Skip to main content

Part of the book series: Health Informatics ((HI))

  • 243 Accesses

Abstract

In much the same way that the World Wide Web became indispensable in health, business, entertainment and education, it has become a crucial resource for biomedical researchers and those who participate in their studies. And, as in business, entertainment and education, the Web in biomedical research is no mere source of information, no file cabinet in cyberland. It is a place where people seek out and join research projects and, moreover, as a postmodern agora, the Web is a place where researchers can study the locals and their curious customs.

This is a preview of subscription content, log in via an institution to check access.

Access this chapter

eBook
USD 16.99
Price excludes VAT (USA)
  • Available as EPUB and PDF
  • Read on any device
  • Instant download
  • Own it forever
Softcover Book
USD 54.99
Price excludes VAT (USA)
  • Compact, lightweight edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info
Hardcover Book
USD 54.99
Price excludes VAT (USA)
  • Durable hardcover edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info

Tax calculation will be finalised at checkout

Purchases are for personal use only

Institutional subscriptions

Preview

Unable to display preview. Download preview PDF.

Unable to display preview. Download preview PDF.

References

  1. FDA Modernization Act of 1997, Public Law 105–115, 105th Congress. Section 113, Information program on clinical trials for serious or life-threatening diseases. Food and Drug Administration Web site. Available at: http://www.fda.gov/cder/thics.matters/ind ex.htm. Accessed June 12, 2000.

  2. Associated Press. Clinical trials database for patients goes online. The New York Times. February 29, 2000: A4.

    Google Scholar 

  3. McCray AT, Ide NC. Design and implementation of a national clinical trials registry. J Am Med Inf Assoc. 2000;7:313–323.

    CAS  Google Scholar 

  4. Kahn JP. Shopping for clinical trials: New NIH Web site raises ethical issues. CNN.com Web site, March 6, 2000. Available at: http://www.cnn.com/2000/HEALTH/03/06/ethics.matters/index.htm. Accessed June 12, 2000.

  5. Siang S. Researching ethically with human subjects in cyberspace. Professional Ethics Report. 2000; 12:1, 7–8.

    Google Scholar 

Further Readings

  • Dresser R. Surfing for studies: clinical trials on the Internet. Hastings Center Report. November-December 1999:26–27.

    Google Scholar 

  • Eysenbach G, Diepgen TL. Epidemiological data can be gathered with World Wide Web. BMJ. 1998;316:72.

    PubMed  CAS  Google Scholar 

  • Houston JD, Fiore DC. Online medical surveys: using the Internet as a research tool. MD Comput. 1998;15:116–120.

    PubMed  CAS  Google Scholar 

  • Lakeman R. Using the Internet for data collection in nursing research. Comput Nurs. 1997; 15:269–275.

    PubMed  CAS  Google Scholar 

  • Mueller J. Research on-line: human participants ethics issues. University of Calgary Department of Psychology Web site, Available at: www.psych.ucalgary.ca/Research/Ethics/online.html. Accessed Sept. 26, 2000.

  • Schleyer TKL, Forrest JL. Methods for the design and administration of Web-based surveys. J Am Med Inf Assoc. 2000;7:416–425.

    CAS  Google Scholar 

  • Thomas B, Stamier LL, Lafreniere K, Dumata R. The Internet: An effective tool for nursing research with women. Comput Nurs. 2000;18:13–18.

    PubMed  CAS  Google Scholar 

  • Toomey KE, Rothenberg RB. Sex and cyberspace—virtual networks leading to high-risk sex. JAMA. 2000;284:485–487.

    Article  PubMed  CAS  Google Scholar 

  • Turner JL, Turner DB. Using the Internet to perform survey research. Syllabus. 1998;12:58–61.

    Google Scholar 

  • Wyatt J. When to use Web-based surveys. J Am Med Inf Assoc. 2000;7:426–430.

    CAS  Google Scholar 

Download references

Editor information

Editors and Affiliations

Rights and permissions

Reprints and permissions

Copyright information

© 2002 Springer-Verlag New York, Inc.

About this chapter

Cite this chapter

(2002). Online Challenges for Human Subjects Research. In: Anderson, J.G., Goodman, K.W. (eds) Ethics and Information Technology: A Case-Based Approach to a Health Care System in Transition. Health Informatics. Springer, New York, NY. https://doi.org/10.1007/978-0-387-22488-6_7

Download citation

  • DOI: https://doi.org/10.1007/978-0-387-22488-6_7

  • Publisher Name: Springer, New York, NY

  • Print ISBN: 978-0-387-95308-3

  • Online ISBN: 978-0-387-22488-6

  • eBook Packages: Springer Book Archive

Publish with us

Policies and ethics