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Support of Teenagers and Young Adults with Cancer

  • Marion Lucas
  • Loïc DagorneEmail author
Chapter
Part of the Principles of Specialty Nursing book series (PSN)

Abstract

Teenagers and young adults (TYA) with cancer (TYAC) are a unique population among people with cancer. Their medical specificities and complex psychological and social needs between the pediatric and adult world are challenges for the carers, from the diagnosis to the posttreatment period. TYAC care units and national multidisciplinary TYAC programs have been developed in the last three decades in several countries, helped by an active collaboration between pediatric and “adult” hematology/oncology teams. Their main mission is to take into account all this complexity to better tailor the medical and psychosocial care to the disease, the treatments, and the specific TYA needs, with the help of several professionals specialized in TYA care (pediatric and medical hematologists/oncologists, facilitators, psychologists, social workers, and coordinating nurses). The role of the coordinating nurses is central both in the TYAC team and for the young people. TYAC coordinating nurses coordinate the patient pathway of care from the diagnosis, all along and beyond the treatments, helping TYAC to understand the disease and its consequences, answering their questions about treatment and everyday life, and accompanying and empowering them to help them be young people. Therapeutic education is an interesting tool to achieve these goals. Single or collective workshops have been built around various themes of specific interests for TYA to help them deal with cancer during this transition period of adolescence and young adulthood (physical changes, relationships, education/work, etc.). Building this kind of therapeutic educational program is a collaborative work with coordinating nurses, different professionals, and TYA themselves. Such active collaboration between adult and pediatric nurses is still needed and could be the starting point of new nursing researches.

Keywords

Teenager Young adult Multidisciplinary team Coordinating nurse Empowerment Therapeutic education 

References

  1. 1.
    National Cancer Institute. Closing the gap: research and care imperatives for adolescents and young adults with cancer: report of the Adolescent and Young Adult Oncology Progress Review Group. Bethesda: National Cancer Institute; 2006.Google Scholar
  2. 2.
    National Institute for Health Clinical Excellence. Improving outcomes guidance in children and young people with cancer. London: NICE; 2005.Google Scholar
  3. 3.
    Gatta G, Zigon G, Capocaccia R, Coebergh JW, Desandes E, Kaatsch P, et al. Survival of European children and young adults with cancer diagnosed 1995–2002. Eur J Cancer. 2009;45(6):992–1005.CrossRefGoogle Scholar
  4. 4.
    Remschmidt H. Psychosocial milestones in normal puberty and adolescence. Horm Res. 1994;41(Suppl 2):19–29.CrossRefGoogle Scholar
  5. 5.
    Morgan S, Soanes L. Nursing young people with cancer: what is « different » about it? Bulletin du Cancer. 2016;103(12):999–1010.CrossRefGoogle Scholar
  6. 6.
    Mayor S. Teenagers and young adults with cancer-addressing the most important care needs. CancerWorld. 2015;(66):33–8.Google Scholar
  7. 7.
  8. 8.
    Stark D, Bielack S, Brugieres L, Dirksen U, Duarte X, Dunn S, et al. Teenagers and young adults with cancer in Europe: from national programmes to a European integrated coordinated project. Eur J Cancer Care. 2016;25(3):419–27.CrossRefGoogle Scholar
  9. 9.
  10. 10.
  11. 11.
  12. 12.
    Roesler C, Pautre I, Thirry D, Flores S, Chabbert C, Savre N, et al. Quelles spécificités de sociabilisation, sociales, scolaires et professionnelles pour les adolescents et jeunes adultes atteints de cancer ? Bulletin du Cancer. 2016;103(12):979–89.CrossRefGoogle Scholar
  13. 13.
    Rollin Z, Riff A, Lizée A, Thirry D, Riberon C, Dugas K, et al. État des lieux de l’insertion scolaire et professionnelle des adolescents et jeunes adultes (15–24ans) atteints de cancer. Revue d’Oncologie Hématologie Pédiatrique. 2015;3(2):88–98.CrossRefGoogle Scholar
  14. 14.
    Dagorne L, Bruckner T, Gaudry B, Dumont S, Gaspar N. La coordination infirmière des adolescents et jeunes adultes en cancérologie. Soins Pédiatrie/Puériculture. 2016;37(292):44–7.CrossRefGoogle Scholar
  15. 15.
    Méar L, Benard L, Calandreau M, Desille L, Ambroise I, Lohezic S, et al. Le réseau d’Île-de-France d’hématologie et d’oncologie pédiatrique (RIFHOP): une structure au service des enfants et des professionnels de santé. Revue d’Oncologie Hématologie Pédiatrique. 2016;4(1):54–64.CrossRefGoogle Scholar
  16. 16.
    World Health Organisation Regional Office for Europe. Therapeutic Patient Education. Continuing education programmes for healthcare providers in the field of prevention of chronic diseases. Report of a WHO working group. Copenhagen: WHO/EURO; 1998.Google Scholar
  17. 17.
    Haute Autorité de Santé, Institut National de Prévention et d’Education pour la Santé. Guide méthodologique. Structuration d’un programme d’éducation thérapeutique du patient dans le champ des maladies chroniques. France: HAS et IMPES; 2007.Google Scholar
  18. 18.
    Corradini N, Dagorne L, Retailleau M, Rédini F, Sudour-Bonnange H, Gofti-Laroche L, et al. Quelle démarche d’éducation thérapeutique (ETP) pour les adolescents et jeunes adultes atteints de cancer ? Expérience du groupe ETP de « Go-AJA ». Bulletin du Cancer. 2016;103(12):966–78.CrossRefGoogle Scholar

Copyright information

© Springer Nature Switzerland AG 2019

Authors and Affiliations

  1. 1.Department of Oncology for Child and Adolescent with Cancer and Young Adult Transversal SPIAJA TeamGustave RoussyVillejuifFrance
  2. 2.Réseau Ile-de-France d’Hématologie Oncologie Pédiatrique (RIFHOP)ParisFrance

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