Assessing Disease and Health Status
Jana is a 7-year-old girl with cystic fibrosis. She lives with both parents, who work full time outside the home, and her 6-month-old sister. Jana was diagnosed with cystic fibrosis at 3-months of age and her regimen includes (1) pancreatic supplements to be taken with meals and snacks, (2) an inhaled bronchodilator medication t.i.d., (3) an inhaled antibiotic medication t.i.d., (4) chest physiotherapy t.i.d., (5) an inhaled medication to break up mucus in the lungs (DNase) q.d., and (6) increased caloric intake. This regimen is very time consuming and demanding. The parents have reported difficulties in gaining Jana’s cooperation with this regimen and major problems fitting in family social and recreational activities. However, Jana’s pulmonary status has improved on this regimen and she has been gaining weight.
KeywordsCystic Fibrosis Internal Consistency Reliability Juvenile Rheumatoid Arthritis Health Status Measure Health Status Indicator
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