Counselling Parents of Retinoblastoma Patients

  • Sonal S. ChauguleEmail author


Counselling of parents of a child diagnosed with retinoblastoma is a crucial part of his/her treatment. When talking to parents of a child with retinoblastoma, The clinician should outline the diagnosis, staging, evidence based treatment options, importance of a tailored protocol and local with systemic outcomes as explained in this chapter.


Retinoblastoma Counselling in RB 


Financial Disclosure


Conflict of Interest



  1. 1.
    Moll AC, Kuik DJ, Bouter LM, et al. Incidence and survival of retinoblastoma in The Netherlands: a register based study 1862-1995. Br J Ophthalmol. 1997;81:559–62.CrossRefGoogle Scholar
  2. 2.
    Broaddus E, Topham A, Singh AD. Incidence of retinoblastoma in the USA: 1975-2004. Br J Ophthalmol. 2009;93:21–3.CrossRefGoogle Scholar
  3. 3.
    Seregard S, Lundell G, Svedberg H, et al. Incidence of retinoblastoma from 1958 to 1998 in Northern Europe: advantages of birth cohort analysis. Ophthalmology. 2004;111:1228–32.CrossRefGoogle Scholar
  4. 4.
    Krishna SM, Yu GP, Finger PT. The effect of race on the incidence of retinoblastoma. J Pediatr Ophthalmol Strabismus. 2009;46:288–93.CrossRefGoogle Scholar
  5. 5.
    Abramson DH, Shields CL, Munier FL, Chantada GL. Treatment of retinoblastoma in 2015: agreement and disagreement. JAMA Ophthalmol. 2015;133(11):1341–7.CrossRefGoogle Scholar
  6. 6.
    Kivela T. The epidemiological challenge of the most frequent eye cancer: retinoblastoma, an issue of birth and death. Br J Ophthalmol. 2009;93:1129–31.CrossRefGoogle Scholar
  7. 7.
    Shields CL, Shields JA. Basic understanding of current classification and management of retinoblastoma. Curr Opin Ophthalmol. 2006;17:228–34.CrossRefGoogle Scholar
  8. 8.
    Mallipatna A, Gallie BL, Chévez-Barrios P, et al. Retinoblastoma. In: Amin MB, Edge SB, Greene FL, editors. AJCC cancer staging manual. 8th ed. New York: Springer; 2017. p. 819–31.Google Scholar
  9. 9.
    AlAli A, Kletke S, Gallie B, Lam WC. Retinoblastoma for pediatric ophthalmologists. Asia Pac J Ophthalmol. 2018;7(3):160–8. Scholar
  10. 10.
    Mallipatna AC, Sutherland JE, Gallie BL, et al. Management and outcome of unilateral retinoblastoma. J AAPOS. 2009;13:546–50.CrossRefGoogle Scholar
  11. 11.
    Yousef YA, Soliman SE, Astudillo PP, et al. Intra-arterial chemotherapy for retinoblastoma: a systematic review. JAMA Ophthalmol. 2016;134:584–91.CrossRefGoogle Scholar
  12. 12.
    Honavar SG, Manjandavida FP, Reddy VA. Orbital retinoblastoma: an update. Indian J Ophthalmol. 2017;65(6):435–42.CrossRefGoogle Scholar
  13. 13.
    Skalet AH, Gombos DS, Gallie BL, et al. Screening children at risk for retinoblastoma. Ophthalmology. 2018;125(3):453–8.CrossRefGoogle Scholar
  14. 14.
    Roelofs K, Shaikh F, Astle W, et al. Incidental neuroblastoma with bilateral retinoblastoma: what are the chances? Ophthalmic Genet. 2018;39:410–3.CrossRefGoogle Scholar
  15. 15.
    Soliman SE, Racher H, Zhang C, et al. Genetics and molecular diagnostics in retinoblastoma--an update. Asia Pac J Ophthalmol. 2017;6:197–207.Google Scholar
  16. 16.
    Soliman SE, Dimaras H, Khetan V, et al. Prenatal versus postnatal screening for familial retinoblastoma. Ophthalmology. 2016;123:2610–7.CrossRefGoogle Scholar

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© Springer Nature Singapore Pte Ltd. 2020

Authors and Affiliations

  1. 1.Ophthalmic Plastic Surgery, Orbit and Ocular OncologyPBMA’s H V Desai Eye HospitalPuneIndia

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