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Child Neurology

  • Monica E. LemmonEmail author
  • Renee D. Boss
Chapter

Abstract

Conditions impacting children with neurologic disease and their families range from congenital conditions diagnosed in the fetal period to acute brain injury in otherwise healthy teenagers. This chapter focuses on those conditions that may not have an adult correlate and provides an overview of how clinicians can provide a palliative approach towards their care of children with neurologic disease. Specific elements of palliative care are discussed, including estimating prognosis and communicating prognostic uncertainty, managing both pain and non-pain symptoms, providing targeted support for families and caregivers, and addressing the unique end of life care needs of pediatric neurology patients and their families. This chapter concludes by assessing current gaps in knowledge and training, and proposes an agenda for future research.

Keywords

Fetal Congenital Pediatric Family Prognostic uncertainty Shared decision making 

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Copyright information

© Springer International Publishing AG, part of Springer Nature 2019

Authors and Affiliations

  1. 1.Division of Pediatric Neurology and Developmental MedicineDuke University School of MedicineDurhamUSA
  2. 2.Department of PediatricsJohns Hopkins School of MedicineBaltimoreUSA

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