Empowering Independent Living for People with Autism: Designing Supportive, Low-Cost, Interactive E-Health Environments

  • Winslow Burleson
  • Naomi Newman
  • Ryan Brotman
Part of the Lecture Notes in Computer Science book series (LNCS, volume 7284)

Abstract

An investigation of the Caregiver Autism Residential E-health (CARE) system, a low-cost, end-user deployable smart home technology, has been evaluated for its potential as an empowering assistive technology for adults living with autism. It allows adults living with autism and their caregivers to create personalized smart home interventions that provide motivational support for activities of daily living, social relationships, and safer behaviors. This is achieved through the use of a ubiquitous computing system composed of off-the-shelf consumer electronic technologies. The Environmental Rating Scale (ERS), designed to assess residential interventions for people living with autism, guided the development and evaluation of CARE/ERS heuristics and interaction scenarios. The contributions of this investigation, advanced through an iterative design process involving expert reviewers, caregivers, and end-users in a patient centered approach for the design of actualizing e-health interventions, can be readily applied to a broad range of residential circumstances that improve quality of life.

Keywords

Autism Smart Homes E-Health Multimedia Services Assistive Technology 

Preview

Unable to display preview. Download preview PDF.

Unable to display preview. Download preview PDF.

References

  1. 1.
    Advancing Futures for Adults with Autism (2011), http://www.afaa-us.org/site/ (retrieved December 15, 2011 )
  2. 2.
    Ahrentzen, S., Barger, T., Blackbourn, J., Bosworth, G., Gerhardt, P., Hannah, N., et al.: Opening Doors: A Discussion of Residential Options for Adults Living With Autism and Related Disorders. Autism Center (2009), http://www.autismcenter.org/documents/openingdoors_print_042610_001.pdf (retrieved December 15, 2011 )
  3. 3.
    Ahrentzen, S., Steele, K.: Advancing Full Spectrum Housing: Designing for Adults with Autism Spectrum Disorders. Arizona Board of Regents, Tempe (2010)Google Scholar
  4. 4.
    American Psychiatric Association, Diagnostic and Statistical Manual of Mental Disorders IV, Text Revision, Washington, DC, p. 70 (July 2000)Google Scholar
  5. 5.
    Autism Spectrum Disorder. Center for Disease Control and Prevention (2010), http://www.cdc.gov/ncbddd/autism/index.html (retrieved on December 15, 2011)
  6. 6.
    Berberrt, R., Carrier, R., Bilodeau, A.: The Functional Autonomy Measurement System (SMAF): Description and validation of an instrument for the measurement of handicaps. Age and Ageing 17, 293–302 (1988)CrossRefGoogle Scholar
  7. 7.
    Burke, M., Kraut, R., Williams, D.: Social use of computer-mediated communication by adults on the autism spectrum. In: ACM CSCW 2010: Conference on Computer-Supported Cooperative Work, pp. 425–434 (2010)Google Scholar
  8. 8.
    Buxton, B.: Sketching User Experiences: Getting the Design Right and the Right Design. Morgan Kaufman, CA (2007)Google Scholar
  9. 9.
    Carmien, S., Dawe, M., Fischer, G., Gorman, A., Kintsch, A., Sullivan Jr., J.: Socio-technical environments supporting people with cognitive disabilities using public transportation. ACM Transactions on Human Computer Interactions 12(2), 233 (2005)CrossRefGoogle Scholar
  10. 10.
    Carroll, J.: Scenario-based design: envisioning work and technology in system development. John Wiley & Sons, Inc., New York (1995)Google Scholar
  11. 11.
    Cook, D.J., Youngblood, M., Heierman, E., Gopalratnam, K., Rao, S., Litvin, A., Khawaja, F.: MavHome: An agent-based smart home. In: Proceedings of Pervasive Computing 2003, pp. 521–524 (2003)Google Scholar
  12. 12.
    Fogg, B., Grudin, J., Nielsen, J., Card, S.: Persuasive Technology: Using Computers to Change What We Think and Do. Science & Technology Books (2002)Google Scholar
  13. 13.
    Geurts, H.M., Luman, M., Van Meel, C.S.: What’s in a game: the effect of social motivation on interference control in boys with ADHD and autism spectrum disorders. Journal of Child Psychology and Psychiatry 49, 848–857 (2008)CrossRefGoogle Scholar
  14. 14.
    Helfrich, D., Adrian, M.: Comfort, Clarity and Calm: Architecture for Autism. AUTISM Advocate 52(3), 1–6 (2008)Google Scholar
  15. 15.
    Heller, T., Caldwell, J.: Innovative project supports later-life planning for adults and their aging family caregivers. Maximizing Human Potential 8(3), 4–5 (2001)Google Scholar
  16. 16.
    Howlin, P., Goode, S.: Outcome in adult life for individuals with autism. In: Volkmar, F. (ed.) Autism and Developmental Disorders. Cambridge University Press (1998)Google Scholar
  17. 17.
    Indigo 4.0. Perceptive Automation (2011), http://www.perceptiveautomation.com/indigo/ (retrieved December 15, 2011)
  18. 18.
    Jabrink, K., Knapp, M.R.J.: The Economic Impact of Autism in Britain. Autism 5(1), 7–22 (2001)CrossRefGoogle Scholar
  19. 19.
    Kientz, J., Patel, S., Jones, B., Price, E., Mynatt, E., Abowd, G.: The Georgia Tech aware home. In: CHI 2008 Extended Abstracts on Human Factors in Computing Systems (2008)Google Scholar
  20. 20.
    Krauss, M.W., Seltzer, M.M., Jacobson, H.T.: Adults with Autism living at home or in non-family settings: Positive and negative aspects of residential status. Journal of Intellectual Disability Research 49, 111–124 (2005); Anderson, R.E.: Social impacts of computing: Codes of professional ethics. Social Science Computing Review 10(2), 453–469 (1992)CrossRefGoogle Scholar
  21. 21.
    Kraemer, B.R., Blacher, J.: Transition for young adults with severe mental retardation: school preparation, parent expectations, and family involvement. Mental Retardation 39, 423–435 (2001)CrossRefGoogle Scholar
  22. 22.
    Kraemer, B., McIntyre, L., Blacher, J., James, S.: Quality of Life for Young Adults With Mental Retardation During Transition. Mental Retardation 41(4), 250–262 (2003)CrossRefGoogle Scholar
  23. 23.
    Leroy, G., De Leo, G.: Mobile Communication and Data Gathering Software for Autistic Children and Their Caregivers. Paper presented at the Positive Design: Technology + Design + Management = Creating New Models of Possibility for All, Monterrey, Mexico (2008) Google Scholar
  24. 24.
    Madsen, M., El Kaliouby, R., Goodwin, M., Picard, R.: Technology for just-in-time in-situ learning of facial affect for persons diagnosed with an autism spectrum disorder. In: Proceedings of the 10th International ACM SIGACCESS Conference on Computers and Accessibility (2008)Google Scholar
  25. 25.
    Mahoney, D.: Linking Home Care and the Workplace Through Innovative Wireless Technology: The Worker Interactive Networking (WIN) Project. Home Health Care Management Practice 16, 417–428 (2004)CrossRefGoogle Scholar
  26. 26.
    Mahoney, D., Mahoney, E., Liss, A.: AT EASE: Automated Technology for Elder Assessment, Safety, and Environmental monitoring. Gerontechnology 8(1), 11–25 (2009)CrossRefGoogle Scholar
  27. 27.
    Matson, J.L., Benavidez, D.A., Compton, L.S., Paclawskyj, T., Baglio, C.: Behavioral treatment of autistic persons. Research in Developmental Disabilities 17, 433–465 (1996)CrossRefGoogle Scholar
  28. 28.
    Matson, J.L., Boisjoli, J.A.: The token economy for children with intellectual disability and/or autism: a review. Research in Developmental Disabilities 30, 240–248 (2009)CrossRefGoogle Scholar
  29. 29.
    McGee, G., Krantz, P., Mason, D., McClannahan, L.: A modified incidental-teaching procedure for autistic youth: acquisition and generalization of receptive object labels. Journal of Applied Behavior Analysis 16(3), 329–338 (1983)CrossRefGoogle Scholar
  30. 30.
    MetLife Market Survey of Nursing Home, Assisted Living, Adult Day Services, and Home Care Costs (2010), http://www.metlife.com/assets/cao/mmi/publications/studies/2010/mmi-2010-market-survey-long-term-care-costs.pdf (retrieved on December 15, 2011)
  31. 31.
    Mitchell, P., Parsons, S., Leonard, A.: Using Virtual Environments for Teaching Social Understanding to 6 Adolescents with Autistic Spectrum Disorders. Journal of Autism and Developmental Disorders 37(3), 589–600 (2007)CrossRefGoogle Scholar
  32. 32.
    O’Connor, M.: Linentracker Automates Management of Towels, Sheets. RFID Journal (2009), http://www.rfidjournal.com/article/view/533 (retrieved on December 15, 2011)
  33. 33.
    Olivier, P., Monk, A., Xu, G., Hoey, J.: Ambient kitchen: Designing situated services using a high fidelity prototyping environment, Corfu, Greece, 2 (2009)Google Scholar
  34. 34.
    Pendaphone (2011), http://www.pendaphonics.com (retrieved on December 15, 2011)
  35. 35.
    Teeters, A., El Kaliouby, R., Picard, R.W.: Self-Cam: Feedback From What Would be your Social Partner. In: ACM SIGGRAPH, 2006 Research Posters, Boston, MA, July 30-August 3, p. 138 (2006)Google Scholar
  36. 36.
    Tsui, K. M., Abu-Zahra, K., Casipe, R., M’Sadoques, J., Drury, J. L.: A Process for Developing Specialized Heuristics: Case Study in Assistive Robotics. Computer Science Tech Report 2009-11. University of Massachusetts Lowell, Lowell (2009)Google Scholar
  37. 37.
    Van Bourgondien, M.E., Mesibov, G.: Diagnosis and treatment of adolescents and adults with Autism. In: Dawson, G. (ed.) Autism, pp. 367–385. Guilford Press, New York (1989)Google Scholar
  38. 38.
    Van Bourgondien, G., Reichle, N., Campbell, D., Mesibov, G.: The environmental rating scale: A measure of the quality of the residential environment for adults with autism. Research in Developmental Disabilities 19(5), 381–394 (1998)CrossRefGoogle Scholar
  39. 39.
    Vanderheiden, G., Vanderheiden, K.: Guidelines for the Design of Consumer Products to Increase Their Accessibility to Persons with Disabilities or Who Are Aging (1992), http://trace.wisc.edu/docs/consumer_product_guidelines/consumer.htm (retrieved on December 15, 2011)

Copyright information

© Springer-Verlag Berlin Heidelberg 2012

Authors and Affiliations

  • Winslow Burleson
    • 1
  • Naomi Newman
    • 1
  • Ryan Brotman
    • 1
  1. 1.School of Computing, Informatics, and Decision Systems EngineeringArizona State UniversityUSA

Personalised recommendations