There’s a whole family hurting: the experience of living with a child with chronic pain

  • Bernadette Carter


Chronic pain, like acute pain, is in the individual child’s head — that is to say, only he or she can experience that pain. This does not mean that the pain is not real: it is real to the child experiencing it even if it is difficult for those outside this individual experience to validate it. This study, undertaken with three children and their families, explores their experiences of living with chronic pain. It provides an insight into their perspective of the way in which pain impacts on their life. The stress experienced as a result of not being believed and of feeling different is explored. The effects of pain in terms of the feelings engendered and the restrictions imposed are considered and reflect that families are not passively giving in to the pain but are active in their attempts to deal with it. The difficulties experienced when interfacing with professionals are presented.


Chronic Pain Juvenile Rheumatoid Arthritis Chronic Pain Patient Reflex Sympathetic Dystrophy Chronic Pain Management 
These keywords were added by machine and not by the authors. This process is experimental and the keywords may be updated as the learning algorithm improves.


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  • Bernadette Carter

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