Skip to main content

Partnership in Residential Settings

  • Chapter
  • 11 Accesses

Abstract

Most of the literature related to service user participation in general, or specifically to people with learning difficulties, tends to approach the topic with a focus on broad issues of rights and empowerment. Comparatively little literature and research appears to have linked the issues of participation and the health needs of people with learning difficulties, despite the fact that the link between institutional service provision and ill health, both physical and mental, in people with learning difficulties is well established (Greenhalgh, 1994). It is also in spite of the fact that there is an extant literature from within the medical, nursing and psychology fields highlighting the positive effects of service user participation on health and wellbeing (Brearley, 1990). Furthermore, there is a growing recognition that the shift from hospital- to community-based residential care, and thus from a medicalised to a social model of care, has resulted in a downplaying of health issues for people with learning difficulties that, at worst, borders on neglect (Greenhalgh, 1994; Rodgers, 1994; Turner, 1996).

This is a preview of subscription content, log in via an institution.

Preview

Unable to display preview. Download preview PDF.

Unable to display preview. Download preview PDF.

References

  • Beresford, P. ‘A programme for change: current issues in user involvement and empowerment’, in Beresford, P. and Harding, T. (eds) A Challenge to Change: Practical Experiences of Building User-Led Services. (London: National Institute for Social Work, 1993, pp. 9–29).

    Google Scholar 

  • Bouras, N., Kon, Y. and Drummond, C. ‘Medical and psychiatric needs of adults with a mental handicap.’ Journal of Intellectual Disability Research, 37(2)(1993): 177–82.

    Article  PubMed  Google Scholar 

  • Brearley, S. Patient Participation: The Literature. (London: Scutari Press/RCN, 1990).

    Google Scholar 

  • Brechin, A. and Swain, J. Changing Relationships: Shared Action Planning With People with a Mental Handicap. (London: Harper & Row, 1987).

    Google Scholar 

  • Cochran, H., Sran, P.K. and Grace, A.V. ‘The relocation syndrome in mentally retarded individuals.’ Mental Retardation, 15(1977): 10–12.

    Google Scholar 

  • Collins, J. The Resettlement Game: Policy and Procrastination in the Closure of Mental Handicap Hospitals. (London: Values into Action, 1993).

    Google Scholar 

  • Emerson, E. and Hatton, C. Moving Out: The Impact of Relocation from Hospital to Community on the Quality of Life of People with Learning Difficulties. (London: HMSO, 1994).

    Google Scholar 

  • Greenhalgh, L. Improving Access to Health Information for People with Learning Difficulties. (Anglia and Oxford Regional Health Authority, 1994).

    Google Scholar 

  • McGee, J. and Menolascino, F. Beyond Gentle Teaching: A Nonaversive Approach to Helping Those in Need. (London: Plenum Press, 1991).

    Book  Google Scholar 

  • McGee, J., Menolascino, F., Hobbs, F.J. and Menousek, P.E. Gentle Teaching: A Non-Aversive Approach to Helping Persons with Mental Retardation. (New York: Human Sciences Press, 1987).

    Google Scholar 

  • Rodgers, J. ‘Primary health care provision for people with learning difficulties.’ Health and Social Care in the Community, 2(1)(1994): 11–17.

    Article  Google Scholar 

  • Turner, S. ‘Healthy bodies, healthy minds.’ Community Care, 5–10 January (1996): 24–5.

    Google Scholar 

  • Wolfensberger, W. The New Genocide of Handicapped and Afflicted People. (New York: Training Institute for Human Services, Syracuse University, 1987).

    Google Scholar 

  • Wolfensberger, W. ‘A most critical issue: life or death.’ Changes: An International Journal of Psychology and Psychotherapy, 8(1)(1990): 63–73.

    Google Scholar 

Download references

Authors

Editor information

Roberta Astor MA, Cert in Further and Higher Education, RNT, RNLD, RGN, RMN Karen Jeffereys State Registered Dietitian, MSc Applied

Copyright information

© 2000 The Editor(s)

About this chapter

Cite this chapter

Goble, C. (2000). Partnership in Residential Settings. In: Astor, R., Jeffereys, K. (eds) Positive Initiatives for People with Learning Difficulties. Palgrave, London. https://doi.org/10.1007/978-0-333-98659-2_5

Download citation

  • DOI: https://doi.org/10.1007/978-0-333-98659-2_5

  • Publisher Name: Palgrave, London

  • Print ISBN: 978-0-333-67208-2

  • Online ISBN: 978-0-333-98659-2

  • eBook Packages: MedicineMedicine (R0)

Publish with us

Policies and ethics