Advertisement

Healthcare Social Media for Consumer Informatics

  • Mandi Bishop
Chapter

Abstract

Social media is any online resource with content that is designed to facilitate engagement between individuals, and consumer informatics began when websites and online social networks started to provide access to information and expert analysis that once took much longer to reach the public. Almost 9 out of 10 adults in the USA use at least one online social network, across age groups, genders, races, geographies, and income levels and across roles such as patients and caregivers, consumers, healthcare providers, insurers, and other user types. The networks and platforms profiled in this chapter—Facebook, Twitter, Blogs, YouTube and vLogs, Yelp and local business review sites, and community websites and networks—have accelerated the democratization of healthcare by enabling people to take a much more active and informed role in managing their own health and healthcare. This chapter describes the history of social media, profiles the interests and information needs of a variety of user groups, and points to future directions for online platforms and tools to continue to change the culture of healthcare organizations by empowering consumers in their own health and healthcare experiences.

Keywords

Consumer-centered Crowd-sourcing Democratization of healthcare Digital natives Facebook Hashtags Internet Patient-centered Social media Social networks Twitter vLogs 

References

  1. Aslam, S. (2017, January 24). Twitter by the numbers: Stats, demographics & fun facts. Retrieved from Omnicore: https://www.omnicoreagency.com/twitter-statistics/
  2. Boodman, E. (2017, January 7). Doctor’s anti-vaccine claims ignite PR firestorm for Cleveland Clinic. Retrieved from STAT News: https://www.statnews.com/2017/01/07/anti-vaccine-claims-cleveland-clinic/
  3. Cisco. (2016, June 1). White paper: Cisco VNI forecast and methodology, 2015–2020. Retrieved from Cisco Solutions White Papers: http://www.cisco.com/c/en/us/solutions/collateral/service-provider/visual-networking-index-vni/complete-white-paper-c11-481360.html
  4. Cleveland Clinic. (2013, February 27). Empathy: The human connection to patient care. Retrieved from Cleveland Clinic: YouTube Channel: https://www.youtube.com/watch?v=cDDWvj_q-o8
  5. comScore. (2017, January). comScore Insights: Video. Retrieved from comScore: http://www.comscore.com/Insights?tag=Video
  6. Constine, J. (2016, July 27). Facebook sees 2 billion searches per day, but it’s attacking Twitter not Google. Retrieved from TechCrunch: https://techcrunch.com/2016/07/27/facebook-will-make-you-talk/
  7. Damania, D. Z. (2015, October 19). EHR State of Mind | #LetDoctorsBeDoctors. Retrieved from ZDoggMD: YouTube Channel: https://www.youtube.com/watch?v=xB_tSFJsjsw
  8. Damania, D. Z. (2017). ZDogg, MD. Retrieved from ZDogg, MD: http://zdoggmd.com/
  9. deBronkhart, D. (2014, January 23). This 15-year-old absolutely nails what ‘patient centered’ is - and isn’t. Retrieved from Forbes: https://www.forbes.com/sites/epatientdave/2014/01/23/this-15-year-old-absolutely-nails-what-patient-centered-is-and-isnt/#55f2be522fa7
  10. Edwards, J. (2013, November 21). The inventor of the twitter hashtag explains why he didn’t patent it. Retrieved from Business Insider: Tech Insider: http://www.businessinsider.com/chris-messina-talks-about-inventing-the-hashtag-on-twitter-2013-11
  11. Federal Communications Commission. (2016, January 29). 2016 broadband progress report. Retrieved from FCC.gov: https://www.fcc.gov/reports-research/reports/broadband-progress-reports/2016-broadband-progress-report
  12. Fox, M. (2017, January 9). Cleveland clinic doctor fuels vaccine debate—Again. Retrieved from NBC News: Health: http://www.nbcnews.com/health/health-care/cleveland-clinic-doctor-fuels-vaccine-debate-again-n704821
  13. Frier, S. (2016, January 27). Facebook groups, with 1 billion users, charts path to add more. Retrieved from Bloomberg Technology: https://www.bloomberg.com/news/articles/2016-01-27/facebook-groups-with-1-billion-users-charts-path-to-add-more
  14. Gesenhues, A. (2015, May 13). YouTube “how to” video searches up 70%, with over 100 million hours watched in 2015. Retrieved from Search Engine Land: http://searchengineland.com/youtube-how-to-searches-up-70-yoy-with-over-100m-hours-of-how-to-videos-watched-in-2015-220773
  15. Gleason, M. (2014, January 22). I am a patient and I need to be heard- a 15 year old’s perspective on being in the hospital. Retrieved from YouTube: https://www.youtube.com/watch?v=BqFfRiyW07I
  16. Greenwood, S., Perrin A., & Duggan, M. (2016, November 11). Social media update 2016. Retrieved from Pew Research Center: http://www.pewinternet.org/2016/11/11/social-media-update-2016/
  17. Haelle, T. (2017, January 7). Cleveland clinic doctor goes full anti-vaccine. Retrieved from Forbes: http://www.sciencemag.org/news/2017/01/cleveland-clinic-will-discipline-doctor-who-wrote-antivaccination-column
  18. Hamilton, D. R. (2015, November 29). How to calm a crying baby—Dr. Robert Hamilton demonstrates “the hold”. Retrieved from YouTube: https://www.youtube.com/watch?v=j2C8MkY7Co8&feature=youtu.be
  19. Health Research Institute of PwC. (2012, April). Social media “likes” healthcare: From marketing to social business. Retrieved from Health Research Institute of PwC: http://www.pwc.com/us/en/health-industries/health-research-institute/publications/pdf/health-care-social-media-report.pdf
  20. Horrigan, J. B. (2016, September 20). Digital readiness gaps. Retrieved from Pew Research Center: http://www.pewinternet.org/2016/09/20/digital-readiness-gaps/
  21. Jayanthi, A. (2015, February 18). Consumers vs. patients: Healthcare’s biggest misunderstanding. Retrieved from Becker’s Hospital Review: http://www.beckershospitalreview.com/healthcare-information-technology/consumers-vs-patients-healthcare-s-biggest-misunderstanding.html
  22. Merholz, P. (2002). Peterme.com. https://www.peterme.com/archives/00000205.html/
  23. Miller, N. S. (2017a, May 1). Florida Blue payment glitch: What you need to know. Retrieved from Orlando Sentinel: http://www.orlandosentinel.com/health/os-florida-blue-payment-problems-20170501-story.html
  24. Miller, S. G. (2017b, January 30). Looking for Dr. Right? Check yelp. Retrieved from Live Science: http://www.livescience.com/57677-yelp-doctor-reviews.html
  25. Neides, D. D. (2017, January 6). Make 2017 the year to avoid toxins (good luck) and master your domain: Words on Wellness. Retrieved from Cleveland.com: http://www.cleveland.com/lyndhurst-south-euclid/index.ssf/2017/01/make_2017_the_year_to_avoid_to.html
  26. NetMarketshare. (2017, March). Desktop search engine market share. Retrieved from NetMarketshare: https://www.netmarketshare.com/search-engine-market-share.aspx?qprid=4&qpcustomd=0
  27. Pew Research Center for Internet and Technology. (2018). Social media fact sheet. http://www.pewinternet.org/fact-sheet/social-media/
  28. Rock Health. (2015). Digital health consumer adoption. Authored by M. Gandhi and T. Wang. https://rockhealth.com/reports/digital-health-consumer-adoption-2015/
  29. Statista. (2016, November). Most popular social network websites in the United States in November 2016, based on share of visits. Retrieved from Statista: https://www.statista.com/statistics/265773/market-share-of-the-most-popular-social-media-websites-in-the-us/
  30. Statista. (2018). Social media statistics & facts. Most popular social networks worldwide as of April 2018. https://www.statista.com/statistics/272014/global-social-networks-ranked-by-number-ofusers/ Retrieved from Statista.
  31. Symplur. (2017, April). Symplur healthcare hashtag project. Retrieved from Symplur: https://www.symplur.com/healthcare-hashtags/
  32. Tom Rosensteil, J. S. (2015, September 1). How people use Twitter in general. Retrieved from American Press Institute: https://www.americanpressinstitute.org/publications/reports/survey-research/how-people-use-twitter-in-general/
  33. US Department of Health and Human Services. (2003). The HIPAA Privacy Rule. Retrieved from HHS.gov: https://www.hhs.gov/hipaa/for-professionals/privacy/index.html?language=es
  34. US Department of Health and Human Services. (n.d.). What is PHI. Retrieved from HHS.gov: https://www.hhs.gov/answers/hipaa/what-is-phi/
  35. W3Techs. (2017, March). Usage statistics and market share of WordPress for websites. Retrieved from W3Techs: Web Technology Surveys: https://w3techs.com/technologies/details/cm-wordpress/all/all
  36. Wadman, M. (2017, January 9). Cleveland Clinic will discipline doctor who wrote antivaccination column. Retrieved from Science Magazine: http://www.sciencemag.org/news/2017/01/cleveland-clinic-will-discipline-doctor-who-wrote-antivaccination-column
  37. Wang, M. G. (2015). Digital Health Consumer Adoption: 2015. Retrieved from Rock Health: Reports: https://rockhealth.com/reports/digital-health-consumer-adoption-2015/
  38. Wei, S. (2017, March 10). ProPublica vital signs project. Retrieved from ProPublica: https://projects.propublica.org/vital-signs/
  39. Wicks, P., Vaughan, T. E., & Massagli, M. P. (2013). The multiple sclerosis rating scale, revised (MSRS-R): Development, refinement, and psychometric validation using an online community. Health Qual Life Outcomes, 10, 70.  https://doi.org/10.1186/1477-7525-10-70 CrossRefGoogle Scholar
  40. Wikipedia. (2017a, April). PatientsLikeMe on Wikipedia. Retrieved from Wikipedia: https://en.wikipedia.org/wiki/PatientsLikeMe
  41. Wikipedia. (2017b, April). Twitter on Wikipedia. Retrieved from Wikipedia: https://en.wikipedia.org/wiki/Twitter
  42. WordPress. (2017, March). A live look at activity across WordPress.com. Retrieved from WordPress: https://wordpress.com/activity/
  43. Yelp. (2017, December 31). An introduction to yelp metrics as of December 31, 2016. Retrieved from Yelp Factsheet: https://www.yelp.com/factsheet
  44. YouTube. (2018). YouTube statistics. Retrieved from YouTube Press and Statistics: https://www.youtube.com/intl/en-GB/yt/about/press/

Copyright information

© Springer Nature Switzerland AG 2019

Authors and Affiliations

  • Mandi Bishop
    • 1
  1. 1.GartnerJacksonvilleUSA

Personalised recommendations