Living in a Rural Community and Researching HIV and AIDS: Positionality and Ethics
The emotional impact of researching sensitive topics is under-reported. This chapter explores researcher positionality in a study of people’s management of risk in sexual activity where there is a high prevalence of HIV infection. Living in a rural community raised insider/outsider issues as the researchers participated in broader social life, adding relational and emotional dimensions to the process. Exploring the sensitive topic of HIV and AIDS in a resource-constrained context led to blurred boundaries as researchers also became confidante, counsellor or development worker. They were challenged by the emotional intensity of the research and related responsibilities, illustrating the need for enhanced ethical awareness that could not be pre-determined and highlighting the need for ongoing risk assessment for both participants and researchers.
We appreciate the commitment of the community members, without whom this work would not have been possible. We are grateful for the support of funding by the National Research Foundation (NRF)-Thuthuka mechanism which enabled many of the costs of this research to be covered.
- Cloete, A., Strebel, A., Simbayi, L., van Wyk, B., Henda, N., & Nqeketa, A. (2010). Challenges faced by people living with HIV/AIDS in Cape Town, South Africa: Issues for group risk reduction interventions. AIDS Research and Treatment, 420270. https://doi.org/10.1155/2010/420270
- Ellen, R. F. (1984). Ethnographic research: A guide to general conduct. London: Academic Press.Google Scholar
- Emanuel, E. J., Wendler, D., & Grady, C. (2008). An ethical framework for biomedical research. In E. J. Emanuel, C. Grady, R. A. Crouch, R. K. Lie, F. G. Miller, & D. Wendler (Eds.), The oxford textbook of clinical research ethics (pp. 123–135). New York: Oxford University Press.Google Scholar
- Jama, N. (2016). Naming and labelling HIV and AIDS in a rural setting in the Eastern Cape. Unpublished Master’s thesis, University of KwaZulu-Natal, South Africa.Google Scholar
- Mqedlana, N. (2016). Dealing with a positive HIV diagnosis: A qualitative study exploring the lives of five people living with HIV in a rural Eastern Cape setting. Unpublished Master’s thesis, University of KwaZulu-Natal, South Africa.Google Scholar
- Råheim, M., Magnussen, L. H., Sekse, R. J. T., Lunde, A., Jacobsen, T., & Blystad, A. (2016). Researcher-researched relationship in qualitative research: Shifts in positions and researcher vulnerability. International Journal of Qualitative Studies in Health and Well-being. https://doi.org/10.3402/qhw.v11.30996
- Shisana, O., Rehle, T., Simbayi, L. C., Zuma, K., Jooste, S., Zungu, N., et al. (2014). South African national HIV prevalence, incidence and behaviour survey, 2012. Cape Town: HSRC Press.Google Scholar
- Spradley, J. C. (1980). Participant observation. New York: Holt, Reinhart & Winston.Google Scholar
- StatsSA. (2011). Census 2011 statistical release. Retrieved December 13, 2016, from http://www.statssa.gov.za/publications/P03014/P030142011.pdf
- Wassenaar, D., & Mamotte, N. (2012). Ethical issues and ethics review in social science research. In A. Ferrero, Y. Korkut, M. M. Leach, G. Lindsay, & M. J. Stevens (Eds.), The Oxford handbook of international psychological ethics (pp. 268–282). New York and Oxford: Oxford University Press.Google Scholar