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Psychological Aspects and Challenges of Living with Chronic Kidney Disease for Adolescents

  • Sabrina A. Karczewski
  • Molly Keane
  • Nishita Agarwal Berla
Chapter

Abstract

Adolescents with CKD and their families must simultaneously navigate normative developmental stressors while also managing a significant medical regimen burden. These youth tend to exhibit higher rates of medical non-adherence and are at risk of sustaining serious associated consequences including accelerated disease progression, prolonged dialysis, or loss of transplanted kidney graft. Relatedly, adolescents with CKD are at higher risk for negative psychosocial experiences including elevated symptoms of depression, anxiety, neurocognitive sequelae, sleep disturbance, social stress, family stress, and poorer quality of life. Because these psychological symptoms are also related to medical non-compliance and poorer health outcomes, it is crucial to properly assess and intervene in a timely manner. In this chapter, we summarize literature on psychological aspects of living with CKD including adherence, psychiatric comorbidities, neurocognitive effects, sleep, quality of life, social functioning and peer relationships, caregiver needs, and transition to adulthood.

Keywords

Pediatric Transplantation Psychology Adherence Quality of life Stress Depression Anxiety Sleep 

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Copyright information

© Springer Nature Switzerland AG 2019

Authors and Affiliations

  • Sabrina A. Karczewski
    • 1
  • Molly Keane
    • 2
  • Nishita Agarwal Berla
    • 2
    • 3
  1. 1.Department of PsychologyChildren’s Hospital of Orange County (CHOC Children’s)OrangeUSA
  2. 2.University of California, San Francisco (UCSF) Benioff Children’s Hospital, Pediatric NephrologySan FranciscoUSA
  3. 3.Pacific Graduate School of Psychology (PGSP)/Stanford PsyD ConsortiumPalo Alto UniversityPalo AltoUSA

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