Skip to main content

Erfassung der Lebensqualität in der Onkologie

  • Chapter
Praxis der Viszeralchirurgie

Zusammenfassung

Nachdem sich die Erkenntnis durchgesetzt hat, dass auch psychosoziale Aspekte bei Krebserkrankungen und ihrer Behandlung eine Rolle spielen, hat sich in den letzten 20 Jahren der Begriff der gesundheitsbezogenen Lebensqualität als Zielkriterium auch in onkologisch-chirurgischen Studien etabliert. Es liegt eine Reihe sowohl krankheitsübergreifender als auch krankheitsspezifischer Verfahren zur Erfassung der Lebensqualität in der Onkologie vor, die auf der Grundlage methodischer Richtlinien entwickelt wurden. Die meisten dieser Instrumentarien genügen psychometrischen Gütekriterien und sind damit zum Einsatz bei Krebspatienten geeignet. Obwohl sie in onkologischen Studien zunehmend häufiger angewendet werden, ist ihr Entwicklungsbedarf für den deutschen Sprachraum im Bereich der Krebserkrankungen nach wie vor groß.

This is a preview of subscription content, log in via an institution to check access.

Access this chapter

Chapter
USD 29.95
Price excludes VAT (USA)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever
eBook
USD 269.00
Price excludes VAT (USA)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever

Tax calculation will be finalised at checkout

Purchases are for personal use only

Institutional subscriptions

Preview

Unable to display preview. Download preview PDF.

Unable to display preview. Download preview PDF.

Literatur

  • Aaronson NK (1989) Quality of life assessment in clinical trials: Methodologic issues. Contrib Clin Trials 10: 195–208

    Google Scholar 

  • Aaronson NK, Beckmann J (1987) Quality of life of cancer patients. Raven, New York

    Google Scholar 

  • Aaronson NK, Ahmedzai S, Bullinger M for the EORTC Quality of Life Group (1993) Validation of the EORTC QLQ 30. J Natl Cancer Inst 85: 365–376

    CAS  PubMed  Google Scholar 

  • Aaronson NK, Cull AM, Stein Kaasa, Sprangers MAG (1996) The European Organization for Research and Treatment of Cancer (EORTC) modular approach to quality of life assessment in oncology: An update. In: Spilker B (ed) Quality of life and pharmaeconomics in clinical trials. Lippincott-Raven, Philadelphia, pp 179–190

    Google Scholar 

  • Anderson RT, Aaronson NK, Leplège AP, Wilkin D (1996) International use and application of generic health-related quality of life instruments. In: Spilker B (ed) Quality of life and pharmaeconomics in clinical trials. Lippincott-Raven, Philadelphia, pp 613–632

    Google Scholar 

  • Averbeck M, Grote-Kusch M, Leiberich P, Olbrich E, Schöbel S, Schröder A (1989) Skalen zur Erfassung der Lebensqualität (SELT). Institut für Psychologie I und Medizinische Kliniken. Friedrich-Alexander Universität, Erlangen-Nürnberg

    Google Scholar 

  • Barofsky I (1996) Cancer: psychological aspects. In: Spilker B (ed) Quality of life and pharmaeconomics in clinical trials. Lippincott-Raven, Philadelphia, pp 993–1002

    Google Scholar 

  • Bergner M, Bobbit RA, Carter WB, Gilson BS (1981) The Sickness Impact Profile: development and final revision of a health status measure. Med Care 19: 780–805

    Google Scholar 

  • Bernhard J, Hürny DT, Coates A, Gelber RD (1996) Applying quality of life principles in international cancer clinical trials. In: Spilker B (ed) Quality of life and pharmaeconomics in clinical trials. Lippincott-Raven, Philadelphia, pp 693–706

    Google Scholar 

  • Berzon RA, Mauskopf JA, Simeon GP (1996) Choosing a health profile (descriptive) and/or a patient-preference (utility) measure for a clinical trial. In: Spilker B (ed) Quality of life and pharmaeconomics in clinical trials. Lippincott-Raven, Philadelphia, pp 375–380

    Google Scholar 

  • Bowling A (1991) Measuring health: a review of quality of life measurment scales. Milton Keynes, Philadelphia, Open University Press

    Google Scholar 

  • Bullinger M (1991) Quality of life — definition, conceptualization and implications: a methodologists view. Theor Surg 6: 143–148

    Google Scholar 

  • Bullinger M (1996) Methoden zur Lebensqualitätsbewertung in der Onkologie. In: Schmoll H-J, Höffgen K, Possinger K (Hrsg) Kompendium Internistischer Onkologie. Springer, Berlin Heidelberg New York Tokio, S 1339–1351

    Google Scholar 

  • Bullinger M (1997) Gesundheitsbezogene Lebensqualität und subjektive Gesundheit. Überblick über den Stand der Forschung zu einem neuen Evaluationskriterium in der Medizin. Psychother Psychosom Med Psychol 47: 76–91

    CAS  PubMed  Google Scholar 

  • Bullinger M, Kirchberger I (1998) Der SF-36 Fragebogen zum Gesundheitszustand — Handbuch für die deutschsprachige Fragebogen-Version. Hogrefe, Göttingen

    Google Scholar 

  • Bullinger M, Kirchberger I, Steinbüchel N von (1993) Der Fragebogen Alltagsleben — ein Verfahren zur Erfassung der gesundheitsbezogenen Lebensqualität. Z Med Psychol 2: 121–131

    Google Scholar 

  • Bullinger M, Kirchberger I, Ware J (1995). Der deutsche SF-36 Health Survey. Übersetzung und psychometrische Testung eines krankheitsübergreifenden Instrumentes zur Erfassung der gesundheitsbezogenen Lebensqualität. Z f Gesundheitswiss 1: 21–36

    Google Scholar 

  • Bullinger M, Power MJ, Aaronson NK, Cella DF, Anderson RT (1996) Creating and evaluating cross-cultural instruments. In: Spilker B (ed) Quality of life and pharmaeconomics in clinical trials. Lippincott-Raven, Philadelphia, pp 659–668

    Google Scholar 

  • Calman KC (1987) Definition and dimensions of quality of life. In: Aaronson N, Beckman J, Bernheim J, Zittoun R (eds) The quality of life of cancer patients. Raven, New York

    Google Scholar 

  • Cassileth BR, Walsh WP, Lusk EJ (1988) Psychosocial correlates of cancer survival: a subsequent report 3 to 8 years after cancer diagnosis. J Clin Oncol 6(11): 1753–1759

    CAS  PubMed  Google Scholar 

  • Cella D, Tulsky DS, Gray G (1993) The Functional Assessment of Cancer Therapy (FACT) Scale: Development and validation of the general measure. J Clin Oncol 11: 572–579

    Google Scholar 

  • Cella DF, Bonomi AE (1996) The Functional Assessment of Cancer Therapy (FACT) and Functional Assessment of HIV Infection (FAHI) quality of life measurement system. In: Spilker B (eds) Quality of life and pharmaeconomics in clinical trials. Lippincott-Raven, Philadelphia, pp 203–214

    Google Scholar 

  • Chambers LW (1996) The McMaster Health Index Questionnaire. In: Spilker B (ed) Quality of life and pharmaeconomics in clinical trials. Lippincott-Raven, Philadelphia, pp 267–280

    Google Scholar 

  • Clinch JJ (1996) The Functional Living Index-Cancer: Ten years later. In: Spilker B (ed) Quality of life and pharmaeconomics in clinical trials. Lippincott-Raven, Philadelphia, pp 215–226

    Google Scholar 

  • Clinical Consensus Meeting Group (2003) Quality of life III: Translating the science of quality of life assessment into clinical pratice — an example-driven approach for practicing clinicians and clinical researchers. Clinical Therapeutics 25: D1–D52

    Google Scholar 

  • Coates A, Gebski V, Signorini D, Murray P, McNeil D, Byrne M, Forbes JF (1992) Prognostic value of quality-of-life scores during chemotherapy for advanced breast cancer. Australian New Zealand Breast Cancer Trials Group. J Clin Oncol 10(12): 1833–1838

    CAS  PubMed  Google Scholar 

  • Curran D, Van Dongen JP, Aaronson NK on behalf of the European Organisation for Research and Treatment of Cancer (EORTC) Breast Cancer Cooperative Group (BCCG) (1998) Quality of early breast cancer patients treated with radical mastectomy or breast conserving procedures: results of EORTC Trials 10801. Eur J Cancer 34: 307–314

    Article  CAS  PubMed  Google Scholar 

  • Damiano AM (1996) The Sickness Impact Profile. In: Spilker B (ed) Quality of life and pharmaeconomics in clinical trials, Lippincott-Raven, Philadelphia, pp 347–354

    Google Scholar 

  • Derogatis LR (1992) SCL-90-R, administration, scoring and procedures manual-II for the R(evised) version and other instruments of the Psychopathology Rating Scale Series. Townson: Clinical Psychometric Research

    Google Scholar 

  • Derogatis LR, Derogatis MF (1996) SCL-90 and the BSI. In: Spilker B (ed) Quality of life and pharmaeconomics in clinical trials. Lippincott-Raven, Philadelphia, pp 323–336

    Google Scholar 

  • Derogatis LR, Fleming MP (1996) Psychological Adjustment to Illness Scale: PAIS and PAIS-SR. In: Spilker B (ed) Quality of life and pharmaeconomics in clinical trials. Lippincott-Raven, Philadelphia, pp 287–300

    Google Scholar 

  • Dorval M, Maunsell E, Deschênes L, Brisson J, Mâsse B (1998) Long-term quality of life after breast cancer: Comparison of 8-year survivors with population controls. Journal of Clinical Oncology 16(2): 487–496

    CAS  PubMed  Google Scholar 

  • Eiser C, Hill JJ, Vance YH (2000) Examining the psychological consequences of surviving childhood cancer: systematic review as a research method in pediatric psychology. J Pediatr Psychol 25(6): 449–460

    Article  CAS  PubMed  Google Scholar 

  • Eypasch E, Troidl H, Wood-Dauphinee S, Williams JI, Reinecke K, Ure B, Neugebauer E (1990) Quality of life and gastrointestinal surgery-A clinimetric approach to developing an instrument for its measurement. Theoretical Surgery 5: 3–10

    Google Scholar 

  • Feeny DH, Torrance GW, Furlong WJ (1996) Health Utilities Index. In: Spilker B (ed) Quality of life and pharmaeconomics in clinical trials. Lippincott-Raven, Philadelphia, pp 239–252

    Google Scholar 

  • Franke GH (1992) Eine weitere Überprüfung der Symptomcheckliste (SCL-90-R) als Forschungsinstrument. Diagostika 38: 160–167

    Google Scholar 

  • Gelber RD, Cole BF, Gelber S, Goldhirsch A (1996) The Q-TWiST method. In: Spilker B (ed) Quality of life and pharmaeconomics in clinical trials. Lippincott-Raven, Philadelphia, pp 437–444

    Google Scholar 

  • Goodyear MDE, Fraumeni MA (1996) Incorporating quality of life assessment into clinical cancer trials. In: Spilker B (ed) Quality of life and pharmaeconomics in clinical trials. Lippincott-Raven, Philadelphia, pp 1003–1014

    Google Scholar 

  • Guyatt H, Jaeschke R, Feeny DH, Patrick DL (1996) Measurements in clinical trials: Choosing the right approach. In: Spilker B (ed) Quality of life and pharmaeconomics in clinical trials. Lippincott-Raven, Philadelphia, pp 41–48

    Google Scholar 

  • Haes J de, Curran D, Young T, Bottomley A, Flechtner H, Aaronson N, Blazeby J, Bjordal K, Brandberg Y, Greimel E, Maher J, Sprangers M, Cull A, for the EORTC Quality of Life Study (2000) Quality of life evaluation in oncological clinical trials-the EORTC model. Eur J Cancer 36: 821–825

    PubMed  Google Scholar 

  • Haes JC de, Curran D, Aaronson NK, Fentiman IS on behalf of the European Organisation for Research and Treatment of Cancer (EORTC) Breast Cancer Cooperative Group (BCCG) (2003) Quality of life in breast cancer patients aged over 70 years, participating in the EORTC 10850 randomised clinical trial. Eur J Cancer 39: 945–951

    PubMed  Google Scholar 

  • Hasenbring M, Kurtz B, Marienfeld G (1989) Erfahrungen mit dem Kieler Interview zur subjektiven Situation (KISS). In: Verres R, Hasenbring M (Hrsg) Psychosoziale Onkologie. Jahrbuch der medizinischen Psychologie. Springer, Berlin Heidelberg New York Tokio, S 68–84

    Google Scholar 

  • Heinrich RL, Schag CC, Ganz PA (1984) Living with cancer: The cancer inventory of problem Sstuations. J Clin Psychol 40: 972–980

    CAS  PubMed  Google Scholar 

  • Henrich G, Herschbach P, Rad M von (1992) Lebensqualität in den alten und neuen Bundesländern. Psychother Med Psychol 42: 31–32

    CAS  Google Scholar 

  • Holland J (ed) (1998) Psycho-Oncology. Oxford University Press, New York

    Google Scholar 

  • Hunt SM, McEwen J, McKenna SP, Williams J, Papp E (1981) The Nottingham Health Profile: subjective health status and medical consultations. Soc Sci Med 15a: 221–229

    Google Scholar 

  • Kaplan RM, Bush JW, Berry CC (1976) Health status: types of validity and the index of wellbeing. Health Services Research 11: 487–507

    Google Scholar 

  • Kiebert GM, Haes JCJM de, Velde CJH van de (1991) Quality of life after mastectomy and breast conserving surgery: a review. J Clin Oncol 9: 1059–1070

    CAS  PubMed  Google Scholar 

  • Kind P (1996) The EuroQoL Instrument: An index of health-related quality of life. In: Spilker B (ed) Quality of life and pharmaeconomics in clinical trials. Lippincott-Raven, Philadelphia, pp 191–202

    Google Scholar 

  • Knippenberg FCE van, Negt JP (1990) Measuring psychological and physical distress in cancer patients: Structure and application of the Rotterdam Symptom Checklist. Br J Cancer 62: 1034–1038

    PubMed  Google Scholar 

  • Kohlmann T, Bullinger M, Kirchberger-Bleimstein I (1997) Die deutsche Form des Nottingham Health Profiles — Skalenstruktur, Reliabilität und Validität. Soz Präventiv Med 42: 175–185

    CAS  Google Scholar 

  • Levine RJ (1996) Quality of life assessments in clinical trials: An ethical perspective. In: Spilker B (ed) Quality of life and pharmaeconomics in clinical trials. Lippincott-Raven, Philadelphia, pp 489–496

    Google Scholar 

  • Lydick EG, Epstein RS (1996) Clinical significance of quality of life data. In: Spilker B (ed) Quality of life and pharmaeconomics in clinical trials. Lippincott-Raven, Philadelphia, pp 461–466

    Google Scholar 

  • McDowell I, Newell C (eds) (1987) Measuring health: a guide to rating scales and questionnaires. Oxford University Press, New York

    Google Scholar 

  • McEwen J, McKenna SP (1996) Nottingham Health Profile. In: Spilker B (ed) Quality of life and pharmaeconomics in clinical trials. Lippincott-Raven, Philadelphia, pp 281–286

    Google Scholar 

  • Mehnert A, Petersen C, Koch U (2003) Empfehlungen zur psychoonkologischen Versorgung im Akutkrankenhaus. Z Med Psychologie 12: 72–84

    Google Scholar 

  • Moinpour CM (1997) Do quality of life assessments make a difference in the evaluation of cancer treatment? Controlled Clin Trials 18: 311–317

    CAS  PubMed  Google Scholar 

  • Mosconi P, Colozza M, De Laurentiis M, De Placido S, Maltoni M (2001) Survival, quality of life and breast cancer. Annals of Oncology 12(3): 15–19

    Article  Google Scholar 

  • Najman JM, Levine S (1981) Evaluating the impact of medical care and technology on quality of life: A review and critique. Soc Sci Med 15F: 107–115

    PubMed  Google Scholar 

  • National Institutes of Health Consensus Development Panel (1992), p 17

    Google Scholar 

  • Naughton MJ, Shumaker SA, Anderson RT, Czajkowski SM (1996) Psychological aspects of health-related quality of life measurement: test and scales. In: Spilker B (ed) Quality of life and pharmaeconomics in clinical trials. Lippincott-Raven, Philadelphia, pp 117–132

    Google Scholar 

  • Nelson EC, Wasson JH, Johnson DJ, Hays RD (1996) Dartmouth COOP Functional Health Assessment Charts: brief measures for clinical practice. In: Spilker B (ed) Quality of life and pharmaeconomics in clinical trials. Lippincott-Raven, Philadelphia, pp 161–168

    Google Scholar 

  • Nunnally JC (1978) Psychometric theory. McGraw-Hill, New York

    Google Scholar 

  • Orley J and the WHOQOL Group (1994) The development of the WHO Quality of Life Assessment Instruments (The WHOQOL). In: Orley J, Kuyken W (eds) Quality of life assessment: International perspectives. Springer, Berlin Heidelberg New York Tokio, pp 41–57

    Google Scholar 

  • Padilla GV, Grant MM, Ferrell BR, Presant CA (1996) Quality of life — cancer. In: Spilker B (ed) Quality of life and pharmaeconomics in clinical trials. Lippincott-Raven, Philadelphia, pp 301–308

    Google Scholar 

  • Patrick DL, Erickson P (1992) Health status and health policy. Oxford University Press, New York

    Google Scholar 

  • Poulsen B, Graversen HP, Beckmann J, Blichert-Toft M (1997) A comparative study of postoperative psychosocial function in women with primary operable breast cancer randomized to breast conservation therapy or mastectomy. Eur J Sur Oncol 23: 327–334

    CAS  Google Scholar 

  • Ramey DR, Fries JF, Singh G (1996) The Health Assessment Questionnaire 1995-Status and review. In: Spilker B (ed) Quality of life and pharmaeconomics in clinical trials. Lippincott-Raven, Philadelphia, pp 227–238

    Google Scholar 

  • Revicki DA (1996) Relationship of pharmaeconomics and health-related quality of life. In: Spilker B (ed) Quality of life and pharmaeconomics in clinical trials. Lippincott-Raven, Philadelphia, pp 1077–1084

    Google Scholar 

  • Schipper H, Clinch J, McMurray A, Levitt M (1984) Measuring the quality of life of cancer patients: the Functional Living Index Cancer: development and validation. J Clin Oncol 2: 472–483

    CAS  PubMed  Google Scholar 

  • Schipper H, Clinch JJ, Olweny ChLM (1996) Quality of life studies: definition and conceptual issues. In: Spilker B (ed) Quality of life and pharmaeconomics in clinical trials. Lippincott-Raven, Philadelphia, pp 11–24

    Google Scholar 

  • Schulz H, Winzer A, Koch U (2001) Beeinflussung der Lebensqualität von Tumorpatienten durch psychoonkologische Interventionen. Onkologe 2: 157–166

    Google Scholar 

  • Schwartz CE, Sprangers MAG (1999) Methodological approaches for assessing response shift in longitudinal health-related quality-of-life research. Soc Sci Med 48: 1531–1548

    CAS  PubMed  Google Scholar 

  • Sehlen S, Fahmuller H, Herschbach P, Aydemir U, Lenk M, Duhmke E (2003) Psychometrische Eigenschaften des Stress Index RadioOnkologie (SIRO)-ein neuer Fragebogen zur Erfassung der Lebensqualität bei Patienten unter Strahlentherapie. Strahlenther Onkol 179(4): 261–269

    Article  PubMed  Google Scholar 

  • Selby PJ, Chapman JA, Etazadi-Amoli J, Dalley D, Boyd NF (1984) The development of a method for assessing the quality of life of cancer patients. Br J Cancer 50: 13–22

    CAS  PubMed  Google Scholar 

  • Sloan JA, Cella D, Frost M, Guyatt GHJ, Sprangers M, Symonds T and the Clinical Significance Consensus Meeting Group (2002) Assessing clinical significance in measuring oncology patient quality of life: introduction to the symposium, content overview, and definition of terms. Mayo Clin Proc 77: 367–370

    PubMed  Google Scholar 

  • Spilker B (1996) Introduction to the field of quality of life trials. In: Spilker B (ed) Quality of life and pharmaeconomics in clinical trials. Lippincott-Raven, Philadelphia, pp 1–10

    Google Scholar 

  • Spitzer WO, Dobson AJ, Hall J et al. (1981) Measuring the quality of life of cancer patients. A concise QL-Index for use by physicians. J Chron Dis 34: 585–597

    Article  CAS  PubMed  Google Scholar 

  • Sprangers MAG (2002) Quality of life assessment in oncology-achievements and challenges. Acta Oncologica 41(3): 229–237

    Article  PubMed  Google Scholar 

  • Stewart AL, Ware J (1992) Measuring function and wellbeing. Duke University Press, Durham/NC

    Google Scholar 

  • Szabo S (The WHOQOL Group) (1996) The World Health Organization Quality of Life (WHOQOL) Assessment Instrument. In: Spilker B (ed) Quality of life and pharmaeconomics in clinical trials. Lippincott-Raven, Philadelphia, pp 355–362

    Google Scholar 

  • The WHOQOL Group (1998a) The World Health Organization Quality of Life Assessment (WHOQOL): development and general psychometric properties. Social Sciences Medicine 46(12): 1569–1585

    Google Scholar 

  • The WHOQOL Group (1998b) Development of the World Health Organization WHOQOL-BREF quality of life assessment. Psychol Med 28(3): 551–558

    Google Scholar 

  • Ware JE (1987) Standards for validating health measures. Definition and content. J Chron Dis 40: 503–512

    Google Scholar 

  • Ware JE (1996) The SF-36 Health Survey. In: Spilker B (ed) Quality of life and pharmaeconomics in clinical trials. Lippincott-Raven, Philadelphia, pp 337–346

    Google Scholar 

  • Ware JE, Keller SD (1996) Interpreting general health measures. In: Spilker B (ed) Quality of life and pharmaeconomics in clinical trials. Lippincott-Raven, Philadelphia, pp 445–460

    Google Scholar 

  • Westhoff G (1993) Handbuch Psychosozialer Messinstrumente. Hogrefe, Stuttgart

    Google Scholar 

Download references

Authors

Editor information

Editors and Affiliations

Rights and permissions

Reprints and permissions

Copyright information

© 2006 Springer Medizin Verlag Heidelberg

About this chapter

Cite this chapter

Bullinger, M., Petersen, C., Mehnert, A. (2006). Erfassung der Lebensqualität in der Onkologie. In: Siewert, J.R., Rothmund, M., Schumpelick, V. (eds) Praxis der Viszeralchirurgie. Springer, Berlin, Heidelberg. https://doi.org/10.1007/3-540-30036-8_29

Download citation

  • DOI: https://doi.org/10.1007/3-540-30036-8_29

  • Publisher Name: Springer, Berlin, Heidelberg

  • Print ISBN: 978-3-540-21914-9

  • Online ISBN: 978-3-540-30036-6

  • eBook Packages: Medicine (German Language)

Publish with us

Policies and ethics