The Dutch Adrenal Network
The incidence of ACC in the Netherlands, a small country in Western Europe with a population of 16.5 million people, is about 20–30 patients a year. Because of the rarity of the disease, the chance of encountering an inexperienced doctor is high. The diagnosis of ACC is often delayed or missed, and patients may be treated incorrectly. The Dutch Adrenal Network is a national cooperation which was founded to gather knowledge and experience in order to improve the quality and efficiency of ACC patient care in the Netherlands.