eds.), Unequal treatment: Confronting racial and ethnic disparities in health care (pp. 552–593). Washington, DC: The National Academic Press.

    Google Scholar 

  • Cooper, L. A., Roter, D. L., Johnson, R. L., Ford, D. E., Steinwachs, D. M., & Powe, N. R. (2003). Patient-centered communication, ratings of care, and concordance of patient and physician race. Annals of Internal Medicine, 11, 907–915.

    CrossRef  Google Scholar 

  • Cornelius, W. A. (2009). Ambivalent reception: Mass public responses to the “New” Latino immigration to the United States. In M. M. Suárez-Orozco & M. M. Paez (Eds.), Latinos remaking America (pp. 165–189). Berkeley, CA: University of California Press.

    Google Scholar 

  • Cox, C., & Monk, A. (1993). Hispanic culture and family care of Alzheimer’s patients. Health & Social Work, 18(2), 92–100.

    CrossRef  CAS  Google Scholar 

  • Cox, C. B. (2007). Dementia and social work practice: Research and interventions. New York, NY: Springer.

    Google Scholar 

  • Crist, J. D., Garcia-Smith, D., & Phillips, L. R. (2006). Accommodating the stranger en casa: How Mexican American elders and caregivers decide to use formal care. Research and Theory for Nursing Practice: An International Journal, 20(2), 109–126. https://doi.org/10.1891/088971806780641791

    CrossRef  Google Scholar 

  • Crist, J. D., McEwen, M. M., Herrera, A. P., Kim, S. S., Pasvogel, A., & Hepworth, J. T. (2009). Caregiving burden, acculturation, familism, and Mexican American elders’ use of home care services. Research and Theory for Nursing Practice: An International Journal, 23(3), 165–166. https://doi.org/10.1891/1541-6577.23.3.165

    CrossRef  Google Scholar 

  • Cuéllar, I., Arnold, B., & Maldonado, R. (1995). Acculturation rating scale for Mexican Americans-II: A revision of the original ARSMA scale. Hispanic Journal of Behavioral Sciences, 17, 275–304.

    CrossRef  Google Scholar 

  • De La Cancela, V. (1986). A critical analysis of Puerto Rican machismo: Implications for clinical practice. Psychotherapy Theory, Research, & Practice, 23(2), 291–296. https://doi.org/10.1037/h0085611

    CrossRef  Google Scholar 

  • DeNavas, C., Proctor, B. D., & Smith, J. C. (2011). Income, poverty, and health insurance coverage in the United States: 2010. Washington, DC: United States Census Bureau.

    Google Scholar 

  • Depp, C., Sorocco, K., Kasl-Godley, J., Thompson, L., Rabinowitz, Y., & Gallagher-Thompson, D. (2005). Caregiver self-efficacy, ethnicity, and kinship differences in dementia caregivers. The American Journal of Geriatric Psychiatry, 13(9), 787–794.

    CrossRef  PubMed  Google Scholar 

  • Dilworth-Anderson, P., Hendrie, H. C., Manly, J. J., Khachaturian, A. S., & Fazio, S. (2008). Diagnosis and assessment of Alzheimer’s disease in diverse populations. Alzheimer’s & Dementia: The Journal of the Alzheimer’s Association, 4(4), 305–309. https://doi.org/10.1016/j.jalz.2008.03.001

    CrossRef  Google Scholar 

  • Donelson, K. (2015). Medical repatriation: The dangerous intersection of health care law and immigration. Journal of Health Care Law and Policy, 18(2), 347–369.

    Google Scholar 

  • Emergency Medical Treatment and Active Labor Act (EMTALA; 1986). Retrieved from https://www.cms.gov/Regulations-and-Guidance/Legislation/EMTALA/

  • Espino, D. V., Angel, J. L., Wood, R. C., Finely, M. R., & Ye, Y. (2013). Characteristics of Mexican American elders admitted to nursing facilities in the United States: Data from the Hispanic established populations for epidemiologic studies of the elderly (EPESE) study. Journal of the American Directors Association, 14(3), 226.e221–226.e224.

    Google Scholar 

  • Evercare and the National Alliance for Caregiving. (2008). Evercare study of Hispanic family caregiving in the U.S.: Findings from a national study. Retrieved from http://www.caregiving.org/data/Hispanic_Caregiver_Study_web_ENG_FINAL_11_04_08.pdf

  • Falicov, C. J. (1989). Latino families in therapy (2nd ed.). New York, NY: Guilford Press.

    Google Scholar 

  • Ferri, C. P., Prince, M. J., Brayne, C., Brodaty, H., Fratiglioni, L., Ganguli, M., … Alzheimer’s Disease International. (2005). Global prevalence of dementia: A Delphi consensus study. Lancet, 366(9503), 2112–2117. https://doi.org/10.1016/S0140-6736(05)67889-0

  • Flores, E., Tschann, J. M., Dimas, J. M., Bachen, E. A., Pasch, L. A., & de Groat, C. L. (2008). Perceived discrimination, perceived stress, and mental and physical health among Mexican-origin adults. Hispanic Journal of Behavioral Sciences, 30(4), 401–424. https://doi.org/10.1177/0739986308323056

    CrossRef  Google Scholar 

  • Fortinsky, R. H. (2014). Challenges in supporting people with dementia from Latino backgrounds and their family careers. Workshop presented at Making Research Count Practice Development. King’s College, London.

    Google Scholar 

  • French, B. H., Lewis, J. A., Mosely, D., Adames, H. Y., Chaves-Dueñas, N. Y., Chen, G. A., & Neville, H. A. (2019). Toward a psychological framework of radical healing in Communities of Color. The Counseling Psychologist. https://doi.org/10.1177/0011000019843506

  • Gallagher-Thompson, D., Singer, L. S., Depp, C., Mausbach, B. T., Cardenas, V., & Coon, D. W. (2004). Effective recruitment strategies for Latino and Caucasian dementia family caregivers in intervention research. The American Journal of Geriatric Psychiatry, 12(5), 484–490.

    CrossRef  PubMed  Google Scholar 

  • Gallagher-Thompson, D., Tzuang, M., Hinton, L., Alvarez, P., Rengifo, J., Valverde, I., … Thompson, L. W. (2015). Effectiveness of a fotonovela for reducing depression and stress in Latino dementia family caregivers. Alzheimer Disease and Associated Disorders, 29(2), 146.

    PubMed  PubMed Central  Google Scholar 

  • Gassoumis, Z. D., Wilber, K. H., Baker, L. A., & Torres-Gil, F. M. (2010). Who are the Latino baby boomers? Demographic and economic characteristics of a hidden population. Journal of Aging & Social Policy, 22(1), 53–68.

    CrossRef  Google Scholar 

  • Gil, R. M., & Vasquez, C. I. (1996). The Maria paradox. New York, NY: Perigee.

    Google Scholar 

  • Haan, M. N., Mungas, D. M., Gonzalez, H. M., Ortiz, T. A., Acharya, A., & Jagust, W. J. (2003). Prevalence of dementia in older Latinos: The influence of type 2 diabetes mellitus, stroke and genetic factors. Journal of the American Geriatrics Society, 51, 169–177.

    CrossRef  PubMed  Google Scholar 

  • Helms, J. E. (1990). Black and white racial identity: Theory, research, and practice. Westport, CT: Greenwood Press.

    Google Scholar 

  • Hernandez, A. M., & Bigatti, S. M. (2010). Depression among older Mexican American caregivers. Cultural Diversity and Ethnic Minority Psychology, 16(1), 50–58. https://doi.org/10.1037/a0015867

    CrossRef  PubMed  Google Scholar 

  • Hinton, L., Chambers, D., & Velásquez, A. (2009). Making sense of behavioral disturbances in persons with dementia: Latino family caregiver attributions of neuropsychiatric inventory domains. Alzheimer’s Disease and Associated Disorders, 23(4), 401–405. https://doi.org/10.1097/WAD.0b013e3181a6bc21

    CrossRef  Google Scholar 

  • Hinton, L., Chambers, D., Velásquez, A., Gonzalez, H., & Haan, M. (2006). Dementia neuropsychiatric symptom severity, help-seeking patterns, and unmet needs in the Sacramento Area Latino Study on Aging (SALSA). Clinical Gerontologist, 29(4), 1–16.

    CrossRef  Google Scholar 

  • Hinton, L., Franz, C. E., Yeo, G., & Levkoff, S. E. (2005). Concepts of dementia in a multiethnic sample of caregivers. Journal of the American Geriatrics Society, 53(8), 1405–1410.

    CrossRef  PubMed  Google Scholar 

  • Hinton, L., Haan, M., Gellar, S., & Mungas, D. (2003). Neuropsychiatric symptoms in Latino elders with dementia or cognitive impairment without dementia and factors that modify their association with caregiver depression. The Gerontologist, 43(5), 669–677.

    CrossRef  PubMed  Google Scholar 

  • Hinton, L., Tomaszewski Farias, S., & Wegelin, J. (2008). Neuropsychiatric symptoms are associated with disability in cognitively impaired Latino elderly with and without dementia: Results from the Sacramento Area Latino Study on Aging. International Journal of Geriatric Psychiatry, 23(1), 102–108. https://doi.org/10.1002/gps.1952

    CrossRef  PubMed  PubMed Central  Google Scholar 

  • Inclan, J. (1985). Variations in value orientations in mental health work with Puerto Ricans. Psychotherapy: Theory, Research, Practice, Training, 22(2S), 324–334. https://doi.org/10.1037/h0085511

    CrossRef  Google Scholar 

  • John, R., Resendiz, R., & de Vargas, L. W. (1997). Beyond familism?: Familism as explicit motive for eldercare among Mexican American caregivers. Journal of Cross-Cultural Gerontology, 12, 145–162.

    CrossRef  CAS  PubMed  Google Scholar 

  • Kalibatseva, Z., & Leong, F. L. (2014). A critical review of culturally sensitive treatments for depression: Recommendations for intervention and research. Psychological Services, 11(4), 433–450. https://doi.org/10.1037/10036047

    CrossRef  PubMed  Google Scholar 

  • Karlawish, J., Barg, F. K., Augsburger, D., Beaver, J., Ferguson, A., & Nunez, J. (2011). What Latino Puerto Ricans and non-Latinos say when they talk about Alzheimer’s disease. Alzheimer’s & Dementia: The Journal of the Alzheimer’s Association, 7(2), 161–170. https://doi.org/10.1016/j.jalz.2010.03.015

    CrossRef  Google Scholar 

  • Killin, L. O., Starr, J. M., Shiue, I. J., & Russ, T. C. (2016). Environmental risk factors for dementia: A systematic review. BMC Geriatrics, 16(1), 175. https://doi.org/10.1186/s12877-016-0342-y

    CrossRef  PubMed  PubMed Central  Google Scholar 

  • Kluckhohn, F. R., & Strodtbeck, F. L. (1961). Variations in value orientations. Evanston, IL: Row, Peterson.

    Google Scholar 

  • Kohatsu, E. L., Concepcion, W. R., & Perez, P. (2010). Incorporating levels of acculturation in counseling practice. In J. G. Ponterotto, J. M. Casas, L. A. Suzuki, & C. M. Alexander (Eds.), Handbook of multicultural counseling (2nd ed., pp. 343–456). Thousand Oaks, CA: Sage.

    Google Scholar 

  • Krogstad, J. M., & Lopez, M. H. (2014). Hispanic immigrants more likely to lack health insurance than U.S.-born. Retrieved from http://www.pewresearch.org/fact-tank/2014/09/26/higher-share-of-hispanic-immigrants-than-u-s-born-lack-health-insurance/

  • Kronick, R. F., & Hargis, C. H. (1998). Dropouts: Who drops out and why—And the recommended action. Springfield, IL: Charles C. Thomas Publishing.

    Google Scholar 

  • Kunda, Z., & Sherman-Williams, B. (1993). Stereotypes and the construal of individuating information. Personality and Social Psychology Bulletin, 19, 90–99.

    CrossRef  Google Scholar 

  • Livney, M. G., Clark, C. M., Karlawish, J. H., Cartmell, S., Negrón, M., Nuñez, J., … Arnold, S. E. (2011). Ethnoracial differences in the clinical characteristics of Alzheimer’s disease at initial presentation at an urban Alzheimer’s disease center. The American Journal of Geriatric Psychiatry, 19(5), 430–439. https://doi.org/10.1097/JGP.0b013e3181f7d881

    CrossRef  PubMed  PubMed Central  Google Scholar 

  • Lopez, G., & Patten, E. (2015). The impact of slowing immigration: Foreign-born share falls among 14 largest U.S. Hispanic origin groups. Washington, DC: Pew Research Center. Retrieved from www.pewhispanic.org/2015/09/15/the-impact-of-slowing-immigration-foreign-born-share-falls-among-14-largest-us-hispanic-origin-groups/

  • Losada, A., Shurgot, G. R., Knight, B. G., Márquez, M., Montorio, I., Izal, M., & Ruiz, M. A. (2006). Cross-cultural study comparing the association of familism with burden and depressive symptoms in two samples of Hispanic dementia caregivers. Aging & Mental Health, 10(1), 69–76.

    CrossRef  CAS  Google Scholar 

  • Magaña, S., Schwartz, S., Rubert, M., & Szapocznik, J. (2006). Hispanic caregivers of adults with mental retardation: The importance of family functioning. American Journal on Mental Retardation, 111, 250–262.

    CrossRef  PubMed  Google Scholar 

  • Manly, J. J., & Mayeux, R. (2004). Ethnic differences in dementia and Alzheimer’s disease. In N. B. Anderson, R. A. Bulatao, & B. Cohen (Eds.), Critical perspectives on racial and ethnic differences in health in late life (pp. 95–141). Washington, DC: The National Academic Press.

    Google Scholar 

  • Mehta, K. M., Yin, M., Resendez, C., & Yaffe, K. (2005). Ethnic differences in acetylcholinesterase inhibitor use for Alzheimer disease. Neurology, 65(1), 159–162.

    CrossRef  CAS  PubMed  Google Scholar 

  • Mendez-Luck, C. A., Applewhite, S. R., Lara, V. E., & Toyowaka, N. (2016). The concept of familism in the lived experiences of Mexican-origin caregivers. Journal of Marriage and Family, 78, 813–829. https://doi.org/10.1111/jomf.12300

    CrossRef  PubMed  Google Scholar 

  • Migration Policy Institute. (2014). Profile of the unauthorized population: United States. Retrieved from http://www.migrationpolicy.org/data/unauthorized-immigrant-population/state/US

  • Miller, W. R., & Rollnick, S. (2013). Motivational interviewing: Helping people change. New York, NY: Guilford Press.

    Google Scholar 

  • Montalvo, F. F. (2005). Surviving race: Skin color and the socialization and acculturation of Latinas. Journal of Ethnic and Cultural Diversity in Social Work, 13(3), 25–43.

    CrossRef  Google Scholar 

  • Montalvo, F. F., & Codina, G. E. (2001). Skin color and Latinos in the United States. Ethnicities, 1(3), 321–341. https://doi.org/10.1177/146879680100100303

    CrossRef  Google Scholar 

  • National Conference of State Legislatures. (2011). Immigrant policy project: 2010 Immigration-related laws and resolutions in the States. Retrieved from www.ncsl.org/research/immigration/2010-immigration-related-laws-and-resolutions-in-t.aspx

  • National Council of La Raza. (1990). Immigration reform. Retrieved from http://www.nclr.org/content/topics/detail/500

  • National Council of La Raza. (2008). Five facts about undocumented workers in the United States. Retrieved from http://publications.nclr.org/bitstream/handle/123456789/1002/FS_FiveFacts_1.pdf?sequence=1&isAllowed=y

  • National Hispanic Council on Aging. (2016). Status of Hispanic older adults: Insights from the field report. Retrieved from http://www.nhcoa.org/wp-content/uploads/2016/09/2016-NHCOA-Status-of-Hispanic-Older-Adults-report-.pdf

  • Neary, S. R., & Mahoney, D. F. (2005). Dementia caregiving: The experience of Hispanic/Latino caregivers. Journal of Transcultural Nursing, 16(2), 163–170. https://doi.org/10.1177/1043659604273547

    CrossRef  PubMed  Google Scholar 

  • Organista, K. C. (2007). Solving Latino psychosocial and health problems: Theory, practice, and populations. Hoboken, NJ: Wiley.

    Google Scholar 

  • Ory, M. G., Hoffman, R. R., Yee, J. L., Tennstedt, S., & Schulz, R. (1999). Prevalence and impact of caregiving: A detailed comparison between dementia and nondementia caregivers. The Gerontologist, 39(2), 177–186.

    CrossRef  CAS  PubMed  Google Scholar 

  • Phinney, J. (1989). Stages of ethnic identity development in minority group adolescents. Journal of Early Adolescence, 9, 34–49.

    CrossRef  Google Scholar 

  • Ramos, B., Jaccard, J., & Guilamo-Ramos, V. (2003). Dual ethnicity and depressive symptoms: Implications of being black and Latino/a in the United States. Hispanic Journal of Behavioral Sciences, 25(2), 147–173. https://doi.org/10.1177/0739986303025002002

    CrossRef  Google Scholar 

  • Rodríguez, J. J. L., Ferri, C. P., Acosta, D., Guerra, M., Huang, Y., Jacob, K. S., … Prince, M. J. (2008). Prevalence of dementia in Latin America, China, and India: A population-based cross-sectional survey. Lancet, 372, 464–474.

    CrossRef  PubMed  PubMed Central  Google Scholar 

  • Rodríguez, J. J. L., Valhuerdi, A., Sanchez, I. I., Reyna, C., Guerra, M. A., Copeland, J. R., … Prince, M. J. (2008). The prevalence, correlates and impact of dementia in Cuba: A 10/66 group population-based survey. Neuroepidemiology, 31, 243–251. https://doi.org/10.1159/000165362

    CrossRef  Google Scholar 

  • Romero, A. J., Cuéllar, I., & Roberts, R. E. (2000). Ethnocultural variables and attitudes toward cultural socialization of children. Journal of Community Psychology, 28(1), 79–89. https://doi.org/10.1002/(SICI)1520-6629(200001)28:1<79::AID-JCOP8>3.0.CO;2-N

    CrossRef  Google Scholar 

  • Romero, D. (2016). In the era of trump, anti-Latino hate crimes jumped 69% in L.A. Retrieved from http://www.laweekly.com/news/in-the-era-of-trump-anti-latino-hate-crimes-jumped-69-in-la-7443401

  • Rozario, P. A., & DeRienzis, D. (2008). Familism beliefs and psychological distress among African American women caregivers. The Gerontologist, 48(6), 772–780. https://doi.org/10.1093/geront/48.6.772

    CrossRef  PubMed  Google Scholar 

  • Saetermoe, C. L., Beneli, I., & Busch, R. M. (1999). Perceptions of adulthood among Anglo and Latino parents. Current Psychology, 18(2), 171–184. https://doi.org/10.1007/s12144-999-1026-y

    CrossRef  Google Scholar 

  • Santiago-Rivera, A. L., Adames, H. Y., Chavez-Dueñas, N. Y., & Benson-Florez, G. (2016). The impact of racism on communities of color: Historical contexts and contemporary issues. In A. N. Alvarez, C. T. H. Liang, & H. A. Neville (Eds.), The cost of racism for people of color: Contextualizng Expereinces of discrimination (pp. 229–245). Washington, DC: APA Books. https://doi.org/10.1037/14852-011

    CrossRef  Google Scholar 

  • Santiago-Rivera, A. L., Arredondo, P., & Gallardo-Cooper, M. (2002). Counseling Latinos and la familia: A practical guide. Thousand Oaks, CA: Sage Publications.

    Google Scholar 

  • Scharlach, A. E., Kellam, R., Ong, N., Baskin, A., Goldstein, C., & Fox, P. J. (2006). Cultural attitudes and caregiver service use: Lessons from focus groups with racially and ethnically diverse family caregivers. Journal of Gerontological Social Work, 47(1–2), 133–156. https://doi.org/10.1300/J083v47n01_09

    CrossRef  PubMed  Google Scholar 

  • Schulz, R., O’Brien, A. T., Bookwala, J., & Fleissner, K. (1995). Psychiatric and physical morbidity effects of dementia caregiving: Prevalence, correlates, and causes. The Gerontologist, 35(6), 771–791.

    CrossRef  CAS  PubMed  Google Scholar 

  • Shurgot, G. R., & Knight, B. G. (2005). Influence on neuroticism, ethnicity, familism, and social support on perceived burden in dementia caregivers: Pilot test of the transactional stress and social support model. Journal of Gerontology: Psychological Sciences, 60(6), P331–P334. https://doi.org/10.1093/geronb/60.6.P331

    CrossRef  Google Scholar 

  • Smedley, B. D., Stith, A., & Nelson, A. R. (2003). Unequal treatment: Confronting racial and ethnic disparities in health care. Washington, DC: The National Academic Press.

    Google Scholar 

  • Sontag, D. (2008). Departed from U.S. in a coma, returned to U.S. to be saved. Retrieved from http://www.nytimes.com/2008/11/09/world/americas/09iht-deport.1.17653904.html

  • Sousa, R. M., Ferri, C. P., Acosta, D., Guerra, M., Huang, Y., Jacob, K. S., … Prince, M. (2010). The contribution of chronic diseases to the prevalence of dependence among older people in Latin America, India, and China: A 10/66 dementia research group population-based survey. BioMed Central Geriatrics, 10(53). https://doi.org/10.1186/1471-2318-10-53

  • Stacey, M., Carbone-López, K., & Rosenfeld, R. (2011). Demographic change and ethnically motivated crime: The impact of immigration on anti-Hispanic hate crime in the United States. Journal of Contemporary Criminal Justice, 27, 278–298.

    CrossRef  Google Scholar 

  • Suárez-Orozco, C., & Suárez-Orozco, M. (2001). Children of immigration. Cambridge, MA: Harvard University Press.

    Google Scholar 

  • Szapocznik, J., Scopetta, M. A., & King, O. E. (1978). Theory and practice in matching treatment to the special characteristics and problems of Cuban immigrants. Journal of Community Psychology, 6(2), 112–122. https://doi.org/10.1002/1520-6629(197804)6:2<112::AID-JCOP2290060203>3.0.CO:2-R

    CAS  CrossRef  PubMed  Google Scholar 

  • Talamantes, M. A., Trejo, L., Jiminez, D., & Gallagher-Thompson, D. (2006). Working with Mexican American families. In G. Yeo & D. Gallagher-Thompson (Eds.), Ethnicity and the dementias (2nd ed., pp. 327–340). New York, NY: Routledge.

    Google Scholar 

  • Tobin, J. N., Wassertheil-Smoller, S., Wexler, J. P., Steingart, R. M., Budner, N., Lense, L., & Wachspress, J. (1987). Sex bias in considering coronary bypass surgery. Annals of Internal Medicine, 107(1), 19–25. https://doi.org/10.7326/0003-4819-107-1-19

    CAS  CrossRef  PubMed  Google Scholar 

  • U.S. Census Bureau. (2004). U.S. interim projections by age, sex, race, and Hispanic origin. Retrieved from http://www.census.gov/ipc/www.usinterimproj/

  • U.S. Census Bureau. (2016). Profile America facts for features: Hispanic heritage month 2016. Retrieved from http://www.census.gov/content/dam/Census/newsroom/facts-for-features/2016/cb16-ff16.pdf

  • Valle, R., Cook-Gait, H., & Tazbaz, D. (1993). The cross-cultural Alzheimer/dementia caregiver comparison study. Paper presented at 46th scientific meeting of the Gerontological Society of America. New Orleans, LA.

    Google Scholar 

  • Valle, R., Yamada, A. M., & Matiella, A. C. (2006). Fotonovelas: A health literacy tool for educating Latino older adults about dementia. Clinical Gerontologist, 30(1), 71–88.

    CrossRef  Google Scholar 

  • Van Ryn, M., & Burke, J. (2000). The effect of patient race and socio-economic status on physicians’ perceptions of patients. Social Science & Medicine, 50(6), 813–828. https://doi.org/10.1016/S0277-9536(99)00338-X

    CrossRef  Google Scholar 

  • Velásquez, L. C. (1993). Migrant adults’ perceptions of schooling, learning, and education. Doctoral dissertation College of Education, University of Tennessee, Knoxville, TN.

    Google Scholar 

  • Villarruel, F. A., Carlo, G., Grau, J. M., Azmitia, M., Cabrera, N. J., & Chahin, T. J. (2009). Handbook of U.S. Latino psychology: Development and community-based perspectives. Thousand Oaks, CA: Sage Publications.

    Google Scholar 

  • Wallace, S. P., & Facio, E. L. (1987). Moving beyond familism: Potential contributions of gerontological theory to studies of Chicano/Latino aging. Journal of Aging Studies, 10(1), 337–354.

    CrossRef  Google Scholar 

  • Weiss, C. O., Gonzalez, H. M., Kabeto, M. U., & Langa, K. M. (2005). Differences in amount of informal care received by non-Hispanic whites and Latinos in a nationally representative sample of older Americans. Journal of the American Geriatrics Society, 53(1), 146–151.

    CrossRef  PubMed  Google Scholar 

  • Wu, S., Vega, W. A., Resendez, J., & Jin, H. (2016). Latinos & Alzheimer’s disease: New numbers behind the crisis. Retrieved from https://roybal.usc.edu/wp-content/uploads/2016/10/Latinos-and-AD_USC_UsA2-Impact-Report.pdf

  • Youn, G., Knight, B. G., Jeong, H. S., & Benton, D. (1999). Differences in familism values and caregiving outcomes among Korean, Korean American, and white American dementia caregivers. Psychology and Aging, 14(3), 355–364. https://doi.org/10.1037/0882-7974.14.3.355

    CrossRef  CAS  PubMed  Google Scholar 

  • Zarit, S. H., Todd, P. A., & Zarit, J. M. (1986). Subjective burden of husbands and wives as caregivers: A longitudinal study. The Gerontologist, 26(3), 260–266.

    CrossRef  CAS  PubMed  Google Scholar 

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Chavez-Dueñas, N.Y., Adames, H.Y., Perez-Chavez, J.G., Smith, S.N. (2020). Contextual, Cultural, and Sociopolitical Issues in Caring for Latinxs with Dementia: When the Mind Forgets and the Heart Remembers. In: Adames, H., Tazeau, Y. (eds) Caring for Latinxs with Dementia in a Globalized World. Springer, New York, NY. https://doi.org/10.1007/978-1-0716-0132-7_2

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